The Network 16 and Network 18 Patient Newsletters for Fall 2020 have been posted to the Network websites, in both English and Spanish. They include articles on the Medicare Open Enrollment Period (which is open through December 7, 2020), Vocational Rehabilitation, and Dialysis Facility Compare, plus short notes on heart health and fluid management, filing a grievance, and (free) subscriptions to the Network Newsletters and blog. The Network 18 Newsletter also includes a short note on volunteering to help the Network improve patient care. Find the English and Spanish versions of the latest Newsletters at https://www.nwrn.org/patients-a-family/ptedres/quarterly-patient-newsletter.html for Network 16, and https://esrdnetwork18.org/patients/newsletters/ for Network 18.
The ESRD National Coordinating Center will host a webinar at 1pm PDT August 11, 2020 on Health and Safety at Work During the COVID-19 Pandemic, presented by Comagine ESRD Network Patient Safety Director Lisa Hall and two patient Subject Matter Experts. The webinar will provide workplace health and safety tips, review rehabilitation and employment services for people with kidney disease, and share kidney patients’ work experiences during the pandemic. Find more details and register at https://esrdncc.org/covid-19/covid-webinars/.
Employment Options, an authorized Employment Network in the SSA Ticket to Work Program, will present a free conference call and online slide show on July 30, 2020 at noon PDT on Work From Home Job Tips: What You Need To Know! Topics will include Work At Home challenges, mental and physical aspects, technology requirements, resume tips, Work At Home job examples and new industries, protecting yourself from scams, and new hire expectations. Register, peruse recordings of past presentations, and sign up for their email bulletins at https://www.myemploymentoptions.com/webinar-registration-page/. The presentation includes an audio portion that’s open to an unlimited number of attendees, and a limited-capacity online slide show that can accommodate only the first 250 registered attendees to log in on July 30. Instructions will be sent to you when you register.
Employment Options is also available daily to help SSDI/SSI disability benefit recipients return to work in the free SSA Ticket to Work Program. EO offers both Work At Home and onsite jobs in Washington, Oregon, Idaho, and Montana. For more information see https://www.myemploymentoptions.com/apply-now/. The web page includes resources and links for people in California and Alaska or who otherwise are not qualified for the Ticket to Work Program.
AAKP will present a May 14, 2019 webinar on Understanding Secondary Hyperparathyroidism (SHPT) – What is it? How can it be managed? Register at https://register.gotowebinar.com/register/8410471602615141899. Future HealthLine webinars will discuss Traveling While on Dialysis in June, and Exercise and Physical Rehabilitation in July. AAKP’s HealthLine page at https://aakp.org/aakp-healthline/ includes a link to their long list of past HealthLine webinars.
The National Forum of ESRD Networks has revised the Dialysis Patient Depression Toolkit and added a video. Find the revised English version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-english and a Spanish version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-spanish. A related video interview with a dialysis patient has also been recorded. Find it at https://www.youtube.com/watch?v=N7Iv6JytQt4.
The Renal Support Network has published Part Two of Bill Peckham’s audio on Living the Fullest Life Possible with Kidney Disease. Find it at https://www.rsnhope.org/kidneytalk/living-the-fullest-life-possible-with-kidney-disease-part-two/. If you missed Part One, see https://nwrnbulletins.wordpress.com/2018/06/22/rsn-audio-on-living-full-life/.
The Renal Support Network has published an audio presentation titled Living the Fullest Life Possible with Kidney Disease – Part One, featuring long-time Northwest dialysis patient and activist Bill Peckham sharing tips on getting the most out of life despite being on dialysis for twenty eight years. For example, Bill once took his portable dialysis machine with him down the Grand Canyon! Find that story at http://www.dciinc.org/newsroom/a-dialysis-patients-tale-rafting-the-grand-canyon/, and find Part One of the RSN audio at https://www.rsnhope.org/kidneytalk/living-the-fullest-life-possible-with-kidney-disease-part-one/.
My Employment Options will present a free July 27, 2017 webinar on Returning To Work When Receiving SSD/SSI: Common Benefit Related Questions. My Employment Options is an Employment Network that helps people with disabilities return to work as part of the free national Ticket to Work program, offering Work-At-Home and Onsite jobs in 47 states. The webinars are open to anyone but limited to 250 people, so early registration and early login on the day of the webinar are recommended. For more information and registration see https://www.myemploymentoptions.com/webinar-registration-page/ and https://www.myemploymentoptions.com/ .
My Employment Options also offers free personal job placement services at any time for anyone receiving SSDI or non-retirement SSI benefits; apply at https://www.myemploymentoptions.com/ .
My Employment Options will hold a free Job Application Tips webinar, titled Job Application Workshop: Application Do’s and Don’ts, on April 6, 2017. My Employment Options is an Employment Network that helps people with disabilities return to work as part of the free national Ticket to Work program, offering Work-At-Home and Onsite jobs in 47 states. The webinars are open to anyone but limited in capacity, so early registration and early login on April 6 are advised. For more information and registration, see https://www.myemploymentoptions.com/ and https://www.myemploymentoptions.com/webinar-registration-page/ .
My Employment Options also offers free personal job placement services at any time for anyone receiving SSDI or non-retirement SSI benefits; apply today on the same webpage.
March is also National Social Work month. We’ve added web pages to the Network 16 website describing a few skills that social workers bring to patients and facilities. Among the many things social workers do are:
- Help manage kidney disease
- Help assure quality of life
- Help with rehabilitation
- Help with education
- Help assure satisfaction
Find the flyer for facilities in this month’s Network 16 News at https://www.nwrn.org/providers-and-professional-staff/nw16n.html and this month’s Patient Bulletin for posting or handout to patients at https://www.nwrn.org/patients-a-family/ptedres/mon.html .