12/3+ UCLA CORE Kidney Program and UKEEP

UCLA’s CORE Kidney Program has announced the timing of their next several webinars, UKEEP meetings, and annual Kidney Fair at the Beach.  They will present:

  • A December 3, 2019 webinar on the UCLA CORE Kidney Program itself called Giving Tuesday; find a poster about it, with registration information, at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UCLACore120719.pdf.
  • A December 8, 2019 UKEEP meeting on Drugs and Medications: What You Need to Know.
  • A January 16, 2020 webinar on High Blood Pressure: What You Need to Know.
  • A February 13, 2020 webinar on Living Kidney Donation.
  • Their May 17, 2020 Kidney Fair at the Beach.

For more information on these and to RSVP, see https://www.uclahealth.org/core-kidney/upcoming-events.

NW18 9/3 How to Find a Donor

Please join us for a FREE in person event where you will learn more about finding a living kidney donor!

When? – September 3, 2019 from 10:00am to 12:00pm

Where? – Glendale, CA

During this event you will learn how to find a living kidney donor!

This event will be a taught by Nancy Marlin, a kidney patient who has been through the process. She will share how she was able to successfully find a living kidney donor through sharing her kidney story with others.

She has a wealth of information to share with you so please don’t miss out on this great opportunity.

Please call to Register. Space is limited.

1-888-268-1539

This event is free to you!

Parking is free and snacks will be provided.

We look forward to seeing you!

Event Information

Date: September 3, 2019

Location: 621 East Glenoaks Blvd. #B Glendale, CA 91207

Time: 10:00am – 12:00pm

Please feel free to share with others!

NKR to Cover Lost Wages for Kidney Donors

The National Kidney Registry (NKR) has extended lost wage coverage and other features of the Donor Care Network’s (DCN) Donor Shield program to all kidney donors enrolled in the Registry.  The NKR and DCN are private foundations started in 2007 by the parents of a child whose kidneys failed, after their difficulty finding a donor whose blood type and other genetic factors (human leukocyte antigens or HLA) matched enough to reduce the rate of organ rejection.  NKR has since developed an impressive list of innovations that have greatly facilitated reciprocal swaps and chains to match the HLA of donors and recipients:

  • Faster and cheaper shipping of donated kidneys
  • Improvements to HLA coding that have reduced match failures from 50% to 5%
  • Universal financial agreement to end financial incompatibility between transplant centers
  • GPS tracking of organs in transit
  • Registered donor pre-screening and development of computable matching algorithms
  • Cryo-preservation of donor blood to reduce repeated blood draws
  • Advance donation when intended recipients don’t need a transplant yet
  • Insurance and other support for registered donors
  • Remote donation so donors don’t have to travel to donate
  • Several other innovations that are too complicated to summarize in one line

DCN’s programs include broad Donor Shield insurance coverage, fast online pre-screening of potential donors, workup and post-op recovery at DCN centers located close to the donor to reduce donor travel, and donor feedback systems to facilitate process improvement.  They are also piloting lifetime post-op insurance coverage for donors.  There are fourteen DCN donations centers spread across the US, including one in Seattle and two in Southern California.

For details on the Donor Shield extension, see https://www.healio.com/nephrology/kidney-care-community/news/online/%7b517d83ee-4a44-4af9-9a5c-7085daf0cdcc%7d/national-kidney-registry-will-reimburse-donors-for-lost-wages.  Find more information on NKR at https://www.kidneyregistry.org/ and on DCN at https://www.donorcarenet.org/programs/.

April – Nat’l Donate Life Month

April is National Donate Life Month.  Find more information and tools at https://donatelifecalifornia.org/donatelifemonth/ and https://www.donatelife.net/ndlm/.  You can also find a long list of Oregon activities at https://www.donatelifenw.org/news-and-events/calendar and https://www.tabortrot.com/.  Organ donation is celebrated on Blue & Green Day, April 12, 2019; for information and tools see https://www.donatelife.net/blue-green-day/ and https://donatelifecalifornia.org/bluegreenday/.

Why would you want to donate a kidney?  Maybe because of 100,000 stories like this one: http://www.espn.com/nfl/story/_/id/26047187/i-need-kidney-nfl-pass-rusher-dialysis-year.

2/21+ UCLA/UKEEP Patient Education

The UCLA Health CORE Kidney program will present a February 21, 2019 webinar on Living Kidney Donation.  For details and pre-registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/ucla022119.pdf.

UKEEP will host a February 24, 2019 workshop on Kidney Disease: What You Should Know in Santa Monica CA.  See https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UKEEP022419.pdf for details and RSVP information.

The CORE Kidney program will also present:

Find more information, and recordings of earlier CORE Kidney and UKEEP programs, at https://www.uclahealth.org/core-kidney/, along with information about the UCLA PKD program and other related educational outreach.

NW16 8/14+ Donate Life NW Volunteers

Donate Life Northwest is dedicated to helping transplant candidates maintain hope while waiting for an available matching kidney.  They offer training to volunteers for various situations.  Their upcoming training, volunteering, and celebration schedule includes:

  • August 14, 2018 – School Speaker training in Portland OR
  • August 15, 2018 – Volunteer Orientation in Bend OR
  • August 16, 2018 – School Speaker training in Portland OR
  • September 4, 2018 – Volunteer Orientation in Portland OR
  • September 8, 2018 – Volunteer Opportunity in Vancouver WA
  • September 8, 2018 – Donor Family Picnic in Salem OR
  • September 13, 2018 – School Speaker training in Eugene OR
  • September 13, 2018 – Volunteer Orientation in Eugene OR
  • September 16, 2018 – Volunteer Opportunity in Portland OR
  • September 23, 2018 – Volunteer Opportunity in Portland OR
  • November 7, 2018 – Lifesavers Breakfast

For more details, see https://mailchi.mp/donatelifenw.org/sharing-hope-this-summer.  This web page also introduces their new Latino Outreach Coordinator, Donor stories in English and Spanish, winners of their recent raffle, and information on including Donate Life Northwest in your estate, insurance, or financial plans.

NW16 4/19+ Portland Kidney Walk/Run

Mark your calendar for the Tabor Trot fun walk/run and gathering the morning of May 26 at beautiful Mt.Tabor Park on the Saturday before Memorial Day.  See past photos, video, more information, and register at http://www.tabortrot.com/.  We’ve already posted information on other Donate Life Northwest events in Portland (April 22, May 7) and Medford OR (April 11-15); for details see our Patient Calendar at the link above.  Donate Life Northwest has also recently added four new Portland volunteer opportunities:

Donate Life has also provided details on their 2018 raffle – winners will be vacationing in Maui, Baja California, Santa Fe NM, Lake Tahoe NV, or Seaside OR – see https://www.donatelifenw.org/content/annual-raffle.  For a summary of and links to all this news, see https://mailchi.mp/donatelifenw.org/april-donate-lifeline?e=d7486be0ed.