4/12 CMS Feedback Webex

The CMS Quality Improvement and Innovation Group is hosting a session with Medicare beneficiaries, families, caregivers, and advocates to gather information about healthcare quality improvement integration, gaps, and ideal outcomes, on Wednesday, April 12, 2017 at 2pm EDT, which is 11am PDT.  You can join the Webex at https://mitre.webex.com/mw3100/mywebex/default.do?service=1&siteurl=mitre&nomenu=true&main_url=%2Fmc3100%2Fe.do%3Fsiteurl%3Dmitre%26AT%3DMI%26EventID%3D242824642%26UID%3D0%26Host%3DQUhTSwAAAAPoyDgLCLfLHjFHMF3xlLgEaTGbwbt46gcB7K653b4OYK3brFSWysdXI47I6qwFjY4ppqs-YZaENcrmcI4mHSBk0%26FrameSet%3D2%26MTID%3Dm346742cc4264be6c6281a1ac541e94d5 , meeting number or access code 634 491 197, password QIO12SoW.  Or you can call in to 877-668-4490.

You can get Webex help at http://help.webex.com/ .  The CMS QIIG is at https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/QualityImp rovementOrgs/Current.html .

Advance Planning Booklet

The Coalition for Supportive Care of Kidney Patients (http://kidneysupportivecare.org/Home.aspx) has created a booklet called Planning Today for Tomorrow’s Healthcare: A Guide for People with Chronic Kidney Disease.  You can find a copy at http://kidneysupportivecare.org/Files/ACPforCKDbrochure3-2017.aspx .

Nat’l SW Month

March is also National Social Work month.  We’ve added web pages to the Network 16 website describing a few skills that social workers bring to patients and facilities.  Among the many things social workers do are:

  • Help manage kidney disease
  • Help assure quality of life
  • Help with rehabilitation
  • Help with education
  • Help assure satisfaction

Find the flyer for facilities in this month’s Network 16 News at https://www.nwrn.org/providers-and-professional-staff/nw16n.html and this month’s Patient Bulletin for posting or handout to patients at https://www.nwrn.org/patients-a-family/ptedres/mon.html .

3/23 DPC Sex with CKD Webinar

Dialysis Patient Citizens will present a webinar on Sex and Intimacy with CKD March 23, 2017.  Sex is good medicine.  It has health benefits, feels good, strengthens relationships and makes life more rewarding. CKD can interfere with physical intimacy, but it can’t prevent it.  Learn about why sex is important, possible, and beneficial. Learn ways to be intimate that any body can do, how to enjoy it more, and how to find new sources of physical connection.  For more information on the webinar and registration, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/DPC.sex.0317.pdf .

1/30 Grief and Music

The Coalition for Compassionate Care of California will co-sponsor a free webinar titled The Transforming Power of Music, with Olivia Newton-John and Friends on January 30, 2017.  Loss and grief occur for many reasons — whether it’s caring for a seriously ill patient, or losing a loved one, a relationship, one’s health, a pet, or a job.  It’s important to remember that each person’s grief is as individual as his or her DNA – and there truly is no timeline for healing from loss.  With the fast-paced society we live in, we are often forced to “get over things.”  However, grief has its own clock.  For details and registration see https://attendee.gotowebinar.com/register/5001456673658620163 .

1/15 RSN Teen Prom

The Renal Support Network will sponsor their 18th Annual Renal Teen Prom in Glendale CA on January 15, 2017.  Many teenagers with kidney disease miss large amounts of school because of prolonged absences due to health.  The prom, free to kidney disease patients between the ages of 14 and 24 and a companion, brings these young people together to share their experiences, strengths, and hopes.  As one of last year’s attendees said, “Once you’ve been here at the prom, everyone is like family to you.  This is my sixth year coming to the prom.  I started when I was at a very low point in my life with medical issues and depression and this event really cheered me up.  The other 364 days of the year, I’m a girl with an illness, but on this night I’m here to have fun and I’m actually myself.”  For details, invitations, and opportunities to support the Prom, see http://www.rsnhope.org/renal-teen-prom/ .