A research study is evaluating a recently developed questionnaire about patient experiences with anemia related to ESRD. The study, in partnership with AAKP, is being run by ICON, a research consultancy working for Amgen, a biotechnology company. If you are 18 or older, on dialysis, have anemia related to ESRD, and interested in participating, complete these three steps:
Call AAKP representatives Valerie Gonzalez at 813-400-2395 or Tangi Falber at 813-400-2392, who will ask you a few simple questions to see if you qualify
Patients who qualify will be asked to have their nurse or physician record their most recent hemogloblin level on a doctor’s note provided to you
Complete an online survey
Patients who complete the survey will receive $100.
Don’t neglect the library of recorded AAKP HealthLine webinars on treatment choices, transplant, patient-centered care, coping and depression, sexuality, diet and nutrition, diabetes, hypertension, and anemia.
The latest Network Consumer News has been mailed to facilities for distribution to patients. If you haven’t gotten one, ask your facility, or contact the Network (http://www.nwrenalnetwork.org/contact.htm). This issue includes a summary of CMS’s Performance Score Card, notes on Medicare Part D open enrollment, the Affordable Care Act, and New ESRD technologies under development.k There’s also a Word Search puzzle, and a large print version of the newsletter. You can find online copies of all of this at http://www.nwrenalnetwork.org/P/NCN.htm.