Category Archives: Patient Meetings

7/4 NW18 UCLA CORE Kidney Program Festival

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The UCLA CORE Kidney Program has announced that they’ll be participating in the 115th Annual Huntington Beach Fourth of July Parade & Festival.  For more information on this and other UCLA CORE Kidney and UKEEP events, see https://www.uclahealth.org/core-kidney/upcoming-events.  For instance, their webinar on Alport Syndrome is coming up on July 11, 2019, as well as UKEEP’s patient meeting on High Blood Pressure on July 14.  Recordings of past UCLA CORE Kidney and UKEEP webinars, on topics such as Transplantation, Fabry’s Disease, Adult PKD, and more, can be found at https://www.uclahealth.org/core-kidney/past-events.

They’ve also announced the date for their 2020 UCLA Kidney Health Fair & Spirit Walk for Kidney Disease, May 17, 2020.  Find more information at https://www.uclahealth.org/core-kidney/kidney-health-fair.

NW18 5/5 The KIDney Zone at Santa Monica Beach

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Featuring the KIDney Zone: Fun for the Family!
Sunday, May 5th, 2019,  11:00 AM – 3:00 PM
Dorothy Green Park, Santa Monica Beach Park #1
Ocean Park Blvd & Barnard Way, Santa Monica, CA 90405.
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We look forward to seeing you on Sunday, May 5th at Dorothy Green Park in beautiful Santa Monica beach.  We highly encourage that you RSVP (instructions found below) so you can stay up to date with all of the latest on the fair.   As always, we have a special section dedicated to fun for the kids called the KIDney Zone.   Feel free to drop off your child at the KIDney Zone when you arrive so that you can enjoy the entertainment and educational aspects of our fair.  Our team has been working hard to make sure that your kids will have a blast at the KIDney Zone with the following activities featured:
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LOS ANGELES FIRE DEPARTMENT
 
Don’t miss out on the chance to board a real firetruck as we welcome the Los Angeles Fire Department to our fair! They will be at the event from 1:00 PM – 3:00 PM so make sure you plan ahead for these hours for this wonderful photo-op.
 
PEOPLE-ANIMAL CONNECTION
The UCLA People-Animal Connection (https://www.uclahealth.org/PAC/default.cfm) is one of the most comprehensive Animal-Assisted Therapy and Activity Programs in the nation.  These therapy dogs are trained to interact with a variety of people. They have very stable temperaments and a friendly, easy-going personality and they’ll be hanging out next to the KIDney Zone for the entirety of the fair.
 
BUILD A BEAR RADIO
We are excited to welcome Build-a-Bear Radio as a partner for our fair!  This year, they will be streaming their radio station throughout the event as well as giving away bears throughout the event.  Make sure to come early if you want to check out what they have to offer!
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OTHER FEATURED ACTIVITIES
Braid Bar – Nine Zero One Salon
Pioneering Poles & Ropes Activity & Pine Wood Derby – Boy Scouts of America
Arts & Crafts/Face Painting – Bruin Beans Health Club
Don’t miss out on our KIDney Zone this year!
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HOW TO REGISTER
RSVP is highly preferred and encouraged!  There are options to pre-register, as well as on-site registration.  Pre-registered guests will receive a UCLA souvenir upon entry.  all us at (310) 954-2692 or email us at COREKidney@mednet.ucla.edu.
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HOW TO SUPPORT
Donations are tax-deductible.  UCLA is a public, non-profit educational institution exempt under Section 501(c)(3) of the IRS code.  We hope that you can all make it on Sunday, May 5th to our Kidney Health Fair at the Beach.  If you are unable to come, we hope that you can still consider supporting our cause. Visit our new UCLA Spark crowdfunding page at https://spark.ucla.edu/project/15493 to learn more about our campaign and share with other advocates to help generate more interest and to see our progress as we strive to reach our goal of $150,000.  Our ultimate goal is to set up a Kidney Center at UCLA that provides comprehensive care to kidney patients and their families, from pre-diagnosis to transplant.
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We look forward to seeing you there!
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NW18 5/5 UCLA Kidney Health Fair

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The 2019 UCLA Kidney Health Fair at the Beach will be held May 5, 2019 in Santa Monica CA, featuring education, inspiration, health screening, and entertainment for both adults and kids (and pets).  You can register in person at the fair, but RSVP is recommended, by calling 310-954-2692 or emailing COREKidney@mednet.ucla.edu.  Find more information in English at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UCLAKidneyFair2019.eng.pdf (or below) or in Spanish at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UCLAKidneyFair2019.esp.png.

Attendance at the Fair is free, but tax-deductible donations to support the UCLA Kidney Program are welcome.  UCLA is raising funds to create a Kidney Center that provides comprehensive care to kidney patients and their entire families, from pre-diagnosis to transplant.  To donate, see https://spark.ucla.edu/project/15493.

2/21+ UCLA/UKEEP Patient Education

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The UCLA Health CORE Kidney program will present a February 21, 2019 webinar on Living Kidney Donation.  For details and pre-registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/ucla022119.pdf.

UKEEP will host a February 24, 2019 workshop on Kidney Disease: What You Should Know in Santa Monica CA.  See https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UKEEP022419.pdf for details and RSVP information.

The CORE Kidney program will also present:

Find more information, and recordings of earlier CORE Kidney and UKEEP programs, at https://www.uclahealth.org/core-kidney/, along with information about the UCLA PKD program and other related educational outreach.

6/6+ AAKP Nat’l Patient Meeting, Washington DC

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The AAKP will hold their 44th Annual National Patient Meeting September 6-8, 2019 in Washington DC, and celebrate their 50th Anniversary since founding.  Early Bird registration, and its $50 discount, expires June 6, 2019.  Scholarship applications will be accepted through July 1, 2019.  First-come, first-served registration for discounted accommodations are available until the room block fills up, or until August 16, 2019.  For details see https://aakp.org/national-patient-meeting/.

 

NW16 11/11 NKF/PKG Holiday Party

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NKF and the Portland Kidney Group will hold their Annual Holiday Party on November 11, 2018.  Light kidney-friendly food and drinks will be provided, so you need only bring your family, your friends, and your appetite.  However, please RSVP before November 4 with the number of people you expect to bring, so an appropriate amount of food can be stocked!  A renal dietitian will talk about hearty but kidney-friendly holiday cooking.  Volunteers to help with the Party will be welcomed.  Find all the details you’ll need at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG/PKG.Holiday.Party.2018.pdf.