6/26 PFCCpartners Webinar on Patient Engagement

Patient and Family Centered Care Partners will present a June 26, 2020 webinar on Co-Designing Through The Crisis At The Sharp End.  It will feature description of a state-wide patient engagement process set up by the Connecticut Hospital Association that involved patient and family representatives in the design of healthcare down to the bedside level, using QI processes we know well, such as rapid-cycle trials of potential improvements and state-wide spread of successes.  Find more details and register at https://pfccpartners.com/workshops/.  You’ll also find a link to archived PFCCpartners webinars there.

5/22+ PFCC Webinar re Patient-Family Engagement

Patient & Family Centered Care Partners will present a May 22, 2020 online workshop on Patient Family Engagement During a Pandemic, highlighting the many benefits of engaging Patient Family Advisors into a pandemic response.  Find more information at https://pfccpartners.com/workshops/.  PFCCpartners holds these workshops monthly.  Find archived earlier workshops at https://pfccpartners.com/partner-resources/archived-webinars/.  Register for the May 22 or future workshops at https://zoom.us/meeting/register/vpMvdOuvrT4qECsYLu5hKn598qN_8vs_Yg.

5/26+ CMS Shareholder Engagement Calls

CMS is hosting weekly Stakeholder Engagement sessions to share information related to the agency’s response to COVID-19.  These sessions are open to the healthcare community and provide updates, share best practices, and offer attendees an opportunity to ask questions of CMS and other subject matter experts.  Conference lines are limited so we encourage you to join via audio webcast on your computer or smartphone web browser.  You are welcome to share this invitation with your colleagues and professional networks, but these calls are not intended for the press.  Call recordings and transcripts are posted on the CMS podcast page at: https://www.cms.gov/Outreach-and-Education/Outreach/OpenDoorForums/PodcastAndTranscripts.

Targeted Updates for Dialysis Organizations on the agency’s latest COVID-19 guidance, also featuring leaders in the field sharing best practices, with an opportunity to ask questions if time allows.  Wednesday May 27, 2020, 2:30-3:00 pm PDT, toll-free 833-614-0820, passcode 6152699, audio webcast link https://engage.vevent.com/index.jsp?eid=5779&seid=2123#/main/simplify.

COVID-19 Office Hours Calls are an opportunity for providers to ask questions of CMS officials about temporary actions that allow increased capacity, expanded workforce, patient priority, and telehealth.  Tuesday May 26, 2020, 2-3pm PDT, toll-free 833-614-0820, passcode 8977438, audio webcast link https://engage.vevent.com/index.jsp?eid=5779&seid=2012#/main/simplify.

Lessons from the Front Lines with representatives from CMS, FDA, and the Coronavirus Task Force, along with front-line clinicians.  Friday May 29, 2020, 9:30-11:00 am PDT,  toll-free 877-251-0301, passcode 6350189, audio webcast link https://engage.vevent.com/index.jsp?eid=5779&seid=2075#/main/simplify.

5/21+ CCCC COVID Conversations Webinars

The Coalition for Compassionate Care of California will hold it’s next free COVID Conversations and Patient-Centered Care webinar May 21, 2020, on the subject of CCCC Decision Aids, Ventilators, CPR, Transfers, And Comfort Care.  Find details and register at https://mailchi.mp/coalitionccc.org/no-one-should-die-alone-on-the-street-746012?e=67e1ad4c31.

Upcoming weekly sessions will be announced at https://coalitionccc.org/covid-conversations-education/, and recordings of earlier sessions can be found there.  CCCC also provides a COVID Conversations Toolbox at https://coalitionccc.org/covid-conversations-toolbox/, with conversation tools, forms and resources on advance directives and POLST, and links to COVID-19 resources and news updates.  They also have a blog post on The Vital Importance of Advance Care Planning Amid COVID-19, which explains the difference between POLST and Advance Directives, and recommends specific actions.  Find that at https://coalitionccc.org/2020/04/covid-19-conversation-toolkit/.

4/8+ CCCC COVID Conversations

The Coalition for Compassionate Care of California will hold it’s first free COVID Conversations and Patient-Centered Care webinar April 8, 2020, on the subject of Medical Decision Making In The Face Of Serious Illness.  Judy Thomas, JD, CEO of CCCC and Karl Steinberg, MD, Medical Director of Hospice by the Sea, will present, and explain the importance of conversations with patients on advance care planning and POLST in the context of the COVID-19 crisis.  Find more information and register at https://mailchi.mp/coalitionccc.org/no-one-should-die-alone-on-the-street-745848.  CCCC also provides a COVID Conversations Toolbox at https://coalitionccc.org/covid-conversations-toolbox/, with conversation tools, forms and resources on advance directives and POLST, and links to COVID-19 resources and news updates.  They also have a blog post on The Vital Importance of Advance Care Planning Amid COVID-19, wherein Ms. Thomas explains the difference between POLST and Advance Directives, and recommends specific actions.  Find that at https://coalitionccc.org/2020/04/covid-19-conversation-toolkit/.  They imply that this is the first of many, but they don’t specify how many or how often.

Transitional Care for Urgent Starts in Dialysis

Home Dialysis Central has published a blog post on Traditional Dialysis vs. Transitional Care for Urgent Starts.  Transitional Care for Urgent Starts (TCU) provides a gentler and more supportive introduction to dialysis for people whose kidneys fail with little warning, helping them get past the shock of a “sudden” change of just about everything in their life, and helping them make informed decisions about treatment modality.  Of course kidneys don’t fail suddenly, but sometimes it seems that way to the person whose kidneys have failed.  Find the post at https://homedialysis.org/news-and-research/blog/330-traditional-dialysis-vs-transitional-care-for-urgent-starts.

9/12 UM-KECC Seeks Volunteers to Test Questionnaire

The University of Michigan Kidney Epidemiology and Cost Center, under contract to CMS, is seeking dialysis patient and facility staff volunteers to provide feedback, via a half-hour phone call, on a draft of a short self-report questionnaire on patient life goals.  They seek both patients with experience on HD, PD, or HHD, and clinical staff (nephrologists, nurses, dieticians, social workers).  Those interested are asked to send a one-paragraph statement describing your interest and experience, to dialysisdata@umich.edu by September 12, 2019.

NW16 9/19 2019 Quality Conference

The 2019 Comagine ESRD Network 16 Annual Quality Conference will be held September 19, 2019 in Des Moines WA.  Six continuing education credits will be available to all facility staff.  One of the presentations, on patient safety and infection prevention, will be led by a nurse from the CDC who specializes in antibiotic resistance.  In addition to best practices and tools, methods for assessing your own infection prevention practices for possible improvements will also be included.  Register for the conference at http://events.r20.constantcontact.com/register/event?oeidk=a07egbnc44f63d9624a&llr=hak kwkrab, and find more information at https://s3-us-west-2.amazonaws.com/nwrn.org/files/NW16+Quality+Agenda+-+FINAL+08142019.pdf.

NW16 9/19 Network 16 Quality Conference

The agenda has been published for the September 19, 2019 Comagine ESRD Network 16 Annual Quality Conference in Des Moines WA.  Find the agenda, other details, and register at https://s3-us-west-2.amazonaws.com/nwrn.org/files/NW16+2019+Quality+Agenda+-+FINAL.pdf.  Topics will include care transitions, the patient’s perspective, staff concerns, transplants, infection control, Network update, and awards.  Facility Managers and Administrators, nurses, social workers, dietitians, technicians, Medical Directors, and other ESRD facility staff are invited, to earn six continuing education credits.

NW18 8/9 POLST Survey

The Coalition for Compassionate Care of California is conducting a survey to better understand the level of interest and engagement in a state-wide electronic Registry of Physician Orders for Life-Sustaining Treatment (POLST).  POLST is a form that gives seriously-ill patients more control over their end-of-life care, including medical treatment, extraordinary measures (such as a ventilator or feeding tube) and CPR.  Printed on bright pink paper, and signed by both a patient and physician, nurse practitioner or physician assistant, POLST can prevent unwanted or ineffective treatments, reduce patient and family suffering, and ensure that a patient’s wishes are honored.  Since it’s designed to be readily available to all healthcare practitioners in any setting or circumstance, electronic availability would promote its purpose.  For more information and a sample of the California form, see https://capolst.org/.  Take the survey, if possible before August 9, 2019, at https://www.surveymonkey.com/r/3XC2PGX.