NKF and the Portland Kidney Group will present their Annual Community Picnic & Kidney Wellness Fair in Portland on August 20, 2017. Bring your family, friends, and appetite, and don’t forget to RSVP. Volunteers will be appreciated. Find full details at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG.Picnic.0817.pdf .
On September 24, 2017, NW Kidney Kids will sponsor a benefit 5K, 10K, and Family Run/Walk in Portland. This first-annual event will celebrate all people impacted by kidney disease and bring together the community to support children living with chronic kidney disease. You can create your own team to raise donations, join an existing team, register to participate in one of the races or Run/Walk, or simply make a donation, all at https://www.crowdrise.com/strutyourkidney . If you have questions or want to get involved in the event or organization, contact Race Director Lauren Lynn at firstname.lastname@example.org or 541-499-2018. NW Kidney Kids is the only organization in the Northwest focused on serving children and teens with chronic kidney disease and their families.
NKF will sponsor 2017 Kidney Walks in…
- Orange County (Irvine) May 21, 2017; http://donate.kidney.org/site/TR/Walk/NKFServingtheWest?fr_id=8507&pg=entry
- San Diego June 4, 2017; http://donate.kidney.org/site/TR/Walk/NKFServingtheWest?fr_id=8508&pg=entry
- Los Angeles (Studio City) November 5, 2017; http://donate.kidney.org/site/TR/Walk/NKFServingtheWest?pg=entry&fr_id=8539
NKF Kidney Walk is not about kidney disease. It’s about people with kidney disease coming together, united in one cause: to celebrate life and each other. Kidney Walk is the nation’s largest event to raise awareness of kidney disease and raise funds to support lifesaving programs for patients, their families, and those at risk.
The January 2017 issue of the Northwest Renal Network’s Network 16 News has hit the streets. The headline article covers details about the new CMS reimbursement of outpatient dialysis facilities for treating Acute Kidney Injury or AKI. The article also announces a February 22, 2017 NRAA webinar on AKI rules, facts, and expert interpretation of the gray areas. Keep an eye on http://www.nraa.org/index.php/meetings/webinarstop/nraa-webinar-wednesday-series for details about the webinar and registration information.
The issue also contains an invitation for a patient or care partner to volunteer as a Subject Matter Expert on the Network’s Patient Advisory Council, and links to the following:
- Seattle NWRD Conference on March 2-3, 2017, https://nwrnbulletins.wordpress.com/2016/12/27/nw-1231-nwrd-conference/
- Portland OPSC Forum on March 3, 2017, https://nwrnbulletins.wordpress.com/2017/01/09/33-opsc-patient-safety-forum/
- Portland NKF/PKG Patient & Community Education Symposium on March 5, 2017, https://nwrnbulletins.wordpress.com/2017/01/25/nw-35-pkg-educational-symposium/
- Seattle NKF Kidney Walk on March 26, 2017, https://nwrnbulletins.wordpress.com/2016/12/12/32617-kidney-walk-seattle/
- Orlando FL NKF Spring Clinical Meetings on April 18-22, 2017, https://nwrnbulletins.wordpress.com/2016/11/02/113-nkf-spring-clinical-stipend-deadline/
Find a copy of this Network 16 News issue at https://s3-us-west-2.amazonaws.com/nwrn.org/files/Nw16N/N16N.0117.pdf or any Network 16 News issue in the archives at https://nwrn.org/providers-and-professional-staff/nw16n.html .
CMS and UM-KECC have called for nominations of volunteers to serve on a Technical Expert Panel to evaluate existing and proposed Patient-Reported Outcomes as possible measures for facility performance evaluation. Nominations are due by February 10, 2017. For details see https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/TechnicalExpertPanels.html#2222 .
The Renal Support Network will sponsor their 18th Annual Renal Teen Prom in Glendale CA on January 15, 2017. Many teenagers with kidney disease miss large amounts of school because of prolonged absences due to health. The prom, free to kidney disease patients between the ages of 14 and 24 and a companion, brings these young people together to share their experiences, strengths, and hopes. As one of last year’s attendees said, “Once you’ve been here at the prom, everyone is like family to you. This is my sixth year coming to the prom. I started when I was at a very low point in my life with medical issues and depression and this event really cheered me up. The other 364 days of the year, I’m a girl with an illness, but on this night I’m here to have fun and I’m actually myself.” For details, invitations, and opportunities to support the Prom, see http://www.rsnhope.org/renal-teen-prom/ .
The December issue of the Northwest Renal Network’s patient newsletter, Network Consumer News, focuses on the Patient Advisory Council or PAC, and includes stories about three of the seven current PAC members and their experience with Vocational Rehabilitation. We’ve mailed these to facilities for distribution, but you can get a copy on the Network 16 website. As usual, we also have a Spanish edition and a large-print edition. With this issue we’ve also included a flyer or poster encouraging committed and engaged patients and care partners to join the PAC. Find them all at https://www.nwrn.org/patients-a-family/ptedres/ncn.html . You can also find more information on the Network 16 PAC at https://www.nwrn.org/patients-a-family/patient-advisory-committee.html . In southern California, find information about the Network 18 PAC and other volunteer opportunities at http://www.esrdnetwork18.org/patients/how-to-get-involved/ and http://www.esrdnetwork18.org/about/governance/ .