Kidney Disease: Improving Global Outcomes (KDIGO) has released a draft of their new Transplant Candidate Guidelines for public comment until November 26, 2018. They will publish a final version after they have reviewed the comments. See https://kdigo.org/guidelines/transplant-candidate/ for details.
The National Forum of ESRD Networks has revised the Dialysis Patient Depression Toolkit and added a video. Find the revised English version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-english and a Spanish version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-spanish. A related video interview with a dialysis patient has also been recorded. Find it at https://www.youtube.com/watch?v=N7Iv6JytQt4.
The Renal Support Network presents a KidneyTalk podcast interviewing the author of the new book Kidney Transplantation: The Patient’s Guide, “a treasure trove of information that covers the A to Z of the kidney transplant process, from pre-transplant to post,” according to RSN. For details see https://www.rsnhope.org/kidneytalk/kidney-transplantation-the-patients-guide/.
Donate Life Northwest is dedicated to helping transplant candidates maintain hope while waiting for an available matching kidney. They offer training to volunteers for various situations. Their upcoming training, volunteering, and celebration schedule includes:
- August 14, 2018 – School Speaker training in Portland OR
- August 15, 2018 – Volunteer Orientation in Bend OR
- August 16, 2018 – School Speaker training in Portland OR
- September 4, 2018 – Volunteer Orientation in Portland OR
- September 8, 2018 – Volunteer Opportunity in Vancouver WA
- September 8, 2018 – Donor Family Picnic in Salem OR
- September 13, 2018 – School Speaker training in Eugene OR
- September 13, 2018 – Volunteer Orientation in Eugene OR
- September 16, 2018 – Volunteer Opportunity in Portland OR
- September 23, 2018 – Volunteer Opportunity in Portland OR
- November 7, 2018 – Lifesavers Breakfast
For more details, see https://mailchi.mp/donatelifenw.org/sharing-hope-this-summer. This web page also introduces their new Latino Outreach Coordinator, Donor stories in English and Spanish, winners of their recent raffle, and information on including Donate Life Northwest in your estate, insurance, or financial plans.
Oregon Health Sciences University will hold a free July 21, 2018 Transplant Picnic for recipients, donors, patients on a waitlist, health care providers, friends, and family members. For more information see https://www.ohsu.edu/xd/health/services/transplant/about-us/outreach-programs/upload/Event-Flyer.pdf. No RSVP is necessary.
Dialysis Patient Citizens will present an April 26, 2018 webinar on A Livable, Lovable Approach to Kidney Disease Nutrition. The webinar will include information on using food to slow progression and reduce complications of kidney disease, on reducing confusion in kidney-friendly diets, and on making them more enjoyable. For details and registration see http://www.dpcedcenter.org/education-seminars.
DPC will also present educational webinars on May 24, June 28, July 26, August 23, September 27, October 25, November 22, and December 27, 2018. The May and July webinars will be on kidney transplantation.
UNOS/OPTN has proposed changes to the organ procurement policies and bylaws for transplantation. Find details at https://optn.transplant.hrsa.gov/governance/public-comment. The American Journal of Kidney Diseases blog has posted comments on the proposals, at https://ajkdblog.org/2018/03/07/controversial-optn-committee-structure-changes-up-for-public-comment/.