New NCC Kidney Patient Web Hub

NCC has created an internet “hub” for patient education information, their ESRD NCC Patient Web Tool, to help people find resources created by patients for patients.  It’s major subsections include COVID-19. transplant, home dialysis, infection prevention, well-being, new patient information, and the Kidney Community Emergency Response Coalition or KCER.  Find it at https://thekidneyhub.org/.

5/2 Five NKF Webinars on Kidney Disease Topics

NKF will present a May 2, 2020 half-day series of five webinars for patients on current kidney-disease topics called Virtual Education Series: Connect, Learn, and Share.  You can choose any or all of the 30- to 45-minute sessions, and they’ll be recorded for later viewing.  The topics are:

  • Coping with a Chronic Illness: Dealing with Emotions and Finding Support
  • Tips for Kidney Friendly Eating on a Budget
  • Fitness and Kidney Health
  • Telemedicine 101: What to Expect When Seeing Your Doctor at Home
  • Let’s Talk about Transplant: Real Patient Stories

Each webinar will be co-led by a healthcare professional and a patient.  Find more information and register at https://www.kidney.org/events/local-event/virtual-education-series-connect-learn-and-share.

4/23 ASN Webinar on Transplant & COVID-19

ASN wil present an April 23, 2020 webinar on Challenges in Transplant Program Operations in the COVID-19 Pandemic: Implications for Patients & Referring Providers at 1:30 pm PDT, in which transplant nephrologists will discuss the impact of COVID-19 on kidney transplant programs, patients awaiting transplant, and post-transplant care.  Register at https://www.asn-online.org/store/webinar.aspx?evt_key=7ff6ab2d-d562-44a2-8716-dd6101805ad3&g2w_key=4655990146176221964.

4/10 AAKP/AST Webinar on Transplant & COVID-19

AAKP HealthLine, the American Society of Transplantation, and the American Society of Transplant Surgeons will host a noon PDT April 10, 2020 webinar on Coronavirus & Transplant Patients: Get the Facts, Save a Life, about the impact of COVID-19 on kidney transplant recipients and on people waiting for a transplant.  Emily Blumberg, MD, Transplant Infectious Diseases Specialist, and Lloyd Ratner, MD, MPH, FACS, Columbia University Professor of Renal and Pancreatic Transplant Surgery, will lead the webinar and will discuss questions that patients should be asking their care team.  Capacity constraints will limit attendance to the first 2,500 registrants.  Register at https://register.gotowebinar.com/register/7659454591380786188.

New Reports: USRDS, OPTN, SRTR, UNOS

The US Renal Data System (USRDS) 2019 Annual Data Report: Epidemiology of Kidney Disease in the United States has been released on paper.  The online version was released in November 2019.  Find the Report at https://www.ajkd.org/issue/S0272-6386(19)X0003-7, and the USRDS ADR page at https://www.usrds.org/adr.aspx.

The Annual Data Report of the OPTN and SRTR (the US Organ Procurement and Transplantation Network and the Scientific Registry of Transplant Recipients) is now available, documenting data pertaining to the period 2007-2018.  Find it at https://srtr.transplant.hrsa.gov/annual_reports/2018_ADR_Preview.aspx.  Find the OPTN home page at https://optn.transplant.hrsa.gov/ and SRTR at https://www.srtr.org/.

The United Network for Organ Sharing (UNOS) has published new vision and mission statements.  Find them at https://unos.org/news/introducing-unos-new-mission-and-vision/.

4/25 NKF Patient Lifestyle Workshop in Seattle

NKF and Swedish Medical Center will present an April 25, 2020 four-hour workshop on Lifestyle & Kidney Health: Diet, Exercise, Weight Loss and Beyond.  Topics will include nutrition, diabetes, blood pressure, fitness, and transplant preparation.  Lunch will be provided.  See below for full details: