KDIGO Guidelines on ADPKD

KDIGO has announced plans to produce Guidelines for Autosomal Dominant Polycystic Kidney Disease (ADPKD). The scope of the document is now being outlined, and the team that will write it is being assembled. KDIGO will ask for public comment on the completed scope, and again on a draft of the full Guidelines. For more information see https://kdigo.org/category/news/.

They have also announced that their October 4, 2020 virtual KDIGO Symposium on Glomerular Diseases has been recorded and is available at https://www.youtube.com/watch?v=KDA1qKpb4Ew.

3/14 World Kidney Day & National Kidney Month

March is National Kidney Month, and its second Thursday – March 14 in 2019 – celebrates World Kidney Day.  This year’s theme is Kidney Health for Everyone Everywhere.  Sources for more information and display materials include:

• World Kidney Day – https://www.worldkidneyday.org/
• NIDDK – https://www.niddk.nih.gov/health-information/communication-programs/nkdep/get-involved/national-kidney-month
• NKDEP – https://www.niddk.nih.gov/health-information/communication-programs/nkdep
• NKF – https://www.kidney.org/news/monthly/Focus_KidneyMonth
• PKD Foundation’s Four Challenges – https://connect.pkdcure.org/pkdchallenge2019/

CMS contributes:

DID YOU KNOW?

Each year, kidney disease kills more people than breast or prostate cancer.

Help raise awareness of chronic kidney disease.  Wear ORANGE on March 14^th!

March is National Kidney Month! CMS and the ESRD Program invite you to be a part of a national campaign focusing on kidney health.  To show your support, consider one of the following activities on March 14^th (World Kidney Day):

• • Wear an orange shirt, pants, dress, shoes, hair, etc. (be creative)
  • Take a selfie or have someone take a picture of you in your orange gear
  • Share information on your Twitter account about why all Americans should ask their doctors for a kidney checkup; Use #NationalKidneyMonth #Medicare
  • Post your picture and short statement to your Facebook page; Make your post public and use #NationalKidneyMonth #Medicare
  • Have fun with your posts

Show that you care!  Share your National Kidney Month pictures on March 14^th.

 

10/1+ Walk for PKD

In addition to the Seattle Walk for PKD which we’ve already mentioned, Walks will also be held this fall in Portland, Los Angeles, and San Diego.

• San Diego, October 1, 2017, http://support.pkdcure.org/site/TR/Walk/WalkforPKD?fr_id=1820&pg=entry .
• Seattle, October 1, 2017, http://support.pkdcure.org/site/TR/Walk/WalkforPKD?fr_id=1766&pg=entry .
• Portland, October 7, 2017, http://support.pkdcure.org/site/TR/Walk/WalkforPKD?fr_id=1780&pg=entry .
• Los Angeles, October 22, 2017, http://support.pkdcure.org/site/TR/Walk/WalkforPKD?fr_id=1799&pg=entry .

8/16+ NW16 PKD Events, Seattle

The Seattle Chapter of the PKD Foundation will host an August 16, 2017 Coffee Chat in Factoria (Bellevue WA) to promote networking among people affected by PKD.  The discussion is informal, but a topic or guest speaker is usual.  For details and to sign up, see http://support.pkdcure.org/site/Calendar?view=Detail&id=101732 .  These events are held more or less monthly; the next one will be September 10, 2017.  Watch https://pkdcure.org/chapter/seattle/ for details.

The PKD Foundation will also sponsor an August 19, 2017 Seattle Friends & Family Potluck Picnic & Lemonade Stand, in Seward Park (Seattle).  Find more information at http://support.pkdcure.org/site/Calendar?view=Detail&id=101846 .

The Foundation will also sponsor the three-mile Seattle Walk for PKD on October 1, 2017 at Green Lake (Seattle).  For details, posters, to register for the Walk or the associated Penny Kids Dash, and to donate, see http://support.pkdcure.org/site/TR/Walk/WalkforPKD?fr_id=1766&pg=entry .  So far they have pledges of $10,000 for the Walk, and they seek at lease $45,000 more to support PKD research and create better lives for those impacted by polycystic kidney disease.

PKD Resources

The PKD Foundation website offers many resources for both patients and practitioners on Polycystic Kidney Disease.  Patient resources can be found at http://www.pkdcure.org/research/nkf/patient-resources and resources for healthcare professionals at http://www.pkdcure.org/research/nkf/uptodate .