Legacy Transplant Services will present four classes on Is Kidney Transplant Right for You? in Portland during 2018, on March 7, May 3, September 12, and November 8. For details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/Legacy/LegacyTrx0318.pdf, and register at http://www.legacyhealthevents.org.
NKF and HealthUnlocked have created four new online communities to provide help, support, and information for:
- Kidney Disease Community for anyone affected by or at risk of kidney disease – https://healthunlocked.com/nkf-ckd
- Kidney Dialysis Community for support of people on dialysis – https://healthunlocked.com/nkf-dialysis
- Living Donor Community for people who have donated a kidney – https://healthunlocked.com/nkf-donors
Transplant Community for people who have had a transplant, are waiting for a transplant, or are a family member/friend/caregiver – https://healthunlocked.com/nkf-kidneytransplant
HealthUnlocked is the third largest health website in the UK and in the top 20 globally. With over 40 million users per year in over 500 unique communities, the HealthUnlocked website increases patient engagement and contributes to improved health outcomes through its online health and well-being forums. https://healthunlocked.com/ is a social platform and mobile application with moderated online health communities in which visitors can access useful information and services; seek advice, support and mentoring from peers; be empowered to make better healthcare decisions; and help advance medical research and understanding. The HealthUnlocked platform is used as a clinical care planning tool in 75 hospitals in the UK.
Find the NKF announcement at https://www.kidney.org/news/new-collaboration-between-nkf-and-healthunlocked-to-provide-free-online-support-community .
UCSD Kidney/Pancreas Transplant will present Transplant 101: Patient and Family Information Meetings, which are required for all new patients before starting transplant evaluation. The Meetings, which cover the waitlist, financing, medications, and post-transplant life, are held at the UCSD campus in La Jolla. Valet parking is complementary.
- Meetings in English will be held May 5, 18, and 23; June 2 and 15; July 7 and 20, and August 4 and 17. For complete details in English, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/Transplant101En.05.08.17.pdf .
- Meetings in Spanish will be held May 11, June 14, July 13, and August 9. For complete details in Spanish, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/Transplant101Sp.05.08.17.pdf .
The Coalition for Supportive Care of Kidney Patients (http://kidneysupportivecare.org/Home.aspx) has created a booklet called Planning Today for Tomorrow’s Healthcare: A Guide for People with Chronic Kidney Disease. You can find a copy at http://kidneysupportivecare.org/Files/ACPforCKDbrochure3-2017.aspx .
CMS has published a new rule in the Federal Register pertaining to Conditions for Coverage for ESRD Facilities – Third Party Payment. Comments can be made until January 11, 2017. The new Conditions will be effective January 13, 2017. Because CMS has determined that current practices can significantly harm patients, they have shortened both the public comment period and the effective date of the rule. Find the new rule at https://www.federalregister.gov/documents/2016/12/14/2016-30016/medicare-program-conditions-for-coverage-for-end-stage-renal-disease-facilities-third-party-payment .
The HHS Agency for Healthcare Research and Quality is soliciting proposals for research projects to develop, test, and evaluate measures of shared decisionmaking for research conducted in clinical settings. Shared decisionmaking is a collaborative process in which patients and members of their clinical team make health care decisions that are informed by scientific evidence as well as patients’ values and preferences. For more information see http://www.ahrq.gov/news/share.html .
We’ve added the November Monthly Patient Bulletin to the Network 16 website. This issue is all about selecting a facility for dialysis, with an emphasis on Medicare’s Dialysis Facility Compare website, https://www.medicare.gov/dialysisfacilitycompare/ . If you haven’t gotten a copy of the Monthly Patient Bulletin, you can find one at https://www.nwrn.org/patients-a-family/ptedres/mon.html .