As we all know, many patients crash into dialysis. This leaves them feeling poorly with no time to really learn about modality options or all the other choices that they have for optimal care that fits them best. We want patients to know that they have choices and we want to help direct them to where they can find information or tools to help them make informed decisions regarding their dialysis care.
We are kicking off the It’s Your Choice Campaign. We will be sending you various patient focused resources to distribute. You can be creative in the distribution. One month you can just print and hand them out to your patients. Maybe the next month, you have it printed poster size and post it by the scale, depending on the resource. It’s your choice!
We also would encourage you to let us know if you have a patient resource that has been particularly helpful in supporting optimal kidney care. We would love to add it to our library. In the future we plan to have a whole webpage dedicated to It’s Your Choice with a variety of resources for dialysis and CKD patients, including flyers, brochures, posters and maybe even a podcast with timely information.
The Coalition for Supportive Care of Kidney Patients will present a 15 November 2018 webinar on Mapping the Future: Implementation Strategies for Kidney Supportive Care. This is the first in a series of webinars that parallels a series of Nephrology News & Issues articles on “supportive care” for kidney patients that will begin in the November 2018 issue. Direct any questions you have to Kelly Brooks at email@example.com or 804-320-0004 x2706
The Coalition for Supportive Care is an evolution of the earlier Kidney End-of-Life Coalition. Their mission is to “Promote effective interchange among patients, families, healthcare professionals, and payers to ensure the provision of patient-centered supportive care for patients with kidney disease. Supportive care is the continuum of palliative care and includes providing patients with relief from the symptoms, pain, and stress of a serious illness. The goal of the Coalition is to improve the quality of life for both patients and families from the time of diagnosis through to end-of-life care.” Find out more about the Coalition for Supportive Care at https://kidneysupportivecare.org/Home.aspx.
The Kansas City Network has added two new one-page healthcare communication tools to their Heartland Huddle: Huddle Up to Improve Communication series. The new entries are on Relationship-Centered Care, which focuses on the patient, but emphasizes the importance of mutual relationships between the care team, the patient, their family, the dialysis organization, and the community. Earlier tools in the series include Active Listening, Body Language, Emotional Awareness, Respect, Shared Decision Making, and Coaching. Find the entire series at http://heartlandkidney.org/providers/quality-improvement/qi-resources/heartland-huddle/.
Registration without late fee for the October 11, 2018 Network 16 Annual Quality Conference near the Seattle airport ends September 30, 2018. On October 1 and later, registration is $25 higher. If you’ve already registered but you’re no longer able to attend, your right to a refund also expires on September 30.