The Road Back to Life is a nonprofit organization that provides mentoring to dialysis patients, patient support groups, and award-winning CKD classes. They offer patient support groups in Lynnwood WA on October 23, November 27, and December 25, 2018, and in both Monroe and Mountlake Terrace WA on November 13 and December 11. They also provide November 8, December 6, and December 13, 2018 courses on HOPE (or Healthy Options) in Mountlake Terrace, and a six-part course November 7-December 19 on Survive and Thrive with CKD in Lynnwood WA. For details see https://www.kidneysupportgroup.com/calendar/. For more information on The Road Back to Life see https://www.kidneysupportgroup.com/.
DPC’s next Educational Call is an October 22, 2018 webinar called Laugh Will and Testament: Using Humor to Contemplate Mortality and Enjoy Life. See the poster below and http://www.dpcedcenter.org/education-seminars for details. RSVP at http://www.dpcedcenter.org/education-call-rsvp to get a reminder.
The DPC Education Center is a treasure trove of information on kidney disease; find it at http://www.dpcedcenter.org/. Mark your calendar for future Educational Calls on November 15 and December 13, and 2019 Calls on January 24, February 28, March 28, April 25, May 23, June 27, July 25, August 22, September 26, October 24, November 28, and December 26.
The Forum of ESRD Networks will present a webinar for patients highlighting the new Dialysis Patient Depression Toolkit, which was developed by patients for patients. The October 4, 2018 webinar, Depression & Dialysis: Removing the Stigma & Strengthening our Mental Health, includes presenters from AAKP and NKF. Find details at https://s3-us-west-2.amazonaws.com/nwrn.org/files/P/Dialysis.Depression1.pdf and register at https://register.gotowebinar.com/register/5681662958097152769. This is a national webinar with limited capacity, so register early. The Dialysis Patient Depression Toolkit itself can be found at https://s3-us-west-2.amazonaws.com/nwrn.org/files/P/DepressionToolkit.pdf. A second webinar, for care providers and facilities, is being developed for early 2019.
The Portland Kidney Support Group invites patients and their care partners to a 10:00-11:30am meeting on September 27, 2018 in the conference room at FKC Scholls Ferry Dialysis Clinic, 10300 SW Nimbus Ave P-A, Tigard OR 97223. Kidney friendly refreshments will be provided. RSVP to Yasuyo at 503-443-4909, as space is limited. Topics will include Feeling your best; making the most of your dialysis treatment by Dr. Gurvinder Suri, MD and Ideas for high protein snacks by Claudia Kreft, RD.
Donate Life Northwest is dedicated to helping transplant candidates maintain hope while waiting for an available matching kidney. They offer training to volunteers for various situations. Their upcoming training, volunteering, and celebration schedule includes:
- August 14, 2018 – School Speaker training in Portland OR
- August 15, 2018 – Volunteer Orientation in Bend OR
- August 16, 2018 – School Speaker training in Portland OR
- September 4, 2018 – Volunteer Orientation in Portland OR
- September 8, 2018 – Volunteer Opportunity in Vancouver WA
- September 8, 2018 – Donor Family Picnic in Salem OR
- September 13, 2018 – School Speaker training in Eugene OR
- September 13, 2018 – Volunteer Orientation in Eugene OR
- September 16, 2018 – Volunteer Opportunity in Portland OR
- September 23, 2018 – Volunteer Opportunity in Portland OR
- November 7, 2018 – Lifesavers Breakfast
For more details, see https://mailchi.mp/donatelifenw.org/sharing-hope-this-summer. This web page also introduces their new Latino Outreach Coordinator, Donor stories in English and Spanish, winners of their recent raffle, and information on including Donate Life Northwest in your estate, insurance, or financial plans.
The video My Choice, Home Dialysis has been placed on YouTube where it can be accessed easily. It features patients describing the advantages of home dialysis in their own words. Find it at https://www.youtube.com/watch?v=ZquRiZ0RwSU. For subtitles:
- Click on the gear symbol (“Settings,” in the lower right)
- Click on “Subtitles/CC(2) Off >”
- Click on “Spanish – Default” or “English – Default”
YouTube can also translate subtitles into more than a hundred additional languages.
Home Dialysis Central has published a Dialysis Fluid Restriction Calculator to answer the question, “How much can I drink between dialysis sessions?” individualized for each patient. For the Calculator and discussion, see https://homedialysis.org/news-and-research/blog/265-a-new-dialysis-fluid-restriction-calculator.