NW16 2/24+ Erase the Wait Portland

The Erase the Wait program will present a training in Portland OR for volunteer transplant mentors on February 24, 2018, and for CKD and dialysis patients on March 18, March 25, and April 1, 2018.  For details see https://www.erasethewait.org/about, the graphic below, and https://www.youtube.com/watch?v=XGkYnpQpgMM.

Previous Erase the Date mentor and mentee participants are invited to a reunion in Portland on March 14, 2018; for details see https://www.donatelifenw.org/civicrm/event/info?id=8390&reset=1.

Discounted ticket sales for Donate Life Northwest’s Family Night Trailblazers basketball game March 30, 2018 in Portland close on February 26, 2018.

NW16 2/24 UW Transplant Dinner

The University of Washington Medical Center Team Transplant provides a life-changing wellness program for transplant recipients and their support team through regular exercise, healthy eating and community support, while promoting organ donation awareness.  They will hold their Annual Fundraising Dinner February 24, 2018 on the UW campus.  For more information on the Dinner and on Team Transplant, and to register for the Dinner, see http://www.cvent.com/events/team-transplant-s-annual-fundraising-dinner/event-summary-9929a6b93dcc4d1996b2693577152b25.aspx.

2/28 Focus Group Nominations

UM-KECC is seeking nominations for patients, caregivers, and providers to participate on one of several focus groups on Patient Reported Outcomes (PRO).  The focus groups will be held to elicit feedback and suggestions for draft question content for two PRO measure topics, Patient Life Goals and Patient Feeling of Safety.  The focus groups will be 2 hour webinar teleconference meetings.  Patient and caregiver nominations require a brief statement of interest, a CV or resume if relevant, and disclosure of any conflicts of interest.  Submit this material to dialysisdata@umich.edu by February 28, 2018.  Contact Jordan Affholter at affjorda@med.umich.edu with any questions.  For details and a conflict disclosure form, see https://annanurse.org/article/call-nominations-esrd-patient-reported-outcomes-focus-groups-january-24-18.

NW16 National Board Patient Members Needed

Network 16 is seeking volunteers – patients or care partners – to represent the Network on two national committees:

ESRD National Coordinating Center’s Patient and Family Engagement Learning & Action Network:

  • Volunteers are asked to commit to participating in scheduled conference calls and webinars, usually every month or every other month
  • Centers for Medicare & Medicaid Services (Medicare) representatives are on the calls, providing an opportunity for volunteers to work closely with the federal government to improve patient care
  • The patient representative with the highest level of participation (attendance) gets to travel to Baltimore for a national meeting of the committee
  • Learn more about the committee at http://ncc.hshapps.com/en/patients/national-patient-and-family-engagement-lan-npfe-lan/.
  • We need one patient from Idaho, and one from Montana

Kidney Community Emergency Response Coalition (KCER):  This is a national group devoted to improving emergency preparedness and response for kidney patients and ESRD facilities.  This involves quarterly conference calls.  Learn more about the Coalition at http://www.kcercoalition.com/.  We need two patients from any Network state – Alaska, Idaho, Montana, Oregon, or Washington.

Anyone interested should email Lisa Hall at LHall@nw16.esrd.net or call 206-923-0714.

NW16 Patient Advisory Committee

Northwest Renal Network (ESRD Network 16) has published the November edition of its patient newsletter, Consumer NewsThis issue features a Patient Advisory Committee (PAC) Member Spotlight, and includes an invitation for patients to join the PAC.  If you have any interest, or if you have questions, contact Lisa Hall at 800-262-1514 or lhall@nw16.esrd.net .  Find the newsletter and PAC invitation on the Network website at https://www.nwrn.org/patients-a-family/ptedres/ncn.html .

11/14 NW18 JBF San Diego Benefit

The John Brockington Foundation will present their 16th Annual Pro Athletes for Life Gala November 14, 2017 in San Diego.  The event celebrates organ and tissue donation and the San Diego kidney and transplant communities, with proceeds to the Foundation’s patient education and patient assistance funds.  For more information on the event and the Foundation, see http://www.johnbrockingtonfoundation.org/ .

11/8 NW16 Donate Life Breakfast

Donate Life Northwest will sponsor their annual Lifesavers Breakfast November 8, 2017 in Portland OR.  The event is the largest gathering of the area’s donation and transplant community.  Donate Life Northwest welcomes additional Sponsors and volunteers.  For more information and to RSVP, see http://www.donatelifenw.org/content/lifesavers-breakfast .