Home Dialysis Central has published a new blog post called Getting the Most out of Telehealth for Home Dialysis Patients, describing what’s covered and what isn’t by COVID-19-related and other laws and waivers, what current facility policies are likely to be, features to be taken advantage of, and tips for success. Find the post at https://homedialysis.org/news-and-research/blog/363-getting-the-most-out-of-telehealth-for-home-dialysis-patient.
Home Dialysis Central has published a blog post on Traditional Dialysis vs. Transitional Care for Urgent Starts. Transitional Care for Urgent Starts (TCU) provides a gentler and more supportive introduction to dialysis for people whose kidneys fail with little warning, helping them get past the shock of a “sudden” change of just about everything in their life, and helping them make informed decisions about treatment modality. Of course kidneys don’t fail suddenly, but sometimes it seems that way to the person whose kidneys have failed. Find the post at https://homedialysis.org/news-and-research/blog/330-traditional-dialysis-vs-transitional-care-for-urgent-starts.
The University of Michigan Kidney Epidemiology and Cost Center, under contract to CMS, is seeking dialysis patient and facility staff volunteers to provide feedback, via a half-hour phone call, on a draft of a short self-report questionnaire on patient life goals. They seek both patients with experience on HD, PD, or HHD, and clinical staff (nephrologists, nurses, dieticians, social workers). Those interested are asked to send a one-paragraph statement describing your interest and experience, to firstname.lastname@example.org by September 12, 2019.
The ANNA Special Practice Networks have published a series of several-page Fact Sheets on a number of topics:
- Peritoneal Dialysis Fact Sheet at https://www.annanurse.org/download/reference/practice/pdFactSheet.pdf.
- Pediatric Peritoneal Dialysis Fact Sheet at https://www.annanurse.org/download/reference/practice/pedPDFactSheet.pdf.
- AKI Fact Sheet on Clinical Issues at https://www.annanurse.org/download/reference/practice/akiClinicalFactSheet.pdf.
- AKI Fact Sheet on Financial/Payment/Billing Issues at https://www.annanurse.org/download/reference/practice/akiFinancialFactSheet.pdf.
The UCLA Core Kidney Program has announced three new webinars and a patient-education meeting. For more information see https://www.uclahealth.org/core-kidney/upcoming-events.
- June 13, 2019: Peritoneal Dialysis – A Patient’s Experience webinar. Register at https://events.r20.constantcontact.com/register/eventReg?oeidk=a07egbezn4e6837e5bc&oseq=&c=&ch=.
- July 11, 2019: Alport Syndrome webinar. Check the uclahealth.org link above in mid-June for registration.
- July 14, 2019: High Blood Pressure – What You Should Know UKEEP patient-education meeting. See the uclahealth.org link above for more information and the RSVP phone number.
- August 8, 2019: Labs – What You Should Know webinar. Check the uclahealth.org link above in mid-July for registration.
My Life, My Dialysis Choice is a free English/Spanish, values-based dialysis treatment matcher developed by the non-profit MEI and endorsed by AAKP and Home Dialyzors United. You enter your lifestyle preferences, and My Life, My Dialysis Choice suggests treatment options most appropriate for you. The tool is written at a 5th grade reading level and includes ALL types of dialysis. Find My Life, My Dialysis Choice at https://mydialysischoice.org/. It may load in either English or Spanish, but you can switch by clicking on the “English” or “Español” button in the upper left corner of the screen.
The UCLA Health CORE Kidney program will present a February 21, 2019 webinar on Living Kidney Donation. For details and pre-registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/ucla022119.pdf.
UKEEP will host a February 24, 2019 workshop on Kidney Disease: What You Should Know in Santa Monica CA. See https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UKEEP022419.pdf for details and RSVP information.
The CORE Kidney program will also present:
- March 2, 2019 Diabetes Patient Conference; see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UCLA.dm030219.pdf for details and pre-registration information
- March 10, 2019 UKEEP PKD Update
- March 21, 2019 webinar on PD
- April 11, 2019 webinar on Fabry’s Disease
- May 2 webinar on the Kidney Health Fair
- May 5, 2019 Kidney Heath Fair at the Beach and Spirit Walk; for more information see https://www.uclahealth.org/core-kidney/kidney-health-fair.
Find more information, and recordings of earlier CORE Kidney and UKEEP programs, at https://www.uclahealth.org/core-kidney/, along with information about the UCLA PKD program and other related educational outreach.