MEI has released a Spanish edition of their Partner Agreement on Tasks for Home Dialysis (PATH-D), or Acuerdo del Compañero sobre tareas para la Diálisis en el hogar. Find it, for either PD or HHD, along with other useful home care resources, at https://www.homedialysis.org/life-at-home/care-partners.
Forms for inventorying the NxStage Dialysis Sacks that were recalled in January 2018 can be found at https://www.nxstage.com/?s=recall.
The Portland Kidney Group offers Peer Support for dialysis patients of all modalities, and transplant donors and recipients.
PKG and NKF will also sponsor the annual Kidney Wellness Fair & Community Picnic on August 20, 2017, and the 8th Anniversary Holiday Gathering on November 5, 2017, in Portland OR.
For details on all three, see the 2017 PKG Calendar at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG2017.pdf .
The National Forum of ESRD Networks has created a Spanish version of its new Dialysis Patient Grievance Toolkit. Find it at http://esrdnetworks.org/resources/toolkits/patient-toolkits/dialysis-patient-grievance-toolkit-1 . It joins the catalog of Forum Medical Advisory Council (MAC) and Patient Toolkits, which now include:
- Home Dialysis
- Transitions of Care
- Medical Director
- Medication Reconciliation
- Catheter Reduction
- Assurance of Diabetes Care Coordination
Find them all, along with the MAC Speaker’s Bureau Brochure, at http://esrdnetworks.org/resources/toolkits/mac-toolkits-1 .
The NAACP ACE Dialysis Health Imperative for Access, Choice, and Equity will sponsor a panel presentation about how to access home dialysis treatment options, on January 28, 2017 in Los Angeles. Patients, family, caregivers, clinicians, community members, and health advocates are invited to attend. For details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/NAACP.ACE.Forum117.pdf .
Our latest poster/flyer for patients describes the My Life, My Dialysis Choice free decision-aid tool for evaluating dialysis treatment options based on how they fit into your preferred lifestyle, health, and family goals. It’s found its way to the Network 16 website, along with all of our historical patient poster/flyers, at https://www.nwrn.org/patients-a-family/ptedres/mon.html .
The International Society for Hemodialysis (ISHD) offers the 282-page online practical manual, Implementing Hemodialysis in the Home, free on their website. The manual can also be purchased from Amazon for $36. ISHD would like to bulk-print copies of the manual, which they could sell for $6, but to do that they need a print run of at least 3,000 copies. To that end they’re asking interested organizations to commit to buying at least 200 copies. For details on any of these options, see http://www.ishd.org/bulk-printing-of-home-hd-manual/ .