3/16 NW18 UCI Health WKD Symposium

UC Irvine Health will present a free March 16, 2019 World Kidney Day symposium in Orange, CA on Kidney health, featuring leading experts in Nephrology, Urology, Transplant, and Nutrition.  Patients, providers, and community members are all invited to enjoy a day of education, health screenings, refreshments, and live entertainment.  For details see https://twitter.com/IFKF_/status/1103801441846587392 and https://www.facebook.com/events/638668909886763/?notif_t=event_invite_reminder&notif_id=1551199891724380.

AAKP HealthLine on MBD Secondary Hyperparathyroidism

AAKP has recorded their November HealthLine webinar, variously named as Are You at Risk for Secondary Hyperparathyroidism?  Learn the Importance of Early Detection, and The Pathogenesis and Treatment of CKD-MBD.  CKD-related Mineral Bone Disease, in this case Hypocalcemia, can cause excessive secretion of parathyroid hormone (PTH) or Secondary Hyperparathyroidism.  Tune into the webinar recording at https://www.gotostage.com/channel/6927452477730326277/recording/9cfd79d963c345628f3e38d8ba44a5ab/watch, or read more about it at https://aakp.org/blog/aakp-healthline-webinar-summary-risk-secondary-hyperparathyroidism-learn-importance-early-detection/.

10/23+ NW16 W WA Kidney Support Group

The Road Back to Life is a nonprofit organization that provides mentoring to dialysis patients, patient support groups, and award-winning CKD classes.  They offer patient support groups in Lynnwood WA on October 23, November 27, and December 25, 2018, and in both Monroe and Mountlake Terrace WA on November 13 and December 11.  They also provide November 8, December 6, and December 13, 2018 courses on HOPE (or Healthy Options) in Mountlake Terrace, and a six-part course November 7-December 19 on Survive and Thrive with CKD in Lynnwood WA.  For details see https://www.kidneysupportgroup.com/calendar/.  For more information on The Road Back to Life see https://www.kidneysupportgroup.com/.

10/22+ Laugh Will and Testament Webinar

DPC’s next Educational Call is an October 22, 2018 webinar called Laugh Will and Testament: Using Humor to Contemplate Mortality and Enjoy Life.  See the poster below and http://www.dpcedcenter.org/education-seminars for details.  RSVP at http://www.dpcedcenter.org/education-call-rsvp to get a reminder.

The DPC Education Center is a treasure trove of information on kidney disease; find it at http://www.dpcedcenter.org/.  Mark your calendar for future Educational Calls on November 15 and December 13, and 2019 Calls on January 24, February 28, March 28, April 25, May 23, June 27, July 25, August 22, September 26, October 24, November 28, and December 26.

Medicare Diabetes Prevention Program

CMS has updated its web page on the Medicare Diabetes Prevention Program Expanded Model.  Diabetes is a leading cause of kidney disease, and this Medicare/CDC Program has been shown to reduce by up to 70% the progression from pre-diabetes to diabetes itself.  Find the web page at https://innovation.cms.gov/initiatives/medicare-diabetes-prevention-program/.

9/17 NW18 UKEEP on Advanced CKD

The UCLA Kidney Education Enhancement Program (UKEEP) will present a free patient education program September 17, 2017 on “Advanced Kidney Disease & Your Options” in Santa Monica CA.  RSVP is requested; please call 800-516-5323 and leave your name, number of attendees and callback number.  More information follows:

Seeking Patient Stories

As part of a project to create free patient support educational material for CKD and dialysis patients, the organization Muse Story Telling is seeking patient stories.  You can connect with them at the August 20, 2017 NKF/PKG Wellness Fair in Portland, you can email them anytime at research@musestorytelling.org , or you can start with their short get-to-know-you survey at https://musestorytelling.typeform.com/to/OgVaYu .