The UCLA CORE Kidney Program will present Dialysis: What You Should Know at 5pm PST January 21, 2021, an online webinar covering the options available to a patient with advanced kidney disease, including home dialysis, living donation, transplant, and conservative management. Register at https://uclahs.zoom.us/webinar/register/WN_GIfxKl59TCKnSAgW31mufw.
NKF will present a free January 31, 2021 webinar on The Big Ask, the Big Give: First Steps to Transplant, an introduction for patients thinking about a kidney transplant, and potential donors thinking about donating a kidney. See below for more information, and register at https://www.kidney.org/babg-co.
The OPTN Kidney and Pancreas Transplantation Committees will host a November 23, 2020 webinar on Information for Transplant Candidates about Upcoming Changes to Kidney and Pancreas Policies. These changes are intended to create more consistent access to kidney, pancreas, and kidney-pancreas transplants. The new policies include updates to the definition of medical urgency, and changes to the allocation of organs and prioritization of candidates, which will be based on distance rather than regions. Organs from Alaska will be allocated based on distance from Seattle.
The new policies will take effect December 15, 2020, and transplant centers can revise their candidate urgency information to take advantage of the new policies starting December 1. Find details about the changes at https://optn.transplant.hrsa.gov/news/pre-implementation-notice-removal-of-dsa-and-region-from-kidney-and-pancreas-allocation-to-go-into-effect-dec-15/ and register for the webinar at https://register.gotowebinar.com/register/2542491307617944591.
The Renal Support Network has recently published audio podcasts for patients on:
● What Is Lupus? – https://www.rsnhope.org/kidneytalk/what-is-lupus/.
● Transitioning to Home Dialysis – https://www.rsnhope.org/kidneytalk/transitioning-home-dialysis/.
● Bacteria VS. Virus – https://www.rsnhope.org/kidneytalk/bacteria-vs-virus/.
● Assessing Your Kidney Transplant Health – https://www.rsnhope.org/kidneytalk/assessing-your-kidney-transplant-health/.
● Innovations in Kidney Care – https://www.rsnhope.org/kidneytalk/innovations-in-kidney-care/.
● A Double-Transplant Survivor’s Story – https://www.rsnhope.org/kidneytalk/valen-keefer-a-double-transplant-survivors-story/.
● Understanding the Five Stages of Kidney Disease – https://www.rsnhope.org/kidneytalk/understanding-the-five-stages-of-kidney-disease/.
● Covid-19 and Organ Donation – https://www.rsnhope.org/kidneytalk/covid-19-and-organ-donation/.
● Tips to Help the Search for a Living Kidney Donor – https://www.rsnhope.org/kidneytalk/advocating-for-a-living-kidney-donor/.
The HHS Health Resources and Services Administration (HRSA) has published a Final Rule on Removing Financial Disincentives to Living Organ Donation, effective October 22, 2020. The Rule aims to reimburse organ donors more appropriately. Find the Rule in the Federal Register at https://www.govinfo.gov/content/pkg/FR-2020-09-22/pdf/2020-20804.pdf. Find a discussion of public comments on the Rule and HRSA response at https://www.govinfo.gov/content/pkg/FR-2020-09-22/pdf/2020-20805.pdf.
The ESRD Network Coordinating Center will present two webinars in their COVID-19 series:
- September 22, 2020 webinar for patients on Tips for Effective Telemedicine Visits with Your Healthcare Team. Find the booklet that accompanies this webinar at https://esrdncc.org/globalassets/covid-19/telemedicinepatienttoolkit508.pdf.
- September 30, 2020 webinar for providers on Organ Donation – Impacts of COVID-19. One CEU is available.
For details and registration, and recordings of earlier NCC COVID-19 webinars and “quickinars,” see https://esrdncc.org/en/covid-19/covid-webinars/.
The HHS Health Resources & Services Administration (HRSA) Office of Regional Operations will present a webinar in English and Spanish to recognize Minority Donor Awareness Month (see https://www.hrsa.gov/enews/past-issues/2020/august-6/national-minority-donor-awareness-month and https://www.giftofhope.org/nmdam-2020/). The focus this year is on the Latinx community. Both versions are free to attend, but prior registration is required. All who register will receive a link to a recording of the webinar.
- HRSA Public Health Webinar Series: National Minority Donor Awareness Month, 11am-12:30 pm Aug 24, 2020. Find more information and register at https://www.eventbrite.com/e/hrsa-public-health-webinar-series-national-minority-donor-awareness-month-registration-115602673709.
- Serie de seminarios web sobre salud pública de HRSA: Mes Nacional para la Concientización de la Donación en Minorías, 11am-12:30 pm 28 de agosto de 2020. Find more information and register at https://www.eventbrite.com/e/mes-nacional-para-la-concientizacion-de-la-donacion-en-minorias-registration-116062888223.
For more information, contact HRSAORORegion7@hrsa.gov.
The ESRD NCC has published a new 2-minute video on the risk of “High-KDPI” (Kidney Donor Profile Index, a measure of likely graft survival) kidneys for transplant and the advantage of earlier transplant which High-KDPI organs may enable. Find the video at https://www.youtube.com/watch?v=viFqw83IxiQ&t=17s or below:
Donate Life Northwest remind us that February 14, 2020 is National Donor Day, and provides links to facilitate its celebration at https://mailchi.mp/donatelifenw.org/february-2020-donate-lifeline?e=d7486be0ed. This web page also provides information about their March 12, 2020 Volunteer Orientation course in Portland, their Fundraising Team for the April 24-26, 2020 Eugene Marathon, planned giving, and their Threads of Life quilting project (quilt squares are due February 17, 2020).
Kidneys Quest Foundation will present a free in-person one-day 2020 Kidney Disease Impact Conference in Los Angeles on March 4, 2020. Conference topics will include improving renal health, preventing kidney failure, expanding options for kidney patients, dialysis, home dialysis, research, clinical trials, increasing available organs for transplant, transplant support, becoming a living donor, CKD and CVD, and pediatric CKD.
Invitation is extended to renal patients, social workers, registered nurses, dietitians, dialysis technicians, medical directors, administrators and organization managers, healthcare workers, friends and family of patients, and anyone interested in kidney disease and dialysis. Attendance and onsite parking is free, and continental breakfast and lunch will be provided. Continuing education credits for nurses, social workers, dietitians, and dialysis technicians are available for a $50 fee. Pre-registration is required, and space is limited. Register at:
- https://events.r20.constantcontact.com/register/eventReg?oeidk=a07egu68tk72e9b31a2&oseq=&c=&ch= for those who want CE credit.
- https://events.r20.constantcontact.com/register/eventReg?oeidk=a07egu6bqw6f4f810f0&oseq=&c=&ch= for all others.
Find complete details, including the Conference agenda and sponsor registration information, at http://kidneysquestfoundation.org/2020-kidney-disease-impact-conference.html.