Seeking Patient Stories

As part of a project to create free patient support educational material for CKD and dialysis patients, the organization Muse Story Telling is seeking patient stories.  You can connect with them at the August 20, 2017 NKF/PKG Wellness Fair in Portland, you can email them anytime at research@musestorytelling.org , or you can start with their short get-to-know-you survey at https://musestorytelling.typeform.com/to/OgVaYu .

Accepting Kidney Failure

The Home Dialysis Central blog has a recent well-received post on Kidney Failure and the Value of Acceptance that describes the setbacks that can occur while dialyzing and waiting for a transplant, and the importance of attitude.  Find it at http://homedialysis.org/news-and-research/blog/215-kidney-failure-and-the-value-of-acceptance .

8/10 RSN Essay Contest Deadline

The 2017 RSN Essay Contest is underway.  Applicants have until August 10, 2017 to submit their entry of 750 or fewer words on the topic “Describe a positive decision that you have made about your healthcare.”  First place winner receives $500.  Find contest rules at http://www.rsnhope.org/essay-contest/contest-rules/ .  Last year’s winners are posted at http://www.rsnhope.org/index.php?id=141 .

 

5/18 Ticket to Work Webinar

My Employment Options will present a free Town Hall Meeting wherein six participants in the Social Security Ticket to Work program for job seekers with disabilities will talk about their experiences with the program.  For information and registration see https://www.myemploymentoptions.com/webinar-registration-page/ .  Early login is recommended, as the number of lines is limited.

9/14 AAKP HealthLine on Twitter

AAKP will present a September 14, 2016 AAKP HealthLine webinar on The Power of Twitter to Build Your Patient Voice, featuring a social media expert who’s also a kidney patient.  For information and registration see https://www.aakp.org/community/programs-events/aakp-healthline.html .  For a library of recorded prior HealthLine webinars, see https://www.aakp.org/media-files/aakp-healthline.html .