The Renal Support Network has published Part Two of Bill Peckham’s audio on Living the Fullest Life Possible with Kidney Disease. Find it at https://www.rsnhope.org/kidneytalk/living-the-fullest-life-possible-with-kidney-disease-part-two/. If you missed Part One, see https://nwrnbulletins.wordpress.com/2018/06/22/rsn-audio-on-living-full-life/.
The Renal Support Network has published an audio presentation titled Living the Fullest Life Possible with Kidney Disease – Part One, featuring long-time Northwest dialysis patient and activist Bill Peckham sharing tips on getting the most out of life despite being on dialysis for twenty eight years. For example, Bill once took his portable dialysis machine with him down the Grand Canyon! Find that story at http://www.dciinc.org/newsroom/a-dialysis-patients-tale-rafting-the-grand-canyon/, and find Part One of the RSN audio at https://www.rsnhope.org/kidneytalk/living-the-fullest-life-possible-with-kidney-disease-part-one/.
Home Dialysis Central has published a summary of “organ stunning,” where dialysis removes too much water, or removes it too quickly, and your internal organs are shocked. This can damage your organs, and the damage may be cumulative. The HDC article covers the causes and processes of organ stunning, and most important, describes how you can avoid it. Find the article at https://homedialysis.org/life-at-home/articles/organ-stunning-on-hemodialysis-what-is-it-and-what-can-you-do.
MEI has released a Spanish edition of their Partner Agreement on Tasks for Home Dialysis (PATH-D), or Acuerdo del Compañero sobre tareas para la Diálisis en el hogar. Find it, for either PD or HHD, along with other useful home care resources, at https://www.homedialysis.org/life-at-home/care-partners.
Forms for inventorying the NxStage Dialysis Sacks that were recalled in January 2018 can be found at https://www.nxstage.com/?s=recall.
The Portland Kidney Group offers Peer Support for dialysis patients of all modalities, and transplant donors and recipients.
PKG and NKF will also sponsor the annual Kidney Wellness Fair & Community Picnic on August 20, 2017, and the 8th Anniversary Holiday Gathering on November 5, 2017, in Portland OR.
For details on all three, see the 2017 PKG Calendar at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG2017.pdf .
The National Forum of ESRD Networks has created a Spanish version of its new Dialysis Patient Grievance Toolkit. Find it at http://esrdnetworks.org/resources/toolkits/patient-toolkits/dialysis-patient-grievance-toolkit-1 . It joins the catalog of Forum Medical Advisory Council (MAC) and Patient Toolkits, which now include:
- Home Dialysis
- Transitions of Care
- Medical Director
- Medication Reconciliation
- Catheter Reduction
- Assurance of Diabetes Care Coordination
Find them all, along with the MAC Speaker’s Bureau Brochure, at http://esrdnetworks.org/resources/toolkits/mac-toolkits-1 .