6/15 RSN Kidney Kin Foodies Support Group Meeting

The Renal Support Group’s new Kidney Kin Foodies Support Group will be meeting monthly via Zoom on the third Wednesday at 1 pm PT, starting on June 15, 2022. The first meeting will feature renal nutritionist and kidney transplant recipient Lubna Akbany, RDN, CSR. Read about Ms. Akbany at https://www.rsnhope.org/rsn-blog/meet-renal-nutritionist-lubna-akbany-rdn-csr/. Find out more about the group at https://www.rsnhope.org/rsn-events/rsn-zoom-room-meetings/, and use the form on the bottom of that page to Register for the meetings. The form appears to apply to the September meeting, but that date belongs to the Book Club meeting description above the form; specify the Kidney Kin Foodies Group by clicking the button at “Third Wednesdays…” on the form itself.

4/20 Transplant Donor-Recipient Webinar

Sanofi will present a free 20 April 2022 webinar on Kidney Transplant Connectors featuring a living kidney donor and a kidney transplant recipient, talking about their experiences navigating the transplant process, and of feeling overwhelmed, confused and scared while waiting for their transplant. Details are included below, but the links on this copy of the poster don’t work, so…

Find more information about the organization and the program (but not the individual webinar) at https://www.kidneytransplantconnectors.com/, and register for the April 20 webinar at https://us06web.zoom.us/webinar/register/WN_ObKk334PQ7eN1DLUMiPS2g.

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HDC Homage to Nancy Spaeth

Home Dialysis Central has published a blog post by original MEI team member Dori Schatell, As Nancy Hewitt Spaeth’s Earthly Journey Ends, Her Inspiration Lives On, celebrating the life of Nancy Hewitt Spaeth, BE RN, who recently passed away after more than sixty years thriving with CKD while impressively serving the CKD community. Many of us were fortunate to know and be inspired by Nancy. Find the HDC post at https://homedialysis.org/news-and-research/blog/470-as-nancy-hewitt-spaeths-earthly-journey-ends-her-inspiration-lives-on, her own 2007 memoir at https://academic.oup.com/ndt/article/22/1/64/1813164, and her extensive CV at https://www.linkedin.com/in/nancy-hewitt-spaeth-be-rn-91a3237.

AAKP HealthLine re Omicron, Cancer

AAKP will present a January 27, 2022 HealthLine webinar on COVID-19, the Omicron Variant, & Kidney Patients. For details and registration see https://aakp.org/programs-and-events/aakp-healthline/. This website also includes links to recordings of previous HealthLine webinars. The recent HealthLine webinar on Cancer Risks and Kidney Patients, focusing on transplant patients, can be seen directly on YouTube at https://www.youtube.com/watch?v=oZP1MwIifpU.

3/4+ UKEEP Webinars on Kidney Disease & Empowerment

The UCLA CORE Kidney Program will present a March 4, 2021 UKEEP webinar on Kidney Disease: What You Should Know. For details and registration, see the poster below, or https://uclahs.zoom.us/webinar/register/WN_hjcPosQgSieUDGL3CIzAqw. They will also present a March 21, 2021 Virtual Kidney Conference on Educating, Empowering, and Inspiring Hope. Find more information about the Conference, and register, at https://uclahs.zoom.us/webinar/register/WN_ZgPWycdXR_OXq26FbQZp4A.

COVID-19 and Dialysis Podcast and Webinar

The Coalition for Supportive Care of Kidney Patients and the Patient-Centered Outcomes Research Institute have introduced a new series of podcasts called The Elephant in the Room. The first episode, Fear & Uncertainty During COVID-19, with dialysis patients sharing their real life issues with the COVID-19 pandemic, has been published. Find it at https://www.buzzsprout.com/1642372.

AAKP has also produced a HealthLine webinar on Kidney Patients and the COVID-19 Vaccine. Find it and the entire HealthLine catalog at https://aakp.org/aakp-healthline/.

12/15 NCC COVID-19 December Calls

Patient Webinar

The ESRD Network Coordinating Center will host a December 15, 2021 webinar for patients on Home Dialysis During COVID: Lessons Learned. Topics will include best practices, patient experiences, and patient benefits of dialyzing at home. For details and registration see https://esrdncc.org/en/covid-19/covid-webinars/.

Provider Webinar

The ESRD Network Coordinating Center will host a December 30, 2021 webinar for providers on The Importance of Kidney Transplant and Referral Process During COVID-19. Topics will include the benefits of getting patients on the waitlist, the impact that COVID-19 has had on the referral process, and how a transplant center educates patients during the pandemic. One CEU credit will be available. For details and registration see https://esrdncc.org/en/covid-19/covid-webinars/.

HDC Post on Saying No to a Transplant

MEI’s Home Dialysis Central has published a blog post on Saying No to a Kidney Transplant. The author describes the pros and cons, from their own Perspective, of a transplant versus their successful career on home dialysis. Find the post at https://homedialysis.org/news-and-research/blog/401-saying-no-to-a-kidney-transplant. MEI’s essay on Choosing Your Treatment at https://homedialysis.org/life-at-home/choosing-your-treatment, and their interactive tool My Life, My Dialysis Choice at https://mydialysischoice.org/ can help you decide in advance which treatment might be right for you from your own Perspective.

11/10+ RNS Hope Week Online

The Renal Support Network has been offering its free Annual Patient Education Meeting for kidney patients and their families in the Los Angeles area for 27 years. With COVID-19 complicating things this year, RSN did what only Lori Hartwell could have imagined doing – they went global and online, and made it five times as big! So this year, RSN Hope Week will span November 10-14, 2020 with a different theme each day: CKD on day 1, Dialysis on day 2, Transplant on day 3, All Stages of Care on day 4, and Parenting Children with CKD on day 5.

Find RSN’s press release introducing the week at https://www.rsnhope.org/press-releases/renal-support-networks-27th-annual-patient-education-meeting-goes-virtual/. Find a short version of the agenda below. It’s page 1 of their flyer, which includes a full page describing each day – find the full 6-page flyer HERE. Find brief vitae and snapshots of the full faculty at https://www.rsnhope.org/hope-week-faculty/. And register at https://www.rsnhope.org/hope-week-rsns-national-online-patient-meeting/ – there’s also a short version of the agenda on that page.

10/8 NCC Caregiver Webinar

The ESRD National Coordinating Center will present an October 8, 2020 webinar at noon PDT on The Kidney Caregiver Peer Connection Call. Too often the only person that can understand what you’re going through is someone who’s been there. The webinar is open to caregivers and patients who are affected by CKD, and offers strategies for wellness and support from fellow caregivers and care partners. To listen to the presentation, call 844-740-1264 and enter access code 133 121 4744. Find the video (without sound) by clicking HERE and enter Webex event number 133 121 4744 and password Peer2020! (including the exclamation point at the end).