Dialysis Patient Citizens has begun hosting a one-hour Support Group call for CKD patients, at noon PT on the second Tuesday of each month. Find details and register at https://www.dpcedcenter.org/news-events/news/join-us-for-our-new-patient-support-group/. Find more information and a link to a downloadable poster at https://nwrnbulletins.wordpress.com/2021/03/02/3-9-new-dpc-telephone-support-group/.
Dialysis Patient Citizens is initiating a new patient support group via telephone, on the second Tuesday of every month at noon PT. Each call will be facilitated by a person living with CKD and a healthcare practitioner. To join a call, dial 866-808-5953 and enter meeting code 253 841 3353. Find more information at https://www.dpcedcenter.org/wp-content/uploads/2021/02/DPC-Support-Group-by-Telephone-Flyer-2.pdf and below:
The Renal Support Network KidneyTalk program presents a recorded podcast on Paying for Dialysis or Transplant. Founder Lori Hartwell asks Beth Witten, LCSW, for an overview of her wealth of knowledge about the complexities of health insurance coverage of kidney disease. Find this podcast at https://www.rsnhope.org/kidneytalk/paying-for-dialysis-or-transplant/, and a catalog of past KidneyTalk recordings at https://www.rsnhope.org/kidneytalk-podcast-show-kidney-disease/.
The ESRD National Coordinating Center will host a February 2, 2021 webinar on Understanding the Role of Network Patient Services During COVID-19. For more information and registration, see https://esrdncc.org/en/events/2021/february-2021/covid02022021/?date=2/1/2021.
The Social Security Administration will present a January 27, 2021 Work Incentive Seminar Event webinar on Choosing a Service Provider That’s Right for You. The webinar will cover the free services and support available to eligible people with disabilities and share how you can evaluate the available service providers. Find more information and register at https://choosework.ssa.gov/wise.
Bob Crabtree and Don Chriscaden, founders of The Road Back to Life, are starting a Zoom kidney patient support group on December 1, 2020 at 2pm PST, with a calendar of future meetings to be posted. By way of introduction, Don says, “This is intended to be a time when we can feel free to talk about anything, from just saying hello to discussing what life has brought your way. This will be a time to talk to friends or make new friends in an informal environment. Let us learn to talk to people and laugh, cry or whatever is appropriate again.” Join the meeting at https://us02web.zoom.us/j/88934911182.
The ESRD National Coordinating Center will present an October 8, 2020 webinar at noon PDT on The Kidney Caregiver Peer Connection Call. Too often the only person that can understand what you’re going through is someone who’s been there. The webinar is open to caregivers and patients who are affected by CKD, and offers strategies for wellness and support from fellow caregivers and care partners. To listen to the presentation, call 844-740-1264 and enter access code 133 121 4744. Find the video (without sound) by clicking HERE and enter Webex event number 133 121 4744 and password Peer2020! (including the exclamation point at the end).
CMS has prepared a press release summarizing the steps that Medicare has taken in Oregon to help make health care available to wildfire victims, including opening special enrollment periods to allow out-of-season initiations or changes to Medicare coverage, various kinds of assistance to healthcare facilities, and help to displaced dialysis patients. Find the press release at https://www.cms.gov/newsroom/press-releases/cms-offers-comprehensive-support-oregon-due-wildfires.
The ESRD NCC’s COVID-19 half-hour “Quickinars” have morphed to one-hour webinars. The September webinars include:
- For patients, September 8, 2020 – Choosing a Kidney Transplant during COVID-19, 1-2 pm PDT.
- For providers, September 16, 2020 – Living in a Multi-Generational Household, noon-1 pm PDT.
For details and registration, see https://esrdncc.org/en/covid-19/covid-webinars/. You can also find links to recordings of previous webinars there.
Quality Insights (ESRD Network 5), the Coalition for Supportive Care of Kidney Patients, and the Medical Technology & Practice Patterns Institute will present a free August 20, 2020 webinar, repeating it August 26, on Maintaining Emotional Balance in an Unbalancing Time. The webinar will discuss how providers can respond to dialysis patients and their families when they encounter hard questions and emotional distress about COVID-19, including strategies for responding to anxiety and fear, the dialysis facility as a source of stability, and ways to honor the memory of patients who have passed. Free CE credits will be available. Register for the August 20 session at https://www.surveymonkey.com/r/CSCKP8202020 or the August 26 session at https://www.surveymonkey.com/r/CSCKP08262020. See below for details: