Mark your calendar for the Tabor Trot fun walk/run and gathering the morning of May 26 at beautiful Mt.Tabor Park on the Saturday before Memorial Day. See past photos, video, more information, and register at http://www.tabortrot.com/. We’ve already posted information on other Donate Life Northwest events in Portland (April 22, May 7) and Medford OR (April 11-15); for details see our Patient Calendar at the link above. Donate Life Northwest has also recently added four new Portland volunteer opportunities:
UM-KECC is seeking nominations for patients, caregivers, and providers to participate on one of several focus groups on Patient Reported Outcomes (PRO). The focus groups will be held to elicit feedback and suggestions for draft question content for two PRO measure topics, Patient Life Goals and Patient Feeling of Safety. The focus groups will be 2 hour webinar teleconference meetings. Patient and caregiver nominations require a brief statement of interest, a CV or resume if relevant, and disclosure of any conflicts of interest. Submit this material to firstname.lastname@example.org by February 28, 2018. Contact Jordan Affholter at email@example.com with any questions. For details and a conflict disclosure form, see https://annanurse.org/article/call-nominations-esrd-patient-reported-outcomes-focus-groups-january-24-18.
We need one patient from Idaho, and one from Montana
Kidney Community Emergency Response Coalition (KCER): This is a national group devoted to improving emergency preparedness and response for kidney patients and ESRD facilities. This involves quarterly conference calls. Learn more about the Coalition at http://www.kcercoalition.com/. We need two patients from any Network state – Alaska, Idaho, Montana, Oregon, or Washington.
Northwest Renal Network (ESRD Network 16) has published the November edition of its patient newsletter, Consumer News. This issue features a Patient Advisory Committee (PAC) Member Spotlight, and includes an invitation for patients to join the PAC.If you have any interest, or if you have questions, contact Lisa Hall at 800-262-1514 or firstname.lastname@example.org . Find the newsletter and PAC invitation on the Network website at https://www.nwrn.org/patients-a-family/ptedres/ncn.html .
The John Brockington Foundation will present their 16th Annual Pro Athletes for Life Gala November 14, 2017 in San Diego. The event celebrates organ and tissue donation and the San Diego kidney and transplant communities, with proceeds to the Foundation’s patient education and patient assistance funds. For more information on the event and the Foundation, see http://www.johnbrockingtonfoundation.org/ .