11/10+ RNS Hope Week Online

The Renal Support Network has been offering its free Annual Patient Education Meeting for kidney patients and their families in the Los Angeles area for 27 years. With COVID-19 complicating things this year, RSN did what only Lori Hartwell could have imagined doing – they went global and online, and made it five times as big! So this year, RSN Hope Week will span November 10-14, 2020 with a different theme each day: CKD on day 1, Dialysis on day 2, Transplant on day 3, All Stages of Care on day 4, and Parenting Children with CKD on day 5.

Find RSN’s press release introducing the week at https://www.rsnhope.org/press-releases/renal-support-networks-27th-annual-patient-education-meeting-goes-virtual/. Find a short version of the agenda below. It’s page 1 of their flyer, which includes a full page describing each day – find the full 6-page flyer HERE. Find brief vitae and snapshots of the full faculty at https://www.rsnhope.org/hope-week-faculty/. And register at https://www.rsnhope.org/hope-week-rsns-national-online-patient-meeting/ – there’s also a short version of the agenda on that page.

9/22+ NCC COVID-19 Webinars

The ESRD Network Coordinating Center will present two webinars in their COVID-19 series:

  • September 30, 2020 webinar for providers on Organ Donation – Impacts of COVID-19.  One CEU is available.

For details and registration, and recordings of earlier NCC COVID-19 webinars and “quickinars,” see https://esrdncc.org/en/covid-19/covid-webinars/.

8/14 AAKP HealthLine on Kidney Genetics

AAKP will present a 10am PDT 14 August 2020 HealthLine webinar on Understanding Genetic Conditions: What You Need to Know.  For individuals who may be faced with inheriting a genetic condition, it’s important to know your family history, the different ways a genetic condition can be inherited, what genetic testing entails, and how you can work with your healthcare team to help manage the condition. The audio will feature genetic counselors as well as kidney patients with genetic conditions.  Find details and register at https://register.gotowebinar.com/register/814066723276791822.

Find general information about HealthLine and recordings of earlier webinars, including their series of nine HealthLines on COVID-19 and…

  • Dialysis,
  • Transplant,
  • Vascular Access,
  • CKD,
  • Telemedicine,
  • Veterans,
  • Mental Health,
  • Nutrition, and
  • Clinical Trials,

…at https://aakp.org/programs-and-events/aakp-healthline/.

Summer 2020 Network Patient Newsletters

ESRD Networks 16 and 18 have prepared their Summer 2020 patient newsletters.  Major articles and sidebars for summer include:

  • COVID-19: a New World for Dialysis Patients.
  • Telehealth: How to connect virtually with your healthcare providers. 
  • Are you up to date on all your vaccines?
  • How to Report Patient Grievances.
  • How to Get Our Newsletter! and Join Our Blog!
  • Introduction to The KidneyHub.org Mobile Tool (Network 16).
  • Invitation to Get Involved! in helping the Network improve patient care (Network 18).

Find Network 16 patient newsletters, in English and Spanish, at https://nwrn.org/patients-a-family/ptedres/quarterly-patient-newsletter.html.

Find Network 18 patient newsletters, in English and Spanish, at http://www.esrdnetwork18.org/patients/newsletters/.

HDC Post on Telehealth and Home Dialysis

Home Dialysis Central has published a new blog post called Getting the Most out of Telehealth for Home Dialysis Patients, describing what’s covered and what isn’t by COVID-19-related and other laws and waivers, what current facility policies are likely to be, features to be taken advantage of, and tips for success.  Find the post at https://homedialysis.org/news-and-research/blog/363-getting-the-most-out-of-telehealth-for-home-dialysis-patient.

5/20 AAKP HealthLine on Telemedicine

AAKP will present a May 20, 2020 HealthLine webinar on Telemedicine Utilization in the COVID-19 Era: What Patients Should Know, featuring two nephrologists, a transplant MD, a patient engagement specialist, and two patient SMEs.  Find details and register at https://register.gotowebinar.com/register/1541268318866755341.  For more information on AAKP HealthLine, see https://aakp.org/programs-and-events/aakp-healthline/.

5/2 Five NKF Webinars on Kidney Disease Topics

NKF will present a May 2, 2020 half-day series of five webinars for patients on current kidney-disease topics called Virtual Education Series: Connect, Learn, and Share.  You can choose any or all of the 30- to 45-minute sessions, and they’ll be recorded for later viewing.  The topics are:

  • Coping with a Chronic Illness: Dealing with Emotions and Finding Support
  • Tips for Kidney Friendly Eating on a Budget
  • Fitness and Kidney Health
  • Telemedicine 101: What to Expect When Seeing Your Doctor at Home
  • Let’s Talk about Transplant: Real Patient Stories

Each webinar will be co-led by a healthcare professional and a patient.  Find more information and register at https://www.kidney.org/events/local-event/virtual-education-series-connect-learn-and-share.