Dialysis Patient Citizens has begun hosting a one-hour Support Group call for CKD patients, at noon PT on the second Tuesday of each month. Find details and register at https://www.dpcedcenter.org/news-events/news/join-us-for-our-new-patient-support-group/. Find more information and a link to a downloadable poster at https://nwrnbulletins.wordpress.com/2021/03/02/3-9-new-dpc-telephone-support-group/.
Dialysis Patient Citizens is initiating a new patient support group via telephone, on the second Tuesday of every month at noon PT. Each call will be facilitated by a person living with CKD and a healthcare practitioner. To join a call, dial 866-808-5953 and enter meeting code 253 841 3353. Find more information at https://www.dpcedcenter.org/wp-content/uploads/2021/02/DPC-Support-Group-by-Telephone-Flyer-2.pdf and below:
UCLA tells us: “Second ever Virtual Kidney Fair on March 14th, 2021 from 11am-1:00pm PST. This is a FREE event! With many joining from all over the world, this truly is going to be a global event! We will have different guest speakers, fun activites, our popular 2K/5K Spirit Walk/Run… virtual style, and much more! Also, we will be introducing our mascot – Mr. Bean… you won’t want to miss out! Mark your calendars! Registration coming soon.” Get the latest news at https://www.uclahealth.org/core-kidney/upcoming-events.
Bob Crabtree and Don Chriscaden, founders of The Road Back to Life, are starting a Zoom kidney patient support group on December 1, 2020 at 2pm PST, with a calendar of future meetings to be posted. By way of introduction, Don says, “This is intended to be a time when we can feel free to talk about anything, from just saying hello to discussing what life has brought your way. This will be a time to talk to friends or make new friends in an informal environment. Let us learn to talk to people and laugh, cry or whatever is appropriate again.” Join the meeting at https://us02web.zoom.us/j/88934911182.
The Renal Support Network has been offering its free Annual Patient Education Meeting for kidney patients and their families in the Los Angeles area for 27 years. With COVID-19 complicating things this year, RSN did what only Lori Hartwell could have imagined doing – they went global and online, and made it five times as big! So this year, RSN Hope Week will span November 10-14, 2020 with a different theme each day: CKD on day 1, Dialysis on day 2, Transplant on day 3, All Stages of Care on day 4, and Parenting Children with CKD on day 5.
Find RSN’s press release introducing the week at https://www.rsnhope.org/press-releases/renal-support-networks-27th-annual-patient-education-meeting-goes-virtual/. Find a short version of the agenda below. It’s page 1 of their flyer, which includes a full page describing each day – find the full 6-page flyer HERE. Find brief vitae and snapshots of the full faculty at https://www.rsnhope.org/hope-week-faculty/. And register at https://www.rsnhope.org/hope-week-rsns-national-online-patient-meeting/ – there’s also a short version of the agenda on that page.
The ESRD National Coordinating Center will present an October 8, 2020 webinar at noon PDT on The Kidney Caregiver Peer Connection Call. Too often the only person that can understand what you’re going through is someone who’s been there. The webinar is open to caregivers and patients who are affected by CKD, and offers strategies for wellness and support from fellow caregivers and care partners. To listen to the presentation, call 844-740-1264 and enter access code 133 121 4744. Find the video (without sound) by clicking HERE and enter Webex event number 133 121 4744 and password Peer2020! (including the exclamation point at the end).
AAKP will hold their 45th annual National Patient Meeting online September 11-12, 2020 on the theme Patient Voice – Patient Choice. Registration to the virtual event is free this year. Find more information and register at https://aakp.org/2020-national-patient-meeting-2/.
NKF will present their Annual Kidney Community Symposium in Portland on March 1, 2020, featuring sessions on The Future of Kidney Care, Home Dialysis, Living Donation, and the presentation of the Elizabeth Kemble Friends of the Kidney Community Award. For details and registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG/PKG2020PtSymp.pdf.
AAKP will celebrate their 50th Anniversary on December 7, 2019 by initiating their first AAKP Annual Fun Walk. The formal celebration will take place in Tampa Bay FL with a one-mile walk, music, exhibitors, and family fun activities, but you can celebrate by yourself or as a team wherever you are, nationally, globally, or virtually, by staging your own Fun Walk. For details see https://aakp.org/programs-and-events/fun-walk/.
UCLA’s CORE Kidney Program has announced the timing of their next several webinars, UKEEP meetings, and annual Kidney Fair at the Beach. They will present:
- A December 3, 2019 webinar on the UCLA CORE Kidney Program itself called Giving Tuesday; find a poster about it, with registration information, at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UCLACore120719.pdf.
- A December 8, 2019 UKEEP meeting on Drugs and Medications: What You Need to Know.
- A January 16, 2020 webinar on High Blood Pressure: What You Need to Know.
- A February 13, 2020 webinar on Living Kidney Donation.
- Their May 17, 2020 Kidney Fair at the Beach.
For more information on these and to RSVP, see https://www.uclahealth.org/core-kidney/upcoming-events.