Please join us for a FREE in person event where you will learn more about finding a living kidney donor!
When? – September 3, 2019 from 10:00am to 12:00pm
Where? – Glendale, CA
During this event you will learn how to find a living kidney donor!
This event will be a taught by Nancy Marlin, a kidney patient who has been through the process. She will share how she was able to successfully find a living kidney donor through sharing her kidney story with others.
She has a wealth of information to share with you so please don’t miss out on this great opportunity.
Please call to Register. Space is limited.
This event is free to you!
Parking is free and snacks will be provided.
We look forward to seeing you!
Date: September 3, 2019
Location: 621 East Glenoaks Blvd. #B Glendale, CA 91207
The National Kidney Registry (NKR) has extended lost wage coverage and other features of the Donor Care Network’s (DCN) Donor Shield program to all kidney donors enrolled in the Registry. The NKR and DCN are private foundations started in 2007 by the parents of a child whose kidneys failed, after their difficulty finding a donor whose blood type and other genetic factors (human leukocyte antigens or HLA) matched enough to reduce the rate of organ rejection. NKR has since developed an impressive list of innovations that have greatly facilitated reciprocal swaps and chains to match the HLA of donors and recipients:
Faster and cheaper shipping of donated kidneys
Improvements to HLA coding that have reduced match failures from 50% to 5%
Universal financial agreement to end financial incompatibility between transplant centers
GPS tracking of organs in transit
Registered donor pre-screening and development of computable matching algorithms
Cryo-preservation of donor blood to reduce repeated blood draws
Advance donation when intended recipients don’t need a transplant yet
Insurance and other support for registered donors
Remote donation so donors don’t have to travel to donate
Several other innovations that are too complicated to summarize in one line
DCN’s programs include broad Donor Shield insurance coverage, fast online pre-screening of potential donors, workup and post-op recovery at DCN centers located close to the donor to reduce donor travel, and donor feedback systems to facilitate process improvement. They are also piloting lifetime post-op insurance coverage for donors. There are fourteen DCN donations centers spread across the US, including one in Seattle and two in Southern California.
Find more information, and recordings of earlier CORE Kidney and UKEEP programs, at https://www.uclahealth.org/core-kidney/, along with information about the UCLA PKD program and other related educational outreach.
Donate Life Northwest is dedicated to helping transplant candidates maintain hope while waiting for an available matching kidney. They offer training to volunteers for various situations. Their upcoming training, volunteering, and celebration schedule includes:
August 14, 2018 – School Speaker training in Portland OR
August 15, 2018 – Volunteer Orientation in Bend OR
August 16, 2018 – School Speaker training in Portland OR
September 4, 2018 – Volunteer Orientation in Portland OR
September 8, 2018 – Volunteer Opportunity in Vancouver WA
September 8, 2018 – Donor Family Picnic in Salem OR
September 13, 2018 – School Speaker training in Eugene OR
September 13, 2018 – Volunteer Orientation in Eugene OR
September 16, 2018 – Volunteer Opportunity in Portland OR
September 23, 2018 – Volunteer Opportunity in Portland OR
November 7, 2018 – Lifesavers Breakfast
For more details, see https://mailchi.mp/donatelifenw.org/sharing-hope-this-summer. This web page also introduces their new Latino Outreach Coordinator, Donor stories in English and Spanish, winners of their recent raffle, and information on including Donate Life Northwest in your estate, insurance, or financial plans.
Mark your calendar for the Tabor Trot fun walk/run and gathering the morning of May 26 at beautiful Mt.Tabor Park on the Saturday before Memorial Day. See past photos, video, more information, and register at http://www.tabortrot.com/. We’ve already posted information on other Donate Life Northwest events in Portland (April 22, May 7) and Medford OR (April 11-15); for details see our Patient Calendar at the link above. Donate Life Northwest has also recently added four new Portland volunteer opportunities: