Home Dialysis Success Story

Gary and Yalonda Moore are both members of the Comagine Health ESRD Alliance Network 16 Patient Advisory Council.  They were recently featured on Anchorage television station KTUU.  Gary is on home dialysis while waiting for a transplant, and frequently recommends home dialysis to other people with ESRD, especially in Alaska, where frequent travel to one of Alaska’s nine clinics can be difficult at times.  He usually stocks more than a month’s worth of dialysis supplies at home, so he’s prepared for emergencies.  Yalonda is a member of the National Forum of ESRD Networks’ Kidney Patient Advisory Council, and in her role there also frequently advocates home dialysis.  Find their TV spot and accompanying story at https://www.ktuu.com/content/news/Anchorage-family-highlights-obstacles-associated-with-kidney-disease-in-Alaska-513320711.html.

HDC re LOL-HD

MEI’s Home Dialysis Central blog has an interesting post on Laugh Out Load Hemodialysis, which Satellite Dialysis has been experimenting with.  Among other things, the post describes the physiological benefits of laughter, including its positive impact on mood, pain, lungs, cardiovascular function, and immune response.  Find the post at https://homedialysis.org/news-and-research/blog/305-laugh-out-loud-hemodialysis-lol-hd-improving-the-dialysis-experience-at-satellite-healthcare/.  While the subject of the post is in-center dialysis, anyone with an internet connection and computer or smartphone who dialyzes at home can call up a million comedies to watch.  See also https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/DPC/DPCLaugh2019.pdf for information on a May 26, 2019 webinar on Pain Relief through Laughter.

NW16 3/3 NKF/PKG Patient Symposium on Lifestyle

NKF and PKG will present a March 3, 2019 Patient & Community Education Symposium in Portland OR on Lifestyle Makes a Difference: Controlling What You Can.  Registration is recommended because space is limited.  For details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG/NKF.EdSym.PKG0319.pdf.

NW16 3/3 NKF/PKG Patient Symposium on Lifestyle

NKF and PKG will present a March 3, 2019 Patient & Community Education Symposium in Portland OR on Lifestyle Makes a Difference: Controlling What You Can.  Early registration is recommended because space is limited.  For details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG/NKF.EdSym.PKG0319.pdf.

NW16 3/3 NKF/PKG Patient Symposium on Lifestyle

NKF and PKG will present a March 3, 2019 Patient & Community Education Symposium in Portland OR on Lifestyle Makes a Difference: Controlling What You Can.  Early registration is recommended because space is limited.  For details see https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG/NKF.EdSym.PKG0319.pdf.

Depression Toolkit Revised

The National Forum of ESRD Networks has revised the Dialysis Patient Depression Toolkit and added a video.  Find the revised English version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-english and a Spanish version at http://esrdnetworks.org/resources/toolkits/patient-toolkits/new-toolkit-dialysis-patient-depression-toolkit/dialysis-patient-depression-toolkit-spanish.  A related video interview with a dialysis patient has also been recorded.  Find it at https://www.youtube.com/watch?v=N7Iv6JytQt4.

NW16 8/14+ Donate Life NW Volunteers

Donate Life Northwest is dedicated to helping transplant candidates maintain hope while waiting for an available matching kidney.  They offer training to volunteers for various situations.  Their upcoming training, volunteering, and celebration schedule includes:

  • August 14, 2018 – School Speaker training in Portland OR
  • August 15, 2018 – Volunteer Orientation in Bend OR
  • August 16, 2018 – School Speaker training in Portland OR
  • September 4, 2018 – Volunteer Orientation in Portland OR
  • September 8, 2018 – Volunteer Opportunity in Vancouver WA
  • September 8, 2018 – Donor Family Picnic in Salem OR
  • September 13, 2018 – School Speaker training in Eugene OR
  • September 13, 2018 – Volunteer Orientation in Eugene OR
  • September 16, 2018 – Volunteer Opportunity in Portland OR
  • September 23, 2018 – Volunteer Opportunity in Portland OR
  • November 7, 2018 – Lifesavers Breakfast

For more details, see https://mailchi.mp/donatelifenw.org/sharing-hope-this-summer.  This web page also introduces their new Latino Outreach Coordinator, Donor stories in English and Spanish, winners of their recent raffle, and information on including Donate Life Northwest in your estate, insurance, or financial plans.