9/17 NW18 UKEEP on Advanced CKD

The UCLA Kidney Education Enhancement Program (UKEEP) will present a free patient education program September 17, 2017 on “Advanced Kidney Disease & Your Options” in Santa Monica CA.  RSVP is requested; please call 800-516-5323 and leave your name, number of attendees and callback number.  More information follows:

Seeking Patient Stories

As part of a project to create free patient support educational material for CKD and dialysis patients, the organization Muse Story Telling is seeking patient stories.  You can connect with them at the August 20, 2017 NKF/PKG Wellness Fair in Portland, you can email them anytime at research@musestorytelling.org , or you can start with their short get-to-know-you survey at https://musestorytelling.typeform.com/to/OgVaYu .

8/15 Free NIDDK Brochures

The NIH’s National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) is depleting their stock of hard copy publications on diabetes, digestive diseases, nutrition, and kidney disease, in English and Spanish.  Up to 25 copies of most titles are available to order free of charge if shipped to addresses within the United States, until August 15, 2017.  See NIDDK’s Online Catalog at https://catalog.niddk.nih.gov/Catalog/ .

SC 4/4 CKD Class

To better manage your kidney disease, Avantus Renal Therapy-Newport Superior Dialysis will be offering educational seminars on the first Tuesday of each month in Newport Beach CA.  The semnars will make you aware of the different types of dialysis and offer crucial information regarding the choices available to treat your kidney disease.  Meet with a Social Worker, Renal Dietitian, Access Coordinator and Dialysis Nurse.  Family & friends are welcome.  Find details at http://www.esrdnetwork18.org/events/chronic-kidney-disease-class-every-1st-tuesday-month-200pm/ .

Nat’l SW Month

March is also National Social Work month.  We’ve added web pages to the Network 16 website describing a few skills that social workers bring to patients and facilities.  Among the many things social workers do are:

  • Help manage kidney disease
  • Help assure quality of life
  • Help with rehabilitation
  • Help with education
  • Help assure satisfaction

Find the flyer for facilities in this month’s Network 16 News at https://www.nwrn.org/providers-and-professional-staff/nw16n.html and this month’s Patient Bulletin for posting or handout to patients at https://www.nwrn.org/patients-a-family/ptedres/mon.html .

3/23 DPC Sex with CKD Webinar

Dialysis Patient Citizens will present a webinar on Sex and Intimacy with CKD March 23, 2017.  Sex is good medicine.  It has health benefits, feels good, strengthens relationships and makes life more rewarding. CKD can interfere with physical intimacy, but it can’t prevent it.  Learn about why sex is important, possible, and beneficial. Learn ways to be intimate that any body can do, how to enjoy it more, and how to find new sources of physical connection.  For more information on the webinar and registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/DPC.sex.0317.pdf .

SC 2/26 Free Kidney Health Check

NKF will sponsor a free kidney health check in Los Angeles on February 26, 2017.  For more information see the poster, Are You the 1 in 3 at Risk for Kidney Disease? at  http://www.esrdnetwork18.org/docs-events/KEEP_Flyer_WLCAC_TLinsay_SC_Eng_Jan_10.pdf .  Keep an eye on the Network 18 Calendar at http://www.esrdnetwork18.org/events/ to stay up to date on other southern California events of interest to patients.