9/9+ PSKC Online Classes on CKD Stages 2-4

Puget Sound Kidney Centers will present a series of six free online classes on Chronic Kidney Disease Stages 2-4, Wednesdays from September 9 to October 14, 2020, called Survive and Thrive 2020.  Without treatment and/or a change in lifestyle, especially diet and exercise, CKD Stage 2 often progresses to Stages 3 and 4.  These classes will teach how to manage CKD to hopefully slow or even reverse its progression.  For details and registration, see below:

4/29 AAKP HealthLine on COVID-19 and CKD 1-4

AAKP HealthLine will present an April 29, 2020 webinar on Fighting Coronavirus Upstream – What Early Stage Kidney Disease Patients Need to Know, about how people with CKD Stages 1-4 may be able to fend off COVID-19 (I’m extrapolating that from limited information).  Find more information and register at https://aakp.org/programs-and-events/aakp-healthline/.

3/12 World Kidney Day and National Kidney Month

March 12, 2020 is World Kidney Day, sponsored by the International Society of Nephrology and the International Federation of Kidney Foundations.  This year’s theme is Kidney Health for Everyone Everywhere – from Prevention to Detection and Equitable Access to Care.  Find more information at https://www.cdc.gov/mmwr/preview/mmwrhtml/mm5808a1.htm and a campaign toolkit at https://www.worldkidneyday.org/2020-campaign/2020-campaign-materials/.

March is also National Kidney Month, with the theme Take the Pressure off Your Kidneys and Your Health.  Find more information at https://www.kidney.org/content/national-kidney-month and https://www.niddk.nih.gov/health-information/community-health-outreach/national-kidney-month.  The latter includes a campaign toolkit, including posters like the one below, in English and Spanish.

To support National Kidney Month, NKF, HHS, and ASN have launched a nationwide risk campaign called Are You the 33%?.  Find details at https://www.kidney.org/news/nationwide-kidney-risk-campaign-launched-nkf-hhs-and-asn.

“Are You the 33%?” CKD Campaign

To honor National Kidney Month (March), HHS, ASN, NKF, and private partners including CVS Kidney Care, have launched a nationwide campaign to reach the 33% of American adults who are at risk of kidney disease, and to help them avoid further development of the disease.  Find more information at https://www.kidney.org/news/nationwide-kidney-risk-campaign-launched-nkf-hhs-and-asn.  They plan to also launch a Spanish-language version on September 15, 2020 for National Hispanic Heritage Month (September 15-October 15).

1/13 CMS TEP on Delaying CKD Progression

The Yale New Haven Health Services Corporation’s Center for Outcomes Research and Evaluation is convening a Technical Expert Panel (TEP) on Development of a Quality Measure Assessing Delay in Progression of CKD for CMS.  Nominate yourself or others before January 13, 2020.  Find details at https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/TEP-Currently-Accepting-Nominations#a1213, and download nomination forms from https://www.cms.gov/files/zip/development-quality-measure-assessing-delay-progression-chronic-kidney-disease-ckd.

SONG Glomerular Disease Survey

The Standardized Outcomes in Nephrology – Glomerular Disease (SONG-GD) study is an international initiative to identify outcomes in glomerular disease that are important to patients, caregivers, clinicians and other health professionals.  This will inform the development of core outcomes that are important and relevant to measure and report in glomerular disease.

SONG-GD includes a voluntary 15-minute survey to help determine a core outcome set for glomerulonephritis trials, to be taken by anyone who meets the following criteria:

  • You are 18 yrs of age or older
  • You are one of the following:
    • A patient with any major form of glomerular disease*, at any stage of development**
    • A family or household member of a patient with any major form of glomerular disease*, at any stage of development**
    • A caregiver for a patient with any major form of glomerular disease*, at any stage of development**
    • A healthcare practitioner or trainee, social worker, dietitian, pharmacist, psychologist, physiotherapist, researcher, policy-maker, or other stakeholder who deals with glomerular disease
    • You work in an industry that deals with glomerular disease
  • *Major forms of glomerular disease include:
      • ANCA vasculitis
      • Anti-GBM disease
      • Anti-glomerular basement membrane disease
      • Anti-neutrophil cytoplasmic antibody associated vasculitis
      • C3GN
      • Complement-mediated glomerulopathy
      • Focal segmental glomerulosclerosis
      • FSGS
      • Goodpasture’s disease
      • Goodpasture syndrome
      • GPS
      • Henoch-Schoenlein purpura
      • IgA nephropathy
      • IgA vasculitis
      • Lupus nephritis
      • Membranoproliferative glomerulonephritis
      • Membranous nephropathy
      • Minimal change disease
      • MPGN
  • **Stages of kidney disease development include:
      • Normal kidney function
      • Chronic kidney disease
      • ESRD, dialysis, or transplant

Answers will be completely anonymous and analyzed only in combination with other responses.  Find the survey at https://sydneypublichealth.au1.qualtrics.com/jfe/form/SV_djzDXYqzIQ0dMGN.  You will be asked for your name and email address so SONG-GD can send you a short follow-up survey.

3/16 NW18 UCI Health WKD Symposium

UC Irvine Health will present a free March 16, 2019 World Kidney Day symposium in Orange, CA on Kidney health, featuring leading experts in Nephrology, Urology, Transplant, and Nutrition.  Patients, providers, and community members are all invited to enjoy a day of education, health screenings, refreshments, and live entertainment.  For details see https://twitter.com/IFKF_/status/1103801441846587392 and https://www.facebook.com/events/638668909886763/?notif_t=event_invite_reminder&notif_id=1551199891724380.

2/21+ UCLA/UKEEP Patient Education

The UCLA Health CORE Kidney program will present a February 21, 2019 webinar on Living Kidney Donation.  For details and pre-registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/ucla022119.pdf.

UKEEP will host a February 24, 2019 workshop on Kidney Disease: What You Should Know in Santa Monica CA.  See https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UKEEP022419.pdf for details and RSVP information.

The CORE Kidney program will also present:

Find more information, and recordings of earlier CORE Kidney and UKEEP programs, at https://www.uclahealth.org/core-kidney/, along with information about the UCLA PKD program and other related educational outreach.

Medicare Diabetes Prevention Program

CMS has updated its web page on the Medicare Diabetes Prevention Program Expanded Model.  Diabetes is a leading cause of kidney disease, and this Medicare/CDC Program has been shown to reduce by up to 70% the progression from pre-diabetes to diabetes itself.  Find the web page at https://innovation.cms.gov/initiatives/medicare-diabetes-prevention-program/.

8/10 RSN Essay Contest

This year’s topic for the Renal Support Network’s Annual Essay Contest, for people diagnosed with CKD, is Who Inspires, Encourages, or Educates You to Live Well with Kidney Disease?  First prize is $500.  Winning entries are published in print and online.  Essays must be submitted by August 10, 2018.  For full information and to enter the contest, see http://www.rsnhope.org/essay-contest/.