9/18 SC UKEEP on Diet and Health

The UCLA Kidney Education Enhancement Program (UKEEP) will hold a September 18, 2016 educational seminar in Santa Monica for CKD and ESRD patients on the Role of Diet in Your Health.  For details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UKEEP.Nicole.pdf .

UKEEP will also host seminars on October 9 (Kidneys and Diabetes), November 13 (PKD), and December 11, 2016 (Living Kidney Donation); for information on these see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UKeep.AugDec16.pdf .

Access to Dialysis; AAKP Meeting

We’ve placed the September 2016 issue of Network Consumer News, the Northwest Renal Network patient newsletter, on the Network 16 website at https://nwrn.org/patients-a-family/ptedres/ncn.html .  This issue covers access to care, involuntary discharge, and Network 16’s grievance process.  This month we’ve included a Spanish edition, a large-print version, a feedback form, and a flyer about the September 23-25, 2016 AAKP National Patient Meeting in Nashville.

For more information on the following details about the AAKP Meeting, see https://www.aakp.org/images/downloads/AAKP_ConvBroch_2016_online.pdf 

  • AAKP is partnering with the Living Kidney Donor Network to present a free September 22, 2016 workshop on Having Your Donor Find You 
  • To arrange for dialysis while in Nashville, schedule it by August 31, 2016
  • To  receive conference rates at the AAKP Meeting hotel, you must reserve your accommodations by August 31, 2016
  • To receive discounted airfare from Southwest Airlines, make reservations by September 7, 2016
  • Continuing Education credits are available for RNs, MSWs, and RDs

SC 8/24-28 LA Kidney Walk Luncheon

NKF invites all who are interested to a free lunch and informative presentation to kick off the August 28, 2016 Los Angeles Kidney Walk at Griffith Park.  In addition to organization of the Walk, the presentation will include a talk on new approaches to overcoming immunological barriers to living donation by UCLA professor Erik Lum, MD.  However, you must RSVP by August 24, 2016.  For details see http://bit.ly/2aNFrSx .

9/22-23 AAKP Patient Meeting

There’s still time to register for the AAKP National Patient Meeting in Nashville September 23-25, 2016 on the theme Explore Your Future Today.  Topics include transplantation and living donation, patient engagement, diet and nutrition, treatment options and medications, and patient safety.  AAKP and the Living Kidney Donor Network, a national non-profit organization, will host a hands-on workshop Having Your Donor Find You! on Sept. 22, 2016.  For complete details, see https://www.aakp.org/community/programs-events/aakp-national-patient-meeting.html .

8/17 Living Donation on AAKP HealthLine

AAKP HealthLine will present a webinar August 17, 2016 on “Living Kidney Donation: The Medical, Patient and Donor Perspectives,” featuring a transplant nurse, a recipient, and a donor.  Register at https://attendee.gotowebinar.com/register/6456054478043201027.  Find out more about AAKP HealthLine, and recordings of previous webinars, at https://www.aakp.org/media-files/aakp-healthline.html .

While we’re on the subject of Living Donation, US News recently published a long article titled “Please Give Me Your Kidney: How to Crowdsource for an Organ.”  You can find it at http://health.usnews.com/health-news/patient-advice/articles/2016-06-30/please-give-me-your-kidney-how-to-crowdsource-for-an-organ .

7/31 AAKP Scholarship Deadline

If you would like a scholarship to cover registration cost for the September 23-25 AAKP National Patient Meeting in Nashville TN, you must apply by July 31, 2016.  If you would like to display a poster or exhibit in the exhibit hall at the Meeting, you must apply by September 1, 2016.  For all details, including agenda, registration, lodging, and all else, see https://www.aakp.org/community/programs-events/aakp-national-patient-meeting .

Organ Donation Campaign

The UNOS website summarizes the efforts recently coordinated and announced by the White House to increase organ donation, at https://www.unos.org/unos-announces-efforts-to-increase-the-number-of-transplants/ .  Regional institutions involved include UCLA, University of Washington, OHSU, NKC, and DCI.  Their contributions are listed along with the many others in the White House Fact Sheet, a full 16-page list of campaign actions, at http://go.wh.gov/Zrasw2 .  Find summary press releases from NKC at http://www.nwkidney.org/news/northwest-kidney-centers-to-participate-in-white-house-organ-summit and DCI at http://www.dciinc.org/dialysis-clinic-inc-announced-commitment-to-increase-organ-donation/ .

In a related action, some health insurers are now covering donor travel costs when the recipient is insured by them; see http://www.cnbc.com/2016/06/10/unitedhealthcare-to-pay-for-kidney-donors-travel-expenses-to-encourage-donation.html for details.