3/5+ NWRD 2020 Vision Registration Open

Starting January 15, 2020, registration is open for the March 5-6, 2020 NWRD Conference, 2020 Vision.  You’ll pay more if you wait to register till after February 15, 2020.  The Conference will be held in Tacoma WA, and will feature 15 CPEUs, visionary speakers, Happy Hour Exhibits, the “Pillar of Excellence” awards presentation, and a special 40th Anniversary Networking Event at Tacoma’s internationally famous Museum of Glass.  Find everything you need to know at:

Home Dialysis Patient Stories

Two posts on home dialysis from the Medical Education Institute’s Home Dialysis Central blog:

A patient tells his story about Facing and Overcoming Needle Fear to Dialyize at Home, at https://homedialysis.org/news-and-research/blog/331-facing-and-overcoming-needle-fear-to-dialyze-at-home.

A second patient compares his experience with both peritoneal dialysis and home hemodialysis, at https://homedialysis.org/news-and-research/blog/335-pd-vs-home-hemo-initial-impressions.

11/21 DPC Webinar on Treatment Options

Dialysis Patient Citizens will present a November 21, 2019 webinar on Treatments and Modality Options for Kidney Disease.  For details see below, and register at https://www.dpcedcenter.org/news-events/education-webinars/signup/.

Fire Weather Preemptive Power Outages

As an example of new regulations that allow utilities to preemptively shut off power to areas with high temperatures, low humidity, and high winds, Southern California Edison has announced that it may shut off power to parts of the Coachella Valley later this week (July 2-4, 2019); see https://www.sce.com/outage-center/major-outages.  Different regulations apply to different areas, depending on perceived risk, as defined by the California Public Utilities Commission.  You can find a good summary of these issues, including a map of the areas most likely to be impacted, at https://microgridnews.com/california-utilities-plan-power-shutoffs-to-avoid-2019-wildfires/.  While these issues currently apply to California, they may soon also apply to Network 16 states.

Dialysis facilities are already required to be prepared for power outages, though many facilities share backup equipment because outages have been more local in the past.  Facilities will want to review their backup power plans to include preemptive outages and consider whether sharing backup power equipment is still practical when all nearby facilities have also gone dark.  Dialysis facilities with patients on home dialysis modalities, particularly home hemodialysis, will want to assure that all of their patients have access to adequate dialysis even if power is out for a week or more, which could occur if hot, dry, windy weather persists in an area.  Facilities will also want to assure that their home patients are well trained in how to respond to preemptive outages.  The occurrence of preemptive outages is intended to be announced by utilities in advance, but if weather changes rapidly, or individuals are difficult to locate, it may not be possible to notify everyone before the fact, so facilities may want to develop their own phone trees or other strategies, being mindful of HIPAA.

Since dialysis is not the only situation where patients and facilities are vulnerable to preemptive power outages, it may be helpful to coordinate with your county or regional Healthcare Coalition; see https://www.kcercoalition.com/en/resources/professional-resources/cms-emergency-preparedness-rule/state-healthcare-coalitions-list/california-healthcare-coalitions/ for contact information, or check with your county Health Department (Tulare, King, Kern, Orange, and Riverside Counties are absent from the KCER list).  CMS requires all facilities to report to their Network any lapse in the ability of patients to have access to dialysis because of emergency events; for details see https://nwrnbulletins.wordpress.com/2019/06/04/notify-network-of-emergencies/.

A few resources that may be useful for facilities and patients in this context:

ANNA Fact Sheets on PD, AKI

The ANNA Special Practice Networks have published a series of several-page Fact Sheets on a number of topics: