8/18 Compassionate Care Webinar

The Coalition for Compassionate Care of California (CCCC) will present an August 18, 2016 webinar on The End of the Rainbow: What matters most to LGBTQ persons during serious illness.  The webinar will cover key components of diversity, challenges of managing a diverse staff, and skills in creating protocols.  One CEU will be available for nurses and social workers.  Find more information and register at http://coalitionccc.org/training-events/webinars/ .

The same web page includes descriptions of and links to previous webinars and their recordings, including sessions on advance planning, intimacy, delirium, palliative care, communication, reimbursement, depression, California’s new EOL law, and POLST*.  Many more webinars, tools, and resources can be found at http://coalitionccc.org/training-events/

The CCCC Annual Palliative Care Summit will be held in Sacramento CA March 13-14, 2017, and CCCC is now calling for presentations.   Find out more at http://coalitionccc.org/training-events/annual-conference/cccc-annual-summit-call-presentations/ ,  http://coalitionccc.org/training-events/annual-conference/ (including links to presentations from earlier Summits),  and http://ccccsummit.org/ .

* POLST, or Physician Orders for Life-Sustaining Treatment, serve the same function for current-time treatment, as Advance Directives do for future treatment.  For more information on POLST, see http://www.polst.org/advance-care-planning/polst-and-advance-directives/ .

Palliative Pediatric Care

The NIH National Institute of Nursing Research provides a booklet for families regarding supportive medical and non-medical care for children suffering from a chronic disease such as CKD, called Palliative Care for Children: Support for the Whole Family When Your Child Is Living with a Serious Illness.  Download a copy from https://www.ninr.nih.gov/sites/www.ninr.nih.gov/files/NINR_508cBrochure_2015-7-7.pdf .

Podcast on Itchy or Dry Skin

The Renal Support Network has published an audio recording of dermatologist Dr. Yuval Bibi explaining for kidney patients the causes of itchy skin and the ways you can best treat, care for, and protect your skin.  Find the podcast at:

You can find almost two hundred additional KidneyTalk podcasts on a wide variety of subjects at:

Patient Poster on Caregiving

We’ve added the November Monthly Patient Flyer/Poster to the Network website.  It celebrates National Family Caregivers Month, and we join the rest of the world in a bow of appreciation to all of the caregivers out there.  Find this and all of our historical Monthly Patient Posters at: 

If you have questions or suggestions for future Patient Flyers, please contact Patient Services Director Lisa Hall at lhall@nw16.esrd.net .  

Home Dialysis Care Partner Agreements

The Medical Education Institute has released a pair of tools for coordinating home dialysis with one’s care partner – one for HHD and one for PD.  They’re one-page lists of tasks that typify home dialysis treatment, where the two of you can self-assign the tasks that you choose, then negotiate any tasks for which neither or both of you “signed up.”  They call the tools “PATH-D” for Partner Agreement on Tasks for Home Dialysis.  Find them at http://homedialysis.org/news-and-research/blog/99-introducing-the-new-partner-agreement-on-tasks-for-home-dialysis-path-d-tools-comments-welcome .

For Patients: Volunteering and Caregiving

The latest Network Consumer News has been mailed to facilities for distribution to patients.  If you haven’t gotten one, ask your facility, or contact the Network (http://www.nwrenalnetwork.org/contact.htm).  This issue is on Volunteering, with additional articles on

  • The Wearable Artificial Kidney
  • “Did You Know that Each Dialysis Clinic Gets a Report Card?”
  • Self-Care Dialysis

There’s also a large print and a Spanish version of the newsletter, a feedback form, and a Word Search puzzle.  You can find online copies of all this at http://www.nwrenalnetwork.org/P/NCN.htm.

Our Monthly Patient Flyer is also now posted on the Network website, at http://www.nwrenalnetwork.org/P/M/Monthly.htm.  The featured topic for November is Caregiving.  These flyers are designed for posting in the facility waiting area, and for distribution to patients and family members.  Contact our Patient Services Director, Lisa Hall (lhall@nw16.esrd.net) if you have questions, or ideas for future monthly topics.