The PKD Foundation will also sponsor an August 19, 2017 Seattle Friends & Family Potluck Picnic & Lemonade Stand, in Seward Park (Seattle). Find more information at http://support.pkdcure.org/site/Calendar?view=Detail&id=101846 .
The Foundation will also sponsor the three-mile Seattle Walk for PKD on October 1, 2017 at Green Lake (Seattle). For details, posters, to register for the Walk or the associated Penny Kids Dash, and to donate, see http://support.pkdcure.org/site/TR/Walk/WalkforPKD?fr_id=1766&pg=entry . So far they have pledges of $10,000 for the Walk, and they seek at lease $45,000 more to support PKD research and create better lives for those impacted by polycystic kidney disease.
Medicare has published a Dialysis Facility Compare Social Media Toolkit brochure in three versions (for patients or consumers, for dialysis facilities, and for physicians) and two languages (English and Spanish). They provide graphic and text suggestions for sharing and promoting DFC on social media. Find copies of them at:
CMS will hold an Open Door Forum feedback session April 20, 2017 in Baltimore MD, with virtual attendance available, on the CMS Quality Improvement Organization (QIO) program, which includes the ESRD Networks. CMS will be seeking input from stakeholders and the general public about how to implement QIO program goals of maximizing program efficiency while continuing to improve quality of care for Medicare beneficiaries. For details and registration see https://register.mitre.org/CMS_Special_Session/ .