CMS has published a summary of changes and other important information about the October 2019 update to Dialysis Facility Compare (https://www.medicare.gov/dialysisfacilitycompare/). Find the summary at https://www.cms.gov/Medicare/End-Stage-Renal-Disease/ESRDGeneralInformation/Downloads/DFC-October-2019-Release-Q-and-A.pdf.
The Kidney Community Emergency Response Coalition has published a list of useful resources for patients and others dealing with the wildfires in California. The list includes links or contact information for KCER, Network 18, Cal Fire, the LA Fire Department, each dialysis provider, several Helplines and hotlines, Rx Open to locate operating pharmacies, the power companies, the California Emergency Operations Center, and a wildfire resource compendium from the HHS Healthcare Emergency Preparedness Information Gateway ASPR TRACIE. Find the list at https://kcercoalition.com/en/california-fires/.
AAKP will present a November 13, 2019 webinar on The Veteran’s Perspective: AAKP’s Veteran’s Health Initiative, when AAKP Ambassadors and veterans discuss private sector kidney care for veterans, how to obtain VA (US Department of Veterans Affairs) assistance, and care across the Department of Defense (DoD) and VA. Register at https://register.gotowebinar.com/register/4555638814973772300. Find more information about the AAKP Veteran’s Health Initiative at https://aakp.org/center-for-patient-engagement-and-advocacy/veterans-health-initiative/.
UCLA’s CORE Kidney Program has announced the timing of their next several webinars, UKEEP meetings, and annual Kidney Fair at the Beach. They will present:
- A December 3, 2019 webinar on the UCLA CORE Kidney Program itself called Giving Tuesday; find a poster about it, with registration information, at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/UKEEP/UCLACore120719.pdf.
- A December 8, 2019 UKEEP meeting on Drugs and Medications: What You Need to Know.
- A January 16, 2020 webinar on High Blood Pressure: What You Need to Know.
- A February 13, 2020 webinar on Living Kidney Donation.
- Their May 17, 2020 Kidney Fair at the Beach.
For more information on these and to RSVP, see https://www.uclahealth.org/core-kidney/upcoming-events.
Home Dialysis Central has published a new blog post describing various insurance plans and how individuals in various situations can manage them to minimize the cost of dialysis, called Fact Sheet on Health Plans & Tips to Save Money on Dialysis Health Care. Find the blog post at https://homedialysis.org/news-and-research/blog/334-fact-sheet-on-health-plans-tips-to-save-money-on-dialysis-health-care and a pdf poster of the table of plans/situations and tips, at https://homedialysis.org/documents/Health-Plan-Status-&-Tips-BW-10-25-2019.pdf.
Dialysis Patient Citizens will present a November 21, 2019 webinar on Treatments and Modality Options for Kidney Disease. For details see below, and register at https://www.dpcedcenter.org/news-events/education-webinars/signup/.
Home Dialysis Central has published a blog post on the “invisible” disabilities that often afflict ESRD patients. The Medical Education Institute has commissioned a self-adhering window sticker for your car that says “Invisible Disability,” with the idea that you can just point to the sticker rather than trying to explain yourself whenever you are questioned about parking. Ordering instructions are included in the article. We didn’t read the post in time to announce it before or during, but this past week was 2019 Invisible Disabilities Week. Find out more from the Invisible Disabilities Association at https://invisibledisabilities.org/seminarsandevents/invisible-disabilities-week/attachment/2019-invisible-disabilities-week-is-here-oct-13th-19th/.