The Kidney Community Emergency Response Coalition has published a list of useful resources for patients and others dealing with the wildfires in California. The list includes links or contact information for KCER, Network 18, Cal Fire, the LA Fire Department, each dialysis provider, several Helplines and hotlines, Rx Open to locate operating pharmacies, the power companies, the California Emergency Operations Center, and a wildfire resource compendium from the HHS Healthcare Emergency Preparedness Information Gateway ASPR TRACIE. Find the list at https://kcercoalition.com/en/california-fires/.
Just a reminder that the LA Kidney Walk will occur October 13, 2019 in Encino CA, and volunteers are welcome to help with setup on October 12. Kidney Walkers find sponsors to donate to help raise funds to support NKF’s many ways that they support kidney patients, providers, and research. The LA Walk is only 38% of the way toward their fundraising goal. Find full details at http://donate.kidney.org/site/TR/Walk/NKFServingtheWest?fr_id=9026&pg=entry.
The CNSW Greater Los Angeles Chapter will present their Fall Semi-Annual Workshop in Burbank CA on November 6, 2019. Topics will include workplace violence, health insurance, and relocation trauma, with 4 CEU hours offered. For details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/CNSW/CNSW.LA.FALL2019.pdf.
Please join us for a FREE in person event where you will learn more about finding a living kidney donor!
When? – September 3, 2019 from 10:00am to 12:00pm
Where? – Glendale, CA
During this event you will learn how to find a living kidney donor!
This event will be a taught by Nancy Marlin, a kidney patient who has been through the process. She will share how she was able to successfully find a living kidney donor through sharing her kidney story with others.
She has a wealth of information to share with you so please don’t miss out on this great opportunity.
Please call to Register. Space is limited.
This event is free to you!
Parking is free and snacks will be provided.
We look forward to seeing you!
Date: September 3, 2019
Location: 621 East Glenoaks Blvd. #B Glendale, CA 91207
Time: 10:00am – 12:00pm
Please feel free to share with others!
The Coalition for Compassionate Care of California is conducting a survey to better understand the level of interest and engagement in a state-wide electronic Registry of Physician Orders for Life-Sustaining Treatment (POLST). POLST is a form that gives seriously-ill patients more control over their end-of-life care, including medical treatment, extraordinary measures (such as a ventilator or feeding tube) and CPR. Printed on bright pink paper, and signed by both a patient and physician, nurse practitioner or physician assistant, POLST can prevent unwanted or ineffective treatments, reduce patient and family suffering, and ensure that a patient’s wishes are honored. Since it’s designed to be readily available to all healthcare practitioners in any setting or circumstance, electronic availability would promote its purpose. For more information and a sample of the California form, see https://capolst.org/. Take the survey, if possible before August 9, 2019, at https://www.surveymonkey.com/r/3XC2PGX.
Comagine Health ESRD Network 18 will hold its Annual Quality Conference 2019 in Los Angeles on July 15, 2019. Topics include:
- A Patient Panel Discussion on Patient Perspectives on Adherence to Treatment
- New Changes to the ESRD QIP and How it Impacts Facilities
- De-escalation of Disruptive Behaviors and the Social Work Role in Patient Advocacy
- CROWNWeb Question and Answer
- And More!
The program is designed for Facility Managers/Administrators, Nurses, Social Workers, Dietitians, Technicians, Medical Directors, and any other staff that would benefit from a great learning opportunity. 4.5 Nursing or Social Work CE credits are available. For details and registration see http://events.r20.constantcontact.com/register/event?oeidk=a07egas42064eea495b&llr=gfuz7mxab&showPage=true.
The UCLA Core Kidney Program has announced three new webinars and a patient-education meeting. For more information see https://www.uclahealth.org/core-kidney/upcoming-events.
- June 13, 2019: Peritoneal Dialysis – A Patient’s Experience webinar. Register at https://events.r20.constantcontact.com/register/eventReg?oeidk=a07egbezn4e6837e5bc&oseq=&c=&ch=.
- July 11, 2019: Alport Syndrome webinar. Check the uclahealth.org link above in mid-June for registration.
- July 14, 2019: High Blood Pressure – What You Should Know UKEEP patient-education meeting. See the uclahealth.org link above for more information and the RSVP phone number.
- August 8, 2019: Labs – What You Should Know webinar. Check the uclahealth.org link above in mid-July for registration.