The UCLA CORE Kidney Program will present Dialysis: What You Should Know at 5pm PST January 21, 2021, an online webinar covering the options available to a patient with advanced kidney disease, including home dialysis, living donation, transplant, and conservative management. Register at https://uclahs.zoom.us/webinar/register/WN_GIfxKl59TCKnSAgW31mufw.
The ESRD National Coordinating Center will present a January 15, 2021 online event for patients on Home Dialysis During COVID: Lessons Learned. The objective is to demonstrate best practices, share patient experiences, and discuss the benefits of home therapy. Find more information and register at https://esrdncc.org/en/covid-19/covid-webinars/.
The ESRD Network Coordinating Center will host a December 15, 2021 webinar for patients on Home Dialysis During COVID: Lessons Learned. Topics will include best practices, patient experiences, and patient benefits of dialyzing at home. For details and registration see https://esrdncc.org/en/covid-19/covid-webinars/.
The ESRD Network Coordinating Center will host a December 30, 2021 webinar for providers on The Importance of Kidney Transplant and Referral Process During COVID-19. Topics will include the benefits of getting patients on the waitlist, the impact that COVID-19 has had on the referral process, and how a transplant center educates patients during the pandemic. One CEU credit will be available. For details and registration see https://esrdncc.org/en/covid-19/covid-webinars/.
MEI’s Home Dialysis Central has published a blog post on Saying No to a Kidney Transplant. The author describes the pros and cons, from their own Perspective, of a transplant versus their successful career on home dialysis. Find the post at https://homedialysis.org/news-and-research/blog/401-saying-no-to-a-kidney-transplant. MEI’s essay on Choosing Your Treatment at https://homedialysis.org/life-at-home/choosing-your-treatment, and their interactive tool My Life, My Dialysis Choice at https://mydialysischoice.org/ can help you decide in advance which treatment might be right for you from your own Perspective.
The Renal Support Network has been offering its free Annual Patient Education Meeting for kidney patients and their families in the Los Angeles area for 27 years. With COVID-19 complicating things this year, RSN did what only Lori Hartwell could have imagined doing – they went global and online, and made it five times as big! So this year, RSN Hope Week will span November 10-14, 2020 with a different theme each day: CKD on day 1, Dialysis on day 2, Transplant on day 3, All Stages of Care on day 4, and Parenting Children with CKD on day 5.
Find RSN’s press release introducing the week at https://www.rsnhope.org/press-releases/renal-support-networks-27th-annual-patient-education-meeting-goes-virtual/. Find a short version of the agenda below. It’s page 1 of their flyer, which includes a full page describing each day – find the full 6-page flyer HERE. Find brief vitae and snapshots of the full faculty at https://www.rsnhope.org/hope-week-faculty/. And register at https://www.rsnhope.org/hope-week-rsns-national-online-patient-meeting/ – there’s also a short version of the agenda on that page.
The Renal Support Network has recently published audio podcasts for patients on:
● What Is Lupus? – https://www.rsnhope.org/kidneytalk/what-is-lupus/.
● Transitioning to Home Dialysis – https://www.rsnhope.org/kidneytalk/transitioning-home-dialysis/.
● Bacteria VS. Virus – https://www.rsnhope.org/kidneytalk/bacteria-vs-virus/.
● Assessing Your Kidney Transplant Health – https://www.rsnhope.org/kidneytalk/assessing-your-kidney-transplant-health/.
● Innovations in Kidney Care – https://www.rsnhope.org/kidneytalk/innovations-in-kidney-care/.
● A Double-Transplant Survivor’s Story – https://www.rsnhope.org/kidneytalk/valen-keefer-a-double-transplant-survivors-story/.
● Understanding the Five Stages of Kidney Disease – https://www.rsnhope.org/kidneytalk/understanding-the-five-stages-of-kidney-disease/.
● Covid-19 and Organ Donation – https://www.rsnhope.org/kidneytalk/covid-19-and-organ-donation/.
● Tips to Help the Search for a Living Kidney Donor – https://www.rsnhope.org/kidneytalk/advocating-for-a-living-kidney-donor/.
The ESRD National Coordinating Center will present an October 8, 2020 webinar at noon PDT on The Kidney Caregiver Peer Connection Call. Too often the only person that can understand what you’re going through is someone who’s been there. The webinar is open to caregivers and patients who are affected by CKD, and offers strategies for wellness and support from fellow caregivers and care partners. To listen to the presentation, call 844-740-1264 and enter access code 133 121 4744. Find the video (without sound) by clicking HERE and enter Webex event number 133 121 4744 and password Peer2020! (including the exclamation point at the end).
Home Dialysis Central has added a post to their blog called Dialysis Travel During the COVID-19 Pandemic. It’s important for dialysis patients to know and accept that they are at higher risk for serious complications if they get COVID-19, because they have kidney failure. This is true for any ESRD patient, not just those who are 65 or older. According to CMS, during the first half of 2020 Medicare patients on dialysis were more than twice as vulnerable to COVID-19 infection compared to non-dialysis Medicare patients, and more than four times as likely to require hospitalization. Find the HDC post at https://homedialysis.org/news-and-research/blog/372-dialysis-travel-during-the-covid-19-pandemic.
The National Forum of ESRD Networks has published introductory guides to the Dialysis Facility Compare (DFC) internet application that compares facilities on their general characteristics (such as whether they offer home dialysis or stay open after 5 pm), their quality of care (such as how they compare to other facilities on infection control), and the experience of their patients (such as whether patients found their doctors to be caring and to communicate well).
The guides describe what, why, and how a patient might use DFC. Find them at:
Find DFC itself at https://www.medicare.gov/dialysisfacilitycompare/.
Home Dialysis Central has published a new blog post on The Power of the Patient Voice that cites many examples of how influential the voices of patients have been in CMS policies and regulations, especially those around home dialysis. Find the post at https://homedialysis.org/news-and-research/blog/369-the-power-of-the-patient-voice. In it they mention the ESRD PPS Proposed Rule on Medicare coverage and regulations that CMS publishes every year, and that Home Dialyzors United will next month remind all dialysis patients of your right to comment, and how to do it. If you’d like to read ahead, find a link to the 2021 PPS Proposed Rule at https://nwrnbulletins.wordpress.com/2020/07/10/9-4-comments-due-re-proposed-changes-to-qip/.