The UCLA CORE Kidney Program will present Dialysis: What You Should Know at 5pm PST January 21, 2021, an online webinar covering the options available to a patient with advanced kidney disease, including home dialysis, living donation, transplant, and conservative management. Register at https://uclahs.zoom.us/webinar/register/WN_GIfxKl59TCKnSAgW31mufw.
NKF will present a free January 31, 2021 webinar on The Big Ask, the Big Give: First Steps to Transplant, an introduction for patients thinking about a kidney transplant, and potential donors thinking about donating a kidney. See below for more information, and register at https://www.kidney.org/babg-co.
MEI’s Home Dialysis Central has published a blog post on Saying No to a Kidney Transplant. The author describes the pros and cons, from their own Perspective, of a transplant versus their successful career on home dialysis. Find the post at https://homedialysis.org/news-and-research/blog/401-saying-no-to-a-kidney-transplant. MEI’s essay on Choosing Your Treatment at https://homedialysis.org/life-at-home/choosing-your-treatment, and their interactive tool My Life, My Dialysis Choice at https://mydialysischoice.org/ can help you decide in advance which treatment might be right for you from your own Perspective.
The OPTN Kidney and Pancreas Transplantation Committees will host a November 23, 2020 webinar on Information for Transplant Candidates about Upcoming Changes to Kidney and Pancreas Policies. These changes are intended to create more consistent access to kidney, pancreas, and kidney-pancreas transplants. The new policies include updates to the definition of medical urgency, and changes to the allocation of organs and prioritization of candidates, which will be based on distance rather than regions. Organs from Alaska will be allocated based on distance from Seattle.
The new policies will take effect December 15, 2020, and transplant centers can revise their candidate urgency information to take advantage of the new policies starting December 1. Find details about the changes at https://optn.transplant.hrsa.gov/news/pre-implementation-notice-removal-of-dsa-and-region-from-kidney-and-pancreas-allocation-to-go-into-effect-dec-15/ and register for the webinar at https://register.gotowebinar.com/register/2542491307617944591.
The Renal Support Network has been offering its free Annual Patient Education Meeting for kidney patients and their families in the Los Angeles area for 27 years. With COVID-19 complicating things this year, RSN did what only Lori Hartwell could have imagined doing – they went global and online, and made it five times as big! So this year, RSN Hope Week will span November 10-14, 2020 with a different theme each day: CKD on day 1, Dialysis on day 2, Transplant on day 3, All Stages of Care on day 4, and Parenting Children with CKD on day 5.
Find RSN’s press release introducing the week at https://www.rsnhope.org/press-releases/renal-support-networks-27th-annual-patient-education-meeting-goes-virtual/. Find a short version of the agenda below. It’s page 1 of their flyer, which includes a full page describing each day – find the full 6-page flyer HERE. Find brief vitae and snapshots of the full faculty at https://www.rsnhope.org/hope-week-faculty/. And register at https://www.rsnhope.org/hope-week-rsns-national-online-patient-meeting/ – there’s also a short version of the agenda on that page.
The Renal Support Network has recently published audio podcasts for patients on:
● What Is Lupus? – https://www.rsnhope.org/kidneytalk/what-is-lupus/.
● Transitioning to Home Dialysis – https://www.rsnhope.org/kidneytalk/transitioning-home-dialysis/.
● Bacteria VS. Virus – https://www.rsnhope.org/kidneytalk/bacteria-vs-virus/.
● Assessing Your Kidney Transplant Health – https://www.rsnhope.org/kidneytalk/assessing-your-kidney-transplant-health/.
● Innovations in Kidney Care – https://www.rsnhope.org/kidneytalk/innovations-in-kidney-care/.
● A Double-Transplant Survivor’s Story – https://www.rsnhope.org/kidneytalk/valen-keefer-a-double-transplant-survivors-story/.
● Understanding the Five Stages of Kidney Disease – https://www.rsnhope.org/kidneytalk/understanding-the-five-stages-of-kidney-disease/.
● Covid-19 and Organ Donation – https://www.rsnhope.org/kidneytalk/covid-19-and-organ-donation/.
● Tips to Help the Search for a Living Kidney Donor – https://www.rsnhope.org/kidneytalk/advocating-for-a-living-kidney-donor/.
NKF and CareDx will co-sponsor an October 27, 2020 webinar on Getting a Transplant & Staying Safe as a Transplant Recipient During COVID-19, featuring a panel of transplant professionals and patients discussing the impact COVID-19 has had on receiving a kidney transplant, and the extra precautions being taken to maintain safety. Find more information and register at https://caredx.zoom.us/webinar/register/7315983940336/WN_XGx2skqgS52fxT7ZgrjQsA.
The ESRD National Coordinating Center will present an October 13, 2020 webinar on Managing COVID-19 in the Outpatient Dialysis Facility. Find details and register at https://esrdncc.org/en/covid-19/covid-webinars/.
The ESRD National Coordinating Center will present an October 6 webinar on Receiving a Kidney Transplant During COVID-19. Find more information and register at https://esrdncc.org/en/events/2020/october-2020/covid10062020/.
The HHS Health Resources and Services Administration (HRSA) has published a Final Rule on Removing Financial Disincentives to Living Organ Donation, effective October 22, 2020. The Rule aims to reimburse organ donors more appropriately. Find the Rule in the Federal Register at https://www.govinfo.gov/content/pkg/FR-2020-09-22/pdf/2020-20804.pdf. Find a discussion of public comments on the Rule and HRSA response at https://www.govinfo.gov/content/pkg/FR-2020-09-22/pdf/2020-20805.pdf.