Home Dialysis Central has published a thorough summary of the right that a patient has to “be informed about and participate, if desired, in all aspects of his or her care” [42 CFR 494.70(a)(5)], including self-cannulation. A facility that denies a competent patient the right to be trained to self-cannulate is vulnerable to state survey citation tags V456, V512, and V585. Find the summary at http://homedialysis.org/news-and-research/blog/214-self-cannulation-a-patient-right-and-cms-expectation-for-interested-and-trained-patients .
IHI will sponsor a free July 13, 2017 audio presentation on “Greater Satisfaction, Outcomes, and Savings with Self-Administered Care,” reporting on recent improvements in outcomes when patients are trained to do their own dialysis or other health care. Find full details and register at http://www.ihi.org/education/AudioVideo/WIHI/greater-satisfaction-outcomes-and-savings-with-self-administered-care/Pages/default.aspx/ .
November is National Diabetes Awareness Month and Diabetic Eye Disease Month, while World Diabetes Day is on November 14. Websites with useful information include:
The latest issue of the Network patient newsletter, Network Consumer News, includes articles on “Tips to Prevent Dialysis Infections” for patients with fistulas, grafts, or catheters, on the advantages of an Arteriovenous (AV) Fistula, and on Self-Care Dialysis, as well as a Learning Point and Related Resources on infection prevention and vascular access. We also have large-print and Spanish editions. If you don’t get a copy from your facility, you can find one at https://www.nwrn.org/patients-a-family/ptedres/ncn.html .
The Renal Support Network has published an audio recording of dermatologist Dr. Yuval Bibi explaining for kidney patients the causes of itchy skin and the ways you can best treat, care for, and protect your skin. Find the podcast at:
You can find almost two hundred additional KidneyTalk podcasts on a wide variety of subjects at:
The conference brochure, agenda, and registration details for the 41st Annual AAKP National Patient Meeting in Nashville TN on September 25-27, 2015 are now complete, and full information can be found at https://www.aakp.org/community/programs-events/aakp-national-patient-meeting.html . Early-bird discounts are available until June 30, 2015.
The conference theme is “Spotlighting Kidney Health,” and the agenda includes sessions on treatment innovation, patient engagement, social media, self-management, the healthcare team and communication, home dialysis, emotional preparedness, advance planning, nutrition, and thirty different “Lunch with the Experts” sessions. Nine CE hours are available for healthcare professionals.
On February 17, 2015, AAKP will present a Healthline webinar and conference call, for patients with CKD or residual function, on The Importance of Understanding and Managing Protein in the Urine, aka proteinuria. For details see https://www.aakp.org/community/programs-events/aakp-healthline.html .