4/20 Feedback to CMS

CMS will hold an Open Door Forum feedback session April 20, 2017 in Baltimore MD, with virtual attendance available, on the CMS Quality Improvement Organization (QIO) program, which includes the ESRD Networks.  CMS will be seeking input from stakeholders and the general public about how to implement QIO program goals of maximizing program efficiency while continuing to improve quality of care for Medicare beneficiaries.  For details and registration see https://register.mitre.org/CMS_Special_Session/ .

4/12 CMS Feedback Webex

The CMS Quality Improvement and Innovation Group is hosting a session with Medicare beneficiaries, families, caregivers, and advocates to gather information about healthcare quality improvement integration, gaps, and ideal outcomes, on Wednesday, April 12, 2017 at 2pm EDT, which is 11am PDT.  You can join the Webex at https://mitre.webex.com/mw3100/mywebex/default.do?service=1&siteurl=mitre&nomenu=true&main_url=%2Fmc3100%2Fe.do%3Fsiteurl%3Dmitre%26AT%3DMI%26EventID%3D242824642%26UID%3D0%26Host%3DQUhTSwAAAAPoyDgLCLfLHjFHMF3xlLgEaTGbwbt46gcB7K653b4OYK3brFSWysdXI47I6qwFjY4ppqs-YZaENcrmcI4mHSBk0%26FrameSet%3D2%26MTID%3Dm346742cc4264be6c6281a1ac541e94d5 , meeting number or access code 634 491 197, password QIO12SoW.  Or you can call in to 877-668-4490.

You can get Webex help at http://help.webex.com/ .  The CMS QIIG is at https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/QualityImp rovementOrgs/Current.html .

Patient Employment and Advisory Council

The December issue of the Northwest Renal Network’s patient newsletter, Network Consumer News, focuses on the Patient Advisory Council or PAC, and includes stories about three of the seven current PAC members and their experience with Vocational Rehabilitation.  We’ve mailed these to facilities for distribution, but you can get a copy on the Network 16 website.  As usual, we also have a Spanish edition and a large-print edition.  With this issue we’ve also included a flyer or poster encouraging committed and engaged patients and care partners to join the PAC.  Find them all at https://www.nwrn.org/patients-a-family/ptedres/ncn.html .  You can also find more information on the Network 16 PAC at https://www.nwrn.org/patients-a-family/patient-advisory-committee.html .  In southern California, find information about the Network 18 PAC and other volunteer opportunities at http://www.esrdnetwork18.org/patients/how-to-get-involved/ and http://www.esrdnetwork18.org/about/governance/ .

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Grievance Toolkit

The Kidney Patient Advisory Council (KPAC)  and the Forum of ESRD Networks Medical Advisory Council (MAC) have announced the release of the Dialysis Patient Grievance Toolkit.  This toolkit was written BY PATIENTS and FOR PATIENTS and is intended to help guide dialysis patients through the grievance process.  KPAC acknowledges the help and support of the entire ESRD Network system in creating the Toolkit.  Find it and the other MAC Toolkits at http://esrdnetworks.org/mac-toolkits-1 .

9/14 AAKP HealthLine on Twitter

AAKP will present a September 14, 2016 AAKP HealthLine webinar on The Power of Twitter to Build Your Patient Voice, featuring a social media expert who’s also a kidney patient.  For information and registration see https://www.aakp.org/community/programs-events/aakp-healthline.html .  For a library of recorded prior HealthLine webinars, see https://www.aakp.org/media-files/aakp-healthline.html .

6/28 Patient-Family Advisors

Patient & Family Centered Care Partners (known as PFCCpartners) will host a Patient Family Advisors (PFA) Skills Exchange on June 28, 2016 at Pomona Valley Medical Center in Pomona, CA.   The PFA Skills Exchange is a 4-hr preparatory course for patients and families working with healthcare organizations in an advisory capacity.  All PFAs are welcome to join.  For more information and registration, see  https://pfccpartners.com/services/patient-family-advisor-skills-exchange/ .

The PFA Skills Exchange is intended for Patient Family Advisors.  Healthcare Professionals are encouraged to contact Stephen@pfccpartners.com to learn about other programs more applicable to your needs.