NKF and Swedish Medical Center will present a March 3, 2018 in-person workshop in Seattle called The Big Ask, The Big Give: A Workshop on Living Donation. The free half-day workshop will provide tools to find a living kidney donor, educate family and friends about living donation, and tell your story through social media and other channels. For details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/DONATE/BABG.0318.pdf.
Kidney Care Partners (https://www.pr.com/press-release/744275) has summarized the ESRD-related provisions of the new budget law, H.R.1892 – Bipartisan Budget Act of 2018; the Act “will expand the use of home dialysis therapy through use of telehealth services; expedite patient access to quality dialysis care at newly certified facilities; and extend authority for Special Needs Plans (C-SNPs) without interruption in care.” In addition, payments for non-emergency ambulance use are reduced.
While the legislation as passed and signed may not be effective until HHS converts it to administrative law, the original lawyerese can be found at:
- For home health telehealth, https://www.congress.gov/bill/115th-congress/house-bill/1892/text#toc-HD17800AE048F430AB1B9EEFBB03FDD55.
- For newly certified units: “an initial survey of a … renal dialysis facility … shall be initiated not later than 90 days after such date on which both the provider enrollment form … [is] complete and the provider’s enrollment status indicates approval is pending the results of such survey,” https://www.congress.gov/bill/115th-congress/house-bill/1892/text#toc-H63740900ED184AAFA50F73B6BE696312.
- For continued access to Medicare Advantage special needs plans for vulnerable populations, https://www.congress.gov/bill/115th-congress/house-bill/1892/text#toc-H89926B550ADD45858E6C1A410176952E.
- For reduction of non-emergency ESRD ambulance transport payments, https://www.congress.gov/bill/115th-congress/house-bill/1892/text#toc-HC2CE8E0B05404D7CAB3E35F887FDC255.
The Erase the Wait program will present a training in Portland OR for volunteer transplant mentors on February 24, 2018, and for CKD and dialysis patients on March 18, March 25, and April 1, 2018. For details see https://www.erasethewait.org/about, the graphic below, and https://www.youtube.com/watch?v=XGkYnpQpgMM.
Previous Erase the Date mentor and mentee participants are invited to a reunion in Portland on March 14, 2018; for details see https://www.donatelifenw.org/civicrm/event/info?id=8390&reset=1.
Discounted ticket sales for Donate Life Northwest’s Family Night Trailblazers basketball game March 30, 2018 in Portland close on February 26, 2018.
February 14, 2018 is National Donor Day. For more information see https://unos.org/get-involved/promote-organ-donation/.
The University of Washington Medical Center Team Transplant provides a life-changing wellness program for transplant recipients and their support team through regular exercise, healthy eating and community support, while promoting organ donation awareness. They will hold their Annual Fundraising Dinner February 24, 2018 on the UW campus. For more information on the Dinner and on Team Transplant, and to register for the Dinner, see http://www.cvent.com/events/team-transplant-s-annual-fundraising-dinner/event-summary-9929a6b93dcc4d1996b2693577152b25.aspx.
UM-KECC is seeking nominations for patients, caregivers, and providers to participate on one of several focus groups on Patient Reported Outcomes (PRO). The focus groups will be held to elicit feedback and suggestions for draft question content for two PRO measure topics, Patient Life Goals and Patient Feeling of Safety. The focus groups will be 2 hour webinar teleconference meetings. Patient and caregiver nominations require a brief statement of interest, a CV or resume if relevant, and disclosure of any conflicts of interest. Submit this material to firstname.lastname@example.org by February 28, 2018. Contact Jordan Affholter at email@example.com with any questions. For details and a conflict disclosure form, see https://annanurse.org/article/call-nominations-esrd-patient-reported-outcomes-focus-groups-january-24-18.