5/29 AAKP HealthLine on COVID-19 and Mental Health

AAKP will present a May 29, 2020 HealthLine webinar on Mental Health Management During COVID-19: Staying Connected while Staying at Home.  Register at https://aakp.org/center-for-patient-research-and-education/coronavirus-resources/.  This website also includes links to recordings of other COVID-19 HeathLine webinars, and to other AAKP resources on COVID-19 and other issues.

5/26+ COVID-19 Weekly Webinars

A number of organizations are hosting weekly webinars on COVID-19.  These include:

  • ESRD NCC half-hour “Quickinars” for providers and patients.   Find more information, recordings of past Quickinars, and register for current presentations at https://esrdncc.org/quickinars:
      • Tuesday May 26, 2020 patient Quickinar on Combating Uncertainty and Fear in the COVID-19 Era (En Español), presented by a PD patient, Network Ambassador, and patient and family engagement SME.  She will share how Spanish-speaking patients are coping with fears surrounding COVID-19, and Provide links to COVID-19 information in Spanish.
      • Wednesday May 27, 2020 provider Quickinar on COVID-19 Communication – Quick Tips to Connect, presented by the Director of Outreach and Development for the non-profit Academy of Communication in Healthcare, Editor-in-Chief for the Journal of Patient Experience, and Assistant Clinical Professor at Vanderbilt University School of Medicine.

5/19+ COVID-19 Weekly Webinars

A number of organizations are hosting weekly webinars on COVID-19.  These include:

  • ESRD NCC half-hour “Quickinars” for providers and patients at 2 pm PDT.   Find more information, recordings of past Quickinars, and register for current presentations at https://esrdncc.org/quickinars:
    • Tuesday May 19, 2020 patient Quickinar on Caregiving During COVID-19: Tips from Kidney Caregivers, presented by a caregiver and a Network Patient Services Director.
    • Wednesday May 20, 2020 provider Quickinar on What to Do and Say to Support Psychological Safety During the COVID-19 Pandemic, presented by a nurse who uses “a human-centered co-design approach [as] she works with healthcare leaders to generate flourishing cultures and exceptional outcomes by integrating patient/family experience, quality, safety, and joy in work.”

5/12+ COVID-19 Weekly Webinars

A number of organizations are hosting weekly webinars on COVID-19.  These include:

  • ESRD NCC half-hour “Quickinars” for providers and patients at 2 pm PDT.   Find more information, recordings of past Quickinars, and register for current presentations at https://esrdncc.org/quickinars:
    • May 12, 2020 patient Quickinar on Preparing for a Kidney Transplant During the COVID-19 Pandemic, presented by a patient and a Transplant Coordinator.
    • May 13, 2020 provider Quickinar on Pathways to Increase Nephrologist Comfort Managing Home Dialysis Patients During COVID-19, presented by a nephrologist.
  • We haven’t heard from CMS yet, so evidently these are no longer being held: CMS Stakeholder Engagement Call for Dialysis Providers at 2:30 pm PDT May 13, 2020, call 833-614-0820, passcode <coming soon?>, audio webcast link <coming soon?>.  The bare registration portal, and the email verifying your registration, appear to be named “Lessons COVID Dialysis.”

5/12+ COVID-19 Weekly Webinars

A number of organizations are hosting weekly webinars on COVID-19.  These include:

  • ESRD NCC half-hour “Quickinars” for providers and patients at 2 pm PDT.   Find more information, recordings of past Quickinars, and register for current presentations at https://esrdncc.org/quickinars:
    • May 12, 2020 patient Quickinar on Preparing for a Kidney Transplant During the COVID-19 Pandemic, presented by a patient and a Transplant Coordinator.
    • May 13, 2020 provider Quickinar on Pathways to Increase Nephrologist Comfort Managing Home Dialysis Patients During COVID-19, presented by a nephrologist.
  • CMS Stakeholder Engagement Call for Dialysis Providers at 2:30 pm PDT May 13, 2020, call 833-614-0820, passcode <coming soon>, audio webcast link <coming soon>.  The bare registration portal, and the email verifying your registration, appear to be named “Lessons COVID Dialysis.”

5/2 Five NKF Webinars on Kidney Disease Topics

NKF will present a May 2, 2020 half-day series of five webinars for patients on current kidney-disease topics called Virtual Education Series: Connect, Learn, and Share.  You can choose any or all of the 30- to 45-minute sessions, and they’ll be recorded for later viewing.  The topics are:

  • Coping with a Chronic Illness: Dealing with Emotions and Finding Support
  • Tips for Kidney Friendly Eating on a Budget
  • Fitness and Kidney Health
  • Telemedicine 101: What to Expect When Seeing Your Doctor at Home
  • Let’s Talk about Transplant: Real Patient Stories

Each webinar will be co-led by a healthcare professional and a patient.  Find more information and register at https://www.kidney.org/events/local-event/virtual-education-series-connect-learn-and-share.

RSN Podcasts on Hospitalization, Emotional Balance

RSN KidneyTalk has published two new podcasts on:

Network Guidance on COVID-19 Stress for Staff

Networks 16 and 18 have assembled a web page on Healthcare Workers – Coping with Infectious Disease Outbreaks in the Dialysis Setting.  In addition to guidance for maintaining your own health in situations of extreme stress, it includes links to the SAMHSA Disaster Distress Helpline (in English, Spanish, and 14 other languages) and their document on Taking Care of Your Behavioral Health: Tips for Social Distancing, Quarantine, and Isolation during an Infectious Disease OutbreakFind the Network web page at http://www.esrdnetwork18.org/wp-content/uploads/20200313-Coping-with-ID-Outbreaks.pdf.  While it’s aimed at facility staff, patients will also find it useful for managing their own stress.

RSN Podcast on “Keep on Believing”

The Renal Support Network has published a podcast called Keep on Believing, featuring an interview with America’s Got Talent superstar and kidney transplant recipient (at age 4) Angelica Hale.  Angelica advises, “Never give up and keep on dreaming.  Keep on believing in yourself.  No matter what you are going through, you can still achieve your dreams and reach your goals.”  Find the podcast at https://www.rsnhope.org/kidneytalk/keep-on-believing/.