AAKP Anemia Questionnaire for Patients

A research study is evaluating a recently developed questionnaire about patient experiences with anemia related to ESRD.  The study, in partnership with AAKP, is being run by ICON, a research consultancy working for Amgen, a biotechnology company.  If you are 18 or older, on dialysis, have anemia related to ESRD, and interested in participating, complete these three steps:

• Call AAKP representatives Valerie Gonzalez at 813-400-2395 or Tangi Falber at 813-400-2392, who will ask you a few simple questions to see if you qualify
• Patients who qualify will be asked to have their nurse or physician record their most recent hemogloblin level on a doctor’s note provided to you
• Complete an online survey

Patients who complete the survey will receive $100.

Patient Education Jan-Feb 2014

Links to previous bulletins about upcoming patient education opportunities:

• January 22, 2014 online – AAKP HealthLine: Self-Care
• January 23, 2014 online – Resume Webinar
• February 3, 2014 Tacoma – Transplantation Choices for Patients with CKD
• February 26, 2014 online – AAKP HealthLine: Managing Anemia
• March 2, 2014 Portland – Everyday Heroes

Don’t neglect the library of recorded AAKP HealthLine webinars on treatment choices, transplant, patient-centered care, coping and depression, sexuality, diet and nutrition, diabetes, hypertension, and anemia.

AAKP Anemia Webinar Feb 26

AAKP HealthLine will present a webinar for patients February 26, 2014 on “Managing Anemia.”  The webinar will discuss symptoms, causes, treatments, exercise, nutrition, and patient experience.  For details and to register, see https://www.aakp.org/community/programs-events/aakp-healthline/aakp-healthline%20managing-anemia.html.

Patient Newsletter on Facility Performance

The latest Network Consumer News has been mailed to facilities for distribution to patients.  If you haven’t gotten one, ask your facility, or contact the Network (http://www.nwrenalnetwork.org/contact.htm).  This issue includes a summary of CMS’s Performance Score Card, notes on Medicare Part D open enrollment, the Affordable Care Act, and New ESRD technologies under development.k  There’s also a Word Search puzzle, and a large print version of the newsletter.  You can find online copies of all of this at http://www.nwrenalnetwork.org/P/NCN.htm.