Networks 16 and 18 have assembled a web page on Healthcare Workers – Coping with Infectious Disease Outbreaks in the Dialysis Setting. In addition to guidance for maintaining your own health in situations of extreme stress, it includes links to the SAMHSA Disaster Distress Helpline (in English, Spanish, and 14 other languages) and their document on Taking Care of Your Behavioral Health: Tips for Social Distancing, Quarantine, and Isolation during an Infectious Disease Outbreak. Find the Network web page at http://www.esrdnetwork18.org/wp-content/uploads/20200313-Coping-with-ID-Outbreaks.pdf. While it’s aimed at facility staff, patients will also find it useful for managing their own stress.
The Renal Support Network has published a podcast called Keep on Believing, featuring an interview with America’s Got Talent superstar and kidney transplant recipient (at age 4) Angelica Hale. Angelica advises, “Never give up and keep on dreaming. Keep on believing in yourself. No matter what you are going through, you can still achieve your dreams and reach your goals.” Find the podcast at https://www.rsnhope.org/kidneytalk/keep-on-believing/.
Dialysis Patient Citizens will present a May 26, 2019 webinar and conference call on Relieving Pain through Laughter, aka “Joyology.” For details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/DPC/DPCLaugh2019.pdf, and RSVP at https://www.dpcedcenter.org/.
MEI’s Home Dialysis Central blog has an interesting post on Laugh Out Load Hemodialysis, which Satellite Dialysis has been experimenting with. Among other things, the post describes the physiological benefits of laughter, including its positive impact on mood, pain, lungs, cardiovascular function, and immune response. Find the post at https://homedialysis.org/news-and-research/blog/305-laugh-out-loud-hemodialysis-lol-hd-improving-the-dialysis-experience-at-satellite-healthcare/. While the subject of the post is in-center dialysis, anyone with an internet connection and computer or smartphone who dialyzes at home can call up a million comedies to watch. See also https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/DPC/DPCLaugh2019.pdf for information on a May 26, 2019 webinar on Pain Relief through Laughter.
The Forum of ESRD Networks has added a recording and slides from their October 4, 2018 live webinar on Depression & Dialysis: Removing the Stigma and Strengthening our Mental Health. The event was hosted by patient leaders from the the Forum in collaboration with AAKP and NKF. Find these resources, plus ancillary tools, at http://esrdnetworks.org/education/quality-conference/quality-conference-webinar-series-2018-2019.
The National Forum of ESRD Networks has revised the Dialysis Patient Depression Toolkit and added a video. Find the revised English version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-english and a Spanish version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-spanish. A related video interview with a dialysis patient has also been recorded. Find it at https://www.youtube.com/watch?v=N7Iv6JytQt4.
DPC’s next Educational Call is an October 22, 2018 webinar called Laugh Will and Testament: Using Humor to Contemplate Mortality and Enjoy Life. See the poster below and http://www.dpcedcenter.org/education-seminars for details. RSVP at http://www.dpcedcenter.org/education-call-rsvp to get a reminder.
The DPC Education Center is a treasure trove of information on kidney disease; find it at http://www.dpcedcenter.org/. Mark your calendar for future Educational Calls on November 15 and December 13, and 2019 Calls on January 24, February 28, March 28, April 25, May 23, June 27, July 25, August 22, September 26, October 24, November 28, and December 26.