CROWNWeb will hold New User Training July 10, 2018. For details and registration see http://mycrownweb.org/pcw_lems/july-crownweb-new-user-training-2018/.
The Renal Support Network has published an audio presentation titled Living the Fullest Life Possible with Kidney Disease – Part One, featuring long-time Northwest dialysis patient and activist Bill Peckham sharing tips on getting the most out of life despite being on dialysis for twenty eight years. For example, Bill once took his portable dialysis machine with him down the Grand Canyon! Find that story at http://www.dciinc.org/newsroom/a-dialysis-patients-tale-rafting-the-grand-canyon/, and find Part One of the RSN audio at https://www.rsnhope.org/kidneytalk/living-the-fullest-life-possible-with-kidney-disease-part-one/.
Dialysis Patient Citizens will present a June 28, 2018 audio conference on Understanding and Managing Chronic Pain. RSVP for full details at http://www.dpcedcenter.org/. You can also login directly at http://www.dpcedcenter.org/education-call shortly before 11am PDT on June 28, or call 877-399-5186 and enter code 433 459 5474.
The June 28, 2018 CROWNWeb Town Hall, titled A Look into the Future, will include review of the CMS assessment of ESRD Quality Goals, and discussion of and screenshots of EQRS 2.0, which will combine CROWNWeb, the ESRD QIP, and REMIS. For full details and registration, see http://mycrownweb.org/pcw_community_events/crownweb-town-hall-event-a-look-into-the-future/.
Home Dialysis Central has published a summary of “organ stunning,” where dialysis removes too much water, or removes it too quickly, and your internal organs are shocked. This can damage your organs, and the damage may be cumulative. The HDC article covers the causes and processes of organ stunning, and most important, describes how you can avoid it. Find the article at https://homedialysis.org/life-at-home/articles/organ-stunning-on-hemodialysis-what-is-it-and-what-can-you-do.
The FDA has announced the recall of one lot, 1060 cases (4240 bottles), of NaturaLyte Liquid Acid Concentrate for Bicarbonate Dialysis, 3.43 Liter, lot code 18CXAC095, because it is mislabeled with an incorrect part number. For details see https://www.accessdata.fda.gov/scripts/ires/index.cfm?Product=164557.
The Portland Kidney Group has published the poster for their August 26, 2018 NKF-PKG Kidney Wellness Fair & Community Picnic in Portland; RSVP by August 20. They’ve also updated their 2018 calendar to include two new patient support groups, September 5, 2018 in Tigard OR, and October 3 in Clackamas OR, in addition to their November 11 Ninth Anniversary Holiday Gathering in Portland. Find the revised calendar at https://s3-us-west-2.amazonaws.com/nwrn.org/files/P/PKG/PKGcal2018.pdf, and the new poster for the August 26 Fair and Picnic at https://s3-us-west-2.amazonaws.com/nwrn.org/files/P/PKG/PKGpic2018.pdf. They don’t mention the August 20, 2018 RSVP-by date on the poster, but they have in earlier announcements, so to play it safe you may want to call in before August 20.