3/16 NW18 UCI Health WKD Symposium

UC Irvine Health will present a free March 16, 2019 World Kidney Day symposium in Orange, CA on Kidney health, featuring leading experts in Nephrology, Urology, Transplant, and Nutrition.  Patients, providers, and community members are all invited to enjoy a day of education, health screenings, refreshments, and live entertainment.  For details see https://twitter.com/IFKF_/status/1103801441846587392 and https://www.facebook.com/events/638668909886763/?notif_t=event_invite_reminder&notif_id=1551199891724380.

“It’s Your Choice” Campaign

As we all know, many patients crash into dialysis.  This leaves them feeling poorly with no time to really learn about modality options or all the other choices that they have for optimal care that fits them best.  We want patients to know that they have choices and we want to help direct them to where they can find information or tools to help them make informed decisions regarding their dialysis care.

We are kicking off the It’s Your Choice Campaign.  We will be sending you various patient focused resources to distribute.  You can be creative in the distribution.  One month you can just print and hand them out to your patients.  Maybe the next month, you have it printed poster size and post it by the scale, depending on the resource.  It’s your choice!

We also would encourage you to let us know if you have a patient resource that has been particularly helpful in supporting optimal kidney care.  We would love to add it to our library.  In the future we plan to have a whole webpage dedicated to It’s Your Choice with a variety of resources for dialysis and CKD patients, including flyers, brochures, posters and maybe even a podcast with timely information.

6/6+ AAKP Nat’l Patient Meeting, Washington DC

The AAKP will hold their 44th Annual National Patient Meeting September 6-8, 2019 in Washington DC, and celebrate their 50th Anniversary since founding.  Early Bird registration, and its $50 discount, expires June 6, 2019.  Scholarship applications will be accepted through July 1, 2019.  First-come, first-served registration for discounted accommodations are available until the room block fills up, or until August 16, 2019.  For details see https://aakp.org/national-patient-meeting/.

 

New Tools in Depression Toolkit

The Forum of ESRD Networks has added a recording and slides from their October 4, 2018 live webinar on Depression & Dialysis: Removing the Stigma and Strengthening our Mental Health.  The event was hosted by patient leaders from the the Forum in collaboration with AAKP and NKF.  Find these resources, plus ancillary tools, at http://esrdnetworks.org/education/quality-conference/quality-conference-webinar-series-2018-2019.

CDC HAN on Coagulopathy

CDC has published a Health Alert Network advisory on vitamin K-dependent antagonist coagulopathy caused by synthetic cannabinoids apparently contaminated with the rodenticide brodifacoum.  While CDC does not report any cases from the West Coast, they advise proceduralists who deal with blood, and others, to be aware of the possibility.  The HAN includes:

  • Recommendations for clinicians, including notifying health authorities, especially in cases where a synthetic cannabinoid user has recently donated blood
  • Recommendations for public health officials, including notifying CDC
  • Recommendations for the general public, including avoiding synthetic cannabinoids

For details see https://emergency.cdc.gov/han/han00410.asp.

There is no suggestion that natural, non-synthetic cannabinoids are similarly contaminated; these are regulated and legal by state law in all of Networks 16 and 18 except Idaho, and increasingly used for medical purposes.  There is also no suggestion that natural, non-synthetic, non-psychoactive CBD oil made from industrial hemp, which is available throughout the US, is similarly contaminated; however, outside of the regulated marketplace, industrial-hemp CBD oil is unregulated, so the potential for contamination of some kind is always present.

5/2 Grievance Toolkit Webinar

The National Forum of ESRD Networks will present a May 2, 2018 webinar for dialysis facility staff on The Grievance Toolkit: Fostering Communication and Improving Quality.  Continuing education credit will be available for nurses, technicians, and social workers.  Find more information and register at https://register.gotowebinar.com/register/417211176479162113.  Find copies of the Toolkit in English and Spanish at http://esrdnetworks.org/resources/toolkits/patient-toolkits/dialysis-patient-grievance-toolkit-1.

3/20 New Medicare Card Call

On March 20, 2018 from 11am to noon Pacific Time, CMS will host a Special Open Door Forum to give providers an opportunity to ask questions about the New Medicare Card Project.  Use this call to get answers to your questions, so you are ready to accept the new Medicare Beneficiary Identifier starting April 1, 2018.  For more information see https://www.cms.gov/medicare/new-medicare-card/nmc-home.html.  Address questions to NewMedicareCardSSNRemoval@cms.hhs.gov.

Participation Instructions: participant dial-in number: 800-837-1935; Conference ID #: 4588156.  TTY Communications Relay Services are available for the Hearing Impaired; dial 7-1-1 or 800-855-2880.

A transcript and audio recording will be at https://www.cms.gov/Outreach-and-Education/Outreach/OpenDoorForums/PodcastAndTranscripts.html a few days after the call.