The UCLA CORE Kidney Program will present Dialysis: What You Should Know at 5pm PST January 21, 2021, an online webinar covering the options available to a patient with advanced kidney disease, including home dialysis, living donation, transplant, and conservative management. Register at https://uclahs.zoom.us/webinar/register/WN_GIfxKl59TCKnSAgW31mufw.
MEI’s Home Dialysis Central has published a blog post on Saying No to a Kidney Transplant. The author describes the pros and cons, from their own Perspective, of a transplant versus their successful career on home dialysis. Find the post at https://homedialysis.org/news-and-research/blog/401-saying-no-to-a-kidney-transplant. MEI’s essay on Choosing Your Treatment at https://homedialysis.org/life-at-home/choosing-your-treatment, and their interactive tool My Life, My Dialysis Choice at https://mydialysischoice.org/ can help you decide in advance which treatment might be right for you from your own Perspective.
MEI has added a new module (#17) to Kidney School on Kidney Failure and Your Work Life, covering work-friendly treatment options, how to keep a job or get back to work, talking to an employer about health issues, ways to deal with symptoms, accommodations and how to ask for them, and what to do about discrimination. Find MEI’s Kidney School at https://kidneyschool.org/mods/ and scroll down to find the new modules.
NCC has released the third edition of the ESRD Patient Transplant Toolkit: Is a Kidney Transplant Right for Me? Patients share their transplant stories, including the risks and rewards of their experiences and insights they wish they had along the way. The Toolkit was designed by patients for patients. You can use this guide with your care team and loved ones as you learn to navigate the process to a kidney transplant. Find it at https://esrdnetworks.org/toolkits/patient-toolkits/is-a-kidney-transplant-right-for-me/at_download/file.
The National Forum of ESRD Networks has published introductory guides to the Dialysis Facility Compare (DFC) internet application that compares facilities on their general characteristics (such as whether they offer home dialysis or stay open after 5 pm), their quality of care (such as how they compare to other facilities on infection control), and the experience of their patients (such as whether patients found their doctors to be caring and to communicate well).
The guides describe what, why, and how a patient might use DFC. Find them at:
Find DFC itself at https://www.medicare.gov/dialysisfacilitycompare/.
MEI has updated the most popular module, Module 9: Nutrition and Fluids for People on Dialysis, in it’s award-winning Kidney School. The new Module 9 has been completely updated with new information about the value of eating real food, phosphorus absorption from food additives vs. meat and plants, graphics and photos, and brand-new meal plans and recipes, and was reviewed by expert renal dietitians. A Spanish translation will be available soon.
Kidney School offers free, tailored education for people with stages 4-5 CKD. Sixteen interactive modules at the 6th grade reading level help patients and family members learn about kidney disease, treatment options, coping skills, lab tests, diet and nutrition, and much more. Each online module creates a Personal Action Plan. Audio files and PDFs in English and Spanish are also available. Continuing education credits are available for professionals.
We’ve published our Patient Newsletters for Winter 2020. They feature articles on treatment options, flu shots, grievances, access to care, how to stay informed by the Network, and how to help the Network improve patient care. Find them at:
- Network 16 in Spanish: https://s3-us-west-2.amazonaws.com/nwrn.org/files/N2/Win2020NW16PNLEsp.PDF.
The US Renal Data System (USRDS) 2019 Annual Data Report: Epidemiology of Kidney Disease in the United States has been released on paper. The online version was released in November 2019. Find the Report at https://www.ajkd.org/issue/S0272-6386(19)X0003-7, and the USRDS ADR page at https://www.usrds.org/adr.aspx.
The Annual Data Report of the OPTN and SRTR (the US Organ Procurement and Transplantation Network and the Scientific Registry of Transplant Recipients) is now available, documenting data pertaining to the period 2007-2018. Find it at https://srtr.transplant.hrsa.gov/annual_reports/2018_ADR_Preview.aspx. Find the OPTN home page at https://optn.transplant.hrsa.gov/ and SRTR at https://www.srtr.org/.
The United Network for Organ Sharing (UNOS) has published new vision and mission statements. Find them at https://unos.org/news/introducing-unos-new-mission-and-vision/.
Kidneys Quest Foundation will present a free in-person one-day 2020 Kidney Disease Impact Conference in Los Angeles on March 4, 2020. Conference topics will include improving renal health, preventing kidney failure, expanding options for kidney patients, dialysis, home dialysis, research, clinical trials, increasing available organs for transplant, transplant support, becoming a living donor, CKD and CVD, and pediatric CKD.
Invitation is extended to renal patients, social workers, registered nurses, dietitians, dialysis technicians, medical directors, administrators and organization managers, healthcare workers, friends and family of patients, and anyone interested in kidney disease and dialysis. Attendance and onsite parking is free, and continental breakfast and lunch will be provided. Continuing education credits for nurses, social workers, dietitians, and dialysis technicians are available for a $50 fee. Pre-registration is required, and space is limited. Register at:
- https://events.r20.constantcontact.com/register/eventReg?oeidk=a07egu68tk72e9b31a2&oseq=&c=&ch= for those who want CE credit.
- https://events.r20.constantcontact.com/register/eventReg?oeidk=a07egu6bqw6f4f810f0&oseq=&c=&ch= for all others.
Find complete details, including the Conference agenda and sponsor registration information, at http://kidneysquestfoundation.org/2020-kidney-disease-impact-conference.html.
Dialysis Patient Citizens will present a November 21, 2019 webinar on Treatments and Modality Options for Kidney Disease. For details see below, and register at https://www.dpcedcenter.org/news-events/education-webinars/signup/.