11/10+ RNS Hope Week Online

The Renal Support Network has been offering its free Annual Patient Education Meeting for kidney patients and their families in the Los Angeles area for 27 years. With COVID-19 complicating things this year, RSN did what only Lori Hartwell could have imagined doing – they went global and online, and made it five times as big! So this year, RSN Hope Week will span November 10-14, 2020 with a different theme each day: CKD on day 1, Dialysis on day 2, Transplant on day 3, All Stages of Care on day 4, and Parenting Children with CKD on day 5.

Find RSN’s press release introducing the week at https://www.rsnhope.org/press-releases/renal-support-networks-27th-annual-patient-education-meeting-goes-virtual/. Find a short version of the agenda below. It’s page 1 of their flyer, which includes a full page describing each day – find the full 6-page flyer HERE. Find brief vitae and snapshots of the full faculty at https://www.rsnhope.org/hope-week-faculty/. And register at https://www.rsnhope.org/hope-week-rsns-national-online-patient-meeting/ – there’s also a short version of the agenda on that page.

11/19+ DPC Caregiver Webinar

Dialysis Patient Citizens will present an 11am PST November 19, 2020 webinar on Looking Out for the Caregiver: Understanding the People Who Care for Dialysis Patients. For details see below. Register at https://www.dpcedcenter.org/news-events/education-webinars/signup/?bblinkid=244466063&bbemailid=25295695&bbejrid=1697677768.

DPC will also host 11am PST webinars on Coping with the Holidays December 17, 2020; Advance Directives & Shared Decision-Making January 28, 2021; Nutrition and Exercise for the Immune System February 25, 2021; and The Empowered Patient: Taking Steps to Manage Diabetes and Chronic Kidney Disease March 25, 2021.

RSN KidneyTalk Podcasts

The Renal Support Network has recently published audio podcasts for patients on:

What Is Lupus?https://www.rsnhope.org/kidneytalk/what-is-lupus/.

Transitioning to Home Dialysis – https://www.rsnhope.org/kidneytalk/transitioning-home-dialysis/.

Bacteria VS. Virus https://www.rsnhope.org/kidneytalk/bacteria-vs-virus/.

Assessing Your Kidney Transplant Health https://www.rsnhope.org/kidneytalk/assessing-your-kidney-transplant-health/.

Innovations in Kidney Care https://www.rsnhope.org/kidneytalk/innovations-in-kidney-care/.

A Double-Transplant Survivor’s Storyhttps://www.rsnhope.org/kidneytalk/valen-keefer-a-double-transplant-survivors-story/.

Understanding the Five Stages of Kidney Diseasehttps://www.rsnhope.org/kidneytalk/understanding-the-five-stages-of-kidney-disease/.

Covid-19 and Organ Donationhttps://www.rsnhope.org/kidneytalk/covid-19-and-organ-donation/.

Tips to Help the Search for a Living Kidney Donorhttps://www.rsnhope.org/kidneytalk/advocating-for-a-living-kidney-donor/.

9/9+ PSKC Online Classes on CKD Stages 2-4

Puget Sound Kidney Centers will present a series of six free online classes on Chronic Kidney Disease Stages 2-4, Wednesdays from September 9 to October 14, 2020, called Survive and Thrive 2020.  Without treatment and/or a change in lifestyle, especially diet and exercise, CKD Stage 2 often progresses to Stages 3 and 4.  These classes will teach how to manage CKD to hopefully slow or even reverse its progression.  For details and registration, see below:

8/18+ NKF/CHRC CKD and Nutrition Webinars

NKF and the California Pacific Medical Center Community Health Resource Center will present a series of three Tuesday Zoom classes on CKD and Nutrition, the first on August 18, 2020 re Kidney Health and CKD Overview, the second on August 25 re Nutrition Recommendations for CKD, and the third on September 1 re Meal Planning.  For more information, see below:

8/14 AAKP HealthLine on Kidney Genetics

AAKP will present a 10am PDT 14 August 2020 HealthLine webinar on Understanding Genetic Conditions: What You Need to Know.  For individuals who may be faced with inheriting a genetic condition, it’s important to know your family history, the different ways a genetic condition can be inherited, what genetic testing entails, and how you can work with your healthcare team to help manage the condition. The audio will feature genetic counselors as well as kidney patients with genetic conditions.  Find details and register at https://register.gotowebinar.com/register/814066723276791822.

Find general information about HealthLine and recordings of earlier webinars, including their series of nine HealthLines on COVID-19 and…

  • Dialysis,
  • Transplant,
  • Vascular Access,
  • CKD,
  • Telemedicine,
  • Veterans,
  • Mental Health,
  • Nutrition, and
  • Clinical Trials,

…at https://aakp.org/programs-and-events/aakp-healthline/.

AAKP Webinar on VA’s Response to COVID-19

AAKP has recorded a webinar by the Director of the Veterans Health Administration National Kidney Program, the Chair of the AAKP Veterans Health Initiative, and an AAKP Board Member in the US Army Medical Corps, discussing important information for veterans who have CKD about what the VA is doing in response to COVID-19.  Find the webinar at https://www.youtube.com/watch?v=PJA_yCwHQOQ&feature=youtu.be.

4/29 AAKP HealthLine on COVID-19 and CKD 1-4

AAKP HealthLine will present an April 29, 2020 webinar on Fighting Coronavirus Upstream – What Early Stage Kidney Disease Patients Need to Know, about how people with CKD Stages 1-4 may be able to fend off COVID-19 (I’m extrapolating that from limited information).  Find more information and register at https://aakp.org/programs-and-events/aakp-healthline/.

3/12 World Kidney Day and National Kidney Month

March 12, 2020 is World Kidney Day, sponsored by the International Society of Nephrology and the International Federation of Kidney Foundations.  This year’s theme is Kidney Health for Everyone Everywhere – from Prevention to Detection and Equitable Access to Care.  Find more information at https://www.cdc.gov/mmwr/preview/mmwrhtml/mm5808a1.htm and a campaign toolkit at https://www.worldkidneyday.org/2020-campaign/2020-campaign-materials/.

March is also National Kidney Month, with the theme Take the Pressure off Your Kidneys and Your Health.  Find more information at https://www.kidney.org/content/national-kidney-month and https://www.niddk.nih.gov/health-information/community-health-outreach/national-kidney-month.  The latter includes a campaign toolkit, including posters like the one below, in English and Spanish.

To support National Kidney Month, NKF, HHS, and ASN have launched a nationwide risk campaign called Are You the 33%?.  Find details at https://www.kidney.org/news/nationwide-kidney-risk-campaign-launched-nkf-hhs-and-asn.