12/15 NCC COVID-19 December Calls

Patient Webinar

The ESRD Network Coordinating Center will host a December 15, 2021 webinar for patients on Home Dialysis During COVID: Lessons Learned. Topics will include best practices, patient experiences, and patient benefits of dialyzing at home. For details and registration see https://esrdncc.org/en/covid-19/covid-webinars/.

Provider Webinar

The ESRD Network Coordinating Center will host a December 30, 2021 webinar for providers on The Importance of Kidney Transplant and Referral Process During COVID-19. Topics will include the benefits of getting patients on the waitlist, the impact that COVID-19 has had on the referral process, and how a transplant center educates patients during the pandemic. One CEU credit will be available. For details and registration see https://esrdncc.org/en/covid-19/covid-webinars/.

HDC Post on Saying No to a Transplant

MEI’s Home Dialysis Central has published a blog post on Saying No to a Kidney Transplant. The author describes the pros and cons, from their own Perspective, of a transplant versus their successful career on home dialysis. Find the post at https://homedialysis.org/news-and-research/blog/401-saying-no-to-a-kidney-transplant. MEI’s essay on Choosing Your Treatment at https://homedialysis.org/life-at-home/choosing-your-treatment, and their interactive tool My Life, My Dialysis Choice at https://mydialysischoice.org/ can help you decide in advance which treatment might be right for you from your own Perspective.

11/10+ RNS Hope Week Online

The Renal Support Network has been offering its free Annual Patient Education Meeting for kidney patients and their families in the Los Angeles area for 27 years. With COVID-19 complicating things this year, RSN did what only Lori Hartwell could have imagined doing – they went global and online, and made it five times as big! So this year, RSN Hope Week will span November 10-14, 2020 with a different theme each day: CKD on day 1, Dialysis on day 2, Transplant on day 3, All Stages of Care on day 4, and Parenting Children with CKD on day 5.

Find RSN’s press release introducing the week at https://www.rsnhope.org/press-releases/renal-support-networks-27th-annual-patient-education-meeting-goes-virtual/. Find a short version of the agenda below. It’s page 1 of their flyer, which includes a full page describing each day – find the full 6-page flyer HERE. Find brief vitae and snapshots of the full faculty at https://www.rsnhope.org/hope-week-faculty/. And register at https://www.rsnhope.org/hope-week-rsns-national-online-patient-meeting/ – there’s also a short version of the agenda on that page.

10/8 NCC Caregiver Webinar

The ESRD National Coordinating Center will present an October 8, 2020 webinar at noon PDT on The Kidney Caregiver Peer Connection Call. Too often the only person that can understand what you’re going through is someone who’s been there. The webinar is open to caregivers and patients who are affected by CKD, and offers strategies for wellness and support from fellow caregivers and care partners. To listen to the presentation, call 844-740-1264 and enter access code 133 121 4744. Find the video (without sound) by clicking HERE and enter Webex event number 133 121 4744 and password Peer2020! (including the exclamation point at the end).

5/2 Five NKF Webinars on Kidney Disease Topics

NKF will present a May 2, 2020 half-day series of five webinars for patients on current kidney-disease topics called Virtual Education Series: Connect, Learn, and Share.  You can choose any or all of the 30- to 45-minute sessions, and they’ll be recorded for later viewing.  The topics are:

  • Coping with a Chronic Illness: Dealing with Emotions and Finding Support
  • Tips for Kidney Friendly Eating on a Budget
  • Fitness and Kidney Health
  • Telemedicine 101: What to Expect When Seeing Your Doctor at Home
  • Let’s Talk about Transplant: Real Patient Stories

Each webinar will be co-led by a healthcare professional and a patient.  Find more information and register at https://www.kidney.org/events/local-event/virtual-education-series-connect-learn-and-share.

4/25 NKF Patient Lifestyle Workshop in Seattle

NKF and Swedish Medical Center will present an April 25, 2020 four-hour workshop on Lifestyle & Kidney Health: Diet, Exercise, Weight Loss and Beyond.  Topics will include nutrition, diabetes, blood pressure, fitness, and transplant preparation.  Lunch will be provided.  See below for full details:

RSN Podcast on “Keep on Believing”

The Renal Support Network has published a podcast called Keep on Believing, featuring an interview with America’s Got Talent superstar and kidney transplant recipient (at age 4) Angelica Hale.  Angelica advises, “Never give up and keep on dreaming.  Keep on believing in yourself.  No matter what you are going through, you can still achieve your dreams and reach your goals.”  Find the podcast at https://www.rsnhope.org/kidneytalk/keep-on-believing/.

HDC on Invisible Disabilities

Home Dialysis Central has published a blog post on the “invisible” disabilities that often afflict ESRD patients.  The Medical Education Institute has commissioned a self-adhering window sticker for your car that says “Invisible Disability,” with the idea that you can just point to the sticker rather than trying to explain yourself whenever you are questioned about parking.  Ordering instructions are included in the article.  We didn’t read the post in time to announce it before or during, but this past week was 2019 Invisible Disabilities Week.  Find out more from the Invisible Disabilities Association at https://invisibledisabilities.org/seminarsandevents/invisible-disabilities-week/attachment/2019-invisible-disabilities-week-is-here-oct-13th-19th/.