AAKP is asking kidney patients to respond to an anonymous survey on whether and how they are being impacted by the current measles epidemic. Find the survey at https://www.surveymonkey.com/r/measlessurvey.
CMS has proposed that they improve their payments to rural hospitals, in an effort to improve rural health in the US. While this isn’t directly relevant to ESRD, it will certainly be relevant whenever a kidney patient needs services at a hospital in a rural area. Find the Proposed Rule and Request for Comment at https://www.govinfo.gov/content/pkg/FR-2018-05-07/pdf/2018-08705.pdf, and a Notice of Corrections at https://www.govinfo.gov/content/pkg/FR-2018-06-20/pdf/2018-13152.pdf. Comments are due by June 25, 2019. For background information see https://www.cms.gov/blog/putting-our-rethinking-rural-health-strategy-action and https://www.cms.gov/Medicare/Medicare-Fee-for-Service-Payment/AcuteInpatientPPS/FY2019-IPPS-Proposed-Rule-Home-Page-Items/FY2019-IPPS-Proposed-Rule-Regulations.html?DLPage=1&DLEntries=10&DLSort=0&DLSortDir=ascending.
The Medical Education Institute has written a blog post on Social Security Policies Related to Medicare: A Primer. It’s really complicated, so it may be more appropriate for a Social Worker than a patient, but if the Primer is this complex, the Reality must be especially daunting – which makes a Primer all the more valuable. Find the Primer at https://homedialysis.org/news-and-research/blog/307-social-security-policies-related-to-medicare-a-primer.
AAKP will present a May 14, 2019 webinar on Understanding Secondary Hyperparathyroidism (SHPT) – What is it? How can it be managed? Register at https://register.gotowebinar.com/register/8410471602615141899. Future HealthLine webinars will discuss Traveling While on Dialysis in June, and Exercise and Physical Rehabilitation in July. AAKP’s HealthLine page at https://aakp.org/aakp-healthline/ includes a link to their long list of past HealthLine webinars.
CMS has announced that the comment period for their Proposed Rules on Interoperability of Electronic Medical Records has been extended to June 3, 2019. The Proposed Rules are aimed at promoting the ability of different health information technologies to communicate with one another, and at enabling patients to electronically access their health information. Find the Proposed Rules at https://www.hhs.gov/about/news/2019/02/11/hhs-proposes-new-rules-improve-interoperability-electronic-health-information.html.
The extension of the public comment period coincides with release, from the HHS Office of the National Coordinator for Health Information Technology, of:
- The second draft of the Trusted Exchange Framework and Common Agreement (https://www.healthit.gov/topic/interoperability/trusted-exchange-framework-and-common-agreement)
- The related Notice of Funding Opportunity (https://www.healthit.gov/topic/onc-funding-opportunities/trusted-exchange-framework-and-common-agreement-recognized)
For More Information see:
- Notice of Proposed Rulemaking to Improve the Interoperability of Health Information webpage (https://www.healthit.gov/topic/laws-regulation-and-policy/notice-proposed-rulemaking-improve-interoperability-health)
- CMS Advances Interoperability & Patient Access to Health Data through New Proposals fact sheet (https://www.cms.gov/newsroom/fact-sheets/cms-advances-interoperability-patient-access-health-data-through-new-proposals)
- CMS Interoperability website (https://www.cms.gov/Center/Special-Topic/Interoperability-Center.html)
The Home Dialysis Central blog has published a post on Home Hemodialysis 101. Find it at https://homedialysis.org/news-and-research/blog/304-dialysis-101-for-home-hemodialysis-hd.