AAKP Patient Meeting Recorded

Recordings of the 43rd AAKP National Patient Meeting, held June 8-10, 2018 in St. Petersburg FL, are now available online, at https://www.youtube.com/channel/UCwT_eU7vwGtHSapN8PKc-Hw.  Sessions include:

  • Assessing Dialysis Facility Quality: CMS Engagement of Kidney Patients
  • Innovations in Kidney Disease Care
  • Paving the Way for a Better Tomorrow: Understanding Clinical Trials
  • Improving Kidney Care and Treatment Options – NIH Kidney Precision Medicine Project
  • Innovation, Patient Focus and Care Improvement – Veterans Administration Leadership in Kidney Care
  • Nutrition 101: Understanding & Enjoying Your Kidney-Friendly Diet
  • Patient-Centered Kidney Disease Care: How to Change the Status Quo

NW18 7/16 Quality Conference in LA

HealthInsight ESRD Network 18 will hold their 2018 Quality Conference July 16, 2018 in Los Angeles. Topics will include preserving renal function, emergency preparedness, cultural awareness and sensitivity, patient engagement and advocacy, the impact of dialysis, and CROWNWeb.  Five CEs will be provided.  Find details and register at http://www.esrdnetwork18.org/ or http://events.r20.constantcontact.com/register/event?oeidk=a07efdferr9f760399d&llr=gfuz7mxab.

8/10 RSN Essay Contest

This year’s topic for the Renal Support Network’s Annual Essay Contest, for people diagnosed with CKD, is Who Inspires, Encourages, or Educates You to Live Well with Kidney Disease?  First prize is $500.  Winning entries are published in print and online.  Essays must be submitted by August 10, 2018.  For full information and to enter the contest, see http://www.rsnhope.org/essay-contest/.

RSN Renal Warrior Podcast

The Renal Support Network has published a March 7, 2018 KidneyTalk podcast on Renal Warrior: the Power is Within You, a story about a 300-pound 34-year-old who, surprised by an unanticipated diagnosis of severe hypertension and ESRD, took responsibility for his own continued Life.  Through a very gradual increase in exercise, he has lost 130 pounds over the last eighteen months, and is now on the transplant waitlist.  Find the recording of the podcast, including a link to his ongoing Facebook page, at http://www.rsnhope.org/kidneytalk/renal-warrior-power-within/.

NW16 3/14+ Donate Life NW

Donate Life Northwest reminds us that April is National Donate Life Month – see https://www.donatelife.net/ndlm/ for details and resources.

They’ve also announced many new volunteer training sessions and other community events:

  • March 14, 2018 – Donate Life 101 and 301 in La Grande OR
  • March 19, 2018 – New Ambassador Orientation, Portland OR
  • April 11, 2018 – Happy Hour, Medford OR
  • April 12, 2018 – Donate Life 101 and 301 in Medford OR
  • April 13-14, 2018 – Pear Blossom Festival Parade, Medford OR
  • April 15, 2018 – Quilt Unveiling, Medford OR
  • April 22, 2018 – Quilt Unveiling, Portland OR
  • May 7, 2018 – New Ambassador Orientation, Portland OR
  • May 26, 2018 – Tabor Trot run/walk, Portland OR

Find more information about any of these at https://www.donatelifenw.org/news-and-events/calendar, along with more information about previously announced trainings in Portland March 18, March 25, and April 1, 2018, and the previously announced Trailblazers basketball game group tickets on March 30, 2018 (see also the Patient Calendar above).

NW16 2/24 UW Transplant Dinner

The University of Washington Medical Center Team Transplant provides a life-changing wellness program for transplant recipients and their support team through regular exercise, healthy eating and community support, while promoting organ donation awareness.  They will hold their Annual Fundraising Dinner February 24, 2018 on the UW campus.  For more information on the Dinner and on Team Transplant, and to register for the Dinner, see http://www.cvent.com/events/team-transplant-s-annual-fundraising-dinner/event-summary-9929a6b93dcc4d1996b2693577152b25.aspx.