Beginning January 1, 2019, a new law allows Home Dialysis patients, after their first three months at home, to be covered by Medicare when they communicate with their nephrologist via telehealth, an audio-visual internet link. For a good summary of the new law, including a list of advantages and disadvantages, see https://homedialysis.org/news-and-research/blog/288-telehealth-for-home-dialysis.
The National Forum of ESRD Networks has revised the Dialysis Patient Depression Toolkit and added a video. Find the revised English version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-english and a Spanish version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-spanish. A related video interview with a dialysis patient has also been recorded. Find it at https://www.youtube.com/watch?v=N7Iv6JytQt4.
Dialysis Patient Citizens will present an August 16, 2018 webinar on Home Dialysis: Is It Your Best Treatment Option? Register at http://www.dpcedcenter.org/.
The video My Choice, Home Dialysis has been placed on YouTube where it can be accessed easily. It features patients describing the advantages of home dialysis in their own words. Find it at https://www.youtube.com/watch?v=ZquRiZ0RwSU. For subtitles:
- Click on the gear symbol (“Settings,” in the lower right)
- Click on “Subtitles/CC(2) Off >”
- Click on “Spanish – Default” or “English – Default”
YouTube can also translate subtitles into more than a hundred additional languages.
The Renal Support Network has published Part Two of Bill Peckham’s audio on Living the Fullest Life Possible with Kidney Disease. Find it at https://www.rsnhope.org/kidneytalk/living-the-fullest-life-possible-with-kidney-disease-part-two/. If you missed Part One, see https://nwrnbulletins.wordpress.com/2018/06/22/rsn-audio-on-living-full-life/.
The Renal Support Network has published an audio presentation titled Living the Fullest Life Possible with Kidney Disease – Part One, featuring long-time Northwest dialysis patient and activist Bill Peckham sharing tips on getting the most out of life despite being on dialysis for twenty eight years. For example, Bill once took his portable dialysis machine with him down the Grand Canyon! Find that story at http://www.dciinc.org/newsroom/a-dialysis-patients-tale-rafting-the-grand-canyon/, and find Part One of the RSN audio at https://www.rsnhope.org/kidneytalk/living-the-fullest-life-possible-with-kidney-disease-part-one/.
Home Dialysis Central has published a summary of “organ stunning,” where dialysis removes too much water, or removes it too quickly, and your internal organs are shocked. This can damage your organs, and the damage may be cumulative. The HDC article covers the causes and processes of organ stunning, and most important, describes how you can avoid it. Find the article at https://homedialysis.org/life-at-home/articles/organ-stunning-on-hemodialysis-what-is-it-and-what-can-you-do.