The agenda, registration instructions, location, and other important information for the September 21, 2014 ANNA Chapter 503 Certification Review Course in Seattle can be found at http://www.nwrenalnetwork.org/N/2014A503Cert.pdf. Topics include CKD, PD, HD, transplant, medications, and water safety. Lunch and continental breakfast will be provided.
Because exercise and fitness have been linked to transplant outcomes, the University of Utah Department of Physical Therapy is conducting a research survey on exercise and physical activity after transplant. AAKP, NKF, and a number of other organizations have invited their members to participate, but any transplant recipient is eligible. For more information, see https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=AUQ5K3xRh5.
The next AAKP HealthLine conference call for patients will be held on August 13, 2014. The call will explain what ESRD Networks do and how you can get involved to improve quality of life for dialysis patients and transplant recipients. For details on the August 13 call, see https://www.aakp.org/community/programs-events/aakp-healthline.html. For recording of earlier HealthLine calls, see https://www.aakp.org/media-files/aakp-healthline.html.
We have a tentative agenda for the October 2-3, 2014 Northwest Renal Network Annual Provider Meeting near Seattle. Topics include minimizing risk in dialysis, fluid dynamics vs. adequacy, heathcare acquired infections, patient engagement, effective communication, healthcare integration, palliative care, home dialysis, and a Network update. Our Save-the-Date announcement gives more information on where and when; see https://nwrnbulletins.wordpress.com/2014/04/30/network-annual-meeting-102-3/. Contact the Network for registration information.
AAKP has updated their booklets on Understanding Your Hemodialysis Options and Understanding Your Hemodialysis Access Options. We’ve updated the links in our Patient Education Materials page accordingly; see http://www.nwrenalnetwork.org/P/PtEdMaterials.pdf.
August 1-7, 2014 is National Minority Donor Awareness Week. Fifty-seven percent of organ wait-list patients are minorities, while last year only 40% of transplant recipients were minorities. http://www.organdonor.gov/awarenessweek/awarenessweek.html contains links to donor organization and events, summary statistics on minority donation, and useful resources.
Clinical data for April, May, and June must be submitted into CROWNWeb by July 31, 2014. For details, including a video on locating patients with missing clinical data and patients with saved but not submitted clinical data, see http://projectcrownweb.org/finding-patients-with-missing-or-saved-clinical-data/.
The Department of Commerce National Institute of Standards and Technology and the HHS Office of Civil Rights will co-sponsor a conference on Safeguarding Health Information: Building Assurance through HIPAA Security September 23-24, 2014 in Washington DC. The conference may be attended either in person or by webcast. For details see http://www.nist.gov/itl/csd/safeguarding-health-information-building-assurance-through-hipaa-security-2014.cfm.
The ESRD Network Coordinating Council has added videos to their “Navigating the ESRD Journey” web page. The videos are on Safety in the Dialysis Facility, Patient Empowerment Is Open Communication, and a new patient’s story in their own words. The page also includes new-patient resources on Patient Rights and Responsibilities, Hemodialysis Vascular Access, Checklists on Hemodialysis and Emergency Planning, and an Emergency Planning Contact Card. Find the page at http://www.esrdncc.org/index/navigating-esrd-blocks#pv.
The American Association of Kidney Patients has released a version of their Nutrition Counter (https://www.aakp.org/education/brochures/item/aakp-nutrition-counter-a-reference-for-the-kidney-patient.html) as an app for Android phones. Find full details at https://www.aakp.org/media-files/press-releases-media/item/nutrition-app.html.