AAKP has announced a June 27, 2019 HealthLine webinar on Yes, You CAN Travel While on Dialysis! featuring a social worker who specializes in travel and dialysis, and two patient travelers, one on PD and the other on HD. Register at https://register.gotowebinar.com/register/5850218096053668620. To connect by telephone without a computer, call 631-992-3221 and enter the access code 560-565-165. For recordings of previous AAKP HealthLine Webinars see https://aakp.org/aakp-healthline/.
AAKP will present a May 14, 2019 webinar on Understanding Secondary Hyperparathyroidism (SHPT) – What is it? How can it be managed? Register at https://register.gotowebinar.com/register/8410471602615141899. Future HealthLine webinars will discuss Traveling While on Dialysis in June, and Exercise and Physical Rehabilitation in July. AAKP’s HealthLine page at https://aakp.org/aakp-healthline/ includes a link to their long list of past HealthLine webinars.
The Renal Support Network presents a KidneyTalk podcast on Bon Voyage: Dialysis on the High Seas, about dialysis and traveling. Find the podcast and links to prior KidneyTalk podcasts, at https://www.rsnhope.org/kidneytalk/bon-voyage-dialysis-on-the-high-seas/.
The Renal Support Network has published Part Two of Bill Peckham’s audio on Living the Fullest Life Possible with Kidney Disease. Find it at https://www.rsnhope.org/kidneytalk/living-the-fullest-life-possible-with-kidney-disease-part-two/. If you missed Part One, see https://nwrnbulletins.wordpress.com/2018/06/22/rsn-audio-on-living-full-life/.
The Renal Support Network has published an audio presentation titled Living the Fullest Life Possible with Kidney Disease – Part One, featuring long-time Northwest dialysis patient and activist Bill Peckham sharing tips on getting the most out of life despite being on dialysis for twenty eight years. For example, Bill once took his portable dialysis machine with him down the Grand Canyon! Find that story at http://www.dciinc.org/newsroom/a-dialysis-patients-tale-rafting-the-grand-canyon/, and find Part One of the RSN audio at https://www.rsnhope.org/kidneytalk/living-the-fullest-life-possible-with-kidney-disease-part-one/.
Mark your calendar for the Tabor Trot fun walk/run and gathering the morning of May 26 at beautiful Mt.Tabor Park on the Saturday before Memorial Day. See past photos, video, more information, and register at http://www.tabortrot.com/. We’ve already posted information on other Donate Life Northwest events in Portland (April 22, May 7) and Medford OR (April 11-15); for details see our Patient Calendar at the link above. Donate Life Northwest has also recently added four new Portland volunteer opportunities:
- May 19, 2018: Tabling at OHSU (see https://www.donatelifenw.org/civicrm/event/info?reset=1&id=8410)
- May 25, 2018: Tabling at VA Hospital (see https://www.donatelifenw.org/civicrm/event/info?reset=1&id=8411)
- May 10 and 14, 2018: Training for Tabor Trot volunteers (see https://www.donatelifenw.org/news-and-events/calendar)
Donate Life has also provided details on their 2018 raffle – winners will be vacationing in Maui, Baja California, Santa Fe NM, Lake Tahoe NV, or Seaside OR – see https://www.donatelifenw.org/content/annual-raffle. For a summary of and links to all this news, see https://mailchi.mp/donatelifenw.org/april-donate-lifeline?e=d7486be0ed.
DPC will present a June 21, 2017 webinar on Travel Sips Travel Tips Travel Grub. Find more information and register at http://www.dpcedcenter.org/education-seminars . At the same web page you can find links to recording of past webinars on sex with CKD, safety, living with dialysis, goal-setting, and depression.
Home Dialyzors United will hold a conference in Las Vegas NV October 7-10, 2016. Patients, care partners, families, and dialysis professionals are invited for a weekend of education and fun. For details and registration see http://homedialyzorsunited.org/save-date-lv-home .
HDU is also planning an Alaska cruise for PD and Nxstage home dialyzors June 3-14, 2017. Deposits are discounted through the end of August, and if needed, booking a handicap room as early as possible is advised. For full details see http://homedialyzorsunited.org/wp-content/uploads/2016/08/HDU-Alaska-final.pdf .
A new dialysis modality has been added – “RD” for Raft Dialysis. NKC in-center HD patient Bill Peckham recently rafted the Grand Canyon using a portable dialysis machine. Find his story at http://www.billpeckham.com/from_the_sharp_end_of_the/2013/07/wow-it-was-a-fantastic-trip-through-the-canyon.html, and photos at http://www.flickr.com/photos/53469571@N00/sets/72157634709483822/.
The U. S. Department of Transportation has clarified that the Americans with Disabilities Act includes a requirement that airlines are required to carry without charge portable dialysis machines for home patients. See http://www.dot.gov/airconsumer/notice-portable-dialysis-machine for details.