The University of Washington Medical Center Team Transplant provides a life-changing wellness program for transplant recipients and their support team through regular exercise, healthy eating and community support, while promoting organ donation awareness. They will hold their Annual Fundraising Dinner February 24, 2018 on the UW campus. For more information on the Dinner and on Team Transplant, and to register for the Dinner, see http://www.cvent.com/events/team-transplant-s-annual-fundraising-dinner/event-summary-9929a6b93dcc4d1996b2693577152b25.aspx.
Register for the February 8, 2018 HealthLine call at https://register.gotowebinar.com/register/6455619082963126531. World Kidney Day is March 8, 2018.
CMS has contracted with UM-KECC to develop one or more measures related to the quality of care provided to ESRD dialysis patients by physicians, and is recruiting transplant and dialysis patients to serve on the Technical Expert Panel that will propose such measures. Nominations are due by January 5, 2018. For details see https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/TEP-Currently-Accepting-Nominations.html#001.
Network 16 is seeking volunteers – patients or care partners – to represent the Network on two national committees:
ESRD National Coordinating Center’s Patient and Family Engagement Learning & Action Network:
- Volunteers are asked to commit to participating in scheduled conference calls and webinars, usually every month or every other month
- Centers for Medicare & Medicaid Services (Medicare) representatives are on the calls, providing an opportunity for volunteers to work closely with the federal government to improve patient care
- The patient representative with the highest level of participation (attendance) gets to travel to Baltimore for a national meeting of the committee
- Learn more about the committee at http://ncc.hshapps.com/en/patients/national-patient-and-family-engagement-lan-npfe-lan/.
- We need one patient from Idaho, and one from Montana
Kidney Community Emergency Response Coalition (KCER): This is a national group devoted to improving emergency preparedness and response for kidney patients and ESRD facilities. This involves quarterly conference calls. Learn more about the Coalition at http://www.kcercoalition.com/. We need two patients from any Network state – Alaska, Idaho, Montana, Oregon, or Washington.
Anyone interested should email Lisa Hall at LHall@nw16.esrd.net or call 206-923-0714.
The Institute for Healthcare Improvement will host a free 7 December, 2017 audio “WIHI” program on The (Careful and Kind) Patient Revolution., featuring the Mayo Clinic’s Victor Montori, MD. This Patient Revolution is “a movement based on stories. [It’s] mission is to arm people to tell stories; stories about their lives, stories about their capabilities and limitations, and stories about what risks, benefits and trade-offs look like from their point of view. We want people to tell these stories in exam rooms and hospital rooms, in their communities and in the rooms where decisions get made.” For more information and to register, see http://forms.ihi.org/next-wihi-on-december-7-at-2-pm-et-the-careful-and-kind-patient-revolution. For The (Careful and Kind) Patient Revolution website, see https://patientrevolution.org/whywerevolt/.
Northwest Renal Network (ESRD Network 16) has published the November edition of its patient newsletter, Consumer News. This issue features a Patient Advisory Committee (PAC) Member Spotlight, and includes an invitation for patients to join the PAC. If you have any interest, or if you have questions, contact Lisa Hall at 800-262-1514 or email@example.com . Find the newsletter and PAC invitation on the Network website at https://www.nwrn.org/patients-a-family/ptedres/ncn.html .
IHI will present a free November 21, 2017 “WIHI” audio program on When Patients Feel as Powerless as Hostages. For full details see http://forms.ihi.org/next-wihi-on-november-21-at-2-pm-et-when-patients-feel-as-powerless-as-hostages .