AAKP has recorded a webinar by the Director of the Veterans Health Administration National Kidney Program, the Chair of the AAKP Veterans Health Initiative, and an AAKP Board Member in the US Army Medical Corps, discussing important information for veterans who have CKD about what the VA is doing in response to COVID-19. Find the webinar at https://www.youtube.com/watch?v=PJA_yCwHQOQ&feature=youtu.be.
AAKP HealthLine will present an April 29, 2020 webinar on Fighting Coronavirus Upstream – What Early Stage Kidney Disease Patients Need to Know, about how people with CKD Stages 1-4 may be able to fend off COVID-19 (I’m extrapolating that from limited information). Find more information and register at https://aakp.org/programs-and-events/aakp-healthline/.
March 12, 2020 is World Kidney Day, sponsored by the International Society of Nephrology and the International Federation of Kidney Foundations. This year’s theme is Kidney Health for Everyone Everywhere – from Prevention to Detection and Equitable Access to Care. Find more information at https://www.cdc.gov/mmwr/preview/mmwrhtml/mm5808a1.htm and a campaign toolkit at https://www.worldkidneyday.org/2020-campaign/2020-campaign-materials/.
March is also National Kidney Month, with the theme Take the Pressure off Your Kidneys and Your Health. Find more information at https://www.kidney.org/content/national-kidney-month and https://www.niddk.nih.gov/health-information/community-health-outreach/national-kidney-month. The latter includes a campaign toolkit, including posters like the one below, in English and Spanish.
To support National Kidney Month, NKF, HHS, and ASN have launched a nationwide risk campaign called Are You the 33%?. Find details at https://www.kidney.org/news/nationwide-kidney-risk-campaign-launched-nkf-hhs-and-asn.
To honor National Kidney Month (March), HHS, ASN, NKF, and private partners including CVS Kidney Care, have launched a nationwide campaign to reach the 33% of American adults who are at risk of kidney disease, and to help them avoid further development of the disease. Find more information at https://www.kidney.org/news/nationwide-kidney-risk-campaign-launched-nkf-hhs-and-asn. They plan to also launch a Spanish-language version on September 15, 2020 for National Hispanic Heritage Month (September 15-October 15).
In addition to the previously scheduled patient education webinars about Blood Pressure on January 16, 2020, about Living Kidney Donation on February 13, and the Kidney Fair at the Beach on May 17 (see https://nwrnbulletins.wordpress.com/2019/11/01/12-3-ucla-core-kidney-program-and-ukeep/), the UCLA Core Kidney Program has added a March 1, 2020 workshop on ESRD: What You Should Know. Stay tuned to this blog or to https://www.uclahealth.org/core-kidney/upcoming-events for details.
The Yale New Haven Health Services Corporation’s Center for Outcomes Research and Evaluation is convening a Technical Expert Panel (TEP) on Development of a Quality Measure Assessing Delay in Progression of CKD for CMS. Nominate yourself or others before January 13, 2020. Find details at https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/TEP-Currently-Accepting-Nominations#a1213, and download nomination forms from https://www.cms.gov/files/zip/development-quality-measure-assessing-delay-progression-chronic-kidney-disease-ckd.
Dialysis Patient Citizens will present a November 21, 2019 webinar on Treatments and Modality Options for Kidney Disease. For details see below, and register at https://www.dpcedcenter.org/news-events/education-webinars/signup/.
NKF has launched Kidney Pathways, an interactive education tool that uses an online kidney health assessment to provide a series of steps for people at any stage of CKD to learn about their condition and how best to respond to it. Start the Kidney Pathways program by answering the question on the right-hand side of the screen at https://www.kidney.org/phi/1245/health. Find a description of the tool at https://www.kidney.org/news/national-kidney-foundation-unveils-kidney-pathways-curated-kidney-health-education-curriculum.
UC Irvine Health will present a free March 16, 2019 World Kidney Day symposium in Orange, CA on Kidney health, featuring leading experts in Nephrology, Urology, Transplant, and Nutrition. Patients, providers, and community members are all invited to enjoy a day of education, health screenings, refreshments, and live entertainment. For details see https://twitter.com/IFKF_/status/1103801441846587392 and https://www.facebook.com/events/638668909886763/?notif_t=event_invite_reminder¬if_id=1551199891724380.
AAKP has recorded their November HealthLine webinar, variously named as Are You at Risk for Secondary Hyperparathyroidism? Learn the Importance of Early Detection, and The Pathogenesis and Treatment of CKD-MBD. CKD-related Mineral Bone Disease, in this case Hypocalcemia, can cause excessive secretion of parathyroid hormone (PTH) or Secondary Hyperparathyroidism. Tune into the webinar recording at https://www.gotostage.com/channel/6927452477730326277/recording/9cfd79d963c345628f3e38d8ba44a5ab/watch, or read more about it at https://aakp.org/blog/aakp-healthline-webinar-summary-risk-secondary-hyperparathyroidism-learn-importance-early-detection/.