3/4+ UKEEP Webinars on Kidney Disease & Empowerment

The UCLA CORE Kidney Program will present a March 4, 2021 UKEEP webinar on Kidney Disease: What You Should Know. For details and registration, see the poster below, or https://uclahs.zoom.us/webinar/register/WN_hjcPosQgSieUDGL3CIzAqw. They will also present a March 21, 2021 Virtual Kidney Conference on Educating, Empowering, and Inspiring Hope. Find more information about the Conference, and register, at https://uclahs.zoom.us/webinar/register/WN_ZgPWycdXR_OXq26FbQZp4A.

2/21 NKF Education Symposium

NKF will host a free February 21, 2021 online Patient & Community Education Seminar at noon PST. The two-and-a-half-hour Zoom program will cover mental health and CKD, home dialysis, gout, transplant, living donation, and Healthy Kidneys-Healthy You. Registration is required, at https://kidney.org/co-kidney-ed-symposium. For questions, contact Danielle Percival at 720.748.9991 ext 453 or danielle.percival@kidney.org. Find details below:

2021 Special COVID-19 Open Enrollment Period

CMS has announced a Special COVID-19 Open Enrollment Period for people having difficulty finding health insurance, spanning February 15-May 15, 2021. For details see https://www.cms.gov/newsroom/fact-sheets/2021-special-enrollment-period-response-covid-19-emergency. Rules and procedures can be very complicated. Your dialysis facility Social Worker may be able to provide help or direct you to other assistance. You can also connect to free detailed, unbiased advice on navigating the health insurance labyrinth, tailored to your specific situation, from a trained expert in health insurance options, rules, and procedures, at https://www.shiptacenter.org/.

Rules and procedures also vary by state; a quick overview for the six states in ESRD Networks 16 and 18 follows:

Alaska: For details see https://www.healthinsurance.org/alaska-state-health-insurance-exchange/. No apparent Special COVID-19 Open Enrollment Period, but a “qualifying event” (https://www.healthinsurance.org/obamacare/qualifying-events-that-can-get-you-coverage/) may create one for you.

California: For details see https://www.healthinsurance.org/california-state-health-insurance-exchange/. State-specific Special COVID-19 Open Enrollment Period February 1-May 15, 2021.

Idaho: For general details, see https://www.healthinsurance.org/idaho-state-health-insurance-exchange/. No Special COVID-19 Open Enrollment Period, but some insurance plans are open all year (https://www.healthinsurance.org/idaho-short-term-health-insurance/#renew), and if you have a “qualifying event” (https://www.healthinsurance.org/obamacare/qualifying-events-that-can-get-you-coverage/), you can enroll anytime.

Montana: For details see https://www.healthinsurance.org/montana-state-health-insurance-exchange/. No apparent Special COVID-19 Open Enrollment Period, but a “qualifying event” (https://www.healthinsurance.org/obamacare/qualifying-events-that-can-get-you-coverage/) will create one just for you.

Oregon: For details see https://www.healthinsurance.org/oregon-state-health-insurance-exchange/. No apparent Special COVID-19 Open Enrollment Period, but a “qualifying event” (https://www.healthinsurance.org/obamacare/qualifying-events-that-can-get-you-coverage/), including loss of employer-sponsored health insurance, can create one just for you.

Washington: For details see https://www.healthinsurance.org/washington-state-health-insurance-exchange/. Special COVID-19 Open Enrollment Period February 15-May 15, 2021.

1/21 UCLA UKEEP on Dialysis

The UCLA CORE Kidney Program will present Dialysis: What You Should Know at 5pm PST January 21, 2021, an online webinar covering the options available to a patient with advanced kidney disease, including home dialysis, living donation, transplant, and conservative management. Register at https://uclahs.zoom.us/webinar/register/WN_GIfxKl59TCKnSAgW31mufw.

1/15 NCC Patient Event on COVID and Home Dialysis

The ESRD National Coordinating Center will present a January 15, 2021 online event for patients on Home Dialysis During COVID: Lessons Learned. The objective is to demonstrate best practices, share patient experiences, and discuss the benefits of home therapy. Find more information and register at https://esrdncc.org/en/covid-19/covid-webinars/.

12/15 NCC COVID-19 December Calls

Patient Webinar

The ESRD Network Coordinating Center will host a December 15, 2021 webinar for patients on Home Dialysis During COVID: Lessons Learned. Topics will include best practices, patient experiences, and patient benefits of dialyzing at home. For details and registration see https://esrdncc.org/en/covid-19/covid-webinars/.

Provider Webinar

The ESRD Network Coordinating Center will host a December 30, 2021 webinar for providers on The Importance of Kidney Transplant and Referral Process During COVID-19. Topics will include the benefits of getting patients on the waitlist, the impact that COVID-19 has had on the referral process, and how a transplant center educates patients during the pandemic. One CEU credit will be available. For details and registration see https://esrdncc.org/en/covid-19/covid-webinars/.

HDC Post on Saying No to a Transplant

MEI’s Home Dialysis Central has published a blog post on Saying No to a Kidney Transplant. The author describes the pros and cons, from their own Perspective, of a transplant versus their successful career on home dialysis. Find the post at https://homedialysis.org/news-and-research/blog/401-saying-no-to-a-kidney-transplant. MEI’s essay on Choosing Your Treatment at https://homedialysis.org/life-at-home/choosing-your-treatment, and their interactive tool My Life, My Dialysis Choice at https://mydialysischoice.org/ can help you decide in advance which treatment might be right for you from your own Perspective.

11/10+ RNS Hope Week Online

The Renal Support Network has been offering its free Annual Patient Education Meeting for kidney patients and their families in the Los Angeles area for 27 years. With COVID-19 complicating things this year, RSN did what only Lori Hartwell could have imagined doing – they went global and online, and made it five times as big! So this year, RSN Hope Week will span November 10-14, 2020 with a different theme each day: CKD on day 1, Dialysis on day 2, Transplant on day 3, All Stages of Care on day 4, and Parenting Children with CKD on day 5.

Find RSN’s press release introducing the week at https://www.rsnhope.org/press-releases/renal-support-networks-27th-annual-patient-education-meeting-goes-virtual/. Find a short version of the agenda below. It’s page 1 of their flyer, which includes a full page describing each day – find the full 6-page flyer HERE. Find brief vitae and snapshots of the full faculty at https://www.rsnhope.org/hope-week-faculty/. And register at https://www.rsnhope.org/hope-week-rsns-national-online-patient-meeting/ – there’s also a short version of the agenda on that page.

RSN KidneyTalk Podcasts

The Renal Support Network has recently published audio podcasts for patients on:

What Is Lupus?https://www.rsnhope.org/kidneytalk/what-is-lupus/.

Transitioning to Home Dialysis – https://www.rsnhope.org/kidneytalk/transitioning-home-dialysis/.

Bacteria VS. Virus https://www.rsnhope.org/kidneytalk/bacteria-vs-virus/.

Assessing Your Kidney Transplant Health https://www.rsnhope.org/kidneytalk/assessing-your-kidney-transplant-health/.

Innovations in Kidney Care https://www.rsnhope.org/kidneytalk/innovations-in-kidney-care/.

A Double-Transplant Survivor’s Storyhttps://www.rsnhope.org/kidneytalk/valen-keefer-a-double-transplant-survivors-story/.

Understanding the Five Stages of Kidney Diseasehttps://www.rsnhope.org/kidneytalk/understanding-the-five-stages-of-kidney-disease/.

Covid-19 and Organ Donationhttps://www.rsnhope.org/kidneytalk/covid-19-and-organ-donation/.

Tips to Help the Search for a Living Kidney Donorhttps://www.rsnhope.org/kidneytalk/advocating-for-a-living-kidney-donor/.

10/8 NCC Caregiver Webinar

The ESRD National Coordinating Center will present an October 8, 2020 webinar at noon PDT on The Kidney Caregiver Peer Connection Call. Too often the only person that can understand what you’re going through is someone who’s been there. The webinar is open to caregivers and patients who are affected by CKD, and offers strategies for wellness and support from fellow caregivers and care partners. To listen to the presentation, call 844-740-1264 and enter access code 133 121 4744. Find the video (without sound) by clicking HERE and enter Webex event number 133 121 4744 and password Peer2020! (including the exclamation point at the end).