Grievance Toolkit in Spanish

The National Forum of ESRD Networks has created a Spanish version of its new Dialysis Patient Grievance Toolkit.  Find it at http://esrdnetworks.org/resources/toolkits/patient-toolkits/dialysis-patient-grievance-toolkit-1 .  It joins the catalog of Forum Medical Advisory Council (MAC) and Patient Toolkits, which now include:

  • Home Dialysis
  • Transitions of Care
  • Medical Director
  • QAPI
  • Medication Reconciliation
  • Catheter Reduction
  • Assurance of Diabetes Care Coordination
  • Vaccination

Find them all, along with the MAC Speaker’s Bureau Brochure, at http://esrdnetworks.org/resources/toolkits/mac-toolkits-1 .

10/20 Earthquake Drills

A “Great Shakeout” will be held October 20, 2016 to further earthquake disaster preparedness.  The websites below offer links to many different types of resources, and regional summaries of who’s already signed up, for each state and in Spanish:

10/4 Spanish Resources; CE Webinars

In honor of Hispanic Heritage Month (9/15-10/15), CDC is highlighting the Spanish-language resources in their National Diabetes Education Program (NDEP).  Find them at https://www.cdc.gov/diabetes/ndep/communities/hispanic-latino-american/resources.html .

Also in honor of Hispanic Heritage Month, the American Kidney Fund will present Enfermedad de los riñones crónica: prevención y tratamiento (Chronic Kidney Disease: Prevention and Treatment), a webinar entirely and only in Spanish, on October 4, 2016.  For details see http://www.kidneyfund.org/training/webinars/ .

AKF also offers free recorded CE courses in their Cornerstones of Care series, on:

For the many other free AKF webinars, see https://akf.lms.ethosce.com/health-care-professionals/courses and http://www.kidneyfund.org/training/webinars/ .

Kids and Disaster Recovery

The Kidney Community Emergency Response Coalition (KCER) has prepared a web page for week 4 of National Preparedness Month covering special considerations for taking care of children during disasters, including some resources in Spanish.  Find the page at http://www.kcercoalition.com/Kids .

Another KCER web page emphasizes physical and emotional recovery after a disaster; see http://www.kcercoalition.com/en/resources/patient-resources/after-an-emergency/ .  The Disaster Distress Helpline is at 800-985-5990, or you can text “TalkWithUs” to 66746.

The monthly KCER Watch newsletter covers current Emergency Preparedness topics; find it at http://www.kcercoalition.com/en/resources/kcer-watch/ .

Celebrar La Buena Salud!

The NIH National Institute of Diabetes and Digestive and Kidney Disease (NIDDK) celebrates Hispanic Heritage Month (September 15-October 15) by offering its publications, including Sus Riñones son Tesoros (Your Kidneys are Treasures), a bilingual toolkit to help health works educate Hispanic people with diabetes on how to protect their kidneys, Ten Ways Hispanics and Latinos Can Prevent Type 2 Diabetes, and others.  Find links at https://content.govdelivery.com/accounts/USNIDDK/bulletins/1608dac .

In southern California, patient support groups are conducted in Spanish in Loma Linda, Panorama City, Santa Clarita, San Fernando, and Visalia.  See our Patient Calendar at https://nwrnbulletins.wordpress.com/patient-education-calendar/ for dates.

Spanish, Mobile MEI Modality Choice Aid Versions

MEI has added a Spanish version and a mobile version of their excellent dialysis modality selection aid, My Life, My Dialysis Choice.  The software helps people with CKD learn how each type of dialysis may affect their lifestyle and health values.  Hispanic people have a 50% higher incidence rate of kidney failure than non-Hispanic Whites.  A yellow button on the top left corner of each page lets users toggle between English and Spanish.  The mobile version, if the online version is used first, will save its place so you can go back and forth from online to mobile.  Find My Life, My Dialysis Choice at https://mydialysischoice.org/ .

Emergency Preparedness Month

September is Emergency Preparedness Month, and this year’s theme is “Don’t Wait – Communicate.”  The Kidney Community Emergency Response Coalition and the US Homeland Security Department recommend https://www.ready.gov/make-a-plan as a good English-language place to start organizing your family’s preparedness, and https://www.ready.gov/languages for the same in twelve other languages.

We’re borrowing the following, with permission, from the Kansas City Network:

Communicate with your staff

  • Review your emergency plan and procedures
  • Update all staff emergency contacts and encourage them to have a personal Emergency Plan
  • Conduct your annual drill

Communicate with your patients

(1) Update all patient and staff Emergency Contact information

(2) Review one or more of the “My Plan” pages in your clinic’s MY KIDNEY KIT with your patients ( http://www.mykidneykit.org ).   They include:

  • In Case of Emergency
  • Diabetic 3-Day Emergency Diet
  • Non-Diabetic 3-Day Emergency Diet
  • Pediatric 3-Day Emergency Diet Menu
  • Dialysis Emergency Takeoff
  • How To Disinfect My Drinking Water

(3) Participate in America’s PrepareAthon on September 30, 2016; join by going to: https://community.fema.gov/ 

(4) Update your bulletin board to promote Emergency Preparedness

(5) Host a Lobby Day:

  • Display an emergency kit
  • Display items to have on hand for an emergency diet
  • Provide emergency forms or wallet cards
  • Run Public Service Announcements available on YouTube on the lobby TV (see https://www.ready.gov/ )

(6) Check out the resources available to promote preparedness:

(7) Visit Kidney Community Emergency Response Coalition (KCER) http://www.kcercoalition.com/ for dialysis-specific resources for clinics and patients

(8) Help patients download the FEMA mobile apps for disaster resources, weather alerts and safety tips at https://www.fema.gov/mobile-app