NW16 Patient Advisory Committee

Northwest Renal Network (ESRD Network 16) has published the November edition of its patient newsletter, Consumer NewsThis issue features a Patient Advisory Committee (PAC) Member Spotlight, and includes an invitation for patients to join the PAC.  If you have any interest, or if you have questions, contact Lisa Hall at 800-262-1514 or lhall@nw16.esrd.net .  Find the newsletter and PAC invitation on the Network website at https://www.nwrn.org/patients-a-family/ptedres/ncn.html .

11/14 NW18 JBF San Diego Benefit

The John Brockington Foundation will present their 16th Annual Pro Athletes for Life Gala November 14, 2017 in San Diego.  The event celebrates organ and tissue donation and the San Diego kidney and transplant communities, with proceeds to the Foundation’s patient education and patient assistance funds.  For more information on the event and the Foundation, see http://www.johnbrockingtonfoundation.org/ .

11/8 NW16 Donate Life Breakfast

Donate Life Northwest will sponsor their annual Lifesavers Breakfast November 8, 2017 in Portland OR.  The event is the largest gathering of the area’s donation and transplant community.  Donate Life Northwest welcomes additional Sponsors and volunteers.  For more information and to RSVP, see http://www.donatelifenw.org/content/lifesavers-breakfast .

10/7+ NW16 Transplant and Mentorship Classes

Donate Life Northwest will sponsor training, peer support, and mentorship for dialysis patients on living donation transplants, in Portland OR November 5, 12, and 19, 2017.  They will also sponsor a training for mentors on October 7, 2017.  See below for details:

10/1+ Walk for PKD

In addition to the Seattle Walk for PKD which we’ve already mentioned, Walks will also be held this fall in Portland, Los Angeles, and San Diego.

NW16 Donate Life Volunteers

Donate Life Northwest provides classes for volunteers who are interested in supporting organ and tissue donation, called “Donate Life 101: New Ambassador Orientation,” and a followup course “Donate Life 301” for those wishing to become Donate Life Educators.  Fall 2017 Classes will be held September 25 in Eugene, October 4, 16, 18, and November 4 in Portland, and October 4 by conference call.  For more information see http://www.donatelifenw.org/calendar .

8/16+ NW16 PKD Events, Seattle

The Seattle Chapter of the PKD Foundation will host an August 16, 2017 Coffee Chat in Factoria (Bellevue WA) to promote networking among people affected by PKD.  The discussion is informal, but a topic or guest speaker is usual.  For details and to sign up, see http://support.pkdcure.org/site/Calendar?view=Detail&id=101732 .  These events are held more or less monthly; the next one will be September 10, 2017.  Watch https://pkdcure.org/chapter/seattle/ for details.

The PKD Foundation will also sponsor an August 19, 2017 Seattle Friends & Family Potluck Picnic & Lemonade Stand, in Seward Park (Seattle).  Find more information at http://support.pkdcure.org/site/Calendar?view=Detail&id=101846 .

The Foundation will also sponsor the three-mile Seattle Walk for PKD on October 1, 2017 at Green Lake (Seattle).  For details, posters, to register for the Walk or the associated Penny Kids Dash, and to donate, see http://support.pkdcure.org/site/TR/Walk/WalkforPKD?fr_id=1766&pg=entry .  So far they have pledges of $10,000 for the Walk, and they seek at lease $45,000 more to support PKD research and create better lives for those impacted by polycystic kidney disease.