To better manage your kidney disease, Avantus Renal Therapy-Newport Superior Dialysis will be offering educational seminars on the first Tuesday of each month in Newport Beach CA. The semnars will make you aware of the different types of dialysis and offer crucial information regarding the choices available to treat your kidney disease. Meet with a Social Worker, Renal Dietitian, Access Coordinator and Dialysis Nurse. Family & friends are welcome. Find details at http://www.esrdnetwork18.org/events/chronic-kidney-disease-class-every-1st-tuesday-month-200pm/ .
We’ve added the November Monthly Patient Bulletin to the Network 16 website. This issue is all about selecting a facility for dialysis, with an emphasis on Medicare’s Dialysis Facility Compare website, https://www.medicare.gov/dialysisfacilitycompare/ . If you haven’t gotten a copy of the Monthly Patient Bulletin, you can find one at https://www.nwrn.org/patients-a-family/ptedres/mon.html .
MEI has added a Spanish version and a mobile version of their excellent dialysis modality selection aid, My Life, My Dialysis Choice. The software helps people with CKD learn how each type of dialysis may affect their lifestyle and health values. Hispanic people have a 50% higher incidence rate of kidney failure than non-Hispanic Whites. A yellow button on the top left corner of each page lets users toggle between English and Spanish. The mobile version, if the online version is used first, will save its place so you can go back and forth from online to mobile. Find My Life, My Dialysis Choice at https://mydialysischoice.org/ .
There’s still time to register for the AAKP National Patient Meeting in Nashville September 23-25, 2016 on the theme Explore Your Future Today. Topics include transplantation and living donation, patient engagement, diet and nutrition, treatment options and medications, and patient safety. AAKP and the Living Kidney Donor Network, a national non-profit organization, will host a hands-on workshop Having Your Donor Find You! on Sept. 22, 2016. For complete details, see https://www.aakp.org/community/programs-events/aakp-national-patient-meeting.html .
The Portland Kidney Group and National Kidney Foundation will hold their annual free Kidney Wellness Fair: Patient Panel and Community Picnic August 28, 2016 in Portland OR. The Patient Panel will discuss treatment options. The picnic is a partial potluck – NKF will supply a kidney-friendly main course and dessert. It will include NKF/PKG’s annual Everyday Hero awards, recognizing outstanding ESRD health professionals for the everyday heroes they are. Find the following:
- The picnic poster and details at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/Picnic2016.pdf
- Additional details at https://www.eventbrite.com/e/kidney-wellness-fair-tickets-26100625674
- An Everyday Hero nomination form at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKGNom2016.pdf
- A calendar of additional 2016 PKG events at https://www.nwrn.org/files/PKGcalendar0316.pdf
The UCLA Kidney Education Enhancement Program (UKEEP) will present an August 14, 2016 program for Spanish-speaking kidney patients called Celebrando La Vida – Recursos Latinos (Celebrating Life). The entire program will be in Spanish, and will cover diabetes, heart disease, high blood pressure, treatment options, diet and nutrition, and include time for individual questions. Resources will be available to take home, and a separate supervised space will be provided for children. Leave your name and phone number at 800-516-5323 if you plan to attend. Find the full agenda (in English) at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UKEEPAgenda0814.pdf , and a poster in Spanish to promote the event at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/SpUKeepFlyer.pdf .
The UKEEP schedule for the remander of 2016 can be found at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UKeep.AugDec16.pdf .
Ongoing Spanish-language patient support groups (Grupos de Apoyo para Pacientes) in southern California are listed at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/PtSupportEsp.pdf .
If you would like a scholarship to cover registration cost for the September 23-25 AAKP National Patient Meeting in Nashville TN, you must apply by July 31, 2016. If you would like to display a poster or exhibit in the exhibit hall at the Meeting, you must apply by September 1, 2016. For all details, including agenda, registration, lodging, and all else, see https://www.aakp.org/community/programs-events/aakp-national-patient-meeting .