The NIH’s National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) is depleting their stock of hard copy publications on diabetes, digestive diseases, nutrition, and kidney disease, in English and Spanish. Up to 25 copies of most titles are available to order free of charge if shipped to addresses within the United States, until August 15, 2017. See NIDDK’s Online Catalog at https://catalog.niddk.nih.gov/Catalog/ .
Northwest Renal Network (ESRD Network 16) has distributed the May 2017 version of its patient newsletter, Network Consumer News. This issue features a headline article on Stay Healthy: Medicare’s Preventive Services, and important information on What Vaccinations Do You Need?
We want your feedback on this newsletter. Please complete the brief survey on the Survey Monkey website at https://www.surveymonkey.com/r/consumer05 .
All newsletter materials, including Spanish and Big-Print editions and an invitation to volunteer to be on the Patient Advisory Committee (How You Can Make a Difference: Become a Patient Subject Matter Expert), are available on the Network website at https://www.nwrn.org/patients-a-family/ptedres/ncn.html .
AKF will present a June 16, 2017 webinar on Protein: Who Needs It Anyway? You Do! Find details and register at http://www.kidneyfund.org/training/webinars/ .
At the same web page you can find recordings of their past webinars, including:
- Humanizing Dialysis; Choosing the best type of treatment for kidney failure can be difficult for patients, especially when they receive little guidance
- Saying no to dialysis: choosing conservative care for end-stage kidney disease
- A patient’s perspective: Be your own advocate; Navigating the health care system as a patient can be challenging
- Heart disease and kidney disease – what’s the connection? – Heart disease can cause kidney disease, and kidney disease can cause heart disease
- Unique strategies for improving the effectiveness of exercise training in patients with kidney failure
- Paired kidney exchanges and opportunities for kidney transplant in minority patients
- Living with diabetic kidney disease; Diabetes is the leading cause of kidney disease, and many people suffer from both conditions
- Enfermedad de los riñones crónica: prevención y tratamiento; Con motivo de la celebración del Mes de la Herencia Hispana, ¡brindaremos nuestro primer seminario web en español!
- Emergency preparedness and kidney disease – using KCER as a resource
- Organ transplant among minorities: How we can reduce the need and improve access
- I need a kidney transplant. Am I covered now? What about in the future?
- Staying employed with kidney disease; A diagnosis of kidney failure doesn’t have to mean quitting your job
- What CAN I eat? Nutrition for dialysis patients
- Living with chronic kidney disease: The ups, downs, and all arounds
- Chronic Kidney Disease: A General Overview and Keys for Successful Management
Donate Life! will present a free June 10, 2017 talk, presented in Spanish, on organ donation and the transplant process, in Portland OR. Find a poster and details in both English and Spanish (p.2) at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/DonateLife0617.pdf .
Medicare has published a Dialysis Facility Compare Social Media Toolkit brochure in three versions (for patients or consumers, for dialysis facilities, and for physicians) and two languages (English and Spanish). They provide graphic and text suggestions for sharing and promoting DFC on social media. Find copies of them at:
- DFC Consumer Social Media Toolkit: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Eng.DFCToolkit.Pts.pdf
- Herramientas de Redes Sociales para el Consumidor sobre la Comparación de Centros de Diálisis: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Esp.DFCToolkit.Pts.pdf
- DFC Social Media Toolkit for Dialysis Centers: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Eng.DFCToolkit.Facs.pdf
- Herramientas de Redes Sociales para los Centros de Diálisis sobre la Comparación de Centros de Diálisis: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Esp.DFCToolkit.Facs.pdf
- DFC Social Media Toolkit for Physicians: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Eng.DFC.Toolkit.Docs.pdf
- Herramientas de Redes Sociales para los Médicos sobre la Comparación de Centros de Diálisis: https://s3-us-west-2.amazonaws.com/nwrn.org/files/DFC/Esp.DFCToolkit.Docs.pdf
The National Forum of ESRD Networks has created a Spanish version of its new Dialysis Patient Grievance Toolkit. Find it at http://esrdnetworks.org/resources/toolkits/patient-toolkits/dialysis-patient-grievance-toolkit-1 . It joins the catalog of Forum Medical Advisory Council (MAC) and Patient Toolkits, which now include:
- Home Dialysis
- Transitions of Care
- Medical Director
- Medication Reconciliation
- Catheter Reduction
- Assurance of Diabetes Care Coordination
Find them all, along with the MAC Speaker’s Bureau Brochure, at http://esrdnetworks.org/resources/toolkits/mac-toolkits-1 .