NW16 9/21 Home Dialysis Educational Meeting

Home Dialyzors United, Comagine Health ESRD Network 16, and other sponsors will present a September 21, 2019 all-day patient educational meeting on home dialysis in Puyallup WA, called Going Home, Staying Home.  The meeting will include sessions on patient priorities, home modalities, patient safety at home, how the Network can help, a panel on transplants, and a real-time support group.  For details see the poster at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/HDU/HDU.082119.pdf.  Find HDU’s web page on it at https://www.homedialyzorsunited.org/patient-education, and register at https://www.eventbrite.com/e/one-day-patient-education-seminar-tickets-69449765117.

NW18 5/5 The KIDney Zone at Santa Monica Beach

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Featuring the KIDney Zone: Fun for the Family!
Sunday, May 5th, 2019,  11:00 AM – 3:00 PM
Dorothy Green Park, Santa Monica Beach Park #1
Ocean Park Blvd & Barnard Way, Santa Monica, CA 90405.
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We look forward to seeing you on Sunday, May 5th at Dorothy Green Park in beautiful Santa Monica beach.  We highly encourage that you RSVP (instructions found below) so you can stay up to date with all of the latest on the fair.   As always, we have a special section dedicated to fun for the kids called the KIDney Zone.   Feel free to drop off your child at the KIDney Zone when you arrive so that you can enjoy the entertainment and educational aspects of our fair.  Our team has been working hard to make sure that your kids will have a blast at the KIDney Zone with the following activities featured:
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LOS ANGELES FIRE DEPARTMENT
 
Don’t miss out on the chance to board a real firetruck as we welcome the Los Angeles Fire Department to our fair! They will be at the event from 1:00 PM – 3:00 PM so make sure you plan ahead for these hours for this wonderful photo-op.
 
PEOPLE-ANIMAL CONNECTION
The UCLA People-Animal Connection (https://www.uclahealth.org/PAC/default.cfm) is one of the most comprehensive Animal-Assisted Therapy and Activity Programs in the nation.  These therapy dogs are trained to interact with a variety of people. They have very stable temperaments and a friendly, easy-going personality and they’ll be hanging out next to the KIDney Zone for the entirety of the fair.
 
BUILD A BEAR RADIO
We are excited to welcome Build-a-Bear Radio as a partner for our fair!  This year, they will be streaming their radio station throughout the event as well as giving away bears throughout the event.  Make sure to come early if you want to check out what they have to offer!
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OTHER FEATURED ACTIVITIES
Braid Bar – Nine Zero One Salon
Pioneering Poles & Ropes Activity & Pine Wood Derby – Boy Scouts of America
Arts & Crafts/Face Painting – Bruin Beans Health Club
Don’t miss out on our KIDney Zone this year!
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HOW TO REGISTER
RSVP is highly preferred and encouraged!  There are options to pre-register, as well as on-site registration.  Pre-registered guests will receive a UCLA souvenir upon entry.  all us at (310) 954-2692 or email us at COREKidney@mednet.ucla.edu.
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HOW TO SUPPORT
Donations are tax-deductible.  UCLA is a public, non-profit educational institution exempt under Section 501(c)(3) of the IRS code.  We hope that you can all make it on Sunday, May 5th to our Kidney Health Fair at the Beach.  If you are unable to come, we hope that you can still consider supporting our cause. Visit our new UCLA Spark crowdfunding page at https://spark.ucla.edu/project/15493 to learn more about our campaign and share with other advocates to help generate more interest and to see our progress as we strive to reach our goal of $150,000.  Our ultimate goal is to set up a Kidney Center at UCLA that provides comprehensive care to kidney patients and their families, from pre-diagnosis to transplant.
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We look forward to seeing you there!
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NW16 11/26 Recruiting Patient Advisory Committee Volunteers

ESRD Network 16 is recruiting for new volunteers to serve on our Patient Advisory Committee (PAC).  PAC members:

  • Advise on Network education and outreach
  • Assist with Network Quality Improvement Activity design and interventions
  • Meet with Medicare (CMS) on conference calls to provide feedback from a patient perspective

Most PAC activities are conducted by phone call and email, though there are occasional opportunities for in person meetings.  Any travel to in-person meetings will be funded by the Network.

Please share the Informational Flyer at https://s3-us-west-2.amazonaws.com/nwrn.org/files/PAC/Nw16PACFlyer1118.pdf, and the Application form at https://s3-us-west-2.amazonaws.com/nwrn.org/files/PAC/Nw16PACForm1118.pdf, with patients and care partners in Alaska, Idaho, Montana, Oregon, and Washington that might be interested.  Application forms are due to the Network by November 26, 2018.

10/22+ Laugh Will and Testament Webinar

DPC’s next Educational Call is an October 22, 2018 webinar called Laugh Will and Testament: Using Humor to Contemplate Mortality and Enjoy Life.  See the poster below and http://www.dpcedcenter.org/education-seminars for details.  RSVP at http://www.dpcedcenter.org/education-call-rsvp to get a reminder.

The DPC Education Center is a treasure trove of information on kidney disease; find it at http://www.dpcedcenter.org/.  Mark your calendar for future Educational Calls on November 15 and December 13, and 2019 Calls on January 24, February 28, March 28, April 25, May 23, June 27, July 25, August 22, September 26, October 24, November 28, and December 26.

AAKP Patient Meeting Recorded

Recordings of the 43rd AAKP National Patient Meeting, held June 8-10, 2018 in St. Petersburg FL, are now available online, at https://www.youtube.com/channel/UCwT_eU7vwGtHSapN8PKc-Hw.  Sessions include:

  • Assessing Dialysis Facility Quality: CMS Engagement of Kidney Patients
  • Innovations in Kidney Disease Care
  • Paving the Way for a Better Tomorrow: Understanding Clinical Trials
  • Improving Kidney Care and Treatment Options – NIH Kidney Precision Medicine Project
  • Innovation, Patient Focus and Care Improvement – Veterans Administration Leadership in Kidney Care
  • Nutrition 101: Understanding & Enjoying Your Kidney-Friendly Diet
  • Patient-Centered Kidney Disease Care: How to Change the Status Quo

NW18 7/16 Quality Conference in LA

HealthInsight ESRD Network 18 will hold their 2018 Quality Conference July 16, 2018 in Los Angeles. Topics will include preserving renal function, emergency preparedness, cultural awareness and sensitivity, patient engagement and advocacy, the impact of dialysis, and CROWNWeb.  Five CEs will be provided.  Find details and register at http://www.esrdnetwork18.org/ or http://events.r20.constantcontact.com/register/event?oeidk=a07efdferr9f760399d&llr=gfuz7mxab.

8/10 RSN Essay Contest

This year’s topic for the Renal Support Network’s Annual Essay Contest, for people diagnosed with CKD, is Who Inspires, Encourages, or Educates You to Live Well with Kidney Disease?  First prize is $500.  Winning entries are published in print and online.  Essays must be submitted by August 10, 2018.  For full information and to enter the contest, see http://www.rsnhope.org/essay-contest/.