NW18 9/3 How to Find a Donor

Please join us for a FREE in person event where you will learn more about finding a living kidney donor!

When? – September 3, 2019 from 10:00am to 12:00pm

Where? – Glendale, CA

During this event you will learn how to find a living kidney donor!

This event will be a taught by Nancy Marlin, a kidney patient who has been through the process. She will share how she was able to successfully find a living kidney donor through sharing her kidney story with others.

She has a wealth of information to share with you so please don’t miss out on this great opportunity.

Please call to Register. Space is limited.

1-888-268-1539

This event is free to you!

Parking is free and snacks will be provided.

We look forward to seeing you!

Event Information

Date: September 3, 2019

Location: 621 East Glenoaks Blvd. #B Glendale, CA 91207

Time: 10:00am – 12:00pm

Please feel free to share with others!

NW18 8/9 POLST Survey

The Coalition for Compassionate Care of California is conducting a survey to better understand the level of interest and engagement in a state-wide electronic Registry of Physician Orders for Life-Sustaining Treatment (POLST).  POLST is a form that gives seriously-ill patients more control over their end-of-life care, including medical treatment, extraordinary measures (such as a ventilator or feeding tube) and CPR.  Printed on bright pink paper, and signed by both a patient and physician, nurse practitioner or physician assistant, POLST can prevent unwanted or ineffective treatments, reduce patient and family suffering, and ensure that a patient’s wishes are honored.  Since it’s designed to be readily available to all healthcare practitioners in any setting or circumstance, electronic availability would promote its purpose.  For more information and a sample of the California form, see https://capolst.org/.  Take the survey, if possible before August 9, 2019, at https://www.surveymonkey.com/r/3XC2PGX.

7/15 NW18 Quality Conference 2019

Comagine Health ESRD Network 18 will hold its Annual Quality Conference 2019 in Los Angeles on July 15, 2019.  Topics include:

  • A Patient Panel Discussion on Patient Perspectives on Adherence to Treatment
  • New Changes to the ESRD QIP and How it Impacts Facilities
  • De-escalation of Disruptive Behaviors and the Social Work Role in Patient Advocacy
  • CROWNWeb Question and Answer
  • And More!

The program is designed for Facility Managers/Administrators, Nurses, Social Workers, Dietitians, Technicians, Medical Directors, and any other staff that would benefit from a great learning opportunity.  4.5 Nursing or Social Work CE credits are available.  For details and registration see http://events.r20.constantcontact.com/register/event?oeidk=a07egas42064eea495b&llr=gfuz7mxab&showPage=true.

NW18 6/13+ UCLA re PD, Alport, BP, Labs

The UCLA Core Kidney Program has announced three new webinars and a patient-education meeting.  For more information see https://www.uclahealth.org/core-kidney/upcoming-events.

  • July 11, 2019: Alport Syndrome webinar.  Check the uclahealth.org link above in mid-June for registration.
  • July 14, 2019: High Blood Pressure – What You Should Know UKEEP patient-education meeting.  See the uclahealth.org link above for more information and the RSVP phone number.
  • August 8, 2019: Labs – What You Should Know webinar.  Check the uclahealth.org link above in mid-July for registration.

NW18 5/5 The KIDney Zone at Santa Monica Beach

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Featuring the KIDney Zone: Fun for the Family!
Sunday, May 5th, 2019,  11:00 AM – 3:00 PM
Dorothy Green Park, Santa Monica Beach Park #1
Ocean Park Blvd & Barnard Way, Santa Monica, CA 90405.
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We look forward to seeing you on Sunday, May 5th at Dorothy Green Park in beautiful Santa Monica beach.  We highly encourage that you RSVP (instructions found below) so you can stay up to date with all of the latest on the fair.   As always, we have a special section dedicated to fun for the kids called the KIDney Zone.   Feel free to drop off your child at the KIDney Zone when you arrive so that you can enjoy the entertainment and educational aspects of our fair.  Our team has been working hard to make sure that your kids will have a blast at the KIDney Zone with the following activities featured:
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LOS ANGELES FIRE DEPARTMENT
 
Don’t miss out on the chance to board a real firetruck as we welcome the Los Angeles Fire Department to our fair! They will be at the event from 1:00 PM – 3:00 PM so make sure you plan ahead for these hours for this wonderful photo-op.
 
PEOPLE-ANIMAL CONNECTION
The UCLA People-Animal Connection (https://www.uclahealth.org/PAC/default.cfm) is one of the most comprehensive Animal-Assisted Therapy and Activity Programs in the nation.  These therapy dogs are trained to interact with a variety of people. They have very stable temperaments and a friendly, easy-going personality and they’ll be hanging out next to the KIDney Zone for the entirety of the fair.
 
BUILD A BEAR RADIO
We are excited to welcome Build-a-Bear Radio as a partner for our fair!  This year, they will be streaming their radio station throughout the event as well as giving away bears throughout the event.  Make sure to come early if you want to check out what they have to offer!
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OTHER FEATURED ACTIVITIES
Braid Bar – Nine Zero One Salon
Pioneering Poles & Ropes Activity & Pine Wood Derby – Boy Scouts of America
Arts & Crafts/Face Painting – Bruin Beans Health Club
Don’t miss out on our KIDney Zone this year!
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HOW TO REGISTER
RSVP is highly preferred and encouraged!  There are options to pre-register, as well as on-site registration.  Pre-registered guests will receive a UCLA souvenir upon entry.  all us at (310) 954-2692 or email us at COREKidney@mednet.ucla.edu.
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HOW TO SUPPORT
Donations are tax-deductible.  UCLA is a public, non-profit educational institution exempt under Section 501(c)(3) of the IRS code.  We hope that you can all make it on Sunday, May 5th to our Kidney Health Fair at the Beach.  If you are unable to come, we hope that you can still consider supporting our cause. Visit our new UCLA Spark crowdfunding page at https://spark.ucla.edu/project/15493 to learn more about our campaign and share with other advocates to help generate more interest and to see our progress as we strive to reach our goal of $150,000.  Our ultimate goal is to set up a Kidney Center at UCLA that provides comprehensive care to kidney patients and their families, from pre-diagnosis to transplant.
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We look forward to seeing you there!
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3/16 NW18 UCI Health WKD Symposium

UC Irvine Health will present a free March 16, 2019 World Kidney Day symposium in Orange, CA on Kidney health, featuring leading experts in Nephrology, Urology, Transplant, and Nutrition.  Patients, providers, and community members are all invited to enjoy a day of education, health screenings, refreshments, and live entertainment.  For details see https://twitter.com/IFKF_/status/1103801441846587392 and https://www.facebook.com/events/638668909886763/?notif_t=event_invite_reminder&notif_id=1551199891724380.

2/21+ UCLA/UKEEP Patient Education

The UCLA Health CORE Kidney program will present a February 21, 2019 webinar on Living Kidney Donation.  For details and pre-registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/ucla022119.pdf.

UKEEP will host a February 24, 2019 workshop on Kidney Disease: What You Should Know in Santa Monica CA.  See https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UKEEP022419.pdf for details and RSVP information.

The CORE Kidney program will also present:

Find more information, and recordings of earlier CORE Kidney and UKEEP programs, at https://www.uclahealth.org/core-kidney/, along with information about the UCLA PKD program and other related educational outreach.