1/13 CMS TEP on Delaying CKD Progression

The Yale New Haven Health Services Corporation’s Center for Outcomes Research and Evaluation is convening a Technical Expert Panel (TEP) on Development of a Quality Measure Assessing Delay in Progression of CKD for CMS.  Nominate yourself or others before January 13, 2020.  Find details at https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/TEP-Currently-Accepting-Nominations#a1213, and download nomination forms from https://www.cms.gov/files/zip/development-quality-measure-assessing-delay-progression-chronic-kidney-disease-ckd.

NW16 11/4+ NKF/PKG Holiday Party in Portland

NKF and the Portland Kidney Group will host its Annual Holiday Party November 10, 2019 in Portland OR.  Food and drinks will be provided, and family and friends are invited.  The party will feature a dietitian talking about hearty but kidney-friendly holiday cooking.  Volunteers are needed to help get everything ready.  You’re asked to RSVP by November 4, 2019.  Find more information on the Party, on volunteering, and on how to RSVP, at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG/PKG1119.pdf.

NW18 10/12+ NKF LA Kidney Walk in Encino

Just a reminder that the LA Kidney Walk will occur October 13, 2019 in Encino CA, and volunteers are welcome to help with setup on October 12.  Kidney Walkers find sponsors to donate to help raise funds to support NKF’s many ways that they support kidney patients, providers, and research.  The LA Walk is only 38% of the way toward their fundraising goal.  Find full details at http://donate.kidney.org/site/TR/Walk/NKFServingtheWest?fr_id=9026&pg=entry.

9/12 UM-KECC Seeks Volunteers to Test Questionnaire

The University of Michigan Kidney Epidemiology and Cost Center, under contract to CMS, is seeking dialysis patient and facility staff volunteers to provide feedback, via a half-hour phone call, on a draft of a short self-report questionnaire on patient life goals.  They seek both patients with experience on HD, PD, or HHD, and clinical staff (nephrologists, nurses, dieticians, social workers).  Those interested are asked to send a one-paragraph statement describing your interest and experience, to dialysisdata@umich.edu by September 12, 2019.

NW16 8/25 NKF/PKG Wellness Fair, Free BBQ Picnic

NKF and the Portland Kidney Group will present NKF’S Annual Kidney Wellness Fair & BBQ Picnic in Portland OR on August 25, 2019, featuring wellness exhibits, an art show, resources, prizes, and a free BBQ lunch.  Volunteers to help arrange the festivities are requested.  Find full details and registration information at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG/PKG082519.pdf.

NW16 8/25 NKF/PKG Wellness Fair, Free BBQ Picnic

NKF and the Portland Kidney Group will present NKF’S Annual Kidney Wellness Fair & BBQ Picnic in Portland OR on August 25, 2019, featuring wellness exhibits, an art show, resources, prizes, and a free BBQ lunch.  Volunteers to help arrange the festivities are requested.  Find full details and register at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG/PKG082519.pdf.

7/4 NW18 UCLA CORE Kidney Program Festival

The UCLA CORE Kidney Program has announced that they’ll be participating in the 115th Annual Huntington Beach Fourth of July Parade & Festival.  For more information on this and other UCLA CORE Kidney and UKEEP events, see https://www.uclahealth.org/core-kidney/upcoming-events.  For instance, their webinar on Alport Syndrome is coming up on July 11, 2019, as well as UKEEP’s patient meeting on High Blood Pressure on July 14.  Recordings of past UCLA CORE Kidney and UKEEP webinars, on topics such as Transplantation, Fabry’s Disease, Adult PKD, and more, can be found at https://www.uclahealth.org/core-kidney/past-events.

They’ve also announced the date for their 2020 UCLA Kidney Health Fair & Spirit Walk for Kidney Disease, May 17, 2020.  Find more information at https://www.uclahealth.org/core-kidney/kidney-health-fair.