In addition to the previously scheduled patient education webinars about Blood Pressure on January 16, 2020, about Living Kidney Donation on February 13, and the Kidney Fair at the Beach on May 17 (see https://nwrnbulletins.wordpress.com/2019/11/01/12-3-ucla-core-kidney-program-and-ukeep/), the UCLA Core Kidney Program has added a March 1, 2020 workshop on ESRD: What You Should Know. Stay tuned to this blog or to https://www.uclahealth.org/core-kidney/upcoming-events for details.
The Yale New Haven Health Services Corporation’s Center for Outcomes Research and Evaluation is convening a Technical Expert Panel (TEP) on Development of a Quality Measure Assessing Delay in Progression of CKD for CMS. Nominate yourself or others before January 13, 2020. Find details at https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/TEP-Currently-Accepting-Nominations#a1213, and download nomination forms from https://www.cms.gov/files/zip/development-quality-measure-assessing-delay-progression-chronic-kidney-disease-ckd.
Dialysis Patient Citizens will present a November 21, 2019 webinar on Treatments and Modality Options for Kidney Disease. For details see below, and register at https://www.dpcedcenter.org/news-events/education-webinars/signup/.
NKF has launched Kidney Pathways, an interactive education tool that uses an online kidney health assessment to provide a series of steps for people at any stage of CKD to learn about their condition and how best to respond to it. Start the Kidney Pathways program by answering the question on the right-hand side of the screen at https://www.kidney.org/phi/1245/health. Find a description of the tool at https://www.kidney.org/news/national-kidney-foundation-unveils-kidney-pathways-curated-kidney-health-education-curriculum.
UC Irvine Health will present a free March 16, 2019 World Kidney Day symposium in Orange, CA on Kidney health, featuring leading experts in Nephrology, Urology, Transplant, and Nutrition. Patients, providers, and community members are all invited to enjoy a day of education, health screenings, refreshments, and live entertainment. For details see https://twitter.com/IFKF_/status/1103801441846587392 and https://www.facebook.com/events/638668909886763/?notif_t=event_invite_reminder¬if_id=1551199891724380.
AAKP has recorded their November HealthLine webinar, variously named as Are You at Risk for Secondary Hyperparathyroidism? Learn the Importance of Early Detection, and The Pathogenesis and Treatment of CKD-MBD. CKD-related Mineral Bone Disease, in this case Hypocalcemia, can cause excessive secretion of parathyroid hormone (PTH) or Secondary Hyperparathyroidism. Tune into the webinar recording at https://www.gotostage.com/channel/6927452477730326277/recording/9cfd79d963c345628f3e38d8ba44a5ab/watch, or read more about it at https://aakp.org/blog/aakp-healthline-webinar-summary-risk-secondary-hyperparathyroidism-learn-importance-early-detection/.
The Road Back to Life is a nonprofit organization that provides mentoring to dialysis patients, patient support groups, and award-winning CKD classes. They offer patient support groups in Lynnwood WA on October 23, November 27, and December 25, 2018, and in both Monroe and Mountlake Terrace WA on November 13 and December 11. They also provide November 8, December 6, and December 13, 2018 courses on HOPE (or Healthy Options) in Mountlake Terrace, and a six-part course November 7-December 19 on Survive and Thrive with CKD in Lynnwood WA. For details see https://www.kidneysupportgroup.com/calendar/. For more information on The Road Back to Life see https://www.kidneysupportgroup.com/.