A number of organizations are hosting weekly webinars on COVID-19. These include:
ESRD NCC half-hour “Quickinars” for providers and patients. Find more information, recordings of past Quickinars, and register for current presentations at https://esrdncc.org/quickinars:
Tuesday May 26, 2020 patient Quickinar on Combating Uncertainty and Fear in the COVID-19 Era (En Español), presented by a PD patient, Network Ambassador, and patient and family engagement SME. She will share how Spanish-speaking patients are coping with fears surrounding COVID-19, and Provide links to COVID-19 information in Spanish.
Wednesday May 27, 2020 provider Quickinar on COVID-19 Communication – Quick Tips to Connect, presented by the Director of Outreach and Development for the non-profit Academy of Communication in Healthcare, Editor-in-Chief for the Journal of Patient Experience, and Assistant Clinical Professor at Vanderbilt University School of Medicine.
Networks 16 and 18 have assembled a web page on Healthcare Workers – Coping with Infectious Disease Outbreaks in the Dialysis Setting. In addition to guidance for maintaining your own health in situations of extreme stress, it includes links to the SAMHSA Disaster Distress Helpline (in English, Spanish, and 14 other languages) and their document on Taking Care of Your Behavioral Health: Tips for Social Distancing, Quarantine, and Isolation during an Infectious Disease Outbreak. Find the Network web page at http://www.esrdnetwork18.org/wp-content/uploads/20200313-Coping-with-ID-Outbreaks.pdf. While it’s aimed at facility staff, patients will also find it useful for managing their own stress.
To honor National Kidney Month (March), HHS, ASN, NKF, and private partners including CVS Kidney Care, have launched a nationwide campaign to reach the 33% of American adults who are at risk of kidney disease, and to help them avoid further development of the disease. Find more information at https://www.kidney.org/news/nationwide-kidney-risk-campaign-launched-nkf-hhs-and-asn. They plan to also launch a Spanish-language version on September 15, 2020 for National Hispanic Heritage Month (September 15-October 15).
We’ve published our Patient Newsletters for Winter 2020. They feature articles on treatment options, flu shots, grievances, access to care, how to stay informed by the Network, and how to help the Network improve patient care. Find them at:
A recent study published in the American Diabetes Association’s (ADA) journal Diabetes Care (http://care.diabetesjournals.org/content/early/2019/05/28/dc19-0296) using 2000-2015 USRDS data has shown that the rates of nontraumatic lower-extremity amputation (NLEA) among adults with ESRD and diabetes fell 44% between 2000 and 2013 from 7.5 to 4.2 NLEA per 100 person-years, while NLEA among ESRD patients without diabetes declined 31% over the same period, from 1.6 to 1.1 per 100 person-years. Both reductions were highly statistically significant. However, both rates flat-lined after 2013.
My Life, My Dialysis Choice is a free English/Spanish, values-based dialysis treatment matcher developed by the non-profit MEI and endorsed by AAKP and Home Dialyzors United. You enter your lifestyle preferences, and My Life, My Dialysis Choice suggests treatment options most appropriate for you. The tool is written at a 5th grade reading level and includes ALL types of dialysis. Find My Life, My Dialysis Choice at https://mydialysischoice.org/. It may load in either English or Spanish, but you can switch by clicking on the “English” or “Español” button in the upper left corner of the screen.