UM-KECC Survey: Life Goals and Care Team

The University of Michigan KECC is conducting an ESRD Patient Reported Outcomes Quality Initiative Project Patient Life Goals Study, and seeks dialysis patients at least 18 years old to answer a new Survey that asks about your individual life goals and your dialysis facility care team.  Life goals are personal goals that you think are important to achieve, such as having the ability to go to work, go to school, travel, or spend time with family.  The Study aims to improve the odds that your care team will consider your individual life goals in the treatment planning process.  Find an introductory letter and the Survey at https://redcapproduction.umms.med.umich.edu/surveys/index.php?s=DT4N3P48AC.  There’s an easy-to-miss check box at the bottom of this page, which you have to check before the Survey questions appear.  The Survey doesn’t seem to specify an expiration date.

5/26+ COVID-19 Weekly Webinars

A number of organizations are hosting weekly webinars on COVID-19.  These include:

  • ESRD NCC half-hour “Quickinars” for providers and patients.   Find more information, recordings of past Quickinars, and register for current presentations at https://esrdncc.org/quickinars:
      • Tuesday May 26, 2020 patient Quickinar on Combating Uncertainty and Fear in the COVID-19 Era (En Español), presented by a PD patient, Network Ambassador, and patient and family engagement SME.  She will share how Spanish-speaking patients are coping with fears surrounding COVID-19, and Provide links to COVID-19 information in Spanish.
      • Wednesday May 27, 2020 provider Quickinar on COVID-19 Communication – Quick Tips to Connect, presented by the Director of Outreach and Development for the non-profit Academy of Communication in Healthcare, Editor-in-Chief for the Journal of Patient Experience, and Assistant Clinical Professor at Vanderbilt University School of Medicine.

5/19+ COVID-19 Weekly Webinars

A number of organizations are hosting weekly webinars on COVID-19.  These include:

  • ESRD NCC half-hour “Quickinars” for providers and patients at 2 pm PDT.   Find more information, recordings of past Quickinars, and register for current presentations at https://esrdncc.org/quickinars:
    • Tuesday May 19, 2020 patient Quickinar on Caregiving During COVID-19: Tips from Kidney Caregivers, presented by a caregiver and a Network Patient Services Director.
    • Wednesday May 20, 2020 provider Quickinar on What to Do and Say to Support Psychological Safety During the COVID-19 Pandemic, presented by a nurse who uses “a human-centered co-design approach [as] she works with healthcare leaders to generate flourishing cultures and exceptional outcomes by integrating patient/family experience, quality, safety, and joy in work.”

5/2 Five NKF Webinars on Kidney Disease Topics

NKF will present a May 2, 2020 half-day series of five webinars for patients on current kidney-disease topics called Virtual Education Series: Connect, Learn, and Share.  You can choose any or all of the 30- to 45-minute sessions, and they’ll be recorded for later viewing.  The topics are:

  • Coping with a Chronic Illness: Dealing with Emotions and Finding Support
  • Tips for Kidney Friendly Eating on a Budget
  • Fitness and Kidney Health
  • Telemedicine 101: What to Expect When Seeing Your Doctor at Home
  • Let’s Talk about Transplant: Real Patient Stories

Each webinar will be co-led by a healthcare professional and a patient.  Find more information and register at https://www.kidney.org/events/local-event/virtual-education-series-connect-learn-and-share.

RSN Podcasts on Hospitalization, Emotional Balance

RSN KidneyTalk has published two new podcasts on:

RSN KidneyTalk re Boundaries

In Blurred Lines: Keeping Safe Boundaries at a Dialysis Clinic, Lori and Network 18 Patient Services Director Eileen Rhodes discuss the problems that can arise when patients and staff become friends.  Find this recorded podcast at https://www.rsnhope.org/kidneytalk/blurred-lines-keeping-safe-boundaries-at-a-dialysis-clinic/.

Previous podcasts can be found at https://www.rsnhope.org/, along with information about the Renal Support Network’s Annual Teen Prom, Annual Essay Contest, Monthly Support Group Meetings, Public Speaking Training, KidneyTalk Magazine, HOPEline Peer Support Hotline, KidneyTalk Blog, Renal Recipes, and the many other services RSN provides for ESRD patients.

Winter 2020 Patient Newsletters

We’ve published our Patient Newsletters for Winter 2020.  They feature articles on treatment options, flu shots, grievances, access to care, how to stay informed by the Network, and how to help the Network improve patient care.  Find them at:

4/25 NKF Patient Lifestyle Workshop in Seattle

NKF and Swedish Medical Center will present an April 25, 2020 four-hour workshop on Lifestyle & Kidney Health: Diet, Exercise, Weight Loss and Beyond.  Topics will include nutrition, diabetes, blood pressure, fitness, and transplant preparation.  Lunch will be provided.  See below for full details:

RSN Podcast on “Keep on Believing”

The Renal Support Network has published a podcast called Keep on Believing, featuring an interview with America’s Got Talent superstar and kidney transplant recipient (at age 4) Angelica Hale.  Angelica advises, “Never give up and keep on dreaming.  Keep on believing in yourself.  No matter what you are going through, you can still achieve your dreams and reach your goals.”  Find the podcast at https://www.rsnhope.org/kidneytalk/keep-on-believing/.

NW16 11/1+ CNSW-NW Fall Conference, Issaquah WA

November 1, 2019 is the registration deadline for the November 8 CNSW NW Chapter Fall 2019 Educational Conference in Issaquah WA.  Ignore the earlier deadline on the Conference brochure (https://s3-us-west-2.amazonaws.com/nwrn.org/files/CNSW/CNSW_Fall.2019.pdf), and use the registration form at https://s3-us-west-2.amazonaws.com/nwrn.org/files/CNSW/CNSW.REG.Fall.2019.pdf to RSVP.  Conference topics include ethics, mental health, end of life, patient support, patient engagement, and patient collaboration, with 6.5 CEUs offered.