Online English/Spanish Treatment Options Tool

My Life, My Dialysis Choice is a free English/Spanish, values-based dialysis treatment matcher developed by the non-profit MEI and endorsed by AAKP and Home Dialyzors United.  You enter your lifestyle preferences, and My Life, My Dialysis Choice suggests treatment options most appropriate for you.  The tool is written at a 5th grade reading level and includes ALL types of dialysis.  Find My Life, My Dialysis Choice at https://mydialysischoice.org/.  It may load in either English or Spanish, but you can switch by clicking on the “English” or “Español” button in the upper left corner of the screen.

NW18 Patient Grievance Process

Check out the Network 18 website for some great information on the Network 18 Grievance Process:

  • For Providers, see http://www.esrdnetwork18.org/providers/patient-services/, which includes English and Spanish versions of the Network 18 Grievance Poster, Grievance Brochure, a link to the National Forum of ESRD Networks’ Grievance Toolkit, and a discussion on Preventing and Reducing Involuntary Discharge.
  • For Patients and Care Partners, see http://www.esrdnetwork18.org/patients/grievances/, which includes English and Spanish versions of the Network 18 Grievance Poster, Grievance Brochure, and a packet of Patient Grievance Guidelines and Forms; a discussion of patient and Network Roles and Responsibilities; and a list of California state Department of Health Services offices.

Keep in mind that no patient should ever suffer any retaliation for filing a grievance.  The Network is here to assist facilities and patients in resolving any concerns that may arise, in a collaborative and positive manner.  All facilities are required to:

  • Make sure you have the ESRD Network 18 Grievance Poster prominently displayed in your lobby or another area that is accessible to patients and guests, including a Spanish copy of the Poster.
  • Ensure that all patients understand how to file a grievance with you, with the Network, and with the State.

You can also print some Brochures and pass them out to patients, or have them available in your lobby.

NW16 Patient Grievance Process

The Network 16 website includes important information about the Network 16 Grievance Process:

  • For Patients and Care Partners: https://www.nwrn.org/patients-a-family/voice.html includes English and Spanish versions of the Network 16 Grievance Poster, Grievance Brochure, links to the National Forum of ESRD Networks’ Grievance Toolkits, and a list of State Survey Agency contacts.

Keep in mind that no patient should ever suffer any retaliation for filing a grievance.  The Network is here to assist facilities and patients in resolving any concerns that may arise, in a collaborative and positive manner.  All facilities are required to:

  • Prominently display the ESRD Network 16 Grievance Poster in your lobby or another area that is accessible to patients and guests, including a Spanish copy if appropriate for your patients.
  • Ensure that all patients understand how to file a grievance with you, with the Network, and with the State.

You can also print some brochures and pass them out to patients or have them available in your lobby.

Depression Toolkit Revised

The National Forum of ESRD Networks has revised the Dialysis Patient Depression Toolkit and added a video.  Find the revised English version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-english and a Spanish version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-spanish.  A related video interview with a dialysis patient has also been recorded.  Find it at https://www.youtube.com/watch?v=N7Iv6JytQt4.

9/5+ World Sepsis Day and Awareness Month

The Global Sepsis Alliance will present the free, online 2nd World Sepsis Congress September 5-6, 2018, featuring 100 speakers from 30 countries.  For more information on both the Alliance and the Congress, see https://www.worldsepsiscongress.org/.  CDC’s presentation will be September 6, 2018 at 4:30 p.m. PDT.

September 13, 2018 is World Sepsis Day, and September is Sepsis Awareness Month, the first anniversary of CDC’s Get Ahead of Sepsis program.  Find CDC’s educational materials on Sepsis at https://www.cdc.gov/sepsis/education/index.html, and their Get Ahead of Sepsis web page, in English and Spanish, at https://www.cdc.gov/sepsis/.

Find more information and tools at https://www.world-sepsis-day.org/ and https://www.sepsis.org/sepsisawarenessmonth/.

NW16 8/14+ Donate Life NW Volunteers

Donate Life Northwest is dedicated to helping transplant candidates maintain hope while waiting for an available matching kidney.  They offer training to volunteers for various situations.  Their upcoming training, volunteering, and celebration schedule includes:

  • August 14, 2018 – School Speaker training in Portland OR
  • August 15, 2018 – Volunteer Orientation in Bend OR
  • August 16, 2018 – School Speaker training in Portland OR
  • September 4, 2018 – Volunteer Orientation in Portland OR
  • September 8, 2018 – Volunteer Opportunity in Vancouver WA
  • September 8, 2018 – Donor Family Picnic in Salem OR
  • September 13, 2018 – School Speaker training in Eugene OR
  • September 13, 2018 – Volunteer Orientation in Eugene OR
  • September 16, 2018 – Volunteer Opportunity in Portland OR
  • September 23, 2018 – Volunteer Opportunity in Portland OR
  • November 7, 2018 – Lifesavers Breakfast

For more details, see https://mailchi.mp/donatelifenw.org/sharing-hope-this-summer.  This web page also introduces their new Latino Outreach Coordinator, Donor stories in English and Spanish, winners of their recent raffle, and information on including Donate Life Northwest in your estate, insurance, or financial plans.

My Choice, Home Dialysis Online

The video My Choice, Home Dialysis has been placed on YouTube where it can be accessed easily.  It features patients describing the advantages of home dialysis in their own words.  Find it at https://www.youtube.com/watch?v=ZquRiZ0RwSU.  For subtitles:

  • Click on the gear symbol (“Settings,” in the lower right)
    • Click on “Subtitles/CC(2)   Off >”
    • Click on “Spanish – Default” or “English – Default”

YouTube can also translate subtitles into more than a hundred additional languages.