NW <6/25 Heat Wave W WA/OR

Temperatures are currently expected on June 24-25, 2017 to range between 80 and 100°F in Western Washington and Western Oregon from Florence and Eugene north, including the mountains and Columbia Gorge through Hood River.  Networks are required by CMS to track the status of facility operations and patient access to treatment during emergency events.

If the operations of your facility, or ability for patients to have access to dialysis are impacted by emergency events, please let your Network know right away.  Contact Lisa Hall at LHall@nw16.esrd.net or 206-923-0714.  We also ask that you fill out and submit our Disaster Reporting Form, which you can find at https://nwrn.org/files/E/Interruptions.pdf .

Patients and facility staff may find these resources useful:

SC <6/21 Heat Wave

Temperatures are currently expected to exceed 110°F in the Coachella and Imperial Valleys through June 21, 2017, and exceed 100°F in much of the rest of inland Southern and South Central California.  High-altitude snowmelt may cause flooding around Bishop.

Networks are required by CMS to track the status of facility operations and patient access to treatment during emergency events.  If the operations of your facility, or ability for patients to have access to dialysis are impacted by emergency events, please let your Network know right away.

In Southern and South-Central California (Network 18), contact Eileen Rhodes or Julie Aguilar at 888-268-1539 or by email at ERhodes@nw18.esrd.net or JAguilar@nw18.esrd.net , and fill out the form at http://www.esrdnetwork18.org/machform/embed.php?id=16298 .

Patients and facility staff may find these resources useful:

6/16 AKF Protein Webinar

AKF will present a June 16, 2017 webinar on Protein: Who Needs It Anyway?  You Do!  Find details and register at http://www.kidneyfund.org/training/webinars/ .

At the same web page you can find recordings of their past webinars, including:

  • Humanizing Dialysis; Choosing the best type of treatment for kidney failure can be difficult for patients, especially when they receive little guidance
  • Saying no to dialysis: choosing conservative care for end-stage kidney disease
  • A patient’s perspective: Be your own advocate; Navigating the health care system as a patient can be challenging
  • Heart disease and kidney disease – what’s the connection? – Heart disease can cause kidney disease, and kidney disease can cause heart disease
  • Unique strategies for improving the effectiveness of exercise training in patients with kidney failure
  • Paired kidney exchanges and opportunities for kidney transplant in minority patients
  • Living with diabetic kidney disease; Diabetes is the leading cause of kidney disease, and many people suffer from both conditions
  • Enfermedad de los riñones crónica: prevención y tratamiento; Con motivo de la celebración del Mes de la Herencia Hispana, ¡brindaremos nuestro primer seminario web en español!
  • Emergency preparedness and kidney disease – using KCER as a resource
  • Organ transplant among minorities: How we can reduce the need and improve access
  • I need a kidney transplant.  Am I covered now?  What about in the future?
  • Staying employed with kidney disease; A diagnosis of kidney failure doesn’t have to mean quitting your job
  • What CAN I eat?  Nutrition for dialysis patients
  • Living with chronic kidney disease: The ups, downs, and all arounds
  • Chronic Kidney Disease: A General Overview and Keys for Successful Management

Cyber Crime Reporting

The following message is from CMS.

If you are the victim of ransomware or have cyber threat indicators to share

If you or your organization is the victim of a ransomware attack, please contact law enforcement immediately.

  1. Contact your FBI Field Office Cyber Task Force, at https://www.fbi.gov/contact-us/field-offices/field-offices , immediately to report a ransomware event and request assistance.  These professionals work with state and local law enforcement and other federal and international partners to pursue cyber criminals globally and to assist victims of cyber-crime.
  2. Report cyber incidents to both of the following:
  3. For further analysis and healthcare-specific indicator sharing, please also share these indicators with the HHS Healthcare Cybersecurity and Communications Integration Center (HCCIC) via email to HCCIC_RM@hhs.gov

Advance Planning Booklet

The Coalition for Supportive Care of Kidney Patients (http://kidneysupportivecare.org/Home.aspx) has created a booklet called Planning Today for Tomorrow’s Healthcare: A Guide for People with Chronic Kidney Disease.  You can find a copy at http://kidneysupportivecare.org/Files/ACPforCKDbrochure3-2017.aspx .

2/17 KCER Needs Assessment

The Kidney Community Emergency Response Coalition (KCER) has requested that patients and facilities volunteer to complete KCER’s Program Needs Assessment questionnaire, to ascertain whether or not they’re likely to meet your needs in an emergency.  There are three different questionnaires, one for HD patients including Home HD, one for PD patients home or in-center, and a third for dialysis facilities.  For details and to respond, see http://www.kcercoalition.com/2017NeedsAssessment .  Contact Jerome Bailey with any questions, at 813.865.3542 or JBailey@hsag.com .