8/16+ NW16 PKD Events, Seattle

The Seattle Chapter of the PKD Foundation will host an August 16, 2017 Coffee Chat in Factoria (Bellevue WA) to promote networking among people affected by PKD.  The discussion is informal, but a topic or guest speaker is usual.  For details and to sign up, see http://support.pkdcure.org/site/Calendar?view=Detail&id=101732 .  These events are held more or less monthly; the next one will be September 10, 2017.  Watch https://pkdcure.org/chapter/seattle/ for details.

The PKD Foundation will also sponsor an August 19, 2017 Seattle Friends & Family Potluck Picnic & Lemonade Stand, in Seward Park (Seattle).  Find more information at http://support.pkdcure.org/site/Calendar?view=Detail&id=101846 .

The Foundation will also sponsor the three-mile Seattle Walk for PKD on October 1, 2017 at Green Lake (Seattle).  For details, posters, to register for the Walk or the associated Penny Kids Dash, and to donate, see http://support.pkdcure.org/site/TR/Walk/WalkforPKD?fr_id=1766&pg=entry .  So far they have pledges of $10,000 for the Walk, and they seek at lease $45,000 more to support PKD research and create better lives for those impacted by polycystic kidney disease.

9/24 NW16 Kidney Kids Event

On September 24, 2017, NW Kidney Kids will sponsor a benefit 5K, 10K, and Family Run/Walk in Portland.  This first-annual event will celebrate all people impacted by kidney disease and bring together the community to support children living with chronic kidney disease.  You can create your own team to raise donations, join an existing team, register to participate in one of the races or Run/Walk, or simply make a donation, all at https://www.crowdrise.com/strutyourkidney .  Find a colorful poster announcing the event at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/NWKKstrut0917.pdf .  If you have questions or want to get involved in the event or organization, contact Race Director Lauren Lynn at lauren@nwkidneykids.org or 541-499-2018.  NW Kidney Kids is the only organization in the Northwest focused on serving children and teens with chronic kidney disease and their families.

8/20 NW NKF Wellness Fair Portland

NKF and the Portland Kidney Group will present their Annual Community Picnic & Kidney Wellness Fair in Portland on August 20, 2017.  Bring your family, friends, and appetite, and don’t forget to RSVP.  Volunteers will be appreciated.  Find full details at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG.Picnic.0817.pdf .

9/24 NW Kidney Walk/Run Portland

On September 24, 2017, NW Kidney Kids will sponsor a benefit 5K, 10K, and Family Run/Walk in Portland.  This first-annual event will celebrate all people impacted by kidney disease and bring together the community to support children living with chronic kidney disease.  You can create your own team to raise donations, join an existing team, register to participate in one of the races or Run/Walk, or simply make a donation, all at https://www.crowdrise.com/strutyourkidney .  If you have questions or want to get involved in the event or organization, contact Race Director Lauren Lynn at lauren@nwkidneykids.org or 541-499-2018.  NW Kidney Kids is the only organization in the Northwest focused on serving children and teens with chronic kidney disease and their families.

SC 5/21+ Kidney Walks

NKF will sponsor 2017 Kidney Walks in…

NKF Kidney Walk is not about kidney disease.  It’s about people with kidney disease coming together, united in one cause: to celebrate life and each other.  Kidney Walk is the nation’s largest event to raise awareness of kidney disease and raise funds to support lifesaving programs for patients, their families, and those at risk.

AKI Patients

The January 2017 issue of the Northwest Renal Network’s Network 16 News has hit the streets.  The headline article covers details about the new CMS reimbursement of outpatient dialysis facilities for treating Acute Kidney Injury or AKI.  The article also announces a February 22, 2017 NRAA webinar on AKI rules, facts, and expert interpretation of the gray areas.  Keep an eye on http://www.nraa.org/index.php/meetings/webinarstop/nraa-webinar-wednesday-series for details about the webinar and registration information.

The issue also contains an invitation for a patient or care partner to volunteer as a Subject Matter Expert on the Network’s Patient Advisory Council, and links to the following:

Find a copy of this Network 16 News issue at https://s3-us-west-2.amazonaws.com/nwrn.org/files/Nw16N/N16N.0117.pdf or any Network 16 News issue in the archives at https://nwrn.org/providers-and-professional-staff/nw16n.html .

2/10 TEP Nominations Wanted

CMS and UM-KECC have called for nominations of volunteers to serve on a Technical Expert Panel to evaluate existing and proposed Patient-Reported Outcomes as possible measures for facility performance evaluation.  Nominations are due by February 10, 2017.  For details see https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/TechnicalExpertPanels.html#2222 .