RSN Audio on Living Full Life

The Renal Support Network has published an audio presentation titled Living the Fullest Life Possible with Kidney Disease – Part One, featuring long-time Northwest dialysis patient and activist Bill Peckham sharing tips on getting the most out of life despite being on dialysis for twenty eight years.  For example, Bill once took his portable dialysis machine with him down the Grand Canyon!  Find that story at http://www.dciinc.org/newsroom/a-dialysis-patients-tale-rafting-the-grand-canyon/, and find Part One of the RSN audio at https://www.rsnhope.org/kidneytalk/living-the-fullest-life-possible-with-kidney-disease-part-one/.

Preventing Organ Stunning

Home Dialysis Central has published a summary of “organ stunning,” where dialysis removes too much water, or removes it too quickly, and your internal organs are shocked.  This can damage your organs, and the damage may be cumulative.  The HDC article covers the causes and processes of organ stunning, and most important, describes how you can avoid it.  Find the article at https://homedialysis.org/life-at-home/articles/organ-stunning-on-hemodialysis-what-is-it-and-what-can-you-do.

Medicare Diabetes Prevention Program

CMS has updated its web page on the Medicare Diabetes Prevention Program Expanded Model.  Diabetes is a leading cause of kidney disease, and this Medicare/CDC Program has been shown to reduce by up to 70% the progression from pre-diabetes to diabetes itself.  Find the web page at https://innovation.cms.gov/initiatives/medicare-diabetes-prevention-program/.

Fraud Prevention Resources

CMS has published information about helping patients avoid fraud and scams, which may be particularly important with the release of the New Medicare Cards.

Medicare will never call beneficiaries uninvited and ask for personal or private information to get their new Medicare Number and card.  Scam artists may try to get personal information (like their current Medicare Number) by contacting them about their new card.  If your Medicare patient is asked for their information, for money, or someone threatens to cancel their health benefits if they don’t share their personal information, have them call 1-800-MEDICARE (1-800-633-4227).

The new Medicare Number is also called the Medicare Beneficiary Identifier (MBI) and is replacing the current Social Security-based Health Insurance Claim Number (HICN) on Medicare health insurance cards.  Medicare will continue to accept the HICN through the transition period; see https://www.cms.gov/Medicare/New-Medicare-Card/index.html#target.  Identity theft resources for people with Medicare can be found at https://www.medicare.gov/forms-help-and-resources/identity-theft/identity-theft.html.

3/8 Mindfulness & Patient Safety WIHI

IHI will present a March 8, 2018 “WIHI” on Mindfulness and Patient Safety.  When we’re “mindful” we’re paying attention to what’s happening in the Present Moment instead of reviewing the past or planning the future.  Mindfulness is also a powerful stress reduction and self-care technique.  Find more information, sample exercises, and relevant links, and register, at http://www.ihi.org/education/AudioVideo/WIHI/mindfulness-and-patient-safety/Pages/default.aspx.  Find ten introductory exercises at http://www.ihi.org/communities/blogs/10-mindfulness-exercises-for-the-health-care-workplace.

2/28 Focus Group Nominations

UM-KECC is seeking nominations for patients, caregivers, and providers to participate on one of several focus groups on Patient Reported Outcomes (PRO).  The focus groups will be held to elicit feedback and suggestions for draft question content for two PRO measure topics, Patient Life Goals and Patient Feeling of Safety.  The focus groups will be 2 hour webinar teleconference meetings.  Patient and caregiver nominations require a brief statement of interest, a CV or resume if relevant, and disclosure of any conflicts of interest.  Submit this material to dialysisdata@umich.edu by February 28, 2018.  Contact Jordan Affholter at affjorda@med.umich.edu with any questions.  For details and a conflict disclosure form, see https://annanurse.org/article/call-nominations-esrd-patient-reported-outcomes-focus-groups-january-24-18.