1/23+ Pediatric Palliative Care Webinars

The Pediatric Palliative Care Coalition has announced their 2020 webinar program, with presentations on:

  • January 23, 2020 –  Decoding Decision-Making with Families
  • February 18, 2020 – Burnout! Can Compassion Fatigue?
  • March 12, 2020 – Spirituality in Children and Families Facing Serious Illness
  • April 21, 2020 – Together in the Sandbox: Palliative Care and Complex Care Partnerships in the Medical Neighborhood
  • May 21, 2020 – Guiding Families to Mindfulness Supports Decision Making for Adults & Children
  • June 16, 2020 – Ethical Questions in Pediatric Palliative Care
  • July 21, 2020 – Beyond Fairytale Endings: Using Storybooks and other therapeutic tools to Explain Death and Dying to Children
  • August 20, 2020 – Pediatric Concurrent Care
  • September 22, 2020 – Explaining Pain: Pain Education and Mind-Body Tools for Pediatric Chronic Pain
  • October 22, 2020 – Through the Eyes of a Grieving Child
  • November 17, 2020 – Partnering with Funeral Professionals to Support Families Following the Death of A Child

For details and registration, see https://mailchi.mp/jacobsheart/ppc-webinar-jan-2020?mc_cid=53dd803107&mc_eid=67e1ad4c31.

NW16 11/1+ CNSW-NW Fall Conference, Issaquah WA

November 1, 2019 is the registration deadline for the November 8 CNSW NW Chapter Fall 2019 Educational Conference in Issaquah WA.  Ignore the earlier deadline on the Conference brochure (https://s3-us-west-2.amazonaws.com/nwrn.org/files/CNSW/CNSW_Fall.2019.pdf), and use the registration form at https://s3-us-west-2.amazonaws.com/nwrn.org/files/CNSW/CNSW.REG.Fall.2019.pdf to RSVP.  Conference topics include ethics, mental health, end of life, patient support, patient engagement, and patient collaboration, with 6.5 CEUs offered.

NW16 11/8 CNSW Fall Conference, Issaquah WA

The CNSW NW Chapter will host their Fall 2019 Educational Conference in Issaquah WA on November 8, 2019.  Topics include ethics, mental health, end of life, patient support, patient engagement, and patient collaboration.  6.5 CEUs are offered.  Find details at https://s3-us-west-2.amazonaws.com/nwrn.org/files/CNSW/CNSW_Fall.2019.pdf and register at https://s3-us-west-2.amazonaws.com/nwrn.org/files/CNSW/CNSW.REG.Fall.2019.docx.  RSVP by November 1, 2019.  Early registration expires October 11, 2019.

NW18 8/9 POLST Survey

The Coalition for Compassionate Care of California is conducting a survey to better understand the level of interest and engagement in a state-wide electronic Registry of Physician Orders for Life-Sustaining Treatment (POLST).  POLST is a form that gives seriously-ill patients more control over their end-of-life care, including medical treatment, extraordinary measures (such as a ventilator or feeding tube) and CPR.  Printed on bright pink paper, and signed by both a patient and physician, nurse practitioner or physician assistant, POLST can prevent unwanted or ineffective treatments, reduce patient and family suffering, and ensure that a patient’s wishes are honored.  Since it’s designed to be readily available to all healthcare practitioners in any setting or circumstance, electronic availability would promote its purpose.  For more information and a sample of the California form, see https://capolst.org/.  Take the survey, if possible before August 9, 2019, at https://www.surveymonkey.com/r/3XC2PGX.

11/15 Webinar on Supportive Care

The Coalition for Supportive Care of Kidney Patients will present a 15 November 2018 webinar on Mapping the Future: Implementation Strategies for Kidney Supportive Care.  This is the first in a series of webinars that parallels a series of Nephrology News & Issues articles on “supportive care” for kidney patients that will begin in the November 2018 issue.  Direct any questions you have to Kelly Brooks at kbrooks@nw5.esrd.net or 804-320-0004 x2706

Register for the webinar at https://qualitynet.webex.com/mw3300/mywebex/default.do?nomenu=true&siteurl=qualitynet&service=6&rnd=0.9781770900950815&main_url=https%3A%2F%2Fqualitynet.webex.com%2Fec3300%2Feventcenter%2Fevent%2FeventAction.do%3FtheAction%3Ddetail%26%26%26EMK%3D4832534b00000004cb0a9a58476d6bd293b5a9f17210c9e047618e1f532c1a7922440c6f4b391fed%26siteurl%3Dqualitynet%26confViewID%3D107244241343796963%26encryptTicket%3DSDJTSwAAAATkodchRe-HYk3NR3hmhP3ljworAPoym4g8yOkYBUMOqg2%26.

Current plans include future webinars in the series on Providing Supportive Care: Tools & Resources for the Journey in December and Best Case/Worst Case and Older Patients in January.  Once they are scheduled, you can register for these webinars at https://qualitynet.webex.com/mw3300/mywebex/default.do?siteurl=qualitynet&service=6.

The Coalition for Supportive Care is an evolution of the earlier Kidney End-of-Life Coalition.  Their mission is to “Promote effective interchange among patients, families, healthcare professionals, and payers to ensure the provision of patient-centered supportive care for patients with kidney disease.  Supportive care is the continuum of palliative care and includes providing patients with relief from the symptoms, pain, and stress of a serious illness.  The goal of the Coalition is to improve the quality of life for both patients and families from the time of diagnosis through to end-of-life care.”  Find out more about the Coalition for Supportive Care at https://kidneysupportivecare.org/Home.aspx.

11/13+ CCCC Pediatric Webinars

The Coalition for Compassionate Care of California will host two more presentations this year in their Pediatric Webinar Series.  The first will be 13 November on Getting a Better Handle on Parents’ Bereavement: Supporting Parents Anticipating Their Child’s Death and Afterwards, and the second 6 December on Deep in the Weeds: Medical Marijuana and Pediatric Palliative Care.  Find out more and register at https://mailchi.mp/coalitionccc.org/2018-spring-education-schedule-744635?e=67e1ad4c31.

Along with the Children’s Hospice Palliative Care Coalition, CCCC will also co-sponsor the 2019 Palliative Care Summit April 8-9, 2019 in San Francisco.  For more information see http://ccccsummit.org/.  Registration gets progressively more expensive after January 31, March 7, and April 1, 2019.