Category Archives: Patient Meetings

10/23+ NW16 W WA Kidney Support Group

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The Road Back to Life is a nonprofit organization that provides mentoring to dialysis patients, patient support groups, and award-winning CKD classes.  They offer patient support groups in Lynnwood WA on October 23, November 27, and December 25, 2018, and in both Monroe and Mountlake Terrace WA on November 13 and December 11.  They also provide November 8, December 6, and December 13, 2018 courses on HOPE (or Healthy Options) in Mountlake Terrace, and a six-part course November 7-December 19 on Survive and Thrive with CKD in Lynnwood WA.  For details see https://www.kidneysupportgroup.com/calendar/.  For more information on The Road Back to Life see https://www.kidneysupportgroup.com/.

10/30 NW16 PKG Support Group

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The Portland Kidney Group invites patients and care partners to their October 30, 2018 Support Group Meeting in Milwaukie OR.  Topics of discussion will include treatment options and holiday coping strategies.  Kidney-friendly refreshments will be provided, but RSVP is requested.  For details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG/PKG1018.pdf.

NW16 8/14+ Donate Life NW Volunteers

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Donate Life Northwest is dedicated to helping transplant candidates maintain hope while waiting for an available matching kidney.  They offer training to volunteers for various situations.  Their upcoming training, volunteering, and celebration schedule includes:

  • August 14, 2018 – School Speaker training in Portland OR
  • August 15, 2018 – Volunteer Orientation in Bend OR
  • August 16, 2018 – School Speaker training in Portland OR
  • September 4, 2018 – Volunteer Orientation in Portland OR
  • September 8, 2018 – Volunteer Opportunity in Vancouver WA
  • September 8, 2018 – Donor Family Picnic in Salem OR
  • September 13, 2018 – School Speaker training in Eugene OR
  • September 13, 2018 – Volunteer Orientation in Eugene OR
  • September 16, 2018 – Volunteer Opportunity in Portland OR
  • September 23, 2018 – Volunteer Opportunity in Portland OR
  • November 7, 2018 – Lifesavers Breakfast

For more details, see https://mailchi.mp/donatelifenw.org/sharing-hope-this-summer.  This web page also introduces their new Latino Outreach Coordinator, Donor stories in English and Spanish, winners of their recent raffle, and information on including Donate Life Northwest in your estate, insurance, or financial plans.

8/20+ NW16 PKG 2018 Calendar

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The Portland Kidney Group has published the poster for their August 26, 2018 NKF-PKG Kidney Wellness Fair & Community Picnic in Portland; RSVP by August 20.  They’ve also updated their 2018 calendar to include two new patient support groups, September 5, 2018 in Tigard OR, and October 3 in Clackamas OR, in addition to their November 11 Ninth Anniversary Holiday Gathering in Portland.  Find the revised calendar at https://s3-us-west-2.amazonaws.com/nwrn.org/files/P/PKG/PKGcal2018.pdf, and the new poster for the August 26 Fair and Picnic at https://s3-us-west-2.amazonaws.com/nwrn.org/files/P/PKG/PKGpic2018.pdf.  They don’t mention the August 20, 2018 RSVP-by date on the poster, but they have in earlier announcements, so to play it safe you may want to call in before August 20.

AAKP Patient Meeting Recorded

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Recordings of the 43rd AAKP National Patient Meeting, held June 8-10, 2018 in St. Petersburg FL, are now available online, at https://www.youtube.com/channel/UCwT_eU7vwGtHSapN8PKc-Hw.  Sessions include:

  • Assessing Dialysis Facility Quality: CMS Engagement of Kidney Patients
  • Innovations in Kidney Disease Care
  • Paving the Way for a Better Tomorrow: Understanding Clinical Trials
  • Improving Kidney Care and Treatment Options – NIH Kidney Precision Medicine Project
  • Innovation, Patient Focus and Care Improvement – Veterans Administration Leadership in Kidney Care
  • Nutrition 101: Understanding & Enjoying Your Kidney-Friendly Diet
  • Patient-Centered Kidney Disease Care: How to Change the Status Quo

NW16 7/21 OHSU Transplant Picnic

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Oregon Health Sciences University will hold a free July 21, 2018 Transplant Picnic for recipients, donors, patients on a waitlist, health care providers, friends, and family members.  For more information see https://www.ohsu.edu/xd/health/services/transplant/about-us/outreach-programs/upload/Event-Flyer.pdf.  No RSVP is necessary.