March is also National Social Work month. We’ve added web pages to the Network 16 website describing a few skills that social workers bring to patients and facilities. Among the many things social workers do are:
Dialysis Patient Citizens will present a webinar on Sex and Intimacy with CKD March 23, 2017. Sex is good medicine. It has health benefits, feels good, strengthens relationships and makes life more rewarding. CKD can interfere with physical intimacy, but it can’t prevent it. Learn about why sex is important, possible, and beneficial. Learn ways to be intimate that any body can do, how to enjoy it more, and how to find new sources of physical connection. For more information on the webinar and registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/DPC.sex.0317.pdf .
The Renal Support Network will sponsor their 18th Annual Renal Teen Prom in Glendale CA on January 15, 2017. Many teenagers with kidney disease miss large amounts of school because of prolonged absences due to health. The prom, free to kidney disease patients between the ages of 14 and 24 and a companion, brings these young people together to share their experiences, strengths, and hopes. As one of last year’s attendees said, “Once you’ve been here at the prom, everyone is like family to you. This is my sixth year coming to the prom. I started when I was at a very low point in my life with medical issues and depression and this event really cheered me up. The other 364 days of the year, I’m a girl with an illness, but on this night I’m here to have fun and I’m actually myself.” For details, invitations, and opportunities to support the Prom, see http://www.rsnhope.org/renal-teen-prom/ .
CMS. via a contract with the University of Michigan KECC, is seeking input on patient-reported outcomes, and patient-centered outcomes of ESRD treatment. They want input on what specific patient-reported and patient-centered measures would be meaningful to both patients and providers, and input on what data might support development and testing of these outcome measures. They request that you send your suggestions firstname.lastname@example.org by June 30, 2016. For more information, see http://www.renalweb.com/dailynews.htm and scroll down to June 9, 2016.
Our latest poster/flyer for patients describes the My Life, My Dialysis Choice free decision-aid tool for evaluating dialysis treatment options based on how they fit into your preferred lifestyle, health, and family goals. It’s found its way to the Network 16 website, along with all of our historical patient poster/flyers, at https://www.nwrn.org/patients-a-family/ptedres/mon.html .
We’ve put Network 16’s monthly patient flyer/poster for February on the Network website, at https://www.nwrn.org/patients-a-family/ptedres/mon.html . It’s about “Did you know that each dialysis clinic gets a report card?” and tallies the metrics that Medicare uses to evaluate facilities, and describes how to find your facility’s report card. These metrics are intended to measure the health of the patients at your clinic, and it would be to your advantage to understand them and do whatever you can to improve your own metrics and those of your fellow patients.