4/12 CMS Feedback Webex

The CMS Quality Improvement and Innovation Group is hosting a session with Medicare beneficiaries, families, caregivers, and advocates to gather information about healthcare quality improvement integration, gaps, and ideal outcomes, on Wednesday, April 12, 2017 at 2pm EDT, which is 11am PDT.  You can join the Webex at https://mitre.webex.com/mw3100/mywebex/default.do?service=1&siteurl=mitre&nomenu=true&main_url=%2Fmc3100%2Fe.do%3Fsiteurl%3Dmitre%26AT%3DMI%26EventID%3D242824642%26UID%3D0%26Host%3DQUhTSwAAAAPoyDgLCLfLHjFHMF3xlLgEaTGbwbt46gcB7K653b4OYK3brFSWysdXI47I6qwFjY4ppqs-YZaENcrmcI4mHSBk0%26FrameSet%3D2%26MTID%3Dm346742cc4264be6c6281a1ac541e94d5 , meeting number or access code 634 491 197, password QIO12SoW.  Or you can call in to 877-668-4490.

You can get Webex help at http://help.webex.com/ .  The CMS QIIG is at https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/QualityImp rovementOrgs/Current.html .

Advance Planning Booklet

The Coalition for Supportive Care of Kidney Patients (http://kidneysupportivecare.org/Home.aspx) has created a booklet called Planning Today for Tomorrow’s Healthcare: A Guide for People with Chronic Kidney Disease.  You can find a copy at http://kidneysupportivecare.org/Files/ACPforCKDbrochure3-2017.aspx .

3/23 DPC Sex with CKD Webinar

Dialysis Patient Citizens will present a webinar on Sex and Intimacy with CKD March 23, 2017.  Sex is good medicine.  It has health benefits, feels good, strengthens relationships and makes life more rewarding. CKD can interfere with physical intimacy, but it can’t prevent it.  Learn about why sex is important, possible, and beneficial. Learn ways to be intimate that any body can do, how to enjoy it more, and how to find new sources of physical connection.  For more information on the webinar and registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/DPC.sex.0317.pdf .

3/9 World Kidney Day

March is National Kidney Month, and March 9, 2017 is World Kidney Day.  This year’s theme is Kidney Disease and Obesity.  For suggestions about how to honor these occasions, see:

Patient Employment and Advisory Council

The December issue of the Northwest Renal Network’s patient newsletter, Network Consumer News, focuses on the Patient Advisory Council or PAC, and includes stories about three of the seven current PAC members and their experience with Vocational Rehabilitation.  We’ve mailed these to facilities for distribution, but you can get a copy on the Network 16 website.  As usual, we also have a Spanish edition and a large-print edition.  With this issue we’ve also included a flyer or poster encouraging committed and engaged patients and care partners to join the PAC.  Find them all at https://www.nwrn.org/patients-a-family/ptedres/ncn.html .  You can also find more information on the Network 16 PAC at https://www.nwrn.org/patients-a-family/patient-advisory-committee.html .  In southern California, find information about the Network 18 PAC and other volunteer opportunities at http://www.esrdnetwork18.org/patients/how-to-get-involved/ and http://www.esrdnetwork18.org/about/governance/ .

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CMS Pt Engagement Strategy

CMS has published a summary of their Person and Family Engagement Strategy to serve as a guide for the implementation of principles and strategies throughout CMS programs.  Its goals and objectives are:

  • Actively encourage person and family engagement along the continuum of care within the broader context of health and well-being in the communities in which people live.
  • Promote tools and strategies that reflect person and/or family values and preferences and enable them to actively engage in directing and self-managing their care.
  • Create an environment where persons and their families work in partnership with their health care providers to develop their health and wellness goals informed by sound evidence and aligned with their values and preferences.
  • Develop meaningful measures and tools aimed at improving the experience and outcomes of care for persons, caregivers, and families. Also, identify person and family engagement best practices and techniques in the field that are ready for widespread scaling and national integration.

For more information see https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/QualityInitiativesGenInfo/Person-and-Family-Engagement.html and  https://blog.cms.gov/2016/12/13/cms-releases-its-person-and-family-engagement-strategy/ .