NW16 11/26 Recruiting Patient Advisory Committee Volunteers

ESRD Network 16 is recruiting for new volunteers to serve on our Patient Advisory Committee (PAC).  PAC members:

  • Advise on Network education and outreach
  • Assist with Network Quality Improvement Activity design and interventions
  • Meet with Medicare (CMS) on conference calls to provide feedback from a patient perspective

Most PAC activities are conducted by phone call and email, though there are occasional opportunities for in person meetings.  Any travel to in-person meetings will be funded by the Network.

Please share the Informational Flyer at https://s3-us-west-2.amazonaws.com/nwrn.org/files/PAC/Nw16PACFlyer1118.pdf, and the Application form at https://s3-us-west-2.amazonaws.com/nwrn.org/files/PAC/Nw16PACForm1118.pdf, with patients and care partners in Alaska, Idaho, Montana, Oregon, and Washington that might be interested.  Application forms are due to the Network by November 26, 2018.

11/15 Webinar on Supportive Care

The Coalition for Supportive Care of Kidney Patients will present a 15 November 2018 webinar on Mapping the Future: Implementation Strategies for Kidney Supportive Care.  This is the first in a series of webinars that parallels a series of Nephrology News & Issues articles on “supportive care” for kidney patients that will begin in the November 2018 issue.  Direct any questions you have to Kelly Brooks at kbrooks@nw5.esrd.net or 804-320-0004 x2706

Register for the webinar at https://qualitynet.webex.com/mw3300/mywebex/default.do?nomenu=true&siteurl=qualitynet&service=6&rnd=0.9781770900950815&main_url=https%3A%2F%2Fqualitynet.webex.com%2Fec3300%2Feventcenter%2Fevent%2FeventAction.do%3FtheAction%3Ddetail%26%26%26EMK%3D4832534b00000004cb0a9a58476d6bd293b5a9f17210c9e047618e1f532c1a7922440c6f4b391fed%26siteurl%3Dqualitynet%26confViewID%3D107244241343796963%26encryptTicket%3DSDJTSwAAAATkodchRe-HYk3NR3hmhP3ljworAPoym4g8yOkYBUMOqg2%26.

Current plans include future webinars in the series on Providing Supportive Care: Tools & Resources for the Journey in December and Best Case/Worst Case and Older Patients in January.  Once they are scheduled, you can register for these webinars at https://qualitynet.webex.com/mw3300/mywebex/default.do?siteurl=qualitynet&service=6.

The Coalition for Supportive Care is an evolution of the earlier Kidney End-of-Life Coalition.  Their mission is to “Promote effective interchange among patients, families, healthcare professionals, and payers to ensure the provision of patient-centered supportive care for patients with kidney disease.  Supportive care is the continuum of palliative care and includes providing patients with relief from the symptoms, pain, and stress of a serious illness.  The goal of the Coalition is to improve the quality of life for both patients and families from the time of diagnosis through to end-of-life care.”  Find out more about the Coalition for Supportive Care at https://kidneysupportivecare.org/Home.aspx.

Relationship-Centered Care

The Kansas City Network has added two new one-page healthcare communication tools to their Heartland Huddle: Huddle Up to Improve Communication series.  The new entries are on Relationship-Centered Care, which focuses on the patient, but emphasizes the importance of mutual relationships between the care team, the patient, their family, the dialysis organization, and the community.  Earlier tools in the series include Active Listening, Body Language, Emotional Awareness, Respect, Shared Decision Making, and Coaching.  Find the entire series at http://heartlandkidney.org/providers/quality-improvement/qi-resources/heartland-huddle/.

NW16 10/1+ Quality Conference Agenda

Registration without late fee for the October 11, 2018 Network 16 Annual Quality Conference near the Seattle airport ends September 30, 2018.  On October 1 and later, registration is $25 higher.  If you’ve already registered but you’re no longer able to attend, your right to a refund also expires on September 30.

The agenda includes sessions on Innovation in Dialysis, Person-Centered Care, Home Dialysis, Disaster Preparedness, Transplants, and Mentoring.  The Conference fee includes 6 CEs for nurses, social workers, techs, and dietitians, plus continental breakfast, refreshments, and lunch.  Find the Agenda at https://s3-us-west-2.amazonaws.com/nwrn.org/files/QC2018/2018QCAgenda.pdf, and register at http://events.r20.constantcontact.com/register/event?oeidk=a07efe2a3np27c59239&llr=hakkwkrab.

8/14+ NCC QIA Webinars

The ESRD National Coordinating Center will present three additional August QIA Learning and Action Network webinars:

The ESRD NCC calendar is kept at https://esrdncc.org/en/events/.

HDC Fluid Restriction Calculator

Home Dialysis Central has published a Dialysis Fluid Restriction Calculator to answer the question, “How much can I drink between dialysis sessions?” individualized for each patient.  For the Calculator and discussion, see https://homedialysis.org/news-and-research/blog/265-a-new-dialysis-fluid-restriction-calculator.

NW18 7/16 Quality Conference in LA

HealthInsight ESRD Network 18 will hold their 2018 Quality Conference July 16, 2018 in Los Angeles. Topics will include preserving renal function, emergency preparedness, cultural awareness and sensitivity, patient engagement and advocacy, the impact of dialysis, and CROWNWeb.  Five CEs will be provided.  Find details and register at http://www.esrdnetwork18.org/ or http://events.r20.constantcontact.com/register/event?oeidk=a07efdferr9f760399d&llr=gfuz7mxab.