“CMS will not count data from January 1, 2020 through June 30, 2020 (Q1-Q2) for performance or payment programs. Data does not need to be submitted to CMS for this time period… No data reflecting services provided January 1, 2020 through June 30, 2020 will be used in CMS’s calculations for the Medicare quality reporting… programs. This is being done to reduce the data collection and reporting burden on providers responding to the COVID-19 pandemic.”
“Dialysis facilities should be aware of the potential subsequent impact to a facility’s total performance score (TPS) when data are excluded from score calculations. Facilities impacted by COVID-19 may elect to opt out of the CMS granted exception by emailing the request to the ESRD QIP at email@example.com. The email must be sent by the dialysis facility’s chief executive officer (CEO) or designee. We are requesting that a dialysis facility make this request within 90 days of March 22, 2020. For further assistance regarding the ESRD QIP information contained in this message, please contact the ESRD QIP at firstname.lastname@example.org.”
We’ve published our Patient Newsletters for Winter 2020. They feature articles on treatment options, flu shots, grievances, access to care, how to stay informed by the Network, and how to help the Network improve patient care. Find them at:
AAKP’s Center for Patient Research & Education (https://aakp.org/center-for-patient-research-and-education/research/) is collaborating with the FDA to foster engagement with patients, caregivers, and patient advocates throughout the development, evaluation and surveillance of medical devices in order to gain insight from patients and caregivers about their experiences living with their diseases as well as experiences with medical devices intended to diagnose and treat their medical conditions. To further this effort, AAKP asks members to take a brief anonymous survey about the devices you have used. Find the survey at https://www.surveymonkey.com/r/GGTZNKX.
The Standardized Outcomes in Nephrology – Glomerular Disease (SONG-GD) study is an international initiative to identify outcomes in glomerular disease that are important to patients, caregivers, clinicians and other health professionals. This will inform the development of core outcomes that are important and relevant to measure and report in glomerular disease.
SONG-GD includes a voluntary 15-minute survey to help determine a core outcome set for glomerulonephritis trials, to be taken by anyone who meets the following criteria:
You are 18 yrs of age or older
You are one of the following:
A patient with any major form of glomerular disease*, at any stage of development**
A family or household member of a patient with any major form of glomerular disease*, at any stage of development**
A caregiver for a patient with any major form of glomerular disease*, at any stage of development**
A healthcare practitioner or trainee, social worker, dietitian, pharmacist, psychologist, physiotherapist, researcher, policy-maker, or other stakeholder who deals with glomerular disease
You work in an industry that deals with glomerular disease
CMS has commissioned UM-KECC to assemble 10-20 volunteers for a Technical Expert Panel (TEP) to formulate a process for periodically resetting ESRD clinical quality Star-Rating criteria so that the Ratings continue to differentiate facility quality of care when treatment-quality trends reduce the variation between facilities. Volunteers will include patients, caregivers, ESRD subject matter experts, methodologists, and specialists working on dialysis QI and healthcare disparities. The TEP will require a one-day in-person meeting in Baltimore in June, plus 3-7 conference calls before and after. Nominations must be submitted by April 5, 2019. The current call for nominations doesn’t mention it, but past TEPs have reimbursed travel expenses. For details and nomination forms, see https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/TEP-Currently-Accepting-Nominations.html#a0305.
Find Conference details at https://www.nwrdonline.org/conference-overview. Volunteers are welcome and appreciated. NWRD includes renal dietitians from British Columbia, as well as the five Network 16 states. There is no NWRD membership fee.