KDIGO is planning a March 2021 Genetics in CKD Controversies Conference, has published a Scope of Work or draft plan for the Conference, and has requested feedback on it by December 21, 2020. The Conference intends to cover issues related to monogenic and complex kidney diseases, applying genetic findings in clinical medicine, and using genomics for defining and stratifying CKD. KDIGO has prepared three webinars to introduce the issues, on Genetics in Kidney Disease, in Glomerular Diseases, and in Hereditary Kidney Diseases. Find more information and links to the Scope of Work, Feedback Form, and webinars at https://kdigo.org/conferences/genetics-in-ckd/.
KDIGO has announced plans to produce Guidelines for Autosomal Dominant Polycystic Kidney Disease (ADPKD). The scope of the document is now being outlined, and the team that will write it is being assembled. KDIGO will ask for public comment on the completed scope, and again on a draft of the full Guidelines. For more information see https://kdigo.org/category/news/.
They have also announced that their October 4, 2020 virtual KDIGO Symposium on Glomerular Diseases has been recorded and is available at https://www.youtube.com/watch?v=KDA1qKpb4Ew.
The KDIGO 2020 Clinical Practice Guideline on Glomerular Diseases is being finalized, and last-minute comments are solicited. Find details and commenting instructions at https://kdigo.org/kdigo-direct-july-2020/.
This July issue of KDIGO Direct also includes articles on
- KDIGO Diabetes Management in CKD Guideline due for Publication in September 2020,
- Revised KDIGO Management of Blood Pressure in CKD Guideline due December 2020,
- The June 2020 KDIGO Nomenclature Report,
- KDIGO Webinars,
- Links to the KDIGO YouTube Channel and the KDIGO App.
Sign up for future issues of KDIGO Direct at https://kdigo.org/category/news/#.
KDIGO has released a series of recorded webinars and other presentations from their collaboration with the International Society of Nephrology, including videos of:
- Update on CKD Mineral Bone Disorder KDIGO Guidelines 2017
- Diagnosis and Management of Atrial Fibrillation and Heart Failure in Patients with CKD
- The Kidney and HIV: Implications for Treatment and Prevention
- Hepatitis C Guideline Update
- Dialysis Initiation, Modality Choice, & Prescription
- Coronary Artery & Valvular Diseases
- Blood Pressure in CKD
- Glomerular Disease
- AKI in 2019: What Has Changed since the KDIGO Guidelines in 2012?
- Blood Pressure and Volume Management in Dialysis
- Potassium Controversies
- Kidney Problems in Oncology
- Clinical Practice Guideline on the Management of Blood Pressure in CKD
- Kidney Transplantation and Cardiac Disease
- Clinical Practice Guideline: Diabetes Management in CKD
They plan to add at least four more this year. Find them all on the KDIGO-ISN YouTube Channel at https://www.youtube.com/channel/UCm7zHM_wBaPbQxRDJwyvqMg/videos.
The UCLA CORE Kidney Program has announced that they’ll be participating in the 115th Annual Huntington Beach Fourth of July Parade & Festival. For more information on this and other UCLA CORE Kidney and UKEEP events, see https://www.uclahealth.org/core-kidney/upcoming-events. For instance, their webinar on Alport Syndrome is coming up on July 11, 2019, as well as UKEEP’s patient meeting on High Blood Pressure on July 14. Recordings of past UCLA CORE Kidney and UKEEP webinars, on topics such as Transplantation, Fabry’s Disease, Adult PKD, and more, can be found at https://www.uclahealth.org/core-kidney/past-events.
They’ve also announced the date for their 2020 UCLA Kidney Health Fair & Spirit Walk for Kidney Disease, May 17, 2020. Find more information at https://www.uclahealth.org/core-kidney/kidney-health-fair.
The UCLA Core Kidney Program has announced three new webinars and a patient-education meeting. For more information see https://www.uclahealth.org/core-kidney/upcoming-events.
- June 13, 2019: Peritoneal Dialysis – A Patient’s Experience webinar. Register at https://events.r20.constantcontact.com/register/eventReg?oeidk=a07egbezn4e6837e5bc&oseq=&c=&ch=.
- July 11, 2019: Alport Syndrome webinar. Check the uclahealth.org link above in mid-June for registration.
- July 14, 2019: High Blood Pressure – What You Should Know UKEEP patient-education meeting. See the uclahealth.org link above for more information and the RSVP phone number.
- August 8, 2019: Labs – What You Should Know webinar. Check the uclahealth.org link above in mid-July for registration.
The National Kidney Foundation 2019 Spring Clinical Meetings (SCM19) present a unique opportunity for renal health care providers to learn new developments related to all aspects of nephrology. An important objective of SCM19 is to present the latest insights into CKD care through a combination of interesting courses, practical workshops, thought-provoking symposia and insightful debates. SCM19 will be held May 8-12, 2019 in Boston MA. In-person registration is allowed, but many registration fees are discounted if you register online before May 6.
Extra-cost pre-conference course topics on May 8 include dialysis success, vascular access, ultrasound, supportive care, and updates on new developments in transplant, critical care, and glomerular disease. Topics for extra-cost lunch workshops during the conference will include vascular access, electrolytes, hyponatremia, glomerular disease, reproductive health, hypertension, communication, and board review. For those unable to attend in person, live-streamed conference sessions will be available on burnout, obesity, safety, fluid management, opioids, social media, diabetes, community, lifestyle interventions, palliative care, and KDOQI update.
For more information and registration, see https://www.kidney.org/spring-clinical.
The Standardized Outcomes in Nephrology – Glomerular Disease (SONG-GD) study is an international initiative to identify outcomes in glomerular disease that are important to patients, caregivers, clinicians and other health professionals. This will inform the development of core outcomes that are important and relevant to measure and report in glomerular disease.
SONG-GD includes a voluntary 15-minute survey to help determine a core outcome set for glomerulonephritis trials, to be taken by anyone who meets the following criteria:
- You are 18 yrs of age or older
- You are one of the following:
- A patient with any major form of glomerular disease*, at any stage of development**
- A family or household member of a patient with any major form of glomerular disease*, at any stage of development**
- A caregiver for a patient with any major form of glomerular disease*, at any stage of development**
- A healthcare practitioner or trainee, social worker, dietitian, pharmacist, psychologist, physiotherapist, researcher, policy-maker, or other stakeholder who deals with glomerular disease
- You work in an industry that deals with glomerular disease
- *Major forms of glomerular disease include:
- ANCA vasculitis
- Anti-GBM disease
- Anti-glomerular basement membrane disease
- Anti-neutrophil cytoplasmic antibody associated vasculitis
- Complement-mediated glomerulopathy
- Focal segmental glomerulosclerosis
- Goodpasture’s disease
- Goodpasture syndrome
- Henoch-Schoenlein purpura
- IgA nephropathy
- IgA vasculitis
- Lupus nephritis
- Membranoproliferative glomerulonephritis
- Membranous nephropathy
- Minimal change disease
- **Stages of kidney disease development include:
- Normal kidney function
- Chronic kidney disease
- ESRD, dialysis, or transplant
Answers will be completely anonymous and analyzed only in combination with other responses. Find the survey at https://sydneypublichealth.au1.qualtrics.com/jfe/form/SV_djzDXYqzIQ0dMGN. You will be asked for your name and email address so SONG-GD can send you a short follow-up survey.