NW16 2/24 UW Transplant Dinner

The University of Washington Medical Center Team Transplant provides a life-changing wellness program for transplant recipients and their support team through regular exercise, healthy eating and community support, while promoting organ donation awareness.  They will hold their Annual Fundraising Dinner February 24, 2018 on the UW campus.  For more information on the Dinner and on Team Transplant, and to register for the Dinner, see http://www.cvent.com/events/team-transplant-s-annual-fundraising-dinner/event-summary-9929a6b93dcc4d1996b2693577152b25.aspx.

2/28 Focus Group Nominations

UM-KECC is seeking nominations for patients, caregivers, and providers to participate on one of several focus groups on Patient Reported Outcomes (PRO).  The focus groups will be held to elicit feedback and suggestions for draft question content for two PRO measure topics, Patient Life Goals and Patient Feeling of Safety.  The focus groups will be 2 hour webinar teleconference meetings.  Patient and caregiver nominations require a brief statement of interest, a CV or resume if relevant, and disclosure of any conflicts of interest.  Submit this material to dialysisdata@umich.edu by February 28, 2018.  Contact Jordan Affholter at affjorda@med.umich.edu with any questions.  For details and a conflict disclosure form, see https://annanurse.org/article/call-nominations-esrd-patient-reported-outcomes-focus-groups-january-24-18.

NW16 2/26+ Donate Life Portland

Discounted tickets are now on sale for Donate Life Northwest’s 4th Annual Donate Life Northwest Family Night at the Portland Trail Blazers on March 30, 2018 against the L.A Clippers!  Visit http://rosequarter.com/donatelife before February 26, 2018 and use the code DONATELIFE to access them.  Come join your Donate Life family for a night of fun and community education!

1/5 Physician Measures TEP

CMS has contracted with UM-KECC to develop one or more measures related to the quality of care provided to ESRD dialysis patients by physicians, and is recruiting transplant and dialysis patients to serve on the Technical Expert Panel that will propose such measures.  Nominations are due by January 5, 2018.  For details see https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/TEP-Currently-Accepting-Nominations.html#001.

NW16 National Board Patient Members Needed

Network 16 is seeking volunteers – patients or care partners – to represent the Network on two national committees:

ESRD National Coordinating Center’s Patient and Family Engagement Learning & Action Network:

  • Volunteers are asked to commit to participating in scheduled conference calls and webinars, usually every month or every other month
  • Centers for Medicare & Medicaid Services (Medicare) representatives are on the calls, providing an opportunity for volunteers to work closely with the federal government to improve patient care
  • The patient representative with the highest level of participation (attendance) gets to travel to Baltimore for a national meeting of the committee
  • Learn more about the committee at http://ncc.hshapps.com/en/patients/national-patient-and-family-engagement-lan-npfe-lan/.
  • We need one patient from Idaho, and one from Montana

Kidney Community Emergency Response Coalition (KCER):  This is a national group devoted to improving emergency preparedness and response for kidney patients and ESRD facilities.  This involves quarterly conference calls.  Learn more about the Coalition at http://www.kcercoalition.com/.  We need two patients from any Network state – Alaska, Idaho, Montana, Oregon, or Washington.

Anyone interested should email Lisa Hall at LHall@nw16.esrd.net or call 206-923-0714.