NCC has created an internet “hub” for patient education information, their ESRD NCC Patient Web Tool, to help people find resources created by patients for patients. It’s major subsections include COVID-19. transplant, home dialysis, infection prevention, well-being, new patient information, and the Kidney Community Emergency Response Coalition or KCER. Find it at https://thekidneyhub.org/.
UCLA will present a May 17, 2020 Virtual CORE Kidney Health Fair and virtual 2K/5K Spirit Walk/Run. For more information and registration, see https://www.uclahealth.org/CORE-kidney/ and the poster below:
AAKP HealthLine will present an April 29, 2020 webinar on Fighting Coronavirus Upstream – What Early Stage Kidney Disease Patients Need to Know, about how people with CKD Stages 1-4 may be able to fend off COVID-19 (I’m extrapolating that from limited information). Find more information and register at https://aakp.org/programs-and-events/aakp-healthline/.
During the current COVID-19 emergency, Comagine Health ESRD Network 16 and Network 18 are fully staffed, and business operations are not interrupted. If you are a patient or facility in either Network with a concern about COVID-19, please dial our COVID-19 Helpline, 800-368-5804.
In addition to this blog, we are using four web pages as central repositories for the most critical COVID-19 information:
AAKP HealthLine, the American Society of Transplantation, and the American Society of Transplant Surgeons will host a noon PDT April 10, 2020 webinar on Coronavirus & Transplant Patients: Get the Facts, Save a Life, about the impact of COVID-19 on kidney transplant recipients and on people waiting for a transplant. Emily Blumberg, MD, Transplant Infectious Diseases Specialist, and Lloyd Ratner, MD, MPH, FACS, Columbia University Professor of Renal and Pancreatic Transplant Surgery, will lead the webinar and will discuss questions that patients should be asking their care team. Capacity constraints will limit attendance to the first 2,500 registrants. Register at https://register.gotowebinar.com/register/7659454591380786188.
DPC has changed the link to their April 7, 2020 webinar on What Patients Need to Know about COVID-19, in order to allow more participants. It’s now dialysispatients.adobeconnect.com/webinar/; see below for more details.