3/4+ UKEEP Webinars on Kidney Disease & Empowerment

The UCLA CORE Kidney Program will present a March 4, 2021 UKEEP webinar on Kidney Disease: What You Should Know. For details and registration, see the poster below, or https://uclahs.zoom.us/webinar/register/WN_hjcPosQgSieUDGL3CIzAqw. They will also present a March 21, 2021 Virtual Kidney Conference on Educating, Empowering, and Inspiring Hope. Find more information about the Conference, and register, at https://uclahs.zoom.us/webinar/register/WN_ZgPWycdXR_OXq26FbQZp4A.

2/21 NKF Education Symposium

NKF will host a free February 21, 2021 online Patient & Community Education Seminar at noon PST. The two-and-a-half-hour Zoom program will cover mental health and CKD, home dialysis, gout, transplant, living donation, and Healthy Kidneys-Healthy You. Registration is required, at https://kidney.org/co-kidney-ed-symposium. For questions, contact Danielle Percival at 720.748.9991 ext 453 or danielle.percival@kidney.org. Find details below:

3/23 OPTN Public Comment Requested

The Organ Procurement and Transplantation Network has requested public comment on issues under consideration for revision, including reviewing the 2021-2024 OPTN Strategic Plan, clarifying the Multi-Organ Allocation Policy, modifying the Deceased Donor Registration (DDR) Form, requiring notification of human leukocyte antigen (HLA) typing changes, revising general considerations in assessment for transplant candidacy, and updating Transplant Program key kersonnel training and experience requirements. Find details and commenting instructions at https://optn.transplant.hrsa.gov/news/public-comment-open-from-jan-21-through-mar-23-2021/.

RSN Podcast on Paying for Treatment

The Renal Support Network KidneyTalk program presents a recorded podcast on Paying for Dialysis or Transplant. Founder Lori Hartwell asks Beth Witten, LCSW, for an overview of her wealth of knowledge about the complexities of health insurance coverage of kidney disease. Find this podcast at https://www.rsnhope.org/kidneytalk/paying-for-dialysis-or-transplant/, and a catalog of past KidneyTalk recordings at https://www.rsnhope.org/kidneytalk-podcast-show-kidney-disease/.

1/21 UCLA UKEEP on Dialysis

The UCLA CORE Kidney Program will present Dialysis: What You Should Know at 5pm PST January 21, 2021, an online webinar covering the options available to a patient with advanced kidney disease, including home dialysis, living donation, transplant, and conservative management. Register at https://uclahs.zoom.us/webinar/register/WN_GIfxKl59TCKnSAgW31mufw.

HDC Post on Saying No to a Transplant

MEI’s Home Dialysis Central has published a blog post on Saying No to a Kidney Transplant. The author describes the pros and cons, from their own Perspective, of a transplant versus their successful career on home dialysis. Find the post at https://homedialysis.org/news-and-research/blog/401-saying-no-to-a-kidney-transplant. MEI’s essay on Choosing Your Treatment at https://homedialysis.org/life-at-home/choosing-your-treatment, and their interactive tool My Life, My Dialysis Choice at https://mydialysischoice.org/ can help you decide in advance which treatment might be right for you from your own Perspective.

11/23+ OPTN Organ Allocation Changes

The OPTN Kidney and Pancreas Transplantation Committees will host a November 23, 2020 webinar on Information for Transplant Candidates about Upcoming Changes to Kidney and Pancreas Policies. These changes are intended to create more consistent access to kidney, pancreas, and kidney-pancreas transplants. The new policies include updates to the definition of medical urgency, and changes to the allocation of organs and prioritization of candidates, which will be based on distance rather than regions. Organs from Alaska will be allocated based on distance from Seattle.

The new policies will take effect December 15, 2020, and transplant centers can revise their candidate urgency information to take advantage of the new policies starting December 1. Find details about the changes at https://optn.transplant.hrsa.gov/news/pre-implementation-notice-removal-of-dsa-and-region-from-kidney-and-pancreas-allocation-to-go-into-effect-dec-15/ and register for the webinar at https://register.gotowebinar.com/register/2542491307617944591.

11/10+ RNS Hope Week Online

The Renal Support Network has been offering its free Annual Patient Education Meeting for kidney patients and their families in the Los Angeles area for 27 years. With COVID-19 complicating things this year, RSN did what only Lori Hartwell could have imagined doing – they went global and online, and made it five times as big! So this year, RSN Hope Week will span November 10-14, 2020 with a different theme each day: CKD on day 1, Dialysis on day 2, Transplant on day 3, All Stages of Care on day 4, and Parenting Children with CKD on day 5.

Find RSN’s press release introducing the week at https://www.rsnhope.org/press-releases/renal-support-networks-27th-annual-patient-education-meeting-goes-virtual/. Find a short version of the agenda below. It’s page 1 of their flyer, which includes a full page describing each day – find the full 6-page flyer HERE. Find brief vitae and snapshots of the full faculty at https://www.rsnhope.org/hope-week-faculty/. And register at https://www.rsnhope.org/hope-week-rsns-national-online-patient-meeting/ – there’s also a short version of the agenda on that page.

RSN KidneyTalk Podcasts

The Renal Support Network has recently published audio podcasts for patients on:

What Is Lupus?https://www.rsnhope.org/kidneytalk/what-is-lupus/.

Transitioning to Home Dialysis – https://www.rsnhope.org/kidneytalk/transitioning-home-dialysis/.

Bacteria VS. Virus https://www.rsnhope.org/kidneytalk/bacteria-vs-virus/.

Assessing Your Kidney Transplant Health https://www.rsnhope.org/kidneytalk/assessing-your-kidney-transplant-health/.

Innovations in Kidney Care https://www.rsnhope.org/kidneytalk/innovations-in-kidney-care/.

A Double-Transplant Survivor’s Storyhttps://www.rsnhope.org/kidneytalk/valen-keefer-a-double-transplant-survivors-story/.

Understanding the Five Stages of Kidney Diseasehttps://www.rsnhope.org/kidneytalk/understanding-the-five-stages-of-kidney-disease/.

Covid-19 and Organ Donationhttps://www.rsnhope.org/kidneytalk/covid-19-and-organ-donation/.

Tips to Help the Search for a Living Kidney Donorhttps://www.rsnhope.org/kidneytalk/advocating-for-a-living-kidney-donor/.