4/2+ ASN COVID-19 Webinars on Hospitalization and Home

ASN will present an April 2, 2020 webinar on Hospital Care and Treatment Options for COVID-19 Positive Patients with ESKD and AKI that will address key areas of concern in the management of COVID-19 positive patients receiving RRT in the hospital setting, including treatment options, staffing, and safety.  Register at https://register.gotowebinar.com/register/4478274981960155148.

There’s no link yet, but ASN has also promised an April 9 webinar on Considerations in the Home Dialysis Setting. 

Recordings of the two previous ASN COVID-19 webinars are available at:

New Reports: USRDS, OPTN, SRTR, UNOS

The US Renal Data System (USRDS) 2019 Annual Data Report: Epidemiology of Kidney Disease in the United States has been released on paper.  The online version was released in November 2019.  Find the Report at https://www.ajkd.org/issue/S0272-6386(19)X0003-7, and the USRDS ADR page at https://www.usrds.org/adr.aspx.

The Annual Data Report of the OPTN and SRTR (the US Organ Procurement and Transplantation Network and the Scientific Registry of Transplant Recipients) is now available, documenting data pertaining to the period 2007-2018.  Find it at https://srtr.transplant.hrsa.gov/annual_reports/2018_ADR_Preview.aspx.  Find the OPTN home page at https://optn.transplant.hrsa.gov/ and SRTR at https://www.srtr.org/.

The United Network for Organ Sharing (UNOS) has published new vision and mission statements.  Find them at https://unos.org/news/introducing-unos-new-mission-and-vision/.

3/4 KQF Kidney Disease Impact Conference

Kidneys Quest Foundation will present a free in-person one-day 2020 Kidney Disease Impact Conference in Los Angeles on March 4, 2020.  Conference topics will include improving renal health, preventing kidney failure, expanding options for kidney patients, dialysis, home dialysis, research, clinical trials, increasing available organs for transplant, transplant support, becoming a living donor, CKD and CVD, and pediatric CKD.

Invitation is extended to renal patients, social workers, registered nurses, dietitians, dialysis technicians, medical directors, administrators and organization managers, healthcare workers, friends and family of patients, and anyone interested in kidney disease and dialysis.  Attendance and onsite parking is free, and continental breakfast and lunch will be provided.  Continuing education credits for nurses, social workers, dietitians, and dialysis technicians are available for a $50 fee.  Pre-registration is required, and space is limited.  Register at:

Find complete details, including the Conference agenda and sponsor registration information, at http://kidneysquestfoundation.org/2020-kidney-disease-impact-conference.html.

11/21 DPC Webinar on Treatment Options

Dialysis Patient Citizens will present a November 21, 2019 webinar on Treatments and Modality Options for Kidney Disease.  For details see below, and register at https://www.dpcedcenter.org/news-events/education-webinars/signup/.

Transitional Care for Urgent Starts in Dialysis

Home Dialysis Central has published a blog post on Traditional Dialysis vs. Transitional Care for Urgent Starts.  Transitional Care for Urgent Starts (TCU) provides a gentler and more supportive introduction to dialysis for people whose kidneys fail with little warning, helping them get past the shock of a “sudden” change of just about everything in their life, and helping them make informed decisions about treatment modality.  Of course kidneys don’t fail suddenly, but sometimes it seems that way to the person whose kidneys have failed.  Find the post at https://homedialysis.org/news-and-research/blog/330-traditional-dialysis-vs-transitional-care-for-urgent-starts.

ANNA Fact Sheets on PD, AKI

The ANNA Special Practice Networks have published a series of several-page Fact Sheets on a number of topics:

“It’s Your Choice” Campaign

As we all know, many patients crash into dialysis.  This leaves them feeling poorly with no time to really learn about modality options or all the other choices that they have for optimal care that fits them best.  We want patients to know that they have choices and we want to help direct them to where they can find information or tools to help them make informed decisions regarding their dialysis care.

We are kicking off the It’s Your Choice Campaign.  We will be sending you various patient focused resources to distribute.  You can be creative in the distribution.  One month you can just print and hand them out to your patients.  Maybe the next month, you have it printed poster size and post it by the scale, depending on the resource.  It’s your choice!

We also would encourage you to let us know if you have a patient resource that has been particularly helpful in supporting optimal kidney care.  We would love to add it to our library.  In the future we plan to have a whole webpage dedicated to It’s Your Choice with a variety of resources for dialysis and CKD patients, including flyers, brochures, posters and maybe even a podcast with timely information.