The Renal Support Network has added a KidneyTalk podcast on “Choosing Hospice.” Find it and previous KidneyTalk podcasts at http://www.rsnhope.org/kidneytalk-podcast/ .
The Renal Support Network has published the work of its 2016 Annual Essay Contest, on “What do you know now about CKD that you wish you knew when you were diagnosed?” Find the essays at http://www.rsnhope.org/essay-contest/ .
AAKP will present a September 14, 2016 AAKP HealthLine webinar on The Power of Twitter to Build Your Patient Voice, featuring a social media expert who’s also a kidney patient. For information and registration see https://www.aakp.org/community/programs-events/aakp-healthline.html . For a library of recorded prior HealthLine webinars, see https://www.aakp.org/media-files/aakp-healthline.html .
Temperatures are again forecast to exceed 100°F in the Coachella, Imperial, and Antelope Valleys through August 8, 2016, reaching 117°F at times in some locations. See our previous post at https://nwrnbulletins.wordpress.com/2016/07/22/sc-extreme-heat-fluid-control/ for suggestions on patient (and staff) education about keeping cool while still managing fluid intake.
The Renal Support Group has published a useful article, a patient’s story about fluids management, titled “Fluid Control For Energy to Live a Full Life.” Find it at http://www.rsnhope.org/health-library/article-index/fluid-control-for-energy-to-live-full-life/ .
AAKP will present a patient conference call and webinar on Understanding and Managing Fabry Disease on July 27, 2016. For details see https://www.aakp.org/community/programs-events/aakp-healthline.html .
The Renal Support Network’s annual essay contest will be on the topic, “What Do You Know Now About Chronic Kidney Disease That You Wish You’d Known When You Were Diagnosed?” A total of $900 in prizes will be awarded. Essayists must have been diagnosed with CKD. The deadline for submitting essays is August 1, 2016. For details see http://www.rsnhope.org/essay-contest/contest-rules/ .
On June 4, 2016 the UCLA Kidney Education Enhancement Program (UKEEP) will present a workshop on Living Kidney Donation. The event will be moderated by UCLA Living Kidney Donor Program Medical Director Dr. Anjay Rastogi and Transplant Nephrologist Dr. Mohammad Kamgar. Dr. Amy Waterman will speak about educational aspects of living kidney donation, and past donors will share their experiences. This is a free event that is open to the general public. If you or anyone you know is interested in becoming a living kidney donor, this is the program you would like to attend. It will be held from 1-4pm PDT at the UCLA Medical Center Conference Center, 1250 16th Street in Santa Monica. RSVP to (800) 516-5323 as soon as possible. For more information, see https://s3-us-west-2.amazonaws.com/nwrn.org/files/PM/UKeep0516.pdf .