The Kidney Community Emergency Response Coalition has published a list of useful resources for patients and others dealing with the wildfires in California. The list includes links or contact information for KCER, Network 18, Cal Fire, the LA Fire Department, each dialysis provider, several Helplines and hotlines, Rx Open to locate operating pharmacies, the power companies, the California Emergency Operations Center, and a wildfire resource compendium from the HHS Healthcare Emergency Preparedness Information Gateway ASPR TRACIE. Find the list at https://kcercoalition.com/en/california-fires/.
CDC will present an October 23, 2019 webinar on Overcoming Message Resistance. During public safety emergencies, community leaders and emergency responders share advice that they believe will help reduce harm and save lives. People often receive and understand these messages but don’t take the “recommended” actions. The industry jargon for this is “message resistance.” While the webinar is about emergency communication, is message resistance really any different from the instruction given to patients every day by doctors and nurses, who refer to this tendency as non-adherence, nee noncompliance? This webinar uses communication science, behavioral science, and the experience of emergency responders to share best practices for overcoming message resistance. Find more information and register at https://emergency.cdc.gov/epic/learn/webinar_20191023.asp.
Winter is arriving early in some Network 16 locations, and CMS requires all ESRD Networks to track the status of facility operations, and patient access to treatment, during emergency events at all facilities. If the operations of your facility, or ability for patients to have access to dialysis, are impacted by emergency events, please let your Network know right away.
- For Washington, Oregon, Idaho, Montana, and Alaska (Network 16), contact Lisa Hall at 206-923-0714, or by email at LHall@nw16.esrd.net. We also ask that you fill out and submit the Network Disaster Reporting Form at http://www.esrdnetwork18.org/machform/view.php?id=44393 (Network 18 will forward it back to Network 16).
- In Southern and South-Central California (Network 18), contact Eileen Rhodes or Anabel Galindo-Guerrero at 888-268-1539 or by email at ERhodes@nw18.esrd.net or firstname.lastname@example.org, and fill out the form at http://www.esrdnetwork18.org/machform/embed.php?id=16298.
You are reminded never to put PHI or PII in an email or online form. Examples include patient name or initials, birthdate, SSN, and other identifying information.
The CNSW OR-SW WA Chapter will host a half-day Fall Clinical Nephrology Social Work Meeting on November 6, 2019 in Portland OR. Speakers will present on disability rights, the Senior Loneliness Line, and the 2-1-1 Helpline. There will be no CEUs offered for this meeting, but lunch is included, the speakers are excellent, and the networking opportunity is priceless. Find details, agenda, and registration information at https://s3-us-west-2.amazonaws.com/nwrn.org/files/CNSW/CNSW1119.pdf.
September is National Preparedness Month, and CDC is offering a September 25, 2019 webinar on it; see https://emergency.cdc.gov/epic/learn/webinar_20190925.asp.
CDC has announced an August 21, 2019 EPIC (Emergency Partners Information Connection) webinar on Disasters—Keeping Volunteers, Workers, and Responders Safe. Find a link to that and to previous EPIC webinars and conference calls at https://emergency.cdc.gov/epic/learn/index.asp?deliveryName=DM6767.
This month’s CROWNWeb New User training will take place online on July 10, 2019. For details and registration see http://mycrownweb.org/pcw_lems/july-2019-new-user-training/.
The July CROWNWeb Newsletter is also now available, at http://mycrownweb.org/2019/07/july-2019-newsletter/. This issue focuses on KCER, the Kidney Community Emergency Response Coalition, and includes a Checklist for keeping all patient information up to date during an emergency, along with the usual handy list of links and other timely information.
The next CROWNWeb Town Hall will be held July 25, 2019. For more information and to register, see http://mycrownweb.org/events/. Transcripts and recordings of previous CROWNWeb Town Halls are also available at this link.