The Coalition for Compassionate Care of California will hold it’s first free COVID Conversations and Patient-Centered Care webinar April 8, 2020, on the subject of Medical Decision Making In The Face Of Serious Illness. Judy Thomas, JD, CEO of CCCC and Karl Steinberg, MD, Medical Director of Hospice by the Sea, will present, and explain the importance of conversations with patients on advance care planning and POLST in the context of the COVID-19 crisis. Find more information and register at https://mailchi.mp/coalitionccc.org/no-one-should-die-alone-on-the-street-745848. CCCC also provides a COVID Conversations Toolbox at https://coalitionccc.org/covid-conversations-toolbox/, with conversation tools, forms and resources on advance directives and POLST, and links to COVID-19 resources and news updates. They also have a blog post on The Vital Importance of Advance Care Planning Amid COVID-19, wherein Ms. Thomas explains the difference between POLST and Advance Directives, and recommends specific actions. Find that at https://coalitionccc.org/2020/04/covid-19-conversation-toolkit/. They imply that this is the first of many, but they don’t specify how many or how often.
The Coalition for Compassionate Care of California and the Children’s Hospice & Palliative Care Coalition will host their 2020 Annual Summit 5-6 May, 2020 in Sacramento, under the theme of Sharpening our Vision for Compassionate Care in the Face of Serious Illness. Continuing education credits are available for nurses, social workers, physicians, pharmacists, chaplains, and nursing home administrators. Summit timelines include:
The Coalition for Supportive Care of Kidney Patients will present a 15 November 2018 webinar on Mapping the Future: Implementation Strategies for Kidney Supportive Care. This is the first in a series of webinars that parallels a series of Nephrology News & Issues articles on “supportive care” for kidney patients that will begin in the November 2018 issue. Direct any questions you have to Kelly Brooks at firstname.lastname@example.org or 804-320-0004 x2706
The Coalition for Supportive Care is an evolution of the earlier Kidney End-of-Life Coalition. Their mission is to “Promote effective interchange among patients, families, healthcare professionals, and payers to ensure the provision of patient-centered supportive care for patients with kidney disease. Supportive care is the continuum of palliative care and includes providing patients with relief from the symptoms, pain, and stress of a serious illness. The goal of the Coalition is to improve the quality of life for both patients and families from the time of diagnosis through to end-of-life care.” Find out more about the Coalition for Supportive Care at https://kidneysupportivecare.org/Home.aspx.
The Coalition for Compassionate Care of California will host two more presentations this year in their Pediatric Webinar Series. The first will be 13 November on Getting a Better Handle on Parents’ Bereavement: Supporting Parents Anticipating Their Child’s Death and Afterwards, and the second 6 December on Deep in the Weeds: Medical Marijuana and Pediatric Palliative Care. Find out more and register at https://mailchi.mp/coalitionccc.org/2018-spring-education-schedule-744635?e=67e1ad4c31.
Along with the Children’s Hospice Palliative Care Coalition, CCCC will also co-sponsor the 2019 Palliative Care Summit April 8-9, 2019 in San Francisco. For more information see http://ccccsummit.org/. Registration gets progressively more expensive after January 31, March 7, and April 1, 2019.
“ASPR TRACIE” (the HHS Assistant Secretary for Preparedness and Response Technical Resources, Assistance Center, and Information Exchange Healthcare Emergency Preparedness Information Gateway) has announced a free online training course on the new CMS Emergency Preparedness Rule. The course has separate versions for Providers and Surveyors: