10/7+ NW16 Transplant and Mentorship Classes

Donate Life Northwest will sponsor training, peer support, and mentorship for dialysis patients on living donation transplants, in Portland OR November 5, 12, and 19, 2017.  They will also sponsor a training for mentors on October 7, 2017.  See below for details:

Seeking Patient Stories

As part of a project to create free patient support educational material for CKD and dialysis patients, the organization Muse Story Telling is seeking patient stories.  You can connect with them at the August 20, 2017 NKF/PKG Wellness Fair in Portland, you can email them anytime at research@musestorytelling.org , or you can start with their short get-to-know-you survey at https://musestorytelling.typeform.com/to/OgVaYu .

8/20 NW NKF Wellness Fair

NKF and the Portland Kidney Group will present their Annual Community Picnic & Kidney Wellness Fair in Portland on August 20, 2017.  Bring your family, friends, and appetite, and don’t forget to RSVP.  Find full details at https://s3-us-west-2.amazonaws.com/nwrn.org/files/N/PKG.Picnic.0817.pdf .

8/17 Communication Courses

  • Dialysis Patient Citizens’ free monthly educational webinar, to be held August 17, 2017, will be on Communicating Effectively with your Health Care Team.  The webinar will be presented by members of the Forum of ESRD Networks’ Kidney Patients Advisory Council.  Register at http://www.dpcedcenter.org/education-seminars .
  • Kansas City’s Heartland Kidney Network has added another colorful poster on essential elements of communication to their excellent short course called Heartland Huddle Up to Improve Communication.  This one is on “What Type of Coach Are You?”  It joins earlier pages on active listening, body language, emotional awareness, words matter, shared decision-making, retaliation, and teach-back.  Find them all at http://heartlandkidney.org/providers/article/heartland_huddle_up_to_improve_communication .

8/16+ NW16 PKD Events, Seattle

The Seattle Chapter of the PKD Foundation will host an August 16, 2017 Coffee Chat in Factoria (Bellevue WA) to promote networking among people affected by PKD.  The discussion is informal, but a topic or guest speaker is usual.  For details and to sign up, see http://support.pkdcure.org/site/Calendar?view=Detail&id=101732 .  These events are held more or less monthly; the next one will be September 10, 2017.  Watch https://pkdcure.org/chapter/seattle/ for details.

The PKD Foundation will also sponsor an August 19, 2017 Seattle Friends & Family Potluck Picnic & Lemonade Stand, in Seward Park (Seattle).  Find more information at http://support.pkdcure.org/site/Calendar?view=Detail&id=101846 .

The Foundation will also sponsor the three-mile Seattle Walk for PKD on October 1, 2017 at Green Lake (Seattle).  For details, posters, to register for the Walk or the associated Penny Kids Dash, and to donate, see http://support.pkdcure.org/site/TR/Walk/WalkforPKD?fr_id=1766&pg=entry .  So far they have pledges of $10,000 for the Walk, and they seek at lease $45,000 more to support PKD research and create better lives for those impacted by polycystic kidney disease.