Northwest Renal Network (ESRD Network 16) has published the November edition of its patient newsletter, Consumer News. This issue features a Patient Advisory Committee (PAC) Member Spotlight, and includes an invitation for patients to join the PAC. If you have any interest, or if you have questions, contact Lisa Hall at 800-262-1514 or firstname.lastname@example.org . Find the newsletter and PAC invitation on the Network website at https://www.nwrn.org/patients-a-family/ptedres/ncn.html .
IHI will present a free November 21, 2017 “WIHI” audio program on When Patients Feel as Powerless as Hostages. For full details see http://forms.ihi.org/next-wihi-on-november-21-at-2-pm-et-when-patients-feel-as-powerless-as-hostages .
The Living Kidney Donors Network will present two 12 October, 2017 webcasts on Developing Your Kidney Kampaign So Your Donor Can Find YOU! For information and registration, see http://www.lkdn.org/workshops-webinars/index.html .
Donate Life Northwest will sponsor training, peer support, and mentorship for dialysis patients on living donation transplants, in Portland OR November 5, 12, and 19, 2017. They will also sponsor a training for mentors on October 7, 2017. See below for details:
CMS has announced a Request For Information soliciting suggestions on how to create an affordable, accessible healthcare system that puts patients first. Find details and comment at https://survey.max.gov/429625 .
- Dialysis Patient Citizens’ free monthly educational webinar, to be held August 17, 2017, will be on Communicating Effectively with your Health Care Team. The webinar will be presented by members of the Forum of ESRD Networks’ Kidney Patients Advisory Council. Register at http://www.dpcedcenter.org/education-seminars .
- Kansas City’s Heartland Kidney Network has added another colorful poster on essential elements of communication to their excellent short course called Heartland Huddle Up to Improve Communication. This one is on “What Type of Coach Are You?” It joins earlier pages on active listening, body language, emotional awareness, words matter, shared decision-making, retaliation, and teach-back. Find them all at http://heartlandkidney.org/providers/article/heartland_huddle_up_to_improve_communication .
On September 24, 2017, NW Kidney Kids will sponsor a benefit 5K, 10K, and Family Run/Walk in Portland. This first-annual event will celebrate all people impacted by kidney disease and bring together the community to support children living with chronic kidney disease. You can create your own team to raise donations, join an existing team, register to participate in one of the races or Run/Walk, or simply make a donation, all at https://www.crowdrise.com/strutyourkidney . Find a colorful poster announcing the event at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/NWKKstrut0917.pdf . If you have questions or want to get involved in the event or organization, contact Race Director Lauren Lynn at email@example.com or 541-499-2018. NW Kidney Kids is the only organization in the Northwest focused on serving children and teens with chronic kidney disease and their families.