CCCC will present a May 18, 2020 webinar on Empowering Patients as Palliative Care Ambassadors: Experiences, Tips and Templates presented by CCCC’s ePatient Ambassadors. Find more information and register at https://mailchi.mp/coalitionccc.org/no-one-should-die-alone-on-the-street-746028?e=67e1ad4c31.
The Center to Advance Palliative Care will present a May 15, 2018 webinar on Living with Kidney Disease: Pain and Itch, and the Role of Palliative Care. For details and registration see https://getpalliativecare.org/living-with-kidney-disease-pain-and-itch-and-the-role-of-palliative-care/.
The Coalition for Compassionate Care of California (CCCC) will present an August 18, 2016 webinar on The End of the Rainbow: What matters most to LGBTQ persons during serious illness. The webinar will cover key components of diversity, challenges of managing a diverse staff, and skills in creating protocols. One CEU will be available for nurses and social workers. Find more information and register at http://coalitionccc.org/training-events/webinars/ .
The same web page includes descriptions of and links to previous webinars and their recordings, including sessions on advance planning, intimacy, delirium, palliative care, communication, reimbursement, depression, California’s new EOL law, and POLST*. Many more webinars, tools, and resources can be found at http://coalitionccc.org/training-events/ .
The CCCC Annual Palliative Care Summit will be held in Sacramento CA March 13-14, 2017, and CCCC is now calling for presentations. Find out more at http://coalitionccc.org/training-events/annual-conference/cccc-annual-summit-call-presentations/ , http://coalitionccc.org/training-events/annual-conference/ (including links to presentations from earlier Summits), and http://ccccsummit.org/ .
* POLST, or Physician Orders for Life-Sustaining Treatment, serve the same function for current-time treatment, as Advance Directives do for future treatment. For more information on POLST, see http://www.polst.org/advance-care-planning/polst-and-advance-directives/ .
The NIH National Institute of Nursing Research provides a booklet for families regarding supportive medical and non-medical care for children suffering from a chronic disease such as CKD, called Palliative Care for Children: Support for the Whole Family When Your Child Is Living with a Serious Illness. Download a copy from https://www.ninr.nih.gov/sites/www.ninr.nih.gov/files/NINR_508cBrochure_2015-7-7.pdf .
The conference brochure, agenda, and registration details for the 41st Annual AAKP National Patient Meeting in Nashville TN on September 25-27, 2015 are now complete, and full information can be found at https://www.aakp.org/community/programs-events/aakp-national-patient-meeting.html . Early-bird discounts are available until June 30, 2015.
The conference theme is “Spotlighting Kidney Health,” and the agenda includes sessions on treatment innovation, patient engagement, social media, self-management, the healthcare team and communication, home dialysis, emotional preparedness, advance planning, nutrition, and thirty different “Lunch with the Experts” sessions. Nine CE hours are available for healthcare professionals.
We’ve added a Spanish edition of our patient newsletter Network Consumer News (aka Novedades para el consumidor de la Red) to the Network website, starting with the June issue on “Body Image, Palliative Care, and Vocational Rehabilitation,” or “Tómeselo con calma, Cuidado paliativo, et Rehabilitación Vocacional.” Find it at http://www.nwrenalnetwork.org/P/NCN.htm.
The latest Network Consumer News has been mailed to facilities for distribution to patients. If you haven’t gotten one, ask your facility, or contact the Network (http://www.nwrenalnetwork.org/contact.htm). This issue is on Body Image, Palliative Care, and Vocational Rehabilitation. There’s also a large print and a Spanish version of the newsletter, a copy of The Role of the Network in Handling Grievances in English and Spanish, and a Word Search puzzle. You can find online copies of all of this at http://www.nwrenalnetwork.org/P/NCN.htm.
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