IHI will present a free November 21, 2017 “WIHI” audio program on When Patients Feel as Powerless as Hostages. For full details see http://forms.ihi.org/next-wihi-on-november-21-at-2-pm-et-when-patients-feel-as-powerless-as-hostages .
Donate Life Northwest will sponsor their annual Lifesavers Breakfast November 8, 2017 in Portland OR. The event is the largest gathering of the area’s donation and transplant community. Donate Life Northwest welcomes additional Sponsors and volunteers. For more information and to RSVP, see http://www.donatelifenw.org/content/lifesavers-breakfast .
CMS has announced a Request For Information soliciting suggestions on how to create an affordable, accessible healthcare system that puts patients first. Find details and comment at https://survey.max.gov/429625 .
The Seattle Chapter of the PKD Foundation will host an August 16, 2017 Coffee Chat in Factoria (Bellevue WA) to promote networking among people affected by PKD. The discussion is informal, but a topic or guest speaker is usual. For details and to sign up, see http://support.pkdcure.org/site/Calendar?view=Detail&id=101732 . These events are held more or less monthly; the next one will be September 10, 2017. Watch https://pkdcure.org/chapter/seattle/ for details.
The PKD Foundation will also sponsor an August 19, 2017 Seattle Friends & Family Potluck Picnic & Lemonade Stand, in Seward Park (Seattle). Find more information at http://support.pkdcure.org/site/Calendar?view=Detail&id=101846 .
The Foundation will also sponsor the three-mile Seattle Walk for PKD on October 1, 2017 at Green Lake (Seattle). For details, posters, to register for the Walk or the associated Penny Kids Dash, and to donate, see http://support.pkdcure.org/site/TR/Walk/WalkforPKD?fr_id=1766&pg=entry . So far they have pledges of $10,000 for the Walk, and they seek at lease $45,000 more to support PKD research and create better lives for those impacted by polycystic kidney disease.
AKF will present a June 16, 2017 webinar on Protein: Who Needs It Anyway? You Do! Find details and register at http://www.kidneyfund.org/training/webinars/ .
At the same web page you can find recordings of their past webinars, including:
- Humanizing Dialysis; Choosing the best type of treatment for kidney failure can be difficult for patients, especially when they receive little guidance
- Saying no to dialysis: choosing conservative care for end-stage kidney disease
- A patient’s perspective: Be your own advocate; Navigating the health care system as a patient can be challenging
- Heart disease and kidney disease – what’s the connection? – Heart disease can cause kidney disease, and kidney disease can cause heart disease
- Unique strategies for improving the effectiveness of exercise training in patients with kidney failure
- Paired kidney exchanges and opportunities for kidney transplant in minority patients
- Living with diabetic kidney disease; Diabetes is the leading cause of kidney disease, and many people suffer from both conditions
- Enfermedad de los riñones crónica: prevención y tratamiento; Con motivo de la celebración del Mes de la Herencia Hispana, ¡brindaremos nuestro primer seminario web en español!
- Emergency preparedness and kidney disease – using KCER as a resource
- Organ transplant among minorities: How we can reduce the need and improve access
- I need a kidney transplant. Am I covered now? What about in the future?
- Staying employed with kidney disease; A diagnosis of kidney failure doesn’t have to mean quitting your job
- What CAN I eat? Nutrition for dialysis patients
- Living with chronic kidney disease: The ups, downs, and all arounds
- Chronic Kidney Disease: A General Overview and Keys for Successful Management
Medicare has published a Dialysis Facility Compare Social Media Toolkit brochure in three versions (for patients or consumers, for dialysis facilities, and for physicians) and two languages (English and Spanish). They provide graphic and text suggestions for sharing and promoting DFC on social media. Find copies of them at:
- DFC Consumer Social Media Toolkit: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Eng.DFCToolkit.Pts.pdf
- Herramientas de Redes Sociales para el Consumidor sobre la Comparación de Centros de Diálisis: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Esp.DFCToolkit.Pts.pdf
- DFC Social Media Toolkit for Dialysis Centers: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Eng.DFCToolkit.Facs.pdf
- Herramientas de Redes Sociales para los Centros de Diálisis sobre la Comparación de Centros de Diálisis: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Esp.DFCToolkit.Facs.pdf
- DFC Social Media Toolkit for Physicians: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Eng.DFC.Toolkit.Docs.pdf
- Herramientas de Redes Sociales para los Médicos sobre la Comparación de Centros de Diálisis: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Esp.DFCToolkit.Docs.pdf
CMS will hold an Open Door Forum feedback session April 20, 2017 in Baltimore MD, with virtual attendance available, on the CMS Quality Improvement Organization (QIO) program, which includes the ESRD Networks. CMS will be seeking input from stakeholders and the general public about how to implement QIO program goals of maximizing program efficiency while continuing to improve quality of care for Medicare beneficiaries. For details and registration see https://register.mitre.org/CMS_Special_Session/ .