MEI has released a Spanish edition of their Partner Agreement on Tasks for Home Dialysis (PATH-D), or Acuerdo del Compañero sobre tareas para la Diálisis en el hogar. Find it, for either PD or HHD, along with other useful home care resources, at https://www.homedialysis.org/life-at-home/care-partners.
Network 16 is seeking volunteers – patients or care partners – to represent the Network on two national committees:
ESRD National Coordinating Center’s Patient and Family Engagement Learning & Action Network:
- Volunteers are asked to commit to participating in scheduled conference calls and webinars, usually every month or every other month
- Centers for Medicare & Medicaid Services (Medicare) representatives are on the calls, providing an opportunity for volunteers to work closely with the federal government to improve patient care
- The patient representative with the highest level of participation (attendance) gets to travel to Baltimore for a national meeting of the committee
- Learn more about the committee at http://ncc.hshapps.com/en/patients/national-patient-and-family-engagement-lan-npfe-lan/.
- We need one patient from Idaho, and one from Montana
Kidney Community Emergency Response Coalition (KCER): This is a national group devoted to improving emergency preparedness and response for kidney patients and ESRD facilities. This involves quarterly conference calls. Learn more about the Coalition at http://www.kcercoalition.com/. We need two patients from any Network state – Alaska, Idaho, Montana, Oregon, or Washington.
Anyone interested should email Lisa Hall at LHall@nw16.esrd.net or call 206-923-0714.
The Institute for Healthcare Improvement will present a webinar on Engaging and Supporting Family Caregivers on October 20, 2016. For details see http://www.ihi.org/education/AudioVideo/WIHI/October2016-Engaging-and-Supporting-Family-Caregivers/Pages/default.aspx .
The Coalition for Compassionate Care of California (CCCC) will present an August 18, 2016 webinar on The End of the Rainbow: What matters most to LGBTQ persons during serious illness. The webinar will cover key components of diversity, challenges of managing a diverse staff, and skills in creating protocols. One CEU will be available for nurses and social workers. Find more information and register at http://coalitionccc.org/training-events/webinars/ .
The same web page includes descriptions of and links to previous webinars and their recordings, including sessions on advance planning, intimacy, delirium, palliative care, communication, reimbursement, depression, California’s new EOL law, and POLST*. Many more webinars, tools, and resources can be found at http://coalitionccc.org/training-events/ .
The CCCC Annual Palliative Care Summit will be held in Sacramento CA March 13-14, 2017, and CCCC is now calling for presentations. Find out more at http://coalitionccc.org/training-events/annual-conference/cccc-annual-summit-call-presentations/ , http://coalitionccc.org/training-events/annual-conference/ (including links to presentations from earlier Summits), and http://ccccsummit.org/ .
* POLST, or Physician Orders for Life-Sustaining Treatment, serve the same function for current-time treatment, as Advance Directives do for future treatment. For more information on POLST, see http://www.polst.org/advance-care-planning/polst-and-advance-directives/ .
The NIH National Institute of Nursing Research provides a booklet for families regarding supportive medical and non-medical care for children suffering from a chronic disease such as CKD, called Palliative Care for Children: Support for the Whole Family When Your Child Is Living with a Serious Illness. Download a copy from https://www.ninr.nih.gov/sites/www.ninr.nih.gov/files/NINR_508cBrochure_2015-7-7.pdf .
The Renal Support Network has published an audio recording of dermatologist Dr. Yuval Bibi explaining for kidney patients the causes of itchy skin and the ways you can best treat, care for, and protect your skin. Find the podcast at:
You can find almost two hundred additional KidneyTalk podcasts on a wide variety of subjects at:
We’ve added the November Monthly Patient Flyer/Poster to the Network website. It celebrates National Family Caregivers Month, and we join the rest of the world in a bow of appreciation to all of the caregivers out there. Find this and all of our historical Monthly Patient Posters at:
If you have questions or suggestions for future Patient Flyers, please contact Patient Services Director Lisa Hall at firstname.lastname@example.org .