4/20+ April-May Events

April 20, 2023: HDU and partners will present a webinar entitled Dialysis at Home – Lets Talk About It: On The Road with Travel Tips from Dialyzors. For more information and registration, see https://www.homedialyzorsunited.org/so/1cOTsGq31?languageTag=en&cid=2d384607-f0a3-44a5-bc68-25cb9ebc61f8.

April 20, 2023: NKF and the Hispanic Team at UCHealth in Denver are collaborating to provide:

• An April 20, 2023 in-person Big Ask/Big Give Finding a Living Donor workshop in Spanish, LA PREGUNTA MAS GRANDE: LA DONACIÓN, in Aurora CO. For details, see the first flyer below. Please RSVP to 720-848-8844.
• Live streaming and call-in are also available; for these see the second flyer below. For streaming, use this link with Meeting ID 230 562 055 261 and Passcode E7CRvc. For call-in, use 720-724-7119 and ID 515 231 975.
• The second flyer also includes the dates of additional meetings of the UCHealth Spanish-Language Patient Support Group: June 22, August 24, October 26, and December 14. For more information about the Support Group, call 720-848-8844.

May 1, 2023: UCLA CORE Kidney Program will present a webianr on Bone Health: What a Kidney Patient Should Know. See the third flyer below. Find more information and register at https://www.uclahealth.org/events/chat-with-dr-anjay-rastogi-and-core-kidney-team. Additional programs are planned for June 1 and July 1, 2023.

May 10, 2023: Webinar on the ShakeAlert Earthquake Early Warning and Healthcare System Resilience – see https://nwrnbulletins.wordpress.com/2023/03/16/5-10-webinar-on-earthquake-early-warnings/.

May 21, 2023: Donate Life Northwest celebratory and fundraising Block Party in Portland OR. Get more information, tickets for yourself and others, and the t-shirt – and/or donate – at https://secure.givelively.org/event/donate-life-northwest/2023-donate-life-northwest-s-spring-campaign/block-party-at-luuwit-view-park.

6/15 RSN Kidney Kin Foodies Support Group Meeting

The Renal Support Group’s new Kidney Kin Foodies Support Group will be meeting monthly via Zoom on the third Wednesday at 1 pm PT, starting on June 15, 2022. The first meeting will feature renal nutritionist and kidney transplant recipient Lubna Akbany, RDN, CSR. Read about Ms. Akbany at https://www.rsnhope.org/rsn-blog/meet-renal-nutritionist-lubna-akbany-rdn-csr/. Find out more about the group at https://www.rsnhope.org/rsn-events/rsn-zoom-room-meetings/, and use the form on the bottom of that page to Register for the meetings. The form appears to apply to the September meeting, but that date belongs to the Book Club meeting description above the form; specify the Kidney Kin Foodies Group by clicking the button at “Third Wednesdays…” on the form itself.

5/18 NKF/CareDx Webinar on Transplant and Mental Health

NKF and CareDx will present a May 18, 2022 webinar for everyone in the transplant community on Mental Health Matters. Find details and register at https://go.caredx.com/webinar/mental-health-matters/. If the time is inconvenient for you, register anyway and the sponsors will send you a recording after the webinar.

Mental Health Bulletin Board

Social workers have shared with the Network that some dialysis patients are reluctant to disclose or discuss their depression or other mental health concerns. One way to address this is to provide psychological education via a mental health-themed bulletin board. The following downloadable patient-focused materials have been reviewed and recommended by ESRD Network 16 advisors as good candidates for a facility Mental Health Bulletin Board:

• Alliant Health Solutions:
  • Zone Tool: Self-Management for Depression, https://s3.us-west-2.amazonaws.com/nwrn.org/files/P/alliant-zone-tool-depression-508.pdf.
  • Relax, Refresh… Reset (English), https://s3.us-west-2.amazonaws.com/nwrn.org/files/P/alliant-relax-refresh-reset-flyer.pdf.
  • Relájate, Refresca, ¡Restablecimiento! (Spanish), https://s3.us-west-2.amazonaws.com/nwrn.org/files/P/alliant-relax-refresh-reset-flyer-spanish.pdf.

• National Forum of ESRD Networks, Dialysis Patient Depression Toolkit in English and Spanish, https://s3.us-west-2.amazonaws.com/nwrn.org/files/P/natl-forum-esrd-networks-depression-toolkit.pdf.

• Comagine Health ESRD Network 16, Warmline Directory for the Pacific Northwest States, https://s3.us-west-2.amazonaws.com/nwrn.org/files/P/comagine-esrd-warmline.pdf.

• National Institute for Mental Health, My Mental Health: Do I Need Help? – https://s3.us-west-2.amazonaws.com/nwrn.org/files/P/nih-my-mental-health-508.pdf.

• Anxiety & Depression Association of America, How to Deal with Stress and Anxiety, https://s3.us-west-2.amazonaws.com/nwrn.org/files/P/adaa-stress-anxiety-tips.pdf.

2/1+ UCLA on Staying Healthy in 2022

The theme for the 2021-22 Virtual UCLA CORE Kidney Monthly Chat is Staying Healthy in 2022!!! These free global interactive webinars focusing on COVID, mental and physical health, and diet will be held on February 1, March 1, April 1, May 1, and June 1, 2022. For more information and registration see https://uclahs.zoom.us/webinar/register/WN_GxLIlyDwSmmDssQCvBL0Xw.

4/13+ DPC Telephone Support Group

Dialysis Patient Citizens has begun hosting a one-hour Support Group call for CKD patients, at noon PT on the second Tuesday of each month. Find details and register at https://www.dpcedcenter.org/news-events/news/join-us-for-our-new-patient-support-group/. Find more information and a link to a downloadable poster at https://nwrnbulletins.wordpress.com/2021/03/02/3-9-new-dpc-telephone-support-group/.

3/9+ New DPC Telephone Support Group

Dialysis Patient Citizens is initiating a new patient support group via telephone, on the second Tuesday of every month at noon PT. Each call will be facilitated by a person living with CKD and a healthcare practitioner. To join a call, dial 866-808-5953 and enter meeting code 253 841 3353. Find more information at https://www.dpcedcenter.org/wp-content/uploads/2021/02/DPC-Support-Group-by-Telephone-Flyer-2.pdf and below:

RSN Podcast on Paying for Treatment

The Renal Support Network KidneyTalk program presents a recorded podcast on Paying for Dialysis or Transplant. Founder Lori Hartwell asks Beth Witten, LCSW, for an overview of her wealth of knowledge about the complexities of health insurance coverage of kidney disease. Find this podcast at https://www.rsnhope.org/kidneytalk/paying-for-dialysis-or-transplant/, and a catalog of past KidneyTalk recordings at https://www.rsnhope.org/kidneytalk-podcast-show-kidney-disease/.

2/2 NCC Webinar re Network Help

The ESRD National Coordinating Center will host a February 2, 2021 webinar on Understanding the Role of Network Patient Services During COVID-19. For more information and registration, see https://esrdncc.org/en/events/2021/february-2021/covid02022021/?date=2/1/2021.

1/27 SSA Ticket to Work Webinar

The Social Security Administration will present a January 27, 2021 Work Incentive Seminar Event webinar on Choosing a Service Provider That’s Right for You. The webinar will cover the free services and support available to eligible people with disabilities and share how you can evaluate the available service providers. Find more information and register at https://choosework.ssa.gov/wise.