9/17 CCCC Webinar on African American Experience

The Coalition for Compassionate Care of California will present a September 17, 2020 webinar on Understanding the African American Experience and its Impact on Serious Illness.  The webinar will explore authenticity and its role in reducing health inequities for people of color experiencing a serious illness, and how to use empathy and compassion to create more favorable health outcomes for African Americans and others.  One CEU is available for nurses and social workers.  For full details and registration see below and https://www.eventbrite.com/e/webinar-understanding-the-african-american-experience-and-its-impact-on-tickets-118647021435?mc_cid=ffca48bc3b&mc_eid=67e1ad4c31.

8/28+ PFCC Workshop on Diversity

Patient & Family Centered Care Partners will present an August 28, 2020 workshop on Diversity, Equity & Inclusion Workgroup: Setting the Table for Equity.  Find details and register at https://pfccpartners.com/workshops/.  PFCC Partners also has future workshops planned for September 25, October 23, and November 27.

NCC COVID-19 Mental Health Handbook

The ESRD National Coordinating Center has published a new 17-page booklet called The COVID-19 Mental Health Toolkit: Helping Renal Professionals Support the Well-Being of the ESRD Community.  It was developed by Network professionals and patient volunteers to serve as a guide for renal healthcare staff to help patients manage their well-being, and includes sections on taking action, increasing awareness, building community capacity, incorporating telemedicine, and getting ahead of the issues.  Find a copy at https://esrdncc.org/contentassets/abe8671eadac49c691c0f40eef52ef18/covid19mhtoolkit07312020508.pdf.

9/21-22 PFCCpartners Virtual Conference

Patient and Family Centered Care Partners will hold their 2020 Annual Conference virtually, on September 21-22, 2020 on the theme A Virtual Skills Exchange.  All sessions will be recorded, so registrants can watch or listen whenever they like.  Find details and agenda, and register, at https://pfccpartners.com/annual-conference/.

6/26 PFCCpartners Webinar on Patient Engagement

Patient and Family Centered Care Partners will present a June 26, 2020 webinar on Co-Designing Through The Crisis At The Sharp End.  It will feature description of a state-wide patient engagement process set up by the Connecticut Hospital Association that involved patient and family representatives in the design of healthcare down to the bedside level, using QI processes we know well, such as rapid-cycle trials of potential improvements and state-wide spread of successes.  Find more details and register at https://pfccpartners.com/workshops/.  You’ll also find a link to archived PFCCpartners webinars there.

5/22+ PFCC Webinar re Patient-Family Engagement

Patient & Family Centered Care Partners will present a May 22, 2020 online workshop on Patient Family Engagement During a Pandemic, highlighting the many benefits of engaging Patient Family Advisors into a pandemic response.  Find more information at https://pfccpartners.com/workshops/.  PFCCpartners holds these workshops monthly.  Find archived earlier workshops at https://pfccpartners.com/partner-resources/archived-webinars/.  Register for the May 22 or future workshops at https://zoom.us/meeting/register/vpMvdOuvrT4qECsYLu5hKn598qN_8vs_Yg.

5/26+ CMS Shareholder Engagement Calls

CMS is hosting weekly Stakeholder Engagement sessions to share information related to the agency’s response to COVID-19.  These sessions are open to the healthcare community and provide updates, share best practices, and offer attendees an opportunity to ask questions of CMS and other subject matter experts.  Conference lines are limited so we encourage you to join via audio webcast on your computer or smartphone web browser.  You are welcome to share this invitation with your colleagues and professional networks, but these calls are not intended for the press.  Call recordings and transcripts are posted on the CMS podcast page at: https://www.cms.gov/Outreach-and-Education/Outreach/OpenDoorForums/PodcastAndTranscripts.

Targeted Updates for Dialysis Organizations on the agency’s latest COVID-19 guidance, also featuring leaders in the field sharing best practices, with an opportunity to ask questions if time allows.  Wednesday May 27, 2020, 2:30-3:00 pm PDT, toll-free 833-614-0820, passcode 6152699, audio webcast link https://engage.vevent.com/index.jsp?eid=5779&seid=2123#/main/simplify.

COVID-19 Office Hours Calls are an opportunity for providers to ask questions of CMS officials about temporary actions that allow increased capacity, expanded workforce, patient priority, and telehealth.  Tuesday May 26, 2020, 2-3pm PDT, toll-free 833-614-0820, passcode 8977438, audio webcast link https://engage.vevent.com/index.jsp?eid=5779&seid=2012#/main/simplify.

Lessons from the Front Lines with representatives from CMS, FDA, and the Coronavirus Task Force, along with front-line clinicians.  Friday May 29, 2020, 9:30-11:00 am PDT,  toll-free 877-251-0301, passcode 6350189, audio webcast link https://engage.vevent.com/index.jsp?eid=5779&seid=2075#/main/simplify.

5/21+ CCCC COVID Conversations Webinars

The Coalition for Compassionate Care of California will hold it’s next free COVID Conversations and Patient-Centered Care webinar May 21, 2020, on the subject of CCCC Decision Aids, Ventilators, CPR, Transfers, And Comfort Care.  Find details and register at https://mailchi.mp/coalitionccc.org/no-one-should-die-alone-on-the-street-746012?e=67e1ad4c31.

Upcoming weekly sessions will be announced at https://coalitionccc.org/covid-conversations-education/, and recordings of earlier sessions can be found there.  CCCC also provides a COVID Conversations Toolbox at https://coalitionccc.org/covid-conversations-toolbox/, with conversation tools, forms and resources on advance directives and POLST, and links to COVID-19 resources and news updates.  They also have a blog post on The Vital Importance of Advance Care Planning Amid COVID-19, which explains the difference between POLST and Advance Directives, and recommends specific actions.  Find that at https://coalitionccc.org/2020/04/covid-19-conversation-toolkit/.

4/8+ CCCC COVID Conversations

The Coalition for Compassionate Care of California will hold it’s first free COVID Conversations and Patient-Centered Care webinar April 8, 2020, on the subject of Medical Decision Making In The Face Of Serious Illness.  Judy Thomas, JD, CEO of CCCC and Karl Steinberg, MD, Medical Director of Hospice by the Sea, will present, and explain the importance of conversations with patients on advance care planning and POLST in the context of the COVID-19 crisis.  Find more information and register at https://mailchi.mp/coalitionccc.org/no-one-should-die-alone-on-the-street-745848.  CCCC also provides a COVID Conversations Toolbox at https://coalitionccc.org/covid-conversations-toolbox/, with conversation tools, forms and resources on advance directives and POLST, and links to COVID-19 resources and news updates.  They also have a blog post on The Vital Importance of Advance Care Planning Amid COVID-19, wherein Ms. Thomas explains the difference between POLST and Advance Directives, and recommends specific actions.  Find that at https://coalitionccc.org/2020/04/covid-19-conversation-toolkit/.  They imply that this is the first of many, but they don’t specify how many or how often.

Transitional Care for Urgent Starts in Dialysis

Home Dialysis Central has published a blog post on Traditional Dialysis vs. Transitional Care for Urgent Starts.  Transitional Care for Urgent Starts (TCU) provides a gentler and more supportive introduction to dialysis for people whose kidneys fail with little warning, helping them get past the shock of a “sudden” change of just about everything in their life, and helping them make informed decisions about treatment modality.  Of course kidneys don’t fail suddenly, but sometimes it seems that way to the person whose kidneys have failed.  Find the post at https://homedialysis.org/news-and-research/blog/330-traditional-dialysis-vs-transitional-care-for-urgent-starts.