AAKP Patient Meeting Recorded

Recordings of the 43rd AAKP National Patient Meeting, held June 8-10, 2018 in St. Petersburg FL, are now available online, at https://www.youtube.com/channel/UCwT_eU7vwGtHSapN8PKc-Hw.  Sessions include:

  • Assessing Dialysis Facility Quality: CMS Engagement of Kidney Patients
  • Innovations in Kidney Disease Care
  • Paving the Way for a Better Tomorrow: Understanding Clinical Trials
  • Improving Kidney Care and Treatment Options – NIH Kidney Precision Medicine Project
  • Innovation, Patient Focus and Care Improvement – Veterans Administration Leadership in Kidney Care
  • Nutrition 101: Understanding & Enjoying Your Kidney-Friendly Diet
  • Patient-Centered Kidney Disease Care: How to Change the Status Quo

NW18 7/16 Quality Conference in LA

HealthInsight ESRD Network 18 will hold their 2018 Quality Conference July 16, 2018 in Los Angeles. Topics will include preserving renal function, emergency preparedness, cultural awareness and sensitivity, patient engagement and advocacy, the impact of dialysis, and CROWNWeb.  Five CEs will be provided.  Find details and register at http://www.esrdnetwork18.org/ or http://events.r20.constantcontact.com/register/event?oeidk=a07efdferr9f760399d&llr=gfuz7mxab.

1/5 Physician Measures TEP

CMS has contracted with UM-KECC to develop one or more measures related to the quality of care provided to ESRD dialysis patients by physicians, and is recruiting transplant and dialysis patients to serve on the Technical Expert Panel that will propose such measures.  Nominations are due by January 5, 2018.  For details see https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/TEP-Currently-Accepting-Nominations.html#001.

NW16 National Board Patient Members Needed

Network 16 is seeking volunteers – patients or care partners – to represent the Network on two national committees:

ESRD National Coordinating Center’s Patient and Family Engagement Learning & Action Network:

  • Volunteers are asked to commit to participating in scheduled conference calls and webinars, usually every month or every other month
  • Centers for Medicare & Medicaid Services (Medicare) representatives are on the calls, providing an opportunity for volunteers to work closely with the federal government to improve patient care
  • The patient representative with the highest level of participation (attendance) gets to travel to Baltimore for a national meeting of the committee
  • Learn more about the committee at http://ncc.hshapps.com/en/patients/national-patient-and-family-engagement-lan-npfe-lan/.
  • We need one patient from Idaho, and one from Montana

Kidney Community Emergency Response Coalition (KCER):  This is a national group devoted to improving emergency preparedness and response for kidney patients and ESRD facilities.  This involves quarterly conference calls.  Learn more about the Coalition at http://www.kcercoalition.com/.  We need two patients from any Network state – Alaska, Idaho, Montana, Oregon, or Washington.

Anyone interested should email Lisa Hall at LHall@nw16.esrd.net or call 206-923-0714.

12/7 Patient Revolution WIHI

The Institute for Healthcare Improvement will host a free 7 December, 2017 audio “WIHI” program on The (Careful and Kind) Patient Revolution., featuring the Mayo Clinic’s Victor Montori, MD.  This Patient Revolution is “a movement based on stories.  [It’s] mission is to arm people to tell stories; stories about their lives, stories about their capabilities and limitations, and stories about what risks, benefits and trade-offs look like from their point of view.  We want people to tell these stories in exam rooms and hospital rooms, in their communities and in the rooms where decisions get made.”  For more information and to register, see http://forms.ihi.org/next-wihi-on-december-7-at-2-pm-et-the-careful-and-kind-patient-revolution.  For The (Careful and Kind) Patient Revolution website, see https://patientrevolution.org/whywerevolt/.

11/21 Patients as Hostages WIHI

IHI will present a free November 21, 2017 “WIHI” audio program on When Patients Feel as Powerless as Hostages.  For full details see http://forms.ihi.org/next-wihi-on-november-21-at-2-pm-et-when-patients-feel-as-powerless-as-hostages .

11/8 NW16 Donate Life Breakfast

Donate Life Northwest will sponsor their annual Lifesavers Breakfast November 8, 2017 in Portland OR.  The event is the largest gathering of the area’s donation and transplant community.  Donate Life Northwest welcomes additional Sponsors and volunteers.  For more information and to RSVP, see http://www.donatelifenw.org/content/lifesavers-breakfast .