New Reports: USRDS, OPTN, SRTR, UNOS

The US Renal Data System (USRDS) 2019 Annual Data Report: Epidemiology of Kidney Disease in the United States has been released on paper.  The online version was released in November 2019.  Find the Report at https://www.ajkd.org/issue/S0272-6386(19)X0003-7, and the USRDS ADR page at https://www.usrds.org/adr.aspx.

The Annual Data Report of the OPTN and SRTR (the US Organ Procurement and Transplantation Network and the Scientific Registry of Transplant Recipients) is now available, documenting data pertaining to the period 2007-2018.  Find it at https://srtr.transplant.hrsa.gov/annual_reports/2018_ADR_Preview.aspx.  Find the OPTN home page at https://optn.transplant.hrsa.gov/ and SRTR at https://www.srtr.org/.

The United Network for Organ Sharing (UNOS) has published new vision and mission statements.  Find them at https://unos.org/news/introducing-unos-new-mission-and-vision/.

4/25 NKF Patient Lifestyle Workshop in Seattle

NKF and Swedish Medical Center will present an April 25, 2020 four-hour workshop on Lifestyle & Kidney Health: Diet, Exercise, Weight Loss and Beyond.  Topics will include nutrition, diabetes, blood pressure, fitness, and transplant preparation.  Lunch will be provided.  See below for full details:

2/14+ National Donor Day

Donate Life Northwest remind us that February 14, 2020 is National Donor Day, and provides links to facilitate its celebration at https://mailchi.mp/donatelifenw.org/february-2020-donate-lifeline?e=d7486be0ed.  This web page also provides information about their March 12, 2020 Volunteer Orientation course in Portland, their Fundraising Team for the April 24-26, 2020 Eugene Marathon, planned giving, and their Threads of Life quilting project (quilt squares are due February 17, 2020).

3/4 KQF Kidney Disease Impact Conference

Kidneys Quest Foundation will present a free in-person one-day 2020 Kidney Disease Impact Conference in Los Angeles on March 4, 2020.  Conference topics will include improving renal health, preventing kidney failure, expanding options for kidney patients, dialysis, home dialysis, research, clinical trials, increasing available organs for transplant, transplant support, becoming a living donor, CKD and CVD, and pediatric CKD.

Invitation is extended to renal patients, social workers, registered nurses, dietitians, dialysis technicians, medical directors, administrators and organization managers, healthcare workers, friends and family of patients, and anyone interested in kidney disease and dialysis.  Attendance and onsite parking is free, and continental breakfast and lunch will be provided.  Continuing education credits for nurses, social workers, dietitians, and dialysis technicians are available for a $50 fee.  Pre-registration is required, and space is limited.  Register at:

Find complete details, including the Conference agenda and sponsor registration information, at http://kidneysquestfoundation.org/2020-kidney-disease-impact-conference.html.

2/27 DPC and NKF re Living Donors

Dialysis Patient Citizens will present a February 27, 2020 national conference call on Having Your Donor Find You, led by a twice-successful living-donor transplant recipient.  For details see https://www.dpcedcenter.org/wp-content/uploads/2020/01/202002_flier.pdf.

NKF has also recently released an online essay on Five Big Benefits of Living Donation for the Donor.  The “five” mostly apply to donation to a spouse, relative, or close friend, but the article also includes two additional Big Benefits to any living donor.  Find the essay at https://www.kidney.org/newsletter/5-big-benefits-living-donation-donor.

2/21 CMS Proposed Rule on OPO Measures Comment Period

In December CMS proposed revisions to Organ Procurement Organization Performance Measures for Kidney Donation Rate and Transplant Rate, and to OPO monitoring and benchmarking.  The revised measures aim to increase the number of Kidney Transplants by about 5,000 per year.  The revisions are described in the Fact Sheet at https://www.cms.gov/newsroom/fact-sheets/organ-procurement-organization-opo-conditions-coverage-proposed-rule-revisions-outcome-measures-opos.  Public Comment is due by February 21, 2020.  The Proposed Rule is published in the Federal Register at https://www.federalregister.gov/documents/2019/12/23/2019-27418/medicare-and-medicaid-programs-organ-procurement-organizations-conditions-for-coverage-revisions-to.

RSN re Preventing Transplant Rejection

The Renal Support Network has added a new podcast on Understanding and Preventing Transplant Rejection, featuring an immunologist talking about antibodies and their impact on transplant decisions and graft rejection.  Find the audio at https://www.rsnhope.org/kidneytalk/understanding-and-preventing-transplant-rejection/.