As part of a project to create free patient support educational material for CKD and dialysis patients, the organization Muse Story Telling is seeking patient stories. You can connect with them at the August 20, 2017 NKF/PKG Wellness Fair in Portland, you can email them anytime at email@example.com , or you can start with their short get-to-know-you survey at https://musestorytelling.typeform.com/to/OgVaYu .
The NIH’s National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) is depleting their stock of hard copy publications on diabetes, digestive diseases, nutrition, and kidney disease, in English and Spanish. Up to 25 copies of most titles are available to order free of charge if shipped to addresses within the United States, until August 15, 2017. See NIDDK’s Online Catalog at https://catalog.niddk.nih.gov/Catalog/ .
To better manage your kidney disease, Avantus Renal Therapy-Newport Superior Dialysis will be offering educational seminars on the first Tuesday of each month in Newport Beach CA. The semnars will make you aware of the different types of dialysis and offer crucial information regarding the choices available to treat your kidney disease. Meet with a Social Worker, Renal Dietitian, Access Coordinator and Dialysis Nurse. Family & friends are welcome. Find details at http://www.esrdnetwork18.org/events/chronic-kidney-disease-class-every-1st-tuesday-month-200pm/ .
March is also National Social Work month. We’ve added web pages to the Network 16 website describing a few skills that social workers bring to patients and facilities. Among the many things social workers do are:
Dialysis Patient Citizens will present a webinar on Sex and Intimacy with CKD March 23, 2017. Sex is good medicine. It has health benefits, feels good, strengthens relationships and makes life more rewarding. CKD can interfere with physical intimacy, but it can’t prevent it. Learn about why sex is important, possible, and beneficial. Learn ways to be intimate that any body can do, how to enjoy it more, and how to find new sources of physical connection. For more information on the webinar and registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/DPC.sex.0317.pdf .