1/23+ Pediatric Palliative Care Webinars

The Pediatric Palliative Care Coalition has announced their 2020 webinar program, with presentations on:

  • January 23, 2020 –  Decoding Decision-Making with Families
  • February 18, 2020 – Burnout! Can Compassion Fatigue?
  • March 12, 2020 – Spirituality in Children and Families Facing Serious Illness
  • April 21, 2020 – Together in the Sandbox: Palliative Care and Complex Care Partnerships in the Medical Neighborhood
  • May 21, 2020 – Guiding Families to Mindfulness Supports Decision Making for Adults & Children
  • June 16, 2020 – Ethical Questions in Pediatric Palliative Care
  • July 21, 2020 – Beyond Fairytale Endings: Using Storybooks and other therapeutic tools to Explain Death and Dying to Children
  • August 20, 2020 – Pediatric Concurrent Care
  • September 22, 2020 – Explaining Pain: Pain Education and Mind-Body Tools for Pediatric Chronic Pain
  • October 22, 2020 – Through the Eyes of a Grieving Child
  • November 17, 2020 – Partnering with Funeral Professionals to Support Families Following the Death of A Child

For details and registration, see https://mailchi.mp/jacobsheart/ppc-webinar-jan-2020?mc_cid=53dd803107&mc_eid=67e1ad4c31.

5/8-12 NKF Spring Clinical Meetings, Boston

The National Kidney Foundation 2019 Spring Clinical Meetings (SCM19) present a unique opportunity for renal health care providers to learn new developments related to all aspects of nephrology.  An important objective of SCM19 is to present the latest insights into CKD care through a combination of interesting courses, practical workshops, thought-provoking symposia and insightful debates.  SCM19 will be held May 8-12, 2019 in Boston MA.  In-person registration is allowed, but many registration fees are discounted if you register online before May 6.

Extra-cost pre-conference course topics on May 8 include dialysis success, vascular access, ultrasound, supportive care, and updates on new developments in transplant, critical care, and glomerular disease.  Topics for extra-cost lunch workshops during the conference will include vascular access, electrolytes, hyponatremia, glomerular disease, reproductive health, hypertension, communication, and board review.  For those unable to attend in person, live-streamed conference sessions will be available on burnout, obesity, safety, fluid management, opioids, social media, diabetes, community, lifestyle interventions, palliative care, and KDOQI update.

For more information and registration, see https://www.kidney.org/spring-clinical.

11/15 Webinar on Supportive Care

The Coalition for Supportive Care of Kidney Patients will present a 15 November 2018 webinar on Mapping the Future: Implementation Strategies for Kidney Supportive Care.  This is the first in a series of webinars that parallels a series of Nephrology News & Issues articles on “supportive care” for kidney patients that will begin in the November 2018 issue.  Direct any questions you have to Kelly Brooks at kbrooks@nw5.esrd.net or 804-320-0004 x2706

Register for the webinar at https://qualitynet.webex.com/mw3300/mywebex/default.do?nomenu=true&siteurl=qualitynet&service=6&rnd=0.9781770900950815&main_url=https%3A%2F%2Fqualitynet.webex.com%2Fec3300%2Feventcenter%2Fevent%2FeventAction.do%3FtheAction%3Ddetail%26%26%26EMK%3D4832534b00000004cb0a9a58476d6bd293b5a9f17210c9e047618e1f532c1a7922440c6f4b391fed%26siteurl%3Dqualitynet%26confViewID%3D107244241343796963%26encryptTicket%3DSDJTSwAAAATkodchRe-HYk3NR3hmhP3ljworAPoym4g8yOkYBUMOqg2%26.

Current plans include future webinars in the series on Providing Supportive Care: Tools & Resources for the Journey in December and Best Case/Worst Case and Older Patients in January.  Once they are scheduled, you can register for these webinars at https://qualitynet.webex.com/mw3300/mywebex/default.do?siteurl=qualitynet&service=6.

The Coalition for Supportive Care is an evolution of the earlier Kidney End-of-Life Coalition.  Their mission is to “Promote effective interchange among patients, families, healthcare professionals, and payers to ensure the provision of patient-centered supportive care for patients with kidney disease.  Supportive care is the continuum of palliative care and includes providing patients with relief from the symptoms, pain, and stress of a serious illness.  The goal of the Coalition is to improve the quality of life for both patients and families from the time of diagnosis through to end-of-life care.”  Find out more about the Coalition for Supportive Care at https://kidneysupportivecare.org/Home.aspx.

11/13+ CCCC Pediatric Webinars

The Coalition for Compassionate Care of California will host two more presentations this year in their Pediatric Webinar Series.  The first will be 13 November on Getting a Better Handle on Parents’ Bereavement: Supporting Parents Anticipating Their Child’s Death and Afterwards, and the second 6 December on Deep in the Weeds: Medical Marijuana and Pediatric Palliative Care.  Find out more and register at https://mailchi.mp/coalitionccc.org/2018-spring-education-schedule-744635?e=67e1ad4c31.

Along with the Children’s Hospice Palliative Care Coalition, CCCC will also co-sponsor the 2019 Palliative Care Summit April 8-9, 2019 in San Francisco.  For more information see http://ccccsummit.org/.  Registration gets progressively more expensive after January 31, March 7, and April 1, 2019.

9/25+ CCCC News

News about Coalition for Compassionate Care of California events:

  • April 8-9, 2019: CCCC Annual Summit, San Francisco, for everyone who wants to learn more about palliative care, share innovative practices and be part of a growing movement to improve the care of seriously ill people of all ages.  For details see http://ccccsummit.org/?mc_cid=9688cbc52e&mc_eid=67e1ad4c31.

* Check with CCCC about times for these webinars; their bulletin says PST, but the rest of California is on PDT, so it’s hard to say which they intend.

NW18 1/30 CCCC Palliative Care Webinar

CCCC will present a January 30, 2018 webinar on Adding Palliative Care Services to Your Hospice License in California as allowed by new California law SB294.  The webinar will be free to members of CCCC and partner organizations.  For details and to register, see https://mailchi.mp/coalitionccc/upcoming-education-opportunities-from-cccc-743973.