7/15 NW18 Quality Conference 2019

Comagine Health ESRD Network 18 will hold its Annual Quality Conference 2019 in Los Angeles on July 15, 2019.  Topics include:

  • A Patient Panel Discussion on Patient Perspectives on Adherence to Treatment
  • New Changes to the ESRD QIP and How it Impacts Facilities
  • De-escalation of Disruptive Behaviors and the Social Work Role in Patient Advocacy
  • CROWNWeb Question and Answer
  • And More!

The program is designed for Facility Managers/Administrators, Nurses, Social Workers, Dietitians, Technicians, Medical Directors, and any other staff that would benefit from a great learning opportunity.  4.5 Nursing or Social Work CE credits are available.  For details and registration see http://events.r20.constantcontact.com/register/event?oeidk=a07egas42064eea495b&llr=gfuz7mxab&showPage=true.

NW18 6/13+ UCLA re PD, Alport, BP, Labs

The UCLA Core Kidney Program has announced three new webinars and a patient-education meeting.  For more information see https://www.uclahealth.org/core-kidney/upcoming-events.

  • July 11, 2019: Alport Syndrome webinar.  Check the uclahealth.org link above in mid-June for registration.
  • July 14, 2019: High Blood Pressure – What You Should Know UKEEP patient-education meeting.  See the uclahealth.org link above for more information and the RSVP phone number.
  • August 8, 2019: Labs – What You Should Know webinar.  Check the uclahealth.org link above in mid-July for registration.

NW18 5/5 The KIDney Zone at Santa Monica Beach

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Featuring the KIDney Zone: Fun for the Family!
Sunday, May 5th, 2019,  11:00 AM – 3:00 PM
Dorothy Green Park, Santa Monica Beach Park #1
Ocean Park Blvd & Barnard Way, Santa Monica, CA 90405.
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We look forward to seeing you on Sunday, May 5th at Dorothy Green Park in beautiful Santa Monica beach.  We highly encourage that you RSVP (instructions found below) so you can stay up to date with all of the latest on the fair.   As always, we have a special section dedicated to fun for the kids called the KIDney Zone.   Feel free to drop off your child at the KIDney Zone when you arrive so that you can enjoy the entertainment and educational aspects of our fair.  Our team has been working hard to make sure that your kids will have a blast at the KIDney Zone with the following activities featured:
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LOS ANGELES FIRE DEPARTMENT
 
Don’t miss out on the chance to board a real firetruck as we welcome the Los Angeles Fire Department to our fair! They will be at the event from 1:00 PM – 3:00 PM so make sure you plan ahead for these hours for this wonderful photo-op.
 
PEOPLE-ANIMAL CONNECTION
The UCLA People-Animal Connection (https://www.uclahealth.org/PAC/default.cfm) is one of the most comprehensive Animal-Assisted Therapy and Activity Programs in the nation.  These therapy dogs are trained to interact with a variety of people. They have very stable temperaments and a friendly, easy-going personality and they’ll be hanging out next to the KIDney Zone for the entirety of the fair.
 
BUILD A BEAR RADIO
We are excited to welcome Build-a-Bear Radio as a partner for our fair!  This year, they will be streaming their radio station throughout the event as well as giving away bears throughout the event.  Make sure to come early if you want to check out what they have to offer!
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OTHER FEATURED ACTIVITIES
Braid Bar – Nine Zero One Salon
Pioneering Poles & Ropes Activity & Pine Wood Derby – Boy Scouts of America
Arts & Crafts/Face Painting – Bruin Beans Health Club
Don’t miss out on our KIDney Zone this year!
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HOW TO REGISTER
RSVP is highly preferred and encouraged!  There are options to pre-register, as well as on-site registration.  Pre-registered guests will receive a UCLA souvenir upon entry.  all us at (310) 954-2692 or email us at COREKidney@mednet.ucla.edu.
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HOW TO SUPPORT
Donations are tax-deductible.  UCLA is a public, non-profit educational institution exempt under Section 501(c)(3) of the IRS code.  We hope that you can all make it on Sunday, May 5th to our Kidney Health Fair at the Beach.  If you are unable to come, we hope that you can still consider supporting our cause. Visit our new UCLA Spark crowdfunding page at https://spark.ucla.edu/project/15493 to learn more about our campaign and share with other advocates to help generate more interest and to see our progress as we strive to reach our goal of $150,000.  Our ultimate goal is to set up a Kidney Center at UCLA that provides comprehensive care to kidney patients and their families, from pre-diagnosis to transplant.
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We look forward to seeing you there!
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3/16 NW18 UCI Health WKD Symposium

UC Irvine Health will present a free March 16, 2019 World Kidney Day symposium in Orange, CA on Kidney health, featuring leading experts in Nephrology, Urology, Transplant, and Nutrition.  Patients, providers, and community members are all invited to enjoy a day of education, health screenings, refreshments, and live entertainment.  For details see https://twitter.com/IFKF_/status/1103801441846587392 and https://www.facebook.com/events/638668909886763/?notif_t=event_invite_reminder&notif_id=1551199891724380.

2/21+ UCLA/UKEEP Patient Education

The UCLA Health CORE Kidney program will present a February 21, 2019 webinar on Living Kidney Donation.  For details and pre-registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/ucla022119.pdf.

UKEEP will host a February 24, 2019 workshop on Kidney Disease: What You Should Know in Santa Monica CA.  See https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UKEEP022419.pdf for details and RSVP information.

The CORE Kidney program will also present:

Find more information, and recordings of earlier CORE Kidney and UKEEP programs, at https://www.uclahealth.org/core-kidney/, along with information about the UCLA PKD program and other related educational outreach.

NW18 Patient Grievance Process

Check out the Network 18 website for some great information on the Network 18 Grievance Process:

  • For Providers, see http://www.esrdnetwork18.org/providers/patient-services/, which includes English and Spanish versions of the Network 18 Grievance Poster, Grievance Brochure, a link to the National Forum of ESRD Networks’ Grievance Toolkit, and a discussion on Preventing and Reducing Involuntary Discharge.
  • For Patients and Care Partners, see http://www.esrdnetwork18.org/patients/grievances/, which includes English and Spanish versions of the Network 18 Grievance Poster, Grievance Brochure, and a packet of Patient Grievance Guidelines and Forms; a discussion of patient and Network Roles and Responsibilities; and a list of California state Department of Health Services offices.

Keep in mind that no patient should ever suffer any retaliation for filing a grievance.  The Network is here to assist facilities and patients in resolving any concerns that may arise, in a collaborative and positive manner.  All facilities are required to:

  • Make sure you have the ESRD Network 18 Grievance Poster prominently displayed in your lobby or another area that is accessible to patients and guests, including a Spanish copy of the Poster.
  • Ensure that all patients understand how to file a grievance with you, with the Network, and with the State.

You can also print some Brochures and pass them out to patients, or have them available in your lobby.

NW18 Fire Danger Ventura-LA-Riverside-SB-SD Counties

Major evacuations are still in effect in western Los Angeles and eastern Ventura Counties, as the fires there remain active.  Wind Advisories and Red Flag Fire Warnings are in effect for Ventura, Los Angeles, Orange, San Bernardino, Riverside, and San Diego Counties.  Very low humidity and dangerous Santa Ana winds with gusts up to 70mph are expected through at least November 14, 2018.  Any open flame can be blocks away before it blows out, so use extreme caution and call 911 if you encounter fire or downed power lines.  Stay in touch with local radio and television coverage, and be alert for bulletins from your local Emergency Response agencies, Fire, and Police Departments.

CMS requires Networks to track the status of facility operations and patient access to treatment during emergency events.  If the operations of your facility, or ability for patients to have access to dialysis are impacted by emergency events, please let your Network know right away.

To reduce future fire danger in your area, see: