AAKP’s Center for Patient Research & Education (https://aakp.org/center-for-patient-research-and-education/research/) is collaborating with the FDA to foster engagement with patients, caregivers, and patient advocates throughout the development, evaluation and surveillance of medical devices in order to gain insight from patients and caregivers about their experiences living with their diseases as well as experiences with medical devices intended to diagnose and treat their medical conditions. To further this effort, AAKP asks members to take a brief anonymous survey about the devices you have used. Find the survey at https://www.surveymonkey.com/r/GGTZNKX.
The ASN Kidney Health Initiative has published a prospective Technology Roadmap for Innovative Approaches to Renal Replacement Therapy, and solicits public comments on the document by September 14, 2018. Find the document at https://www.asn-online.org/membership/BlastEmails/files/KHI%20RRT%20Roadmap_081418_Draft%20for%20Public%20Comment%20(002).pdf, and comment at https://www.asn-online.org/khi/project.aspx?ID=65.
Recordings of the 43rd AAKP National Patient Meeting, held June 8-10, 2018 in St. Petersburg FL, are now available online, at https://www.youtube.com/channel/UCwT_eU7vwGtHSapN8PKc-Hw. Sessions include:
- Assessing Dialysis Facility Quality: CMS Engagement of Kidney Patients
- Innovations in Kidney Disease Care
- Paving the Way for a Better Tomorrow: Understanding Clinical Trials
- Improving Kidney Care and Treatment Options – NIH Kidney Precision Medicine Project
- Innovation, Patient Focus and Care Improvement – Veterans Administration Leadership in Kidney Care
- Nutrition 101: Understanding & Enjoying Your Kidney-Friendly Diet
- Patient-Centered Kidney Disease Care: How to Change the Status Quo
NKF, the Portland Kidney Group, and Legacy Health will present a March 18, 2018 Patient & Community Education Symposium in Portland OR on Everyday Heroes and New Technology and Treatment Updates. For details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/NKF/PrtldSymp2018.pdf.
NKF and the Portland Kidney Group will present their 2018 Patient & Community Education Symposium March 18, 2018 in Portland, on the theme Everyday Heroes; New Technology & Treatment Updates, which includes updates on Transplants and the wearable kidney. Nominate your own favorite transplant or dialysis patient to be honored as an Everyday Hero using the form, before March 2, 2018, at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/NKF/EvdHeroNom2018.pdf. Find the Symposium poster at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/NKF/PrtldSymp2018.pdf.
ANNA, NANT, and NKF will collaborate to present an October 22, 2017 Annual Renal Update 2017 in Irvine CA. Sessions will include Interventional Radiology and the HD Access, Preventing & Reporting BSI, From Battling Burnout to Finding Joy, Understanding Technology, Friendly Renal Meals, Transplantation, and Outpatient AKI. Register by October 12, 2017. Breakfast and lunch are included in the conference fee, and seven contact hours will be given. For full details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/18RenalUpdate1017.pdf .
If you’ve been around dialysis for a long time, you know of Chris Blagg. He worked with Dr. Belding Scribner to basically invent modern kidney dialysis. Dr. Blagg has recently published a new book, From Miracle to Mainstream: Creating the World’s First Dialysis Organization, relating his first-hand knowledge of the clinical and political history of the first half-century of kidney dialysis in the US, including extensive documentation about the advocacy that led to the 1972 landmark legislation establishing the ESRD program within Medicare. Find a video preview at https://www.youtube.com/watch?v=Ig88oObeX3Y . The book is available now from booksellers.