Home Dialysis Central has published a blog post on Staff Orientation to Psychosocial Needs of People with Kidney Failure. In it Beth Witten, https://homedialysis.org/news-and-research/blog/310-staff-orientation-to-psychosocial-needs-of-people-with-kidney-failure.as the clinic social worker, [how would you] provide an orientation for new staff to help them understand the patients they would be working with, explain [your] role, and let them know how [you] could help them.” It’s a comprehensive and impressive post. Find it at
CMS and NKF will present a May 22, 2019 webinar on on Population Health Strategies for Kidney Disease Risk Reduction, at noon PST. Nephrologists, dialysis facility medical directors and renal care providers are invited and encouraged to attend. The NKF CKD Change Package will be introduced, systematic strategies for improving identification and management of CKD will be described, and a population health strategy for registry function, QI, and patient engagement for people living with CKD will be presented. Register for the webinar at https://meetings-cms.webex.com/meetings-cms/onstage/g.php?MTID=e06e8b0a5642756b1b7a7e0998d0eeeb8. Find the NKF CKD Change Package at https://www.kidney.org/sites/default/files/02-11-8036_JBI_CKD_ChangePackV17.pdf.
As we all know, many patients crash into dialysis. This leaves them feeling poorly with no time to really learn about modality options or all the other choices that they have for optimal care that fits them best. We want patients to know that they have choices and we want to help direct them to where they can find information or tools to help them make informed decisions regarding their dialysis care.
We are kicking off the It’s Your Choice Campaign. We will be sending you various patient focused resources to distribute. You can be creative in the distribution. One month you can just print and hand them out to your patients. Maybe the next month, you have it printed poster size and post it by the scale, depending on the resource. It’s your choice!
We also would encourage you to let us know if you have a patient resource that has been particularly helpful in supporting optimal kidney care. We would love to add it to our library. In the future we plan to have a whole webpage dedicated to It’s Your Choice with a variety of resources for dialysis and CKD patients, including flyers, brochures, posters and maybe even a podcast with timely information.
The ESRD National Coordinating Council will host four January webinars to introduce 2019 QIA projects, all to be held at noon PST. Find more information and register at the links provided:
- BSI January 8, 2019, https://esrdncc.org/en/events/2019/january-2019/bsi-qia-lan/.
- Home Dialysis January 15, 2019, https://esrdncc.org/en/events/2019/january-2019/home-modality-qia-lan/.
- Transplant, January 22, 2019, https://esrdncc.org/en/events/2019/january-2019/transplant-qia-lan/.
- Patient Experience of Care, January 23, 2019, https://esrdncc.org/en/events/2019/january-2019/patient-experience-of-care-peoc-lan/.
ESRD Network 16 is recruiting for new volunteers to serve on our Patient Advisory Committee (PAC). PAC members:
- Advise on Network education and outreach
- Assist with Network Quality Improvement Activity design and interventions
- Meet with Medicare (CMS) on conference calls to provide feedback from a patient perspective
Most PAC activities are conducted by phone call and email, though there are occasional opportunities for in person meetings. Any travel to in-person meetings will be funded by the Network.
Please share the Informational Flyer at https://s3-us-west-2.amazonaws.com/nwrn.org/files/PAC/Nw16PACFlyer1118.pdf, and the Application form at https://s3-us-west-2.amazonaws.com/nwrn.org/files/PAC/Nw16PACForm1118.pdf, with patients and care partners in Alaska, Idaho, Montana, Oregon, and Washington that might be interested. Application forms are due to the Network by November 26, 2018.
The Coalition for Supportive Care of Kidney Patients will present a 15 November 2018 webinar on Mapping the Future: Implementation Strategies for Kidney Supportive Care. This is the first in a series of webinars that parallels a series of Nephrology News & Issues articles on “supportive care” for kidney patients that will begin in the November 2018 issue. Direct any questions you have to Kelly Brooks at email@example.com or 804-320-0004 x2706
Register for the webinar at https://qualitynet.webex.com/mw3300/mywebex/default.do?nomenu=true&siteurl=qualitynet&service=6&rnd=0.9781770900950815&main_url=https%3A%2F%2Fqualitynet.webex.com%2Fec3300%2Feventcenter%2Fevent%2FeventAction.do%3FtheAction%3Ddetail%26%26%26EMK%3D4832534b00000004cb0a9a58476d6bd293b5a9f17210c9e047618e1f532c1a7922440c6f4b391fed%26siteurl%3Dqualitynet%26confViewID%3D107244241343796963%26encryptTicket%3DSDJTSwAAAATkodchRe-HYk3NR3hmhP3ljworAPoym4g8yOkYBUMOqg2%26.
Current plans include future webinars in the series on Providing Supportive Care: Tools & Resources for the Journey in December and Best Case/Worst Case and Older Patients in January. Once they are scheduled, you can register for these webinars at https://qualitynet.webex.com/mw3300/mywebex/default.do?siteurl=qualitynet&service=6.
The Coalition for Supportive Care is an evolution of the earlier Kidney End-of-Life Coalition. Their mission is to “Promote effective interchange among patients, families, healthcare professionals, and payers to ensure the provision of patient-centered supportive care for patients with kidney disease. Supportive care is the continuum of palliative care and includes providing patients with relief from the symptoms, pain, and stress of a serious illness. The goal of the Coalition is to improve the quality of life for both patients and families from the time of diagnosis through to end-of-life care.” Find out more about the Coalition for Supportive Care at https://kidneysupportivecare.org/Home.aspx.
The Kansas City Network has added two new one-page healthcare communication tools to their Heartland Huddle: Huddle Up to Improve Communication series. The new entries are on Relationship-Centered Care, which focuses on the patient, but emphasizes the importance of mutual relationships between the care team, the patient, their family, the dialysis organization, and the community. Earlier tools in the series include Active Listening, Body Language, Emotional Awareness, Respect, Shared Decision Making, and Coaching. Find the entire series at http://heartlandkidney.org/providers/quality-improvement/qi-resources/heartland-huddle/.