New NKF Patient Support Communities

NKF and HealthUnlocked have created four new online communities to provide help, support, and information for:

HealthUnlocked is the third largest health website in the UK and in the top 20 globally.  With over 40 million users per year in over 500 unique communities, the HealthUnlocked website increases patient engagement and contributes to improved health outcomes through its online health and well-being forums.  https://healthunlocked.com/ is a social platform and mobile application with moderated online health communities in which visitors can access useful information and services; seek advice, support and mentoring from peers; be empowered to make better healthcare decisions; and help advance medical research and understanding.  The HealthUnlocked platform is used as a clinical care planning tool in 75 hospitals in the UK.

Find the NKF announcement at https://www.kidney.org/news/new-collaboration-between-nkf-and-healthunlocked-to-provide-free-online-support-community .

SC 5/5+ UCSD Transplant 101

UCSD Kidney/Pancreas Transplant will present Transplant 101: Patient and Family Information Meetings, which are required for all new patients before starting transplant evaluation.  The Meetings, which cover the waitlist, financing, medications, and post-transplant life, are held at the UCSD campus in La Jolla.  Valet parking is complementary.

Advance Planning Booklet

The Coalition for Supportive Care of Kidney Patients (http://kidneysupportivecare.org/Home.aspx) has created a booklet called Planning Today for Tomorrow’s Healthcare: A Guide for People with Chronic Kidney Disease.  You can find a copy at http://kidneysupportivecare.org/Files/ACPforCKDbrochure3-2017.aspx .

1/11 New CfC: 3rd-Party Payment

CMS has published a new rule in the Federal Register pertaining to Conditions for Coverage for ESRD Facilities – Third Party Payment.  Comments can be made until January 11, 2017.  The new Conditions will be effective January 13, 2017.  Because CMS has determined that current practices can significantly harm patients, they have shortened both the public comment period and the effective date of the rule.  Find the new rule at https://www.federalregister.gov/documents/2016/12/14/2016-30016/medicare-program-conditions-for-coverage-for-end-stage-renal-disease-facilities-third-party-payment .

Funding for Shared Decisionmaking Studies

The HHS Agency for Healthcare Research and Quality is soliciting proposals for research projects to develop, test, and evaluate measures of shared decisionmaking for research conducted in clinical settings.  Shared decisionmaking is a collaborative process in which patients and members of their clinical team make health care decisions that are informed by scientific evidence as well as patients’ values and preferences.  For more information see http://www.ahrq.gov/news/share.html .

Choosing a Facility

We’ve added the November Monthly Patient Bulletin to the Network 16 website.  This issue is all about selecting a facility for dialysis, with an emphasis on Medicare’s Dialysis Facility Compare website, https://www.medicare.gov/dialysisfacilitycompare/ .  If you haven’t gotten a copy of the Monthly Patient Bulletin, you can find one at https://www.nwrn.org/patients-a-family/ptedres/mon.html .

11/3 CCCC Advanced Care Plan Workshop

The Coalition for Compassionate Care of California will present a workshop November 3, 2016 in Los Angeles on Let’s Talk: Promoting & Engaging in Advance Care Planning.  6 CEUs are available.  For more information see http://coalitionccc.org/training-events/community-based-advance-care-planning/ .