New NKF Patient Support Communities

NKF and HealthUnlocked have created four new online communities to provide help, support, and information for:

HealthUnlocked is the third largest health website in the UK and in the top 20 globally.  With over 40 million users per year in over 500 unique communities, the HealthUnlocked website increases patient engagement and contributes to improved health outcomes through its online health and well-being forums.  https://healthunlocked.com/ is a social platform and mobile application with moderated online health communities in which visitors can access useful information and services; seek advice, support and mentoring from peers; be empowered to make better healthcare decisions; and help advance medical research and understanding.  The HealthUnlocked platform is used as a clinical care planning tool in 75 hospitals in the UK.

Find the NKF announcement at https://www.kidney.org/news/new-collaboration-between-nkf-and-healthunlocked-to-provide-free-online-support-community .

9/24 NW Kidney Walk/Run Portland

On September 24, 2017, NW Kidney Kids will sponsor a benefit 5K, 10K, and Family Run/Walk in Portland.  This first-annual event will celebrate all people impacted by kidney disease and bring together the community to support children living with chronic kidney disease.  You can create your own team to raise donations, join an existing team, register to participate in one of the races or Run/Walk, or simply make a donation, all at https://www.crowdrise.com/strutyourkidney .  If you have questions or want to get involved in the event or organization, contact Race Director Lauren Lynn at lauren@nwkidneykids.org or 541-499-2018.  NW Kidney Kids is the only organization in the Northwest focused on serving children and teens with chronic kidney disease and their families.

Patient Engagement QIA

We’ve added a brochure to the Network 16 website called Improving Patient-Centered Care: About the In-Center Hemodialysis Consumer Assessment of Healthcare Providers and Systems Survey (ICH-CAHPS).

We’re again using ICH-CAHPS as a major part of our 2017 Patient-Engagement Quality Improvement effort; for more information see https://s3-us-west-2.amazonaws.com/nwrn.org/files/qia/2017/ICH_CAHPS_QIA_Kickoff_021617.pdf .

For Network-18 versions of the brochure, call Eileen Boyte, MSW, Patient Services Director, at 888-268-1539.

8/10 RSN Essay Contest Deadline

The 2017 RSN Essay Contest is underway.  Applicants have until August 10, 2017 to submit their entry of 750 or fewer words on the topic “Describe a positive decision that you have made about your healthcare.”  First place winner receives $500.  Find contest rules at http://www.rsnhope.org/essay-contest/contest-rules/ .  Last year’s winners are posted at http://www.rsnhope.org/index.php?id=141 .

 

4/12 CMS Feedback Webex

The CMS Quality Improvement and Innovation Group is hosting a session with Medicare beneficiaries, families, caregivers, and advocates to gather information about healthcare quality improvement integration, gaps, and ideal outcomes, on Wednesday, April 12, 2017 at 2pm EDT, which is 11am PDT.  You can join the Webex at https://mitre.webex.com/mw3100/mywebex/default.do?service=1&siteurl=mitre&nomenu=true&main_url=%2Fmc3100%2Fe.do%3Fsiteurl%3Dmitre%26AT%3DMI%26EventID%3D242824642%26UID%3D0%26Host%3DQUhTSwAAAAPoyDgLCLfLHjFHMF3xlLgEaTGbwbt46gcB7K653b4OYK3brFSWysdXI47I6qwFjY4ppqs-YZaENcrmcI4mHSBk0%26FrameSet%3D2%26MTID%3Dm346742cc4264be6c6281a1ac541e94d5 , meeting number or access code 634 491 197, password QIO12SoW.  Or you can call in to 877-668-4490.

You can get Webex help at http://help.webex.com/ .  The CMS QIIG is at https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/QualityImp rovementOrgs/Current.html .

Advance Planning Booklet

The Coalition for Supportive Care of Kidney Patients (http://kidneysupportivecare.org/Home.aspx) has created a booklet called Planning Today for Tomorrow’s Healthcare: A Guide for People with Chronic Kidney Disease.  You can find a copy at http://kidneysupportivecare.org/Files/ACPforCKDbrochure3-2017.aspx .

3/23 DPC Sex with CKD Webinar

Dialysis Patient Citizens will present a webinar on Sex and Intimacy with CKD March 23, 2017.  Sex is good medicine.  It has health benefits, feels good, strengthens relationships and makes life more rewarding. CKD can interfere with physical intimacy, but it can’t prevent it.  Learn about why sex is important, possible, and beneficial. Learn ways to be intimate that any body can do, how to enjoy it more, and how to find new sources of physical connection.  For more information on the webinar and registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/DPC.sex.0317.pdf .